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    11-28-2018, 12:33 PM
    emason started a thread Tracheal Tug in Families
    Hi everyone! I'm wondering if anyone has any ideas about this. My 4.5 year old has a CRMS dx (1 classic CF mutation, 1 rare variable mutation,...
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    Thanks so much for your reply. I'm just seeing this message now as I haven't logged in since Sept. I have my child's third sweat test tomorrow and am freaking out a bit. I would like to join the group, but would it show to all my friends? I feel like this is my son's info to share if/when ready. I would love to chat directly. If you ever have the time, please drop me an email at [email protected].
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    Hello! Per your question, my baby has Delta 508 an Y 101c4. I'm so terribly scare re crms still. Do you have any advice? Every time I kiss him I think he's so incredibly salty and now has cf. I'm afraid of water, taking him around other babies etc. If you have any insight, it would be much appreciated.
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