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    09-16-2018, 11:36 PM
    emason replied to a thread ΔF508 and R334Q in DNA and Mutations
    No experience with r334q but my son has df508 plus a varying consequence mutation (which I believe r334q also is) and he is also dx crms. He's 4...
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    Thanks so much for your reply. I'm just seeing this message now as I haven't logged in since Sept. I have my child's third sweat test tomorrow and am freaking out a bit. I would like to join the group, but would it show to all my friends? I feel like this is my son's info to share if/when ready. I would love to chat directly. If you ever have the time, please drop me an email at [email protected].
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    Hello! Per your question, my baby has Delta 508 an Y 101c4. I'm so terribly scare re crms still. Do you have any advice? Every time I kiss him I think he's so incredibly salty and now has cf. I'm afraid of water, taking him around other babies etc. If you have any insight, it would be much appreciated.
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