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  • Ratatosk's Avatar
    06-11-2019, 01:03 PM
    Welcome back! Glad to hear your daughter is doing so well and that you're being proactive with treatments! CF can be such a sneaky, progressive...
    12 replies | 11415 view(s)
  • Ratatosk's Avatar
    06-07-2019, 03:50 PM
    Ratatosk replied to a thread Who are you in a nut shell in Adults
    Using Google Translate: This message is a little old. But if you're still here, give me a sign. And we are from Bucharest and one of the mutations...
    767 replies | 250208 view(s)
  • Ratatosk's Avatar
    06-06-2019, 02:09 PM
    Ratatosk replied to a thread Advice in Adults
    I'd be curious to find out how many mutations they actually tested you for. A lot of times after a sweat test, they'll only test for the most common...
    7 replies | 1576 view(s)
  • Ratatosk's Avatar
    06-05-2019, 08:16 AM
    Just a little update on our non-covered nebulizer cup drama. Just got a statement of benefits from insurance showing why they denied the request and...
    3 replies | 620 view(s)
  • Ratatosk's Avatar
    05-30-2019, 10:37 AM
    I don't even like taking the ones at the clinic from the dispenser and bring our own. With the quote from the CF Foundation, we'd never, ever use a...
    7 replies | 3587 view(s)
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About Ratatosk

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Parent to a child wcf double delta f508.

Started Orkambi July 2015
Began Symdeko August 2018

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04-05-2006
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