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  • ethan508's Avatar
    Yesterday, 03:14 PM
    ethan508 replied to a thread Symdeko Headache in Adults
    I have checked my O2 twice when waking up early AM. Without headache I was 50 bpm and 98% O2, with headache I was 68 bpm and 97% O2. The increase...
    3 replies | 734 view(s)
  • ethan508's Avatar
    06-15-2018, 12:16 PM
    ethan508 started a thread Symdeko Headache in Adults
    I am switching from Orkambi to Symdeko because the Orkambi had consistently increased the tight feeling in my breathing despite me picking up...
    3 replies | 734 view(s)
  • ethan508's Avatar
    06-15-2018, 12:02 PM
    ethan508 replied to a thread Question about order in Adults
    Thanks for posting that study Stephan, very interesting.
    11 replies | 1760 view(s)
  • ethan508's Avatar
    06-09-2018, 08:14 AM
    ethan508 replied to a thread Question about order in Adults
    I want a doctor/pharmacist (or at least a direct quote from one) to support a claims like "Nothing should be nebulized" on top of Pulmozyme. Not all...
    11 replies | 1760 view(s)
  • ethan508's Avatar
    06-06-2018, 12:42 PM
    ethan508 replied to a thread What do you say you do? in Adults
    I'm not without a job yet, but I have practiced the art of deflection when I don't want to talk about things (my cough, bad guts, did we use...
    2 replies | 644 view(s)
  • ethan508's Avatar
    06-06-2018, 11:32 AM
    ethan508 replied to a thread Question about order in Adults
    I second kenna's response with one exception. I do airway clearance (vest) concurrent with my nebulized medicines, stopping to huff cough as needed.
    11 replies | 1760 view(s)
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About ethan508

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Thirtysomething Dad of three (IVFw/ICSI), Mormon, Engineer in Utah.
I was dx at 1 yr (failure to thrive), D▲F508, FEV1~94%, PA and MSSA, PI.
2 brothers w/CF, 3 siblings w/out. My wife and parents are saints.

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