Conversation Between emason and jsg

3 Visitor Messages

  1. Thanks so much for your reply. I'm just seeing this message now as I haven't logged in since Sept. I have my child's third sweat test tomorrow and am freaking out a bit. I would like to join the group, but would it show to all my friends? I feel like this is my son's info to share if/when ready. I would love to chat directly. If you ever have the time, please drop me an email at [email protected].
  2. Oh I am so sorry! I never was notified that you messaged me. We have a CRMS group on Facebook if you are interested?

    Honestly it gets better! It's hard in the beginning because you are always looking for signs but eventually it becomes a new normal and it's not as overwhelming. You really should come to the Facebook group! We have over a hundred members who have a child(ren) with CRMS!
  3. Hello! Per your question, my baby has Delta 508 an Y 101c4. I'm so terribly scare re crms still. Do you have any advice? Every time I kiss him I think he's so incredibly salty and now has cf. I'm afraid of water, taking him around other babies etc. If you have any insight, it would be much appreciated.
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