Tab Content
  • ethan508's Avatar
    06-22-2018, 03:14 PM
    ethan508 replied to a thread Symdeko Headache in Adults
    I have checked my O2 twice when waking up early AM. Without headache I was 50 bpm and 98% O2, with headache I was 68 bpm and 97% O2. The increase...
    3 replies | 1380 view(s)
  • ethan508's Avatar
    06-15-2018, 12:16 PM
    ethan508 started a thread Symdeko Headache in Adults
    I am switching from Orkambi to Symdeko because the Orkambi had consistently increased the tight feeling in my breathing despite me picking up...
    3 replies | 1380 view(s)
  • ethan508's Avatar
    06-15-2018, 12:02 PM
    ethan508 replied to a thread Question about order in Adults
    Thanks for posting that study Stephan, very interesting.
    11 replies | 2014 view(s)
No More Results
About ethan508

Basic Information

Signature


Thirtysomething Dad of three (IVFw/ICSI), Mormon, Engineer in Utah.
I was dx at 1 yr (failure to thrive), D▲F508, FEV1~94%, PA and MSSA, PI.
2 brothers w/CF, 3 siblings w/out. My wife and parents are saints.

Statistics


Total Posts
Total Posts
279
Posts Per Day
0.22
General Information
Last Activity
07-09-2018 10:17 AM
Join Date
01-24-2015
Referrals
0