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  • jricci's Avatar
    08-14-2017, 02:11 PM
    jricci replied to a thread Two Years Ago in Adults
    This is such a beautiful reflection. I've had the exact same thoughts and feelings since taking my first dose of Kalydeco on November 6, 2014....
    7 replies | 641 view(s)
  • jricci's Avatar
    08-07-2017, 10:32 AM
    jricci replied to a thread taking Ivacaftor? in Adults
    I hope she does well with it. I remember how exciting that first dose was. I was so hopeful that it would work, but yet so worried that it...
    22 replies | 4113 view(s)
  • jricci's Avatar
    08-01-2017, 09:12 AM
    jricci replied to a thread taking Ivacaftor? in Adults
    I thought I'd tag everyone in this tread to make sure they are aware of lastest Vertex press release:...
    22 replies | 4113 view(s)
  • jricci's Avatar
    08-01-2017, 09:07 AM
    Thanks for always keeping us informed of latest news Aboveallislove! This is wonderful news!
    2 replies | 844 view(s)
  • jricci's Avatar
    07-28-2017, 02:06 AM
    jricci replied to a thread taking Ivacaftor? in Adults
    Here's some more information regarding Expanded Access Program offered by Vertex that I think you are referring to: Program designed for...
    22 replies | 4113 view(s)
  • jricci's Avatar
    07-24-2017, 10:15 PM
    jricci replied to a thread American Healthcare Act in Adults
    Rx for health care reform: bipartisanship article-- ...
    37 replies | 5212 view(s)
  • jricci's Avatar
    07-24-2017, 10:12 PM
    jricci replied to a thread American Healthcare Act in Adults
    From CFRI: Just when we thought we could relax, the Senate has announced that it will vote on an undetermined form of health care legislation as...
    37 replies | 5212 view(s)
  • jricci's Avatar
    07-18-2017, 04:43 PM
    Thanks for sharing Aboveallislove! These are incredible results! Happy tears:) Summary of Results: In the Phase 2 clinical trial of VX-440...
    8 replies | 1903 view(s)
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About jricci

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45 y/o with CF (R334W and DF508)

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