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  • ethan508's Avatar
    05-02-2018, 08:06 AM
    I've never wanted a transplant, I would get one for only 1 reason and that is if my kids were still minors. I say that now, but I know the immediacy...
    3 replies | 658 view(s)
  • ethan508's Avatar
    04-20-2018, 12:54 PM
    I'm looking to switch from Orkambi to Symdeko at my next clinic appointment in May. Hoping for results like Stephen and Penny had. I've been on...
    13 replies | 3396 view(s)
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About ethan508

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Thirtysomething Dad of three (IVFw/ICSI), Mormon, Engineer in Utah.
I was dx at 1 yr (failure to thrive), D▲F508, FEV1~94%, PA and MSSA, PI.
2 brothers w/CF, 3 siblings w/out. My wife and parents are saints.

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05-17-2018 07:55 AM
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01-24-2015
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