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  • LunaFaith's Avatar
    08-02-2017, 01:23 PM
    I didn't want numbers or percentages so much as to know it's not really rare, its comforting to know that there are others who have an unknown...
    6 replies | 1831 view(s)
  • LunaFaith's Avatar
    07-27-2017, 05:38 PM
    I actually go to UNC for my CF treatment so I find that very interesting/amusing. I actually did look up the 2789+5g in the CFTR2 database I found...
    6 replies | 1831 view(s)
  • LunaFaith's Avatar
    07-27-2017, 05:29 PM
    LunaFaith replied to a thread taking Ivacaftor? in Adults
    on my consent paperwork has this on it, hopefully some part of this is helpful, I also have yet to be contacted so I may not have qualified, they ran...
    22 replies | 4187 view(s)
  • LunaFaith's Avatar
    07-22-2017, 05:01 PM
    sorry to hear that, when the subject came up my doctor had no problem with me using marijuana provided I don't smoke it, is your doctor a resident or...
    5 replies | 1362 view(s)
  • LunaFaith's Avatar
    07-22-2017, 04:45 PM
    I have been sorting through the records I have from clinic and hospitalizations and found a document that lists my genotype 2789+5g->a / unknown...
    6 replies | 1831 view(s)
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    Hi, My name is LeAnn. I have the mutation 2789+5g<A is this your mutation also?
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