• LittleLab4CF's Avatar
    05-21-2017, 07:37 PM
    This is great news about your mutation and Kalydeco. Considering that Orkambi is effective for ∆F508 and Orkambi is a combination of a CFTR...
    7 replies | 1144 view(s)
  • LittleLab4CF's Avatar
    05-18-2017, 06:30 AM
    Don't be frightened. Most late diagnosed CFers will tell you that it's far better to delay diagnosis than being diagnosed at birth. Some of it is...
    7 replies | 1144 view(s)
  • LittleLab4CF's Avatar
    05-16-2017, 01:48 AM
    As soon as drugs like Kalydeco became available, my focus on CF turned to MDR or Multiple Drug Resistant bacteria, same thing as Pan-Resistant...
    2 replies | 527 view(s)
  • LittleLab4CF's Avatar
    05-08-2017, 07:49 AM
    Ooh, heartburn, if that's what it is, might be a standard symptom of CF. I'm frequently saying that I have GI dominant CF, a less serious form of...
    4 replies | 335 view(s)
  • LittleLab4CF's Avatar
    05-07-2017, 07:14 AM
    LittleLab4CF replied to a thread Toe Nail Fungus in Adults
    Come to think of it, I do have a certain Guy perspective. In my defense one area I can get into my feminine side is my appreciation for fashion. ...
    8 replies | 1070 view(s)
  • LittleLab4CF's Avatar
    05-06-2017, 05:23 PM
    LittleLab4CF replied to a thread FEV1 and Oxygen needs in Adults
    Julie61554 I'm amazed that you are able to function without oxygen. I'm very curious why you don't need it. In my working years it was common to...
    9 replies | 1634 view(s)
  • LittleLab4CF's Avatar
    05-02-2017, 01:35 AM
    LittleLab4CF replied to a thread new for me in Adults
    Is it possible that your sore throat drainage is the source of the clear/bubbly/thin mucus? Something on the flip side would be aspiration of...
    3 replies | 512 view(s)
  • LittleLab4CF's Avatar
    04-26-2017, 11:57 PM
    LittleLab4CF replied to a thread Dios in Adults
    It's definitely associated with CF and it seems only CF. Being a person who distrusts almost everything, especially when it comes to absolutes​, I...
    6 replies | 610 view(s)
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About LittleLab4CF

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66 yr. old man, DX CF 2002 by sweat test. Heterozygous S1235R revealed by genetic testing in 2003 & 2012 accepted secondary mutation. 7T, 7T polymorphism appears to be virulent.


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