• LittleLab4CF's Avatar
    03-24-2017, 07:21 PM
    I discovered that a suspicion I have held for a long time about CF isn't an original thought. Imogene, our fearless Founder of CysticFibrosis.com...
    33 replies | 1905 view(s)
  • LittleLab4CF's Avatar
    03-23-2017, 12:20 AM
    Sunny 9432, I hope that I didn't offend you. I appreciate your time taken to clarify a lot of issues CFers and the parents of CFers face. You...
    33 replies | 1905 view(s)
  • LittleLab4CF's Avatar
    03-21-2017, 03:10 AM
    Wow! I'm impressed with your entire post and it's apparent that you are privy to information not commonly available. I quoted your description of...
    5 replies | 724 view(s)
  • LittleLab4CF's Avatar
    03-21-2017, 01:33 AM
    The large amount of blood he's been coughing up are very likely hemoptysis. My first incident of hemoptysis was a surprise. I can't remember if I...
    33 replies | 1905 view(s)
  • LittleLab4CF's Avatar
    03-18-2017, 11:28 PM
    I am not particularly encouraged by my limited searches for other people with my mutation set. As much as we'd like to be able to look at somebody's...
    30 replies | 1232 view(s)
  • LittleLab4CF's Avatar
    03-13-2017, 05:00 PM
    Holy Crap!!! And all this time I was confident that we were protected by GINA. Thanks for the update, I'm not going to leave this one alone, LL
    2 replies | 469 view(s)
  • LittleLab4CF's Avatar
    03-13-2017, 04:28 PM
    Sunny9432, Forgive yourself for taking 12 years to arrive at a diagnosis. As Printer noted, you will discover people on this site who weren't...
    33 replies | 1905 view(s)
  • LittleLab4CF's Avatar
    03-13-2017, 03:41 AM
    LittleLab4CF replied to a thread DiOS in Adults
    Beautifulsoul, You're mentioning Reglan brought back memories of having to get it from Canada because of the restrictions​ in the U.S. I never...
    8 replies | 650 view(s)
  • LittleLab4CF's Avatar
    03-12-2017, 05:54 PM
    LittleLab4CF replied to a thread DiOS in Adults
    I am sorry to hear of your issue with DIOS, or Distal Intestinal Obstruction Syndrome. It is common in CF, however, its popularity in no way...
    8 replies | 650 view(s)
  • LittleLab4CF's Avatar
    03-07-2017, 01:46 AM
    LittleLab4CF replied to a thread Celebrex?? in Adults
    My hope is you have seen or talked with your doctor. Hopefully you are getting some relief. Not to presume to advise, but with the nebulous nature...
    7 replies | 806 view(s)
  • LittleLab4CF's Avatar
    03-04-2017, 04:14 PM
    LittleLab4CF replied to a thread sweating in the night in Adults
    Thank you for answering one of MY mysteries. For several years (4) I have been increasingly intolerant of heat, in particular being outside in the...
    25 replies | 2995 view(s)
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About LittleLab4CF

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66 yr. old man, DX CF 2002 by sweat test. Heterozygous S1235R revealed by genetic testing in 2003 & 2012 accepted secondary mutation. 7T, 7T polymorphism appears to be virulent.

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