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  • jricci's Avatar
    02-13-2018, 11:24 PM
    jricci replied to a thread Guardedly EXCITED??! in Adults
    Absolutely :) I think it will be a game changer for many--especially those with DDF508 that weren’t able to tolerate Orkambi’s side-effects. It...
    6 replies | 1050 view(s)
  • jricci's Avatar
    02-13-2018, 09:27 AM
    jricci replied to a thread Guardedly EXCITED??! in Adults
    ToriMom- The drug this news article is referring to isn't the triple combo. This new drug (Smydeko) will treat those with DDF508 and it will also...
    6 replies | 1050 view(s)
  • jricci's Avatar
    02-12-2018, 10:51 PM
    Sorry to hear you have to deal with this. From what I’ve heard about these modulators, I would recommend tapering dose slowly down so it’s not as...
    7 replies | 1050 view(s)
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About jricci

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45 y/o with CF (R334W and DF508)

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