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ladybug
08-18-2007, 01:06 AM
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.

ladybug
08-18-2007, 01:06 AM
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.

ladybug
08-18-2007, 01:06 AM
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.

ladybug
08-18-2007, 01:06 AM
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.

ladybug
08-18-2007, 01:06 AM
Hello.

Well, on Monday I had a routine clinic visit thinking all my working out and increasing intensity, etc. etc. would at the VERY least stabilize my already decreasing (from hospitalization in Nov.) FEV1. I hadn't been feeling very sick. Coughing a bit more, but thinking that was a good thing cause I'd been working out more, etc.

Now, I find myself typing from a hospital bed. I was admitted immediately after a decrease from 68% FEV1 and 82% FVC in Nov. to 55% FEV1 and 76% FVC now.

Its been tough going. I have been extremely nauseous since they started merropenum and tobra and have slept maybe 3 hours per night since Monday night due to nausea. My anxiety has increased dramatically since being admitted. I am now hooked up to a heartrate monitor for 30 days and its already recorded 2 "incidents" that I didn't feel and happened when I was sleeping this morning and tonight when I was on the phone. When I was on the phone my breath literally got "taken away" to the point I had to put the phone down immediately and ask DH to increase my O2.

Speaking of which... I have now been on continuous O2 (having never needing it before). My sats drop even when sitting in the room to 83%. Crazy. When exercising they won't even let me try to walk without it. I'm so depressed right now and anxious. I was truly not feeling very sick and now I feel terrible and absolutely depressed about it all.

I'm so sorry to vent, but I'm just so disappointed that all this is going downhill so fast. I didn't expect to be in and now that I'm in I feel sick and terrible and anxious and don't really know what to do. Has anyone else had this sort of thing happen?

They're giving me zofran every 8 hours for nausea, but its not really working. I seem to be nauseous every single time I wake up, even though blood glucose is normal.... Then, after about an hour of sitting up I feel better. Any ideas?

They also have been giving me Xanax.... Helps a little with anxiety, but not much.

Anyway, any thoughts or suggestions or anything would be great. I'm here for at least 2 weeks. Urgh.

Thanks for listening to me vent.

AnD
08-18-2007, 02:04 AM
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">

AnD
08-18-2007, 02:04 AM
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">

AnD
08-18-2007, 02:04 AM
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">

AnD
08-18-2007, 02:04 AM
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">

AnD
08-18-2007, 02:04 AM
Oh Sonia, I am so sorry to hear you are in the hospital and feeling so bad!

I was on an anti nausea drug, but I can't remember the name of it at the moment! It is really common, and the nice side effect was that it would knock me out and I would sleep like a baby. I'll find it, and let you know. Can you sleep with the head of your bed propped up?

Have they considered that it may be a reaction to one of your drugs? I had to go into the hospital several years ago because Tobi was making me short of breath. They put me on gentamyacin, and the same thing happened, but with face swelling. Maybe they could try skipping a dose or so of one of your meds at a time, and see if the O2 thing/nausea improves? It seems really wierd that you would be having the SOB thing <i>after</i> being admitted...When will your sputum sample results be back? (I am assuming they did one, of course- if not, make sure they do <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

I will be praying for you! <img src="i/expressions/heart.gif" border="0">

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

JennifersHope
08-18-2007, 03:35 AM
Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess

I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....

Blog your anxiety..

Lot of hugs,

Jennifer

ladybug
08-18-2007, 03:38 AM
Thanks, AnD! Nice to hear from you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Yes, they did a culture, but I have no idea what it came back. They were thinking a reaction to a med was causing the sick to stomach, but the oddest thing is the 3rd day here I felt totally fine and didn't take the anti-nausea med all day (compared to days 2 and 4). Also, I really don't want them to take me off a med cause I've been on them for 4 days already and I kinda freak about resistance and getting a full 14 day course.

The other REALLY weird thing is the nausea only seems bad when first waking from naps or sleep at night. And, as soon as I put my bed up or sit up and sit for awhile it gets better. Odd? I know you mentioned sleeping with my bed propped up and I think I'll try that tonight. Do you have any idea WHY it would be like that? I don't feel reflux-y.... and am on tons of prevacid... plus, I'm not eating much at all that would cause reflux.

Anyway, thanks for your response. Was the med you used phenergan? I used to use that, but this doc doesn't want to Rx it since he says it "supresses breathing" too much. (I should mention this isn't my usual CF doc as she's on vacation <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, thanks again for the thoughts, prayers and info. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:38 AM
Thanks, AnD! Nice to hear from you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Yes, they did a culture, but I have no idea what it came back. They were thinking a reaction to a med was causing the sick to stomach, but the oddest thing is the 3rd day here I felt totally fine and didn't take the anti-nausea med all day (compared to days 2 and 4). Also, I really don't want them to take me off a med cause I've been on them for 4 days already and I kinda freak about resistance and getting a full 14 day course.

The other REALLY weird thing is the nausea only seems bad when first waking from naps or sleep at night. And, as soon as I put my bed up or sit up and sit for awhile it gets better. Odd? I know you mentioned sleeping with my bed propped up and I think I'll try that tonight. Do you have any idea WHY it would be like that? I don't feel reflux-y.... and am on tons of prevacid... plus, I'm not eating much at all that would cause reflux.

Anyway, thanks for your response. Was the med you used phenergan? I used to use that, but this doc doesn't want to Rx it since he says it "supresses breathing" too much. (I should mention this isn't my usual CF doc as she's on vacation <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, thanks again for the thoughts, prayers and info. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:38 AM
Thanks, AnD! Nice to hear from you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Yes, they did a culture, but I have no idea what it came back. They were thinking a reaction to a med was causing the sick to stomach, but the oddest thing is the 3rd day here I felt totally fine and didn't take the anti-nausea med all day (compared to days 2 and 4). Also, I really don't want them to take me off a med cause I've been on them for 4 days already and I kinda freak about resistance and getting a full 14 day course.

The other REALLY weird thing is the nausea only seems bad when first waking from naps or sleep at night. And, as soon as I put my bed up or sit up and sit for awhile it gets better. Odd? I know you mentioned sleeping with my bed propped up and I think I'll try that tonight. Do you have any idea WHY it would be like that? I don't feel reflux-y.... and am on tons of prevacid... plus, I'm not eating much at all that would cause reflux.

Anyway, thanks for your response. Was the med you used phenergan? I used to use that, but this doc doesn't want to Rx it since he says it "supresses breathing" too much. (I should mention this isn't my usual CF doc as she's on vacation <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, thanks again for the thoughts, prayers and info. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:38 AM
Thanks, AnD! Nice to hear from you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Yes, they did a culture, but I have no idea what it came back. They were thinking a reaction to a med was causing the sick to stomach, but the oddest thing is the 3rd day here I felt totally fine and didn't take the anti-nausea med all day (compared to days 2 and 4). Also, I really don't want them to take me off a med cause I've been on them for 4 days already and I kinda freak about resistance and getting a full 14 day course.

The other REALLY weird thing is the nausea only seems bad when first waking from naps or sleep at night. And, as soon as I put my bed up or sit up and sit for awhile it gets better. Odd? I know you mentioned sleeping with my bed propped up and I think I'll try that tonight. Do you have any idea WHY it would be like that? I don't feel reflux-y.... and am on tons of prevacid... plus, I'm not eating much at all that would cause reflux.

Anyway, thanks for your response. Was the med you used phenergan? I used to use that, but this doc doesn't want to Rx it since he says it "supresses breathing" too much. (I should mention this isn't my usual CF doc as she's on vacation <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, thanks again for the thoughts, prayers and info. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:38 AM
Thanks, AnD! Nice to hear from you. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Yes, they did a culture, but I have no idea what it came back. They were thinking a reaction to a med was causing the sick to stomach, but the oddest thing is the 3rd day here I felt totally fine and didn't take the anti-nausea med all day (compared to days 2 and 4). Also, I really don't want them to take me off a med cause I've been on them for 4 days already and I kinda freak about resistance and getting a full 14 day course.

The other REALLY weird thing is the nausea only seems bad when first waking from naps or sleep at night. And, as soon as I put my bed up or sit up and sit for awhile it gets better. Odd? I know you mentioned sleeping with my bed propped up and I think I'll try that tonight. Do you have any idea WHY it would be like that? I don't feel reflux-y.... and am on tons of prevacid... plus, I'm not eating much at all that would cause reflux.

Anyway, thanks for your response. Was the med you used phenergan? I used to use that, but this doc doesn't want to Rx it since he says it "supresses breathing" too much. (I should mention this isn't my usual CF doc as she's on vacation <img src="i/expressions/face-icon-small-sad.gif" border="0">

Anyway, thanks again for the thoughts, prayers and info. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:40 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess



I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....



Blog your anxiety..



Lot of hugs,



Jennifer</end quote></div>


Thank you so much for your understanding and kind words. I appreciate it. I know we all go through a lot of anxiety dealing with all this. I just hope that is what is causing all the "issues". That way, at least xanax would maybe help in the future.

Anyway, thank you! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:40 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess



I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....



Blog your anxiety..



Lot of hugs,



Jennifer</end quote></div>


Thank you so much for your understanding and kind words. I appreciate it. I know we all go through a lot of anxiety dealing with all this. I just hope that is what is causing all the "issues". That way, at least xanax would maybe help in the future.

Anyway, thank you! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:40 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess



I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....



Blog your anxiety..



Lot of hugs,



Jennifer</end quote></div>


Thank you so much for your understanding and kind words. I appreciate it. I know we all go through a lot of anxiety dealing with all this. I just hope that is what is causing all the "issues". That way, at least xanax would maybe help in the future.

Anyway, thank you! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:40 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess



I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....



Blog your anxiety..



Lot of hugs,



Jennifer</end quote>


Thank you so much for your understanding and kind words. I appreciate it. I know we all go through a lot of anxiety dealing with all this. I just hope that is what is causing all the "issues". That way, at least xanax would maybe help in the future.

Anyway, thank you! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-18-2007, 03:40 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>JennifersHope</b></i>

Oh gosh I am so sorry, I know that hospital anxiety all to well. I usually take xanex or ativan when I am in the hospital between the lack of sleep, not feeling well, the high doses of steroids.. I am a mess



I will pray for you and try to find a way to find peace somehow.. Self talk, prayer, talking it out on the phone, venting etc....



Blog your anxiety..



Lot of hugs,



Jennifer</end quote>


Thank you so much for your understanding and kind words. I appreciate it. I know we all go through a lot of anxiety dealing with all this. I just hope that is what is causing all the "issues". That way, at least xanax would maybe help in the future.

Anyway, thank you! <img src="i/expressions/face-icon-small-smile.gif" border="0">

JennifersHope
08-18-2007, 04:01 AM
Sonia, I am wondering if the nausea is coming from postnasal drip? Do you have bad sinus problems... usually when I lay down... and I wake up I am sick to my stomach from everything dripping into my stomach. They when I sick up, I don't swallow so much stuff..


Just a thought I had..

JennifersHope
08-18-2007, 04:01 AM
Sonia, I am wondering if the nausea is coming from postnasal drip? Do you have bad sinus problems... usually when I lay down... and I wake up I am sick to my stomach from everything dripping into my stomach. They when I sick up, I don't swallow so much stuff..


Just a thought I had..

JennifersHope
08-18-2007, 04:01 AM
Sonia, I am wondering if the nausea is coming from postnasal drip? Do you have bad sinus problems... usually when I lay down... and I wake up I am sick to my stomach from everything dripping into my stomach. They when I sick up, I don't swallow so much stuff..


Just a thought I had..

JennifersHope
08-18-2007, 04:01 AM
Sonia, I am wondering if the nausea is coming from postnasal drip? Do you have bad sinus problems... usually when I lay down... and I wake up I am sick to my stomach from everything dripping into my stomach. They when I sick up, I don't swallow so much stuff..


Just a thought I had..

JennifersHope
08-18-2007, 04:01 AM
Sonia, I am wondering if the nausea is coming from postnasal drip? Do you have bad sinus problems... usually when I lay down... and I wake up I am sick to my stomach from everything dripping into my stomach. They when I sick up, I don't swallow so much stuff..


Just a thought I had..

ladybug
08-18-2007, 04:21 AM
i really don't have sinus issues, though have been stuffy feeling since i started using O2 at night while in the hospital. although i sometimes do feel that crap drain in the back of my throat.... yuck!

ladybug
08-18-2007, 04:21 AM
i really don't have sinus issues, though have been stuffy feeling since i started using O2 at night while in the hospital. although i sometimes do feel that crap drain in the back of my throat.... yuck!

ladybug
08-18-2007, 04:21 AM
i really don't have sinus issues, though have been stuffy feeling since i started using O2 at night while in the hospital. although i sometimes do feel that crap drain in the back of my throat.... yuck!

ladybug
08-18-2007, 04:21 AM
i really don't have sinus issues, though have been stuffy feeling since i started using O2 at night while in the hospital. although i sometimes do feel that crap drain in the back of my throat.... yuck!

ladybug
08-18-2007, 04:21 AM
i really don't have sinus issues, though have been stuffy feeling since i started using O2 at night while in the hospital. although i sometimes do feel that crap drain in the back of my throat.... yuck!

kayleesgrandma
08-18-2007, 07:25 AM
Sonia, so sorry to hear you are in the hospital. It's bad enough when you kow you're going in, but when it's unexpected--especially when you "don't feel sick". I'm glad you came here to let us know, and to vent--this is the place for that. I hope you can feel better soon.

kayleesgrandma
08-18-2007, 07:25 AM
Sonia, so sorry to hear you are in the hospital. It's bad enough when you kow you're going in, but when it's unexpected--especially when you "don't feel sick". I'm glad you came here to let us know, and to vent--this is the place for that. I hope you can feel better soon.

kayleesgrandma
08-18-2007, 07:25 AM
Sonia, so sorry to hear you are in the hospital. It's bad enough when you kow you're going in, but when it's unexpected--especially when you "don't feel sick". I'm glad you came here to let us know, and to vent--this is the place for that. I hope you can feel better soon.

kayleesgrandma
08-18-2007, 07:25 AM
Sonia, so sorry to hear you are in the hospital. It's bad enough when you kow you're going in, but when it's unexpected--especially when you "don't feel sick". I'm glad you came here to let us know, and to vent--this is the place for that. I hope you can feel better soon.

kayleesgrandma
08-18-2007, 07:25 AM
Sonia, so sorry to hear you are in the hospital. It's bad enough when you kow you're going in, but when it's unexpected--especially when you "don't feel sick". I'm glad you came here to let us know, and to vent--this is the place for that. I hope you can feel better soon.

Marjolein
08-18-2007, 08:45 AM
Sonia, i am so sorry you had to stay <img src="i/expressions/face-icon-small-sad.gif" border="0"> It's never fun especially when it is so unexpected.

Big big hug to you!

Love, Marjolein

Marjolein
08-18-2007, 08:45 AM
Sonia, i am so sorry you had to stay <img src="i/expressions/face-icon-small-sad.gif" border="0"> It's never fun especially when it is so unexpected.

Big big hug to you!

Love, Marjolein

Marjolein
08-18-2007, 08:45 AM
Sonia, i am so sorry you had to stay <img src="i/expressions/face-icon-small-sad.gif" border="0"> It's never fun especially when it is so unexpected.

Big big hug to you!

Love, Marjolein

Marjolein
08-18-2007, 08:45 AM
Sonia, i am so sorry you had to stay <img src="i/expressions/face-icon-small-sad.gif" border="0"> It's never fun especially when it is so unexpected.

Big big hug to you!

Love, Marjolein

Marjolein
08-18-2007, 08:45 AM
Sonia, i am so sorry you had to stay <img src="i/expressions/face-icon-small-sad.gif" border="0"> It's never fun especially when it is so unexpected.

Big big hug to you!

Love, Marjolein

JazzysMom
08-18-2007, 10:04 AM
OH YUCK, DAMN, *****, MOAN!


This really sucks. Its so difficult when you have one thing after another going on. Hugs, love & prayers to get you through it all.

Take one minute at a time because at times like this, a whole day seems to much.

HUGSSSSSSSSSSSSSSSSSSSSSSSSSSS

JazzysMom
08-18-2007, 10:04 AM
OH YUCK, DAMN, *****, MOAN!


This really sucks. Its so difficult when you have one thing after another going on. Hugs, love & prayers to get you through it all.

Take one minute at a time because at times like this, a whole day seems to much.

HUGSSSSSSSSSSSSSSSSSSSSSSSSSSS

JazzysMom
08-18-2007, 10:04 AM
OH YUCK, DAMN, *****, MOAN!


This really sucks. Its so difficult when you have one thing after another going on. Hugs, love & prayers to get you through it all.

Take one minute at a time because at times like this, a whole day seems to much.

HUGSSSSSSSSSSSSSSSSSSSSSSSSSSS

JazzysMom
08-18-2007, 10:04 AM
OH YUCK, DAMN, *****, MOAN!


This really sucks. Its so difficult when you have one thing after another going on. Hugs, love & prayers to get you through it all.

Take one minute at a time because at times like this, a whole day seems to much.

HUGSSSSSSSSSSSSSSSSSSSSSSSSSSS

JazzysMom
08-18-2007, 10:04 AM
OH YUCK, DAMN, *****, MOAN!


This really sucks. Its so difficult when you have one thing after another going on. Hugs, love & prayers to get you through it all.

Take one minute at a time because at times like this, a whole day seems to much.

HUGSSSSSSSSSSSSSSSSSSSSSSSSSSS

LeneSouthAfrica
08-18-2007, 11:22 AM
Hi Sonia
Sorry about your bad news, just wanna say I'm thinking of u.
It is so hard when you feel you have been doing so great and then disaster strikes. Just remember: It <b>is </b>possible to go through really terrible patches and recover again afterwards, given enough time so please try in your mind to view it as a temporary setback, something that you will get through (although it may feel like the "beginning of the end"). I hope they find the cause of the problems, and that you get better soon. Please keep us posted.
Lotsa love
Lene'

LeneSouthAfrica
08-18-2007, 11:22 AM
Hi Sonia
Sorry about your bad news, just wanna say I'm thinking of u.
It is so hard when you feel you have been doing so great and then disaster strikes. Just remember: It <b>is </b>possible to go through really terrible patches and recover again afterwards, given enough time so please try in your mind to view it as a temporary setback, something that you will get through (although it may feel like the "beginning of the end"). I hope they find the cause of the problems, and that you get better soon. Please keep us posted.
Lotsa love
Lene'

LeneSouthAfrica
08-18-2007, 11:22 AM
Hi Sonia
Sorry about your bad news, just wanna say I'm thinking of u.
It is so hard when you feel you have been doing so great and then disaster strikes. Just remember: It <b>is </b>possible to go through really terrible patches and recover again afterwards, given enough time so please try in your mind to view it as a temporary setback, something that you will get through (although it may feel like the "beginning of the end"). I hope they find the cause of the problems, and that you get better soon. Please keep us posted.
Lotsa love
Lene'

LeneSouthAfrica
08-18-2007, 11:22 AM
Hi Sonia
Sorry about your bad news, just wanna say I'm thinking of u.
It is so hard when you feel you have been doing so great and then disaster strikes. Just remember: It <b>is </b>possible to go through really terrible patches and recover again afterwards, given enough time so please try in your mind to view it as a temporary setback, something that you will get through (although it may feel like the "beginning of the end"). I hope they find the cause of the problems, and that you get better soon. Please keep us posted.
Lotsa love
Lene'

LeneSouthAfrica
08-18-2007, 11:22 AM
Hi Sonia
Sorry about your bad news, just wanna say I'm thinking of u.
It is so hard when you feel you have been doing so great and then disaster strikes. Just remember: It <b>is </b>possible to go through really terrible patches and recover again afterwards, given enough time so please try in your mind to view it as a temporary setback, something that you will get through (although it may feel like the "beginning of the end"). I hope they find the cause of the problems, and that you get better soon. Please keep us posted.
Lotsa love
Lene'

tammykrumrey
08-18-2007, 11:26 AM
I have no suggestions, but wanted to say that I will be thinking about you and hoping that you will get up and out soon. I can only imagine your frustration<img src="i/expressions/face-icon-small-sad.gif" border="0">

tammykrumrey
08-18-2007, 11:26 AM
I have no suggestions, but wanted to say that I will be thinking about you and hoping that you will get up and out soon. I can only imagine your frustration<img src="i/expressions/face-icon-small-sad.gif" border="0">

tammykrumrey
08-18-2007, 11:26 AM
I have no suggestions, but wanted to say that I will be thinking about you and hoping that you will get up and out soon. I can only imagine your frustration<img src="i/expressions/face-icon-small-sad.gif" border="0">

tammykrumrey
08-18-2007, 11:26 AM
I have no suggestions, but wanted to say that I will be thinking about you and hoping that you will get up and out soon. I can only imagine your frustration<img src="i/expressions/face-icon-small-sad.gif" border="0">

tammykrumrey
08-18-2007, 11:26 AM
I have no suggestions, but wanted to say that I will be thinking about you and hoping that you will get up and out soon. I can only imagine your frustration<img src="i/expressions/face-icon-small-sad.gif" border="0">

TonyaH
08-18-2007, 11:27 AM
Hi Sonia,

Please know that you have an entire community here pulling for you and wishing you a speedy improvement. Hopefully with each passing day your nausea will subside and the meds can do their thing. Sending hugs your way..

TonyaH
08-18-2007, 11:27 AM
Hi Sonia,

Please know that you have an entire community here pulling for you and wishing you a speedy improvement. Hopefully with each passing day your nausea will subside and the meds can do their thing. Sending hugs your way..

TonyaH
08-18-2007, 11:27 AM
Hi Sonia,

Please know that you have an entire community here pulling for you and wishing you a speedy improvement. Hopefully with each passing day your nausea will subside and the meds can do their thing. Sending hugs your way..

TonyaH
08-18-2007, 11:27 AM
Hi Sonia,

Please know that you have an entire community here pulling for you and wishing you a speedy improvement. Hopefully with each passing day your nausea will subside and the meds can do their thing. Sending hugs your way..

TonyaH
08-18-2007, 11:27 AM
Hi Sonia,

Please know that you have an entire community here pulling for you and wishing you a speedy improvement. Hopefully with each passing day your nausea will subside and the meds can do their thing. Sending hugs your way..

Jem
08-18-2007, 12:38 PM
How frustrating for you Sonia to be in especially since you have been working out and feeling not so bad. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">

2 weeks does sound so long but hopefully the iv's will do the trick to stabilze you...that will be worth it.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Keep us up to date on how things are going.

Hang in there...keeping you in prayer.<img src="i/expressions/heart.gif" border="0">

Jem
08-18-2007, 12:38 PM
How frustrating for you Sonia to be in especially since you have been working out and feeling not so bad. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">

2 weeks does sound so long but hopefully the iv's will do the trick to stabilze you...that will be worth it.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Keep us up to date on how things are going.

Hang in there...keeping you in prayer.<img src="i/expressions/heart.gif" border="0">

Jem
08-18-2007, 12:38 PM
How frustrating for you Sonia to be in especially since you have been working out and feeling not so bad. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">

2 weeks does sound so long but hopefully the iv's will do the trick to stabilze you...that will be worth it.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Keep us up to date on how things are going.

Hang in there...keeping you in prayer.<img src="i/expressions/heart.gif" border="0">

Jem
08-18-2007, 12:38 PM
How frustrating for you Sonia to be in especially since you have been working out and feeling not so bad. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">

2 weeks does sound so long but hopefully the iv's will do the trick to stabilze you...that will be worth it.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Keep us up to date on how things are going.

Hang in there...keeping you in prayer.<img src="i/expressions/heart.gif" border="0">

Jem
08-18-2007, 12:38 PM
How frustrating for you Sonia to be in especially since you have been working out and feeling not so bad. <img src="i/expressions/face-icon-small-disgusted.gif" border="0">

2 weeks does sound so long but hopefully the iv's will do the trick to stabilze you...that will be worth it.<img src="i/expressions/face-icon-small-smile.gif" border="0">

Keep us up to date on how things are going.

Hang in there...keeping you in prayer.<img src="i/expressions/heart.gif" border="0">

catboogie
08-18-2007, 01:40 PM
sonia,

i HATE this for you. i think i know where you're coming from partially. last time before i got a cold (which turned into an exacerbation) i was exercising daily at my highest stamina ever--45 mins cardio 4-5 days a week. i was at the top of my game! i thought surely with my lungs in great shape i'd make it through that cold alright. but i didn't.

so i hear ya. it doesn't seem fair that with all we do to stay healthy then something can just come along and knock us down so hard. my thinking was if i hadn't done all that exercising, i may have hit an even lower low getting sick, or maybe i would not be able to build myself up as much afterwards. we've got to rationalize it somehow, eh?

all i can say is, it just gets harder and harder the older we get. you and i are about the same age and i am realizing this past year especially how fragile my health is. ah, it sucks.

i hope you feel better soon. that anxiety and nausea seem really awful.

catboogie
08-18-2007, 01:40 PM
sonia,

i HATE this for you. i think i know where you're coming from partially. last time before i got a cold (which turned into an exacerbation) i was exercising daily at my highest stamina ever--45 mins cardio 4-5 days a week. i was at the top of my game! i thought surely with my lungs in great shape i'd make it through that cold alright. but i didn't.

so i hear ya. it doesn't seem fair that with all we do to stay healthy then something can just come along and knock us down so hard. my thinking was if i hadn't done all that exercising, i may have hit an even lower low getting sick, or maybe i would not be able to build myself up as much afterwards. we've got to rationalize it somehow, eh?

all i can say is, it just gets harder and harder the older we get. you and i are about the same age and i am realizing this past year especially how fragile my health is. ah, it sucks.

i hope you feel better soon. that anxiety and nausea seem really awful.

catboogie
08-18-2007, 01:40 PM
sonia,

i HATE this for you. i think i know where you're coming from partially. last time before i got a cold (which turned into an exacerbation) i was exercising daily at my highest stamina ever--45 mins cardio 4-5 days a week. i was at the top of my game! i thought surely with my lungs in great shape i'd make it through that cold alright. but i didn't.

so i hear ya. it doesn't seem fair that with all we do to stay healthy then something can just come along and knock us down so hard. my thinking was if i hadn't done all that exercising, i may have hit an even lower low getting sick, or maybe i would not be able to build myself up as much afterwards. we've got to rationalize it somehow, eh?

all i can say is, it just gets harder and harder the older we get. you and i are about the same age and i am realizing this past year especially how fragile my health is. ah, it sucks.

i hope you feel better soon. that anxiety and nausea seem really awful.

catboogie
08-18-2007, 01:40 PM
sonia,

i HATE this for you. i think i know where you're coming from partially. last time before i got a cold (which turned into an exacerbation) i was exercising daily at my highest stamina ever--45 mins cardio 4-5 days a week. i was at the top of my game! i thought surely with my lungs in great shape i'd make it through that cold alright. but i didn't.

so i hear ya. it doesn't seem fair that with all we do to stay healthy then something can just come along and knock us down so hard. my thinking was if i hadn't done all that exercising, i may have hit an even lower low getting sick, or maybe i would not be able to build myself up as much afterwards. we've got to rationalize it somehow, eh?

all i can say is, it just gets harder and harder the older we get. you and i are about the same age and i am realizing this past year especially how fragile my health is. ah, it sucks.

i hope you feel better soon. that anxiety and nausea seem really awful.

catboogie
08-18-2007, 01:40 PM
sonia,

i HATE this for you. i think i know where you're coming from partially. last time before i got a cold (which turned into an exacerbation) i was exercising daily at my highest stamina ever--45 mins cardio 4-5 days a week. i was at the top of my game! i thought surely with my lungs in great shape i'd make it through that cold alright. but i didn't.

so i hear ya. it doesn't seem fair that with all we do to stay healthy then something can just come along and knock us down so hard. my thinking was if i hadn't done all that exercising, i may have hit an even lower low getting sick, or maybe i would not be able to build myself up as much afterwards. we've got to rationalize it somehow, eh?

all i can say is, it just gets harder and harder the older we get. you and i are about the same age and i am realizing this past year especially how fragile my health is. ah, it sucks.

i hope you feel better soon. that anxiety and nausea seem really awful.

mom2lillian
08-18-2007, 01:48 PM
Sonia-I am so sorry to hear this.

I say get some bigger xanax or something a bit stronger <img src="i/expressions/face-icon-small-smile.gif" border="0"> to help you out. Just to make sure your heart rate issues arenet related to anxiety, they thought my uncle had all sorts heart issues ebfore figuring out it was anxiety related.

The drainage due to recent stuffiness sounds like it could be source of the nauseau only after sleeping, hope you get it figured out one way or the other.

Take care and know we are all thining of you. I just know you will kick this big time and be running faster and farther than that husband of yours in no time <img src="i/expressions/face-icon-small-happy.gif" border="0">! Oh and dont be too hard on yourself all sorts of crap is going around right now, it probably just got a grip on you without you realizing it.

mom2lillian
08-18-2007, 01:48 PM
Sonia-I am so sorry to hear this.

I say get some bigger xanax or something a bit stronger <img src="i/expressions/face-icon-small-smile.gif" border="0"> to help you out. Just to make sure your heart rate issues arenet related to anxiety, they thought my uncle had all sorts heart issues ebfore figuring out it was anxiety related.

The drainage due to recent stuffiness sounds like it could be source of the nauseau only after sleeping, hope you get it figured out one way or the other.

Take care and know we are all thining of you. I just know you will kick this big time and be running faster and farther than that husband of yours in no time <img src="i/expressions/face-icon-small-happy.gif" border="0">! Oh and dont be too hard on yourself all sorts of crap is going around right now, it probably just got a grip on you without you realizing it.

mom2lillian
08-18-2007, 01:48 PM
Sonia-I am so sorry to hear this.

I say get some bigger xanax or something a bit stronger <img src="i/expressions/face-icon-small-smile.gif" border="0"> to help you out. Just to make sure your heart rate issues arenet related to anxiety, they thought my uncle had all sorts heart issues ebfore figuring out it was anxiety related.

The drainage due to recent stuffiness sounds like it could be source of the nauseau only after sleeping, hope you get it figured out one way or the other.

Take care and know we are all thining of you. I just know you will kick this big time and be running faster and farther than that husband of yours in no time <img src="i/expressions/face-icon-small-happy.gif" border="0">! Oh and dont be too hard on yourself all sorts of crap is going around right now, it probably just got a grip on you without you realizing it.

mom2lillian
08-18-2007, 01:48 PM
Sonia-I am so sorry to hear this.

I say get some bigger xanax or something a bit stronger <img src="i/expressions/face-icon-small-smile.gif" border="0"> to help you out. Just to make sure your heart rate issues arenet related to anxiety, they thought my uncle had all sorts heart issues ebfore figuring out it was anxiety related.

The drainage due to recent stuffiness sounds like it could be source of the nauseau only after sleeping, hope you get it figured out one way or the other.

Take care and know we are all thining of you. I just know you will kick this big time and be running faster and farther than that husband of yours in no time <img src="i/expressions/face-icon-small-happy.gif" border="0">! Oh and dont be too hard on yourself all sorts of crap is going around right now, it probably just got a grip on you without you realizing it.

mom2lillian
08-18-2007, 01:48 PM
Sonia-I am so sorry to hear this.

I say get some bigger xanax or something a bit stronger <img src="i/expressions/face-icon-small-smile.gif" border="0"> to help you out. Just to make sure your heart rate issues arenet related to anxiety, they thought my uncle had all sorts heart issues ebfore figuring out it was anxiety related.

The drainage due to recent stuffiness sounds like it could be source of the nauseau only after sleeping, hope you get it figured out one way or the other.

Take care and know we are all thining of you. I just know you will kick this big time and be running faster and farther than that husband of yours in no time <img src="i/expressions/face-icon-small-happy.gif" border="0">! Oh and dont be too hard on yourself all sorts of crap is going around right now, it probably just got a grip on you without you realizing it.

AnD
08-18-2007, 02:35 PM
Yes <img src="i/expressions/face-icon-small-smile.gif" border="0"> , phenergan was the one I was trying to think of- that's too bad, it really helped when I took it <img src="i/expressions/face-icon-small-sad.gif" border="0"> .

I agree, it is probably the stuffiness and the gunk draining down the back of your throat that is causing the nausea, based on what you said. Sleeping propped up might help that <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

I've had a few mild occasions where anxiety has caused me to have those "spells". Hopefully, they will adjust your meds really soon and get that one sorted out for you, so you can concentrate on getting better.

AnD
08-18-2007, 02:35 PM
Yes <img src="i/expressions/face-icon-small-smile.gif" border="0"> , phenergan was the one I was trying to think of- that's too bad, it really helped when I took it <img src="i/expressions/face-icon-small-sad.gif" border="0"> .

I agree, it is probably the stuffiness and the gunk draining down the back of your throat that is causing the nausea, based on what you said. Sleeping propped up might help that <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

I've had a few mild occasions where anxiety has caused me to have those "spells". Hopefully, they will adjust your meds really soon and get that one sorted out for you, so you can concentrate on getting better.

AnD
08-18-2007, 02:35 PM
Yes <img src="i/expressions/face-icon-small-smile.gif" border="0"> , phenergan was the one I was trying to think of- that's too bad, it really helped when I took it <img src="i/expressions/face-icon-small-sad.gif" border="0"> .

I agree, it is probably the stuffiness and the gunk draining down the back of your throat that is causing the nausea, based on what you said. Sleeping propped up might help that <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

I've had a few mild occasions where anxiety has caused me to have those "spells". Hopefully, they will adjust your meds really soon and get that one sorted out for you, so you can concentrate on getting better.

AnD
08-18-2007, 02:35 PM
Yes <img src="i/expressions/face-icon-small-smile.gif" border="0"> , phenergan was the one I was trying to think of- that's too bad, it really helped when I took it <img src="i/expressions/face-icon-small-sad.gif" border="0"> .

I agree, it is probably the stuffiness and the gunk draining down the back of your throat that is causing the nausea, based on what you said. Sleeping propped up might help that <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

I've had a few mild occasions where anxiety has caused me to have those "spells". Hopefully, they will adjust your meds really soon and get that one sorted out for you, so you can concentrate on getting better.

AnD
08-18-2007, 02:35 PM
Yes <img src="i/expressions/face-icon-small-smile.gif" border="0"> , phenergan was the one I was trying to think of- that's too bad, it really helped when I took it <img src="i/expressions/face-icon-small-sad.gif" border="0"> .

I agree, it is probably the stuffiness and the gunk draining down the back of your throat that is causing the nausea, based on what you said. Sleeping propped up might help that <img src="i/expressions/face-icon-small-smile.gif" border="0"> .

I've had a few mild occasions where anxiety has caused me to have those "spells". Hopefully, they will adjust your meds really soon and get that one sorted out for you, so you can concentrate on getting better.

Diane
08-18-2007, 03:41 PM
Hospitals and anxiety seem to go hand in hand, Especially after a pft drop when things seemed to be going so well. I hope you are feeling better soon.
P.s. merepenim always gave me nausea for the first few days or so. Hopefully it will move along for you too as your body adjusts to it.

Diane
08-18-2007, 03:41 PM
Hospitals and anxiety seem to go hand in hand, Especially after a pft drop when things seemed to be going so well. I hope you are feeling better soon.
P.s. merepenim always gave me nausea for the first few days or so. Hopefully it will move along for you too as your body adjusts to it.

Diane
08-18-2007, 03:41 PM
Hospitals and anxiety seem to go hand in hand, Especially after a pft drop when things seemed to be going so well. I hope you are feeling better soon.
P.s. merepenim always gave me nausea for the first few days or so. Hopefully it will move along for you too as your body adjusts to it.

Diane
08-18-2007, 03:41 PM
Hospitals and anxiety seem to go hand in hand, Especially after a pft drop when things seemed to be going so well. I hope you are feeling better soon.
P.s. merepenim always gave me nausea for the first few days or so. Hopefully it will move along for you too as your body adjusts to it.

Diane
08-18-2007, 03:41 PM
Hospitals and anxiety seem to go hand in hand, Especially after a pft drop when things seemed to be going so well. I hope you are feeling better soon.
P.s. merepenim always gave me nausea for the first few days or so. Hopefully it will move along for you too as your body adjusts to it.

Landy
08-18-2007, 04:27 PM
Hang in there & keep us posted on how it's going!<img src="i/expressions/rose.gif" border="0">

Landy
08-18-2007, 04:27 PM
Hang in there & keep us posted on how it's going!<img src="i/expressions/rose.gif" border="0">

Landy
08-18-2007, 04:27 PM
Hang in there & keep us posted on how it's going!<img src="i/expressions/rose.gif" border="0">

Landy
08-18-2007, 04:27 PM
Hang in there & keep us posted on how it's going!<img src="i/expressions/rose.gif" border="0">

Landy
08-18-2007, 04:27 PM
Hang in there & keep us posted on how it's going!<img src="i/expressions/rose.gif" border="0">

ladybug
08-18-2007, 05:09 PM
Thank you soooooo much everyone for the thoughts, prayers, information, suggestions! It brings me such joy and peace to read what you all have to say and I can't thank you enough. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'll keep everyone posted as things carry on here.

ladybug
08-18-2007, 05:09 PM
Thank you soooooo much everyone for the thoughts, prayers, information, suggestions! It brings me such joy and peace to read what you all have to say and I can't thank you enough. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'll keep everyone posted as things carry on here.

ladybug
08-18-2007, 05:09 PM
Thank you soooooo much everyone for the thoughts, prayers, information, suggestions! It brings me such joy and peace to read what you all have to say and I can't thank you enough. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'll keep everyone posted as things carry on here.

ladybug
08-18-2007, 05:09 PM
Thank you soooooo much everyone for the thoughts, prayers, information, suggestions! It brings me such joy and peace to read what you all have to say and I can't thank you enough. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'll keep everyone posted as things carry on here.

ladybug
08-18-2007, 05:09 PM
Thank you soooooo much everyone for the thoughts, prayers, information, suggestions! It brings me such joy and peace to read what you all have to say and I can't thank you enough. <img src="i/expressions/face-icon-small-smile.gif" border="0">

I'll keep everyone posted as things carry on here.

beleache
08-18-2007, 10:25 PM
Sonia, So sorry you had to be admitted..I hope that you will be feeling better ASAP... You will be in my thoughts and Prayers... God Bless..<img src="i/expressions/heart.gif" border="0">

beleache
08-18-2007, 10:25 PM
Sonia, So sorry you had to be admitted..I hope that you will be feeling better ASAP... You will be in my thoughts and Prayers... God Bless..<img src="i/expressions/heart.gif" border="0">

beleache
08-18-2007, 10:25 PM
Sonia, So sorry you had to be admitted..I hope that you will be feeling better ASAP... You will be in my thoughts and Prayers... God Bless..<img src="i/expressions/heart.gif" border="0">

beleache
08-18-2007, 10:25 PM
Sonia, So sorry you had to be admitted..I hope that you will be feeling better ASAP... You will be in my thoughts and Prayers... God Bless..<img src="i/expressions/heart.gif" border="0">

beleache
08-18-2007, 10:25 PM
Sonia, So sorry you had to be admitted..I hope that you will be feeling better ASAP... You will be in my thoughts and Prayers... God Bless..<img src="i/expressions/heart.gif" border="0">

coltsfan715
08-19-2007, 12:09 AM
Hey Sonia,

I am assuming that when you say your sugars have been normal that you are checking them when you are nauseous and not just at scheduled times throughout the day. I say that not to scare you but for this reason. When I was first developing diabetes I would get nausea - extreme nausea. I would also get heart palpitations that would make me breathless. The heart episodes would hit me often when I wasn't even exerting myself - I would just be sitting watching TV and out of nowhere I would be unable to breathe - I would sit gasping for air for several seconds and then I would be fine.

It is likely that you are fine and your blood sugar is not the issue - BUT if you are not checking your sugar when you are nauseous or having the "episodes" then I would maybe try checking it at those times and see what it is.

Also something I want to add - what are your saturation levels when you are nauseous. I often times got nauseous when my sats were low when I was using oxygen. Just a thought - if you sats are lower when you lay down that may be why you are sick when you wake up - my sats were always lower when I slept and after waking up and being awake and up and moving for several minutes I would feel better - no nausea, no headaches, and so on. Again just something else that may be contributing to the problem other than meds.

Take Care,
Linds

coltsfan715
08-19-2007, 12:09 AM
Hey Sonia,

I am assuming that when you say your sugars have been normal that you are checking them when you are nauseous and not just at scheduled times throughout the day. I say that not to scare you but for this reason. When I was first developing diabetes I would get nausea - extreme nausea. I would also get heart palpitations that would make me breathless. The heart episodes would hit me often when I wasn't even exerting myself - I would just be sitting watching TV and out of nowhere I would be unable to breathe - I would sit gasping for air for several seconds and then I would be fine.

It is likely that you are fine and your blood sugar is not the issue - BUT if you are not checking your sugar when you are nauseous or having the "episodes" then I would maybe try checking it at those times and see what it is.

Also something I want to add - what are your saturation levels when you are nauseous. I often times got nauseous when my sats were low when I was using oxygen. Just a thought - if you sats are lower when you lay down that may be why you are sick when you wake up - my sats were always lower when I slept and after waking up and being awake and up and moving for several minutes I would feel better - no nausea, no headaches, and so on. Again just something else that may be contributing to the problem other than meds.

Take Care,
Linds

coltsfan715
08-19-2007, 12:09 AM
Hey Sonia,

I am assuming that when you say your sugars have been normal that you are checking them when you are nauseous and not just at scheduled times throughout the day. I say that not to scare you but for this reason. When I was first developing diabetes I would get nausea - extreme nausea. I would also get heart palpitations that would make me breathless. The heart episodes would hit me often when I wasn't even exerting myself - I would just be sitting watching TV and out of nowhere I would be unable to breathe - I would sit gasping for air for several seconds and then I would be fine.

It is likely that you are fine and your blood sugar is not the issue - BUT if you are not checking your sugar when you are nauseous or having the "episodes" then I would maybe try checking it at those times and see what it is.

Also something I want to add - what are your saturation levels when you are nauseous. I often times got nauseous when my sats were low when I was using oxygen. Just a thought - if you sats are lower when you lay down that may be why you are sick when you wake up - my sats were always lower when I slept and after waking up and being awake and up and moving for several minutes I would feel better - no nausea, no headaches, and so on. Again just something else that may be contributing to the problem other than meds.

Take Care,
Linds

coltsfan715
08-19-2007, 12:09 AM
Hey Sonia,

I am assuming that when you say your sugars have been normal that you are checking them when you are nauseous and not just at scheduled times throughout the day. I say that not to scare you but for this reason. When I was first developing diabetes I would get nausea - extreme nausea. I would also get heart palpitations that would make me breathless. The heart episodes would hit me often when I wasn't even exerting myself - I would just be sitting watching TV and out of nowhere I would be unable to breathe - I would sit gasping for air for several seconds and then I would be fine.

It is likely that you are fine and your blood sugar is not the issue - BUT if you are not checking your sugar when you are nauseous or having the "episodes" then I would maybe try checking it at those times and see what it is.

Also something I want to add - what are your saturation levels when you are nauseous. I often times got nauseous when my sats were low when I was using oxygen. Just a thought - if you sats are lower when you lay down that may be why you are sick when you wake up - my sats were always lower when I slept and after waking up and being awake and up and moving for several minutes I would feel better - no nausea, no headaches, and so on. Again just something else that may be contributing to the problem other than meds.

Take Care,
Linds

coltsfan715
08-19-2007, 12:09 AM
Hey Sonia,

I am assuming that when you say your sugars have been normal that you are checking them when you are nauseous and not just at scheduled times throughout the day. I say that not to scare you but for this reason. When I was first developing diabetes I would get nausea - extreme nausea. I would also get heart palpitations that would make me breathless. The heart episodes would hit me often when I wasn't even exerting myself - I would just be sitting watching TV and out of nowhere I would be unable to breathe - I would sit gasping for air for several seconds and then I would be fine.

It is likely that you are fine and your blood sugar is not the issue - BUT if you are not checking your sugar when you are nauseous or having the "episodes" then I would maybe try checking it at those times and see what it is.

Also something I want to add - what are your saturation levels when you are nauseous. I often times got nauseous when my sats were low when I was using oxygen. Just a thought - if you sats are lower when you lay down that may be why you are sick when you wake up - my sats were always lower when I slept and after waking up and being awake and up and moving for several minutes I would feel better - no nausea, no headaches, and so on. Again just something else that may be contributing to the problem other than meds.

Take Care,
Linds

barbc888
08-19-2007, 01:12 AM
Hey Sonia,

So sorry to hear you're hospitalized. I had a thought when I read your post... when I had really bad nausea in the hospital and they couldn't figure out what it was, they gave me a drug called Reglan, and it worked great. (My nausea ended up being gastroparesis, which has since disappeared.)

I hope you feel better and get out of there soon!

barbc888
08-19-2007, 01:12 AM
Hey Sonia,

So sorry to hear you're hospitalized. I had a thought when I read your post... when I had really bad nausea in the hospital and they couldn't figure out what it was, they gave me a drug called Reglan, and it worked great. (My nausea ended up being gastroparesis, which has since disappeared.)

I hope you feel better and get out of there soon!

barbc888
08-19-2007, 01:12 AM
Hey Sonia,

So sorry to hear you're hospitalized. I had a thought when I read your post... when I had really bad nausea in the hospital and they couldn't figure out what it was, they gave me a drug called Reglan, and it worked great. (My nausea ended up being gastroparesis, which has since disappeared.)

I hope you feel better and get out of there soon!

barbc888
08-19-2007, 01:12 AM
Hey Sonia,

So sorry to hear you're hospitalized. I had a thought when I read your post... when I had really bad nausea in the hospital and they couldn't figure out what it was, they gave me a drug called Reglan, and it worked great. (My nausea ended up being gastroparesis, which has since disappeared.)

I hope you feel better and get out of there soon!

barbc888
08-19-2007, 01:12 AM
Hey Sonia,

So sorry to hear you're hospitalized. I had a thought when I read your post... when I had really bad nausea in the hospital and they couldn't figure out what it was, they gave me a drug called Reglan, and it worked great. (My nausea ended up being gastroparesis, which has since disappeared.)

I hope you feel better and get out of there soon!

Athena
08-19-2007, 03:20 AM
I'm Sorry to hear that u r not doing well and hope that u are feeling much better soon.
Athena

Athena
08-19-2007, 03:20 AM
I'm Sorry to hear that u r not doing well and hope that u are feeling much better soon.
Athena

Athena
08-19-2007, 03:20 AM
I'm Sorry to hear that u r not doing well and hope that u are feeling much better soon.
Athena

Athena
08-19-2007, 03:20 AM
I'm Sorry to hear that u r not doing well and hope that u are feeling much better soon.
Athena

Athena
08-19-2007, 03:20 AM
I'm Sorry to hear that u r not doing well and hope that u are feeling much better soon.
Athena

jbrandonAW
08-19-2007, 12:33 PM
O honey I know how you feel. When I had my last clinic visit. I wasn't feeling "cf" sick. I thought mine was more so related to ebing preggo, and some asthma problem due to moving. SO when I went in and my fev1 went from 68% to 41% EVERYONE freaked out. So I was in for 2 weeks. It sucks but I feel ok now.

jbrandonAW
08-19-2007, 12:33 PM
O honey I know how you feel. When I had my last clinic visit. I wasn't feeling "cf" sick. I thought mine was more so related to ebing preggo, and some asthma problem due to moving. SO when I went in and my fev1 went from 68% to 41% EVERYONE freaked out. So I was in for 2 weeks. It sucks but I feel ok now.

jbrandonAW
08-19-2007, 12:33 PM
O honey I know how you feel. When I had my last clinic visit. I wasn't feeling "cf" sick. I thought mine was more so related to ebing preggo, and some asthma problem due to moving. SO when I went in and my fev1 went from 68% to 41% EVERYONE freaked out. So I was in for 2 weeks. It sucks but I feel ok now.

jbrandonAW
08-19-2007, 12:33 PM
O honey I know how you feel. When I had my last clinic visit. I wasn't feeling "cf" sick. I thought mine was more so related to ebing preggo, and some asthma problem due to moving. SO when I went in and my fev1 went from 68% to 41% EVERYONE freaked out. So I was in for 2 weeks. It sucks but I feel ok now.

jbrandonAW
08-19-2007, 12:33 PM
O honey I know how you feel. When I had my last clinic visit. I wasn't feeling "cf" sick. I thought mine was more so related to ebing preggo, and some asthma problem due to moving. SO when I went in and my fev1 went from 68% to 41% EVERYONE freaked out. So I was in for 2 weeks. It sucks but I feel ok now.

ladybug
08-19-2007, 05:30 PM
Thanks again, everyone for your thoughts and prayers.

Things are looking a bit better. I slept for a full 8 hours last night which felt wonderful after not sleeping more than a few hours a night since getting here. Its amazing what a good night's sleep does. I am still using the O2 when laying in bed, which worries me a bit that I'm not acclimatted to the elevation yet, but we'll see. I don't have the nausea anymore, which is AWESOME! I still don't have much of an appetite, but its getting a bit better.

PFTs are scheduled tomorrow, so I'll try to post.

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).

Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).

Take care,

ladybug
08-19-2007, 05:30 PM
Thanks again, everyone for your thoughts and prayers.

Things are looking a bit better. I slept for a full 8 hours last night which felt wonderful after not sleeping more than a few hours a night since getting here. Its amazing what a good night's sleep does. I am still using the O2 when laying in bed, which worries me a bit that I'm not acclimatted to the elevation yet, but we'll see. I don't have the nausea anymore, which is AWESOME! I still don't have much of an appetite, but its getting a bit better.

PFTs are scheduled tomorrow, so I'll try to post.

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).

Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).

Take care,

ladybug
08-19-2007, 05:30 PM
Thanks again, everyone for your thoughts and prayers.

Things are looking a bit better. I slept for a full 8 hours last night which felt wonderful after not sleeping more than a few hours a night since getting here. Its amazing what a good night's sleep does. I am still using the O2 when laying in bed, which worries me a bit that I'm not acclimatted to the elevation yet, but we'll see. I don't have the nausea anymore, which is AWESOME! I still don't have much of an appetite, but its getting a bit better.

PFTs are scheduled tomorrow, so I'll try to post.

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).

Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).

Take care,

ladybug
08-19-2007, 05:30 PM
Thanks again, everyone for your thoughts and prayers.

Things are looking a bit better. I slept for a full 8 hours last night which felt wonderful after not sleeping more than a few hours a night since getting here. Its amazing what a good night's sleep does. I am still using the O2 when laying in bed, which worries me a bit that I'm not acclimatted to the elevation yet, but we'll see. I don't have the nausea anymore, which is AWESOME! I still don't have much of an appetite, but its getting a bit better.

PFTs are scheduled tomorrow, so I'll try to post.

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).

Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).

Take care,

ladybug
08-19-2007, 05:30 PM
Thanks again, everyone for your thoughts and prayers.

Things are looking a bit better. I slept for a full 8 hours last night which felt wonderful after not sleeping more than a few hours a night since getting here. Its amazing what a good night's sleep does. I am still using the O2 when laying in bed, which worries me a bit that I'm not acclimatted to the elevation yet, but we'll see. I don't have the nausea anymore, which is AWESOME! I still don't have much of an appetite, but its getting a bit better.

PFTs are scheduled tomorrow, so I'll try to post.

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).

Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).

Take care,

KrazyKat
08-20-2007, 02:34 AM
Magnesium....magnesium....magnesium!! and in case i forgot to mention it.....MAGNESIUM!!
sorry to hear you are feeling so anxious/nauseous, tobra and merrem used to do exactly the same to me, until i started taking a good magnesium supplement twice a day every day. Now i get through IV's and even oral Cipro no worries at all. In the past Tobra and Cipro expecially, made me so anxious i had to stop taking them.
The thing is, some of the AB's they put us on (Tobra and Cipro are two of them), seriously leech magnesium from our systems and magnesium deficiency mimics the symptoms of anxiety. With me, I presented with, SOB, nausea, appetite loss, racing heart, palpitations, dizziness. My symptoms were so bad they put me in hospital the last time i took Cipro before i started magnesium. I had never suffered from 'anxiety' in my life, until the very first time they starting me on a Tobra IV!! From then on until i built up the magnesium deposits in my system, i suffered from anxiety, made worse every time i took Cipro or Tobra.

Even though if you start taking mag now, you probably won't feel the effects for a few weeks, if you can get through this course of AB's, you should feel a lot better the next time you need to take them.

KrazyKat
08-20-2007, 02:34 AM
Magnesium....magnesium....magnesium!! and in case i forgot to mention it.....MAGNESIUM!!
sorry to hear you are feeling so anxious/nauseous, tobra and merrem used to do exactly the same to me, until i started taking a good magnesium supplement twice a day every day. Now i get through IV's and even oral Cipro no worries at all. In the past Tobra and Cipro expecially, made me so anxious i had to stop taking them.
The thing is, some of the AB's they put us on (Tobra and Cipro are two of them), seriously leech magnesium from our systems and magnesium deficiency mimics the symptoms of anxiety. With me, I presented with, SOB, nausea, appetite loss, racing heart, palpitations, dizziness. My symptoms were so bad they put me in hospital the last time i took Cipro before i started magnesium. I had never suffered from 'anxiety' in my life, until the very first time they starting me on a Tobra IV!! From then on until i built up the magnesium deposits in my system, i suffered from anxiety, made worse every time i took Cipro or Tobra.

Even though if you start taking mag now, you probably won't feel the effects for a few weeks, if you can get through this course of AB's, you should feel a lot better the next time you need to take them.

KrazyKat
08-20-2007, 02:34 AM
Magnesium....magnesium....magnesium!! and in case i forgot to mention it.....MAGNESIUM!!
sorry to hear you are feeling so anxious/nauseous, tobra and merrem used to do exactly the same to me, until i started taking a good magnesium supplement twice a day every day. Now i get through IV's and even oral Cipro no worries at all. In the past Tobra and Cipro expecially, made me so anxious i had to stop taking them.
The thing is, some of the AB's they put us on (Tobra and Cipro are two of them), seriously leech magnesium from our systems and magnesium deficiency mimics the symptoms of anxiety. With me, I presented with, SOB, nausea, appetite loss, racing heart, palpitations, dizziness. My symptoms were so bad they put me in hospital the last time i took Cipro before i started magnesium. I had never suffered from 'anxiety' in my life, until the very first time they starting me on a Tobra IV!! From then on until i built up the magnesium deposits in my system, i suffered from anxiety, made worse every time i took Cipro or Tobra.

Even though if you start taking mag now, you probably won't feel the effects for a few weeks, if you can get through this course of AB's, you should feel a lot better the next time you need to take them.

KrazyKat
08-20-2007, 02:34 AM
Magnesium....magnesium....magnesium!! and in case i forgot to mention it.....MAGNESIUM!!
sorry to hear you are feeling so anxious/nauseous, tobra and merrem used to do exactly the same to me, until i started taking a good magnesium supplement twice a day every day. Now i get through IV's and even oral Cipro no worries at all. In the past Tobra and Cipro expecially, made me so anxious i had to stop taking them.
The thing is, some of the AB's they put us on (Tobra and Cipro are two of them), seriously leech magnesium from our systems and magnesium deficiency mimics the symptoms of anxiety. With me, I presented with, SOB, nausea, appetite loss, racing heart, palpitations, dizziness. My symptoms were so bad they put me in hospital the last time i took Cipro before i started magnesium. I had never suffered from 'anxiety' in my life, until the very first time they starting me on a Tobra IV!! From then on until i built up the magnesium deposits in my system, i suffered from anxiety, made worse every time i took Cipro or Tobra.

Even though if you start taking mag now, you probably won't feel the effects for a few weeks, if you can get through this course of AB's, you should feel a lot better the next time you need to take them.

KrazyKat
08-20-2007, 02:34 AM
Magnesium....magnesium....magnesium!! and in case i forgot to mention it.....MAGNESIUM!!
sorry to hear you are feeling so anxious/nauseous, tobra and merrem used to do exactly the same to me, until i started taking a good magnesium supplement twice a day every day. Now i get through IV's and even oral Cipro no worries at all. In the past Tobra and Cipro expecially, made me so anxious i had to stop taking them.
The thing is, some of the AB's they put us on (Tobra and Cipro are two of them), seriously leech magnesium from our systems and magnesium deficiency mimics the symptoms of anxiety. With me, I presented with, SOB, nausea, appetite loss, racing heart, palpitations, dizziness. My symptoms were so bad they put me in hospital the last time i took Cipro before i started magnesium. I had never suffered from 'anxiety' in my life, until the very first time they starting me on a Tobra IV!! From then on until i built up the magnesium deposits in my system, i suffered from anxiety, made worse every time i took Cipro or Tobra.

Even though if you start taking mag now, you probably won't feel the effects for a few weeks, if you can get through this course of AB's, you should feel a lot better the next time you need to take them.

Ratatosk
08-20-2007, 11:51 AM
How 'bout ear issues? Rocks in your head (calcium deposits in your eustacian tubes). Know there's a tecnnical term for it. Years ago I had horrible sinus headaches combined with dizziness -- called it "my summer of the hangover" and I didn't drink. Felt waves of nausea, vertigo, pounding headaches -- especially if I moved my head too fast, moved too quickly. Mine went away, but I know of several people who've had to go to a specialist for adjustments/treatments.

Hope you're feeling better. That they figure things out and you can eventually get some rest so you can recover. L

Ratatosk
08-20-2007, 11:51 AM
How 'bout ear issues? Rocks in your head (calcium deposits in your eustacian tubes). Know there's a tecnnical term for it. Years ago I had horrible sinus headaches combined with dizziness -- called it "my summer of the hangover" and I didn't drink. Felt waves of nausea, vertigo, pounding headaches -- especially if I moved my head too fast, moved too quickly. Mine went away, but I know of several people who've had to go to a specialist for adjustments/treatments.

Hope you're feeling better. That they figure things out and you can eventually get some rest so you can recover. L

Ratatosk
08-20-2007, 11:51 AM
How 'bout ear issues? Rocks in your head (calcium deposits in your eustacian tubes). Know there's a tecnnical term for it. Years ago I had horrible sinus headaches combined with dizziness -- called it "my summer of the hangover" and I didn't drink. Felt waves of nausea, vertigo, pounding headaches -- especially if I moved my head too fast, moved too quickly. Mine went away, but I know of several people who've had to go to a specialist for adjustments/treatments.

Hope you're feeling better. That they figure things out and you can eventually get some rest so you can recover. L

Ratatosk
08-20-2007, 11:51 AM
How 'bout ear issues? Rocks in your head (calcium deposits in your eustacian tubes). Know there's a tecnnical term for it. Years ago I had horrible sinus headaches combined with dizziness -- called it "my summer of the hangover" and I didn't drink. Felt waves of nausea, vertigo, pounding headaches -- especially if I moved my head too fast, moved too quickly. Mine went away, but I know of several people who've had to go to a specialist for adjustments/treatments.

Hope you're feeling better. That they figure things out and you can eventually get some rest so you can recover. L

Ratatosk
08-20-2007, 11:51 AM
How 'bout ear issues? Rocks in your head (calcium deposits in your eustacian tubes). Know there's a tecnnical term for it. Years ago I had horrible sinus headaches combined with dizziness -- called it "my summer of the hangover" and I didn't drink. Felt waves of nausea, vertigo, pounding headaches -- especially if I moved my head too fast, moved too quickly. Mine went away, but I know of several people who've had to go to a specialist for adjustments/treatments.

Hope you're feeling better. That they figure things out and you can eventually get some rest so you can recover. L

Landy
08-20-2007, 11:54 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL). </end quote></div>

If it helps any, I have this issue too. In my case, I'm not missing a beat, just getting a premature beat every once in awhile. I, too, wore a heart monitor & was diagnosed with PAC (premature atrial contractions).

My cardio said this is very common with pulmonary patients and not something to worry about, more of a nuisance to put up with.
I asked if I need to rest, quit exercise, or anything when I feel the funny heart beats and he said no and to try to ignore them. So that's what I do. It still is a little disconcerting, though, when I can feel my heart being irregular<img src="i/expressions/face-icon-small-confused.gif" border="0">

Looking forward to updates from you!

Landy
08-20-2007, 11:54 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL). </end quote></div>

If it helps any, I have this issue too. In my case, I'm not missing a beat, just getting a premature beat every once in awhile. I, too, wore a heart monitor & was diagnosed with PAC (premature atrial contractions).

My cardio said this is very common with pulmonary patients and not something to worry about, more of a nuisance to put up with.
I asked if I need to rest, quit exercise, or anything when I feel the funny heart beats and he said no and to try to ignore them. So that's what I do. It still is a little disconcerting, though, when I can feel my heart being irregular<img src="i/expressions/face-icon-small-confused.gif" border="0">

Looking forward to updates from you!

Landy
08-20-2007, 11:54 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL). </end quote></div>

If it helps any, I have this issue too. In my case, I'm not missing a beat, just getting a premature beat every once in awhile. I, too, wore a heart monitor & was diagnosed with PAC (premature atrial contractions).

My cardio said this is very common with pulmonary patients and not something to worry about, more of a nuisance to put up with.
I asked if I need to rest, quit exercise, or anything when I feel the funny heart beats and he said no and to try to ignore them. So that's what I do. It still is a little disconcerting, though, when I can feel my heart being irregular<img src="i/expressions/face-icon-small-confused.gif" border="0">

Looking forward to updates from you!

Landy
08-20-2007, 11:54 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL). </end quote>

If it helps any, I have this issue too. In my case, I'm not missing a beat, just getting a premature beat every once in awhile. I, too, wore a heart monitor & was diagnosed with PAC (premature atrial contractions).

My cardio said this is very common with pulmonary patients and not something to worry about, more of a nuisance to put up with.
I asked if I need to rest, quit exercise, or anything when I feel the funny heart beats and he said no and to try to ignore them. So that's what I do. It still is a little disconcerting, though, when I can feel my heart being irregular<img src="i/expressions/face-icon-small-confused.gif" border="0">

Looking forward to updates from you!

Landy
08-20-2007, 11:54 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>

I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL). </end quote>

If it helps any, I have this issue too. In my case, I'm not missing a beat, just getting a premature beat every once in awhile. I, too, wore a heart monitor & was diagnosed with PAC (premature atrial contractions).

My cardio said this is very common with pulmonary patients and not something to worry about, more of a nuisance to put up with.
I asked if I need to rest, quit exercise, or anything when I feel the funny heart beats and he said no and to try to ignore them. So that's what I do. It still is a little disconcerting, though, when I can feel my heart being irregular<img src="i/expressions/face-icon-small-confused.gif" border="0">

Looking forward to updates from you!

chrissyd
08-20-2007, 02:19 PM
Sorry you're in there. I hope you feel better soon. It really sucks to feel like you are doing well and then someone bursts the bubble and says your not. I'm sorry you have to deal with that. But...I do hope that being in there will help you get back to good, or even get to great! Keep us posted...

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/ CF

chrissyd
08-20-2007, 02:19 PM
Sorry you're in there. I hope you feel better soon. It really sucks to feel like you are doing well and then someone bursts the bubble and says your not. I'm sorry you have to deal with that. But...I do hope that being in there will help you get back to good, or even get to great! Keep us posted...

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/ CF

chrissyd
08-20-2007, 02:19 PM
Sorry you're in there. I hope you feel better soon. It really sucks to feel like you are doing well and then someone bursts the bubble and says your not. I'm sorry you have to deal with that. But...I do hope that being in there will help you get back to good, or even get to great! Keep us posted...

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/ CF

chrissyd
08-20-2007, 02:19 PM
Sorry you're in there. I hope you feel better soon. It really sucks to feel like you are doing well and then someone bursts the bubble and says your not. I'm sorry you have to deal with that. But...I do hope that being in there will help you get back to good, or even get to great! Keep us posted...

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/ CF

chrissyd
08-20-2007, 02:19 PM
Sorry you're in there. I hope you feel better soon. It really sucks to feel like you are doing well and then someone bursts the bubble and says your not. I'm sorry you have to deal with that. But...I do hope that being in there will help you get back to good, or even get to great! Keep us posted...

<img src="i/expressions/rose.gif" border="0">

Chrissy 30 w/ CF

AnD
08-20-2007, 05:33 PM
I'd ask to have my magnesium checked, too.

A few months ago, I would have said- yeah, right...but my dog has a heart condition (hang in there with me now... <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and I read about cardiomyopathy? (irregular heartbeat, whatever it's called) I think it was, a couple of years ago, which is common in my dog's breed, and guess what one of the treatments is? Magnesium supplementation! And then I come here, and start reading about magnesium supplelments, and the meds we take that suck it out of our bodies, and how we need it for healthy bones, and to protect our hearing while on Tobi (I have horrible vertigo with IV fevers while on Tobra iv), etc.

So, now I am taking SloMag (as of last week- no verdict yet <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Can't hurt (well, maybe a little if they have to stick you <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) to have it checked!

I hope you start feeling better soon! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
08-20-2007, 05:33 PM
I'd ask to have my magnesium checked, too.

A few months ago, I would have said- yeah, right...but my dog has a heart condition (hang in there with me now... <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and I read about cardiomyopathy? (irregular heartbeat, whatever it's called) I think it was, a couple of years ago, which is common in my dog's breed, and guess what one of the treatments is? Magnesium supplementation! And then I come here, and start reading about magnesium supplelments, and the meds we take that suck it out of our bodies, and how we need it for healthy bones, and to protect our hearing while on Tobi (I have horrible vertigo with IV fevers while on Tobra iv), etc.

So, now I am taking SloMag (as of last week- no verdict yet <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Can't hurt (well, maybe a little if they have to stick you <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) to have it checked!

I hope you start feeling better soon! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
08-20-2007, 05:33 PM
I'd ask to have my magnesium checked, too.

A few months ago, I would have said- yeah, right...but my dog has a heart condition (hang in there with me now... <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and I read about cardiomyopathy? (irregular heartbeat, whatever it's called) I think it was, a couple of years ago, which is common in my dog's breed, and guess what one of the treatments is? Magnesium supplementation! And then I come here, and start reading about magnesium supplelments, and the meds we take that suck it out of our bodies, and how we need it for healthy bones, and to protect our hearing while on Tobi (I have horrible vertigo with IV fevers while on Tobra iv), etc.

So, now I am taking SloMag (as of last week- no verdict yet <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Can't hurt (well, maybe a little if they have to stick you <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) to have it checked!

I hope you start feeling better soon! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
08-20-2007, 05:33 PM
I'd ask to have my magnesium checked, too.

A few months ago, I would have said- yeah, right...but my dog has a heart condition (hang in there with me now... <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and I read about cardiomyopathy? (irregular heartbeat, whatever it's called) I think it was, a couple of years ago, which is common in my dog's breed, and guess what one of the treatments is? Magnesium supplementation! And then I come here, and start reading about magnesium supplelments, and the meds we take that suck it out of our bodies, and how we need it for healthy bones, and to protect our hearing while on Tobi (I have horrible vertigo with IV fevers while on Tobra iv), etc.

So, now I am taking SloMag (as of last week- no verdict yet <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Can't hurt (well, maybe a little if they have to stick you <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) to have it checked!

I hope you start feeling better soon! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
08-20-2007, 05:33 PM
I'd ask to have my magnesium checked, too.

A few months ago, I would have said- yeah, right...but my dog has a heart condition (hang in there with me now... <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) and I read about cardiomyopathy? (irregular heartbeat, whatever it's called) I think it was, a couple of years ago, which is common in my dog's breed, and guess what one of the treatments is? Magnesium supplementation! And then I come here, and start reading about magnesium supplelments, and the meds we take that suck it out of our bodies, and how we need it for healthy bones, and to protect our hearing while on Tobi (I have horrible vertigo with IV fevers while on Tobra iv), etc.

So, now I am taking SloMag (as of last week- no verdict yet <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).

Can't hurt (well, maybe a little if they have to stick you <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) to have it checked!

I hope you start feeling better soon! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-21-2007, 08:07 PM
Well, I took PFTs yesterday and they're only up 6%. I am on oxygen now almost constantly and feel terrible compared to when I came in (I HATE hospitals and have always done home health, but this clinic believes in in-patient only so whatever.) I've lost 5 lbs.

I'm just so dissapointed. I feel so much worse than when I came in 8 days ago. I didn't even feel sick then! I should have a much better 7-day PFT result, as usually after 14 days, my PFT's only raise another 2-3%.

I'm just really bummed about it all. They're talking about trying another (3rd) IV med, but would only keep me on it for another week, which I do NOT agree with. I don't think putting someone on an IV med for just 7 days is effective and is just asking for resistance. Anyone else feel this way?

Urgh. My doc has been on vacation all week and I'm being seen by a doctor who has worked with CF, but isn't part of the clinic. I would feel SOOOO much better if my doc were here. Urgh.

Anyway, if anyone has anything to add or any suggestions, thoughts, etc. please let me know. I have internet in my room now, so should be able to check daily. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-21-2007, 08:07 PM
Well, I took PFTs yesterday and they're only up 6%. I am on oxygen now almost constantly and feel terrible compared to when I came in (I HATE hospitals and have always done home health, but this clinic believes in in-patient only so whatever.) I've lost 5 lbs.

I'm just so dissapointed. I feel so much worse than when I came in 8 days ago. I didn't even feel sick then! I should have a much better 7-day PFT result, as usually after 14 days, my PFT's only raise another 2-3%.

I'm just really bummed about it all. They're talking about trying another (3rd) IV med, but would only keep me on it for another week, which I do NOT agree with. I don't think putting someone on an IV med for just 7 days is effective and is just asking for resistance. Anyone else feel this way?

Urgh. My doc has been on vacation all week and I'm being seen by a doctor who has worked with CF, but isn't part of the clinic. I would feel SOOOO much better if my doc were here. Urgh.

Anyway, if anyone has anything to add or any suggestions, thoughts, etc. please let me know. I have internet in my room now, so should be able to check daily. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-21-2007, 08:07 PM
Well, I took PFTs yesterday and they're only up 6%. I am on oxygen now almost constantly and feel terrible compared to when I came in (I HATE hospitals and have always done home health, but this clinic believes in in-patient only so whatever.) I've lost 5 lbs.

I'm just so dissapointed. I feel so much worse than when I came in 8 days ago. I didn't even feel sick then! I should have a much better 7-day PFT result, as usually after 14 days, my PFT's only raise another 2-3%.

I'm just really bummed about it all. They're talking about trying another (3rd) IV med, but would only keep me on it for another week, which I do NOT agree with. I don't think putting someone on an IV med for just 7 days is effective and is just asking for resistance. Anyone else feel this way?

Urgh. My doc has been on vacation all week and I'm being seen by a doctor who has worked with CF, but isn't part of the clinic. I would feel SOOOO much better if my doc were here. Urgh.

Anyway, if anyone has anything to add or any suggestions, thoughts, etc. please let me know. I have internet in my room now, so should be able to check daily. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-21-2007, 08:07 PM
Well, I took PFTs yesterday and they're only up 6%. I am on oxygen now almost constantly and feel terrible compared to when I came in (I HATE hospitals and have always done home health, but this clinic believes in in-patient only so whatever.) I've lost 5 lbs.

I'm just so dissapointed. I feel so much worse than when I came in 8 days ago. I didn't even feel sick then! I should have a much better 7-day PFT result, as usually after 14 days, my PFT's only raise another 2-3%.

I'm just really bummed about it all. They're talking about trying another (3rd) IV med, but would only keep me on it for another week, which I do NOT agree with. I don't think putting someone on an IV med for just 7 days is effective and is just asking for resistance. Anyone else feel this way?

Urgh. My doc has been on vacation all week and I'm being seen by a doctor who has worked with CF, but isn't part of the clinic. I would feel SOOOO much better if my doc were here. Urgh.

Anyway, if anyone has anything to add or any suggestions, thoughts, etc. please let me know. I have internet in my room now, so should be able to check daily. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-21-2007, 08:07 PM
Well, I took PFTs yesterday and they're only up 6%. I am on oxygen now almost constantly and feel terrible compared to when I came in (I HATE hospitals and have always done home health, but this clinic believes in in-patient only so whatever.) I've lost 5 lbs.

I'm just so dissapointed. I feel so much worse than when I came in 8 days ago. I didn't even feel sick then! I should have a much better 7-day PFT result, as usually after 14 days, my PFT's only raise another 2-3%.

I'm just really bummed about it all. They're talking about trying another (3rd) IV med, but would only keep me on it for another week, which I do NOT agree with. I don't think putting someone on an IV med for just 7 days is effective and is just asking for resistance. Anyone else feel this way?

Urgh. My doc has been on vacation all week and I'm being seen by a doctor who has worked with CF, but isn't part of the clinic. I would feel SOOOO much better if my doc were here. Urgh.

Anyway, if anyone has anything to add or any suggestions, thoughts, etc. please let me know. I have internet in my room now, so should be able to check daily. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

mom2lillian
08-21-2007, 10:02 PM
Sonia-I am not sure about the 3rd med, never had it happen but I will be interested to read how they handle it. I am sorry you are not feeling well.

Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.

What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.

take care!

mom2lillian
08-21-2007, 10:02 PM
Sonia-I am not sure about the 3rd med, never had it happen but I will be interested to read how they handle it. I am sorry you are not feeling well.

Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.

What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.

take care!

mom2lillian
08-21-2007, 10:02 PM
Sonia-I am not sure about the 3rd med, never had it happen but I will be interested to read how they handle it. I am sorry you are not feeling well.

Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.

What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.

take care!

mom2lillian
08-21-2007, 10:02 PM
Sonia-I am not sure about the 3rd med, never had it happen but I will be interested to read how they handle it. I am sorry you are not feeling well.

Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.

What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.

take care!

mom2lillian
08-21-2007, 10:02 PM
Sonia-I am not sure about the 3rd med, never had it happen but I will be interested to read how they handle it. I am sorry you are not feeling well.

Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.

What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.

take care!

ladybug
08-21-2007, 11:37 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>


Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.



What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.



take care!</end quote></div>

Hi... Well, I actually do go to pulmonary rehab once a day and walk fast and uphill (always with O2) so my 30-40 mins. a day of cardio is still sort of being met, though not the hard jogs I'm used to cause I've had such side effects from the meds and am just short of breath from not doing anything ELSE. Its just that I'm just sitting in bed the other 23.5 hours out of the day, which is not what I do. I cook, clean, play with dogs, etc. etc... So, I don't know.

I do already do HTS. I'm not getting much up with it, but never do at home either. I just don't feel/sound too congested, but just SOB.

Thanks for the suggestions though! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-21-2007, 11:37 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>


Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.



What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.



take care!</end quote></div>

Hi... Well, I actually do go to pulmonary rehab once a day and walk fast and uphill (always with O2) so my 30-40 mins. a day of cardio is still sort of being met, though not the hard jogs I'm used to cause I've had such side effects from the meds and am just short of breath from not doing anything ELSE. Its just that I'm just sitting in bed the other 23.5 hours out of the day, which is not what I do. I cook, clean, play with dogs, etc. etc... So, I don't know.

I do already do HTS. I'm not getting much up with it, but never do at home either. I just don't feel/sound too congested, but just SOB.

Thanks for the suggestions though! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-21-2007, 11:37 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>


Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.



What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.



take care!</end quote></div>

Hi... Well, I actually do go to pulmonary rehab once a day and walk fast and uphill (always with O2) so my 30-40 mins. a day of cardio is still sort of being met, though not the hard jogs I'm used to cause I've had such side effects from the meds and am just short of breath from not doing anything ELSE. Its just that I'm just sitting in bed the other 23.5 hours out of the day, which is not what I do. I cook, clean, play with dogs, etc. etc... So, I don't know.

I do already do HTS. I'm not getting much up with it, but never do at home either. I just don't feel/sound too congested, but just SOB.

Thanks for the suggestions though! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-21-2007, 11:37 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>


Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.



What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.



take care!</end quote>

Hi... Well, I actually do go to pulmonary rehab once a day and walk fast and uphill (always with O2) so my 30-40 mins. a day of cardio is still sort of being met, though not the hard jogs I'm used to cause I've had such side effects from the meds and am just short of breath from not doing anything ELSE. Its just that I'm just sitting in bed the other 23.5 hours out of the day, which is not what I do. I cook, clean, play with dogs, etc. etc... So, I don't know.

I do already do HTS. I'm not getting much up with it, but never do at home either. I just don't feel/sound too congested, but just SOB.

Thanks for the suggestions though! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-21-2007, 11:37 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mom2lillian</b></i>


Is it possible for them to put a stationary bike inyour room so you can excercise? I know how much you like too and it cant hurt right? Might be a good time to monitor the oxygen too. Excercising makes me feel less anxious and would help you sleep better probably.



What about startings HTS while in to help get some good coughing going? You dont have to worry about resistance if you dont want to continue.



take care!</end quote>

Hi... Well, I actually do go to pulmonary rehab once a day and walk fast and uphill (always with O2) so my 30-40 mins. a day of cardio is still sort of being met, though not the hard jogs I'm used to cause I've had such side effects from the meds and am just short of breath from not doing anything ELSE. Its just that I'm just sitting in bed the other 23.5 hours out of the day, which is not what I do. I cook, clean, play with dogs, etc. etc... So, I don't know.

I do already do HTS. I'm not getting much up with it, but never do at home either. I just don't feel/sound too congested, but just SOB.

Thanks for the suggestions though! <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
08-24-2007, 03:58 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).



Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).



Take care,</end quote></div>

Just an update regarding the above-mentioned things....

First, they found out why my heart was palpitating so much... The PICC was actually too far into the aorta and was causing spasms and misfirings in my heart when I'd move my neck certain ways! They pulled it back out about 4 cm last night and I haven't had an incident since. Crazy stuff. They had taken an x-ray and even had done the PICC in IR, but apparently it all looked good at the time.

SO.... This was probably leading to a lot of the anxiety and headaches (cutting off blood flow to my head when I'd "kink" my neck) and could even have lead to some nausea..

My appetite is back! They give me Megase 2X per day and I can't stop eating. My stomach is growling all the time. Its pretty cool to go from not eating to snacking constantly. I doubt they'll keep me on this long term, but I wouldn't mind going home on it so I put some of the 5+ pounds I've lost back on. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My PFTs are scheduled Monday. I'm thinking either way I'll be heading home. They did a CT scan of my lungs a few nights ago and found a TON of air trapping and started me on pulmicort and severvent (instead of advair) to see if that helps me breath better. I'm also learning a ton about proper breathing techniques for when I'm anxious or SOB or exercising. Basically, you take a 2 count of breath in through your nose and "pursed lip breathing" out for a 4 count. It can be 3/6 or 4/8 counts as well, you're just supposed to double (at least) to push all the air out of your lungs. I have been doing this with exercise and though its kinda tricky at first, it does feel good to breath like that. And, last night when I was anxious, I did it and it immediately lowered my HR.

I'm still on O2 to sleep, but during the day I'm holding my own. I'm also still using it with exercise. We're in the process of getting approved for home O2 use since I DO go down with intense exercise. Actually, I didn't know this, but when insurance approves O2, even though its just for with exercise, many of them won't Rx it just for exercise (i.e. my particular plan), so I have to drop at room air just sitting as well. So, we'll see what happens with that. The exercise physiologist did tell me that if you drop to 88-89% sats during say a 20-30 minute exercise, its not detetrimental and they don't get too worried, but anything lower than that or staying at those levels at rest, one would warrant O2 use. So, that's also interesting. He does a lot with CF and has been giving me education sessions, so I do trust what he has to say. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, sorry this got so long. Just thought I'd update on all I'm learning and how I'm feeling. I'll keep in touch.

Thanks again for the thoughts and prayers. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-24-2007, 03:58 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).



Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).



Take care,</end quote></div>

Just an update regarding the above-mentioned things....

First, they found out why my heart was palpitating so much... The PICC was actually too far into the aorta and was causing spasms and misfirings in my heart when I'd move my neck certain ways! They pulled it back out about 4 cm last night and I haven't had an incident since. Crazy stuff. They had taken an x-ray and even had done the PICC in IR, but apparently it all looked good at the time.

SO.... This was probably leading to a lot of the anxiety and headaches (cutting off blood flow to my head when I'd "kink" my neck) and could even have lead to some nausea..

My appetite is back! They give me Megase 2X per day and I can't stop eating. My stomach is growling all the time. Its pretty cool to go from not eating to snacking constantly. I doubt they'll keep me on this long term, but I wouldn't mind going home on it so I put some of the 5+ pounds I've lost back on. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My PFTs are scheduled Monday. I'm thinking either way I'll be heading home. They did a CT scan of my lungs a few nights ago and found a TON of air trapping and started me on pulmicort and severvent (instead of advair) to see if that helps me breath better. I'm also learning a ton about proper breathing techniques for when I'm anxious or SOB or exercising. Basically, you take a 2 count of breath in through your nose and "pursed lip breathing" out for a 4 count. It can be 3/6 or 4/8 counts as well, you're just supposed to double (at least) to push all the air out of your lungs. I have been doing this with exercise and though its kinda tricky at first, it does feel good to breath like that. And, last night when I was anxious, I did it and it immediately lowered my HR.

I'm still on O2 to sleep, but during the day I'm holding my own. I'm also still using it with exercise. We're in the process of getting approved for home O2 use since I DO go down with intense exercise. Actually, I didn't know this, but when insurance approves O2, even though its just for with exercise, many of them won't Rx it just for exercise (i.e. my particular plan), so I have to drop at room air just sitting as well. So, we'll see what happens with that. The exercise physiologist did tell me that if you drop to 88-89% sats during say a 20-30 minute exercise, its not detetrimental and they don't get too worried, but anything lower than that or staying at those levels at rest, one would warrant O2 use. So, that's also interesting. He does a lot with CF and has been giving me education sessions, so I do trust what he has to say. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, sorry this got so long. Just thought I'd update on all I'm learning and how I'm feeling. I'll keep in touch.

Thanks again for the thoughts and prayers. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-24-2007, 03:58 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).



Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).



Take care,</end quote></div>

Just an update regarding the above-mentioned things....

First, they found out why my heart was palpitating so much... The PICC was actually too far into the aorta and was causing spasms and misfirings in my heart when I'd move my neck certain ways! They pulled it back out about 4 cm last night and I haven't had an incident since. Crazy stuff. They had taken an x-ray and even had done the PICC in IR, but apparently it all looked good at the time.

SO.... This was probably leading to a lot of the anxiety and headaches (cutting off blood flow to my head when I'd "kink" my neck) and could even have lead to some nausea..

My appetite is back! They give me Megase 2X per day and I can't stop eating. My stomach is growling all the time. Its pretty cool to go from not eating to snacking constantly. I doubt they'll keep me on this long term, but I wouldn't mind going home on it so I put some of the 5+ pounds I've lost back on. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My PFTs are scheduled Monday. I'm thinking either way I'll be heading home. They did a CT scan of my lungs a few nights ago and found a TON of air trapping and started me on pulmicort and severvent (instead of advair) to see if that helps me breath better. I'm also learning a ton about proper breathing techniques for when I'm anxious or SOB or exercising. Basically, you take a 2 count of breath in through your nose and "pursed lip breathing" out for a 4 count. It can be 3/6 or 4/8 counts as well, you're just supposed to double (at least) to push all the air out of your lungs. I have been doing this with exercise and though its kinda tricky at first, it does feel good to breath like that. And, last night when I was anxious, I did it and it immediately lowered my HR.

I'm still on O2 to sleep, but during the day I'm holding my own. I'm also still using it with exercise. We're in the process of getting approved for home O2 use since I DO go down with intense exercise. Actually, I didn't know this, but when insurance approves O2, even though its just for with exercise, many of them won't Rx it just for exercise (i.e. my particular plan), so I have to drop at room air just sitting as well. So, we'll see what happens with that. The exercise physiologist did tell me that if you drop to 88-89% sats during say a 20-30 minute exercise, its not detetrimental and they don't get too worried, but anything lower than that or staying at those levels at rest, one would warrant O2 use. So, that's also interesting. He does a lot with CF and has been giving me education sessions, so I do trust what he has to say. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, sorry this got so long. Just thought I'd update on all I'm learning and how I'm feeling. I'll keep in touch.

Thanks again for the thoughts and prayers. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-24-2007, 03:58 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).



Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).



Take care,</end quote>

Just an update regarding the above-mentioned things....

First, they found out why my heart was palpitating so much... The PICC was actually too far into the aorta and was causing spasms and misfirings in my heart when I'd move my neck certain ways! They pulled it back out about 4 cm last night and I haven't had an incident since. Crazy stuff. They had taken an x-ray and even had done the PICC in IR, but apparently it all looked good at the time.

SO.... This was probably leading to a lot of the anxiety and headaches (cutting off blood flow to my head when I'd "kink" my neck) and could even have lead to some nausea..

My appetite is back! They give me Megase 2X per day and I can't stop eating. My stomach is growling all the time. Its pretty cool to go from not eating to snacking constantly. I doubt they'll keep me on this long term, but I wouldn't mind going home on it so I put some of the 5+ pounds I've lost back on. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My PFTs are scheduled Monday. I'm thinking either way I'll be heading home. They did a CT scan of my lungs a few nights ago and found a TON of air trapping and started me on pulmicort and severvent (instead of advair) to see if that helps me breath better. I'm also learning a ton about proper breathing techniques for when I'm anxious or SOB or exercising. Basically, you take a 2 count of breath in through your nose and "pursed lip breathing" out for a 4 count. It can be 3/6 or 4/8 counts as well, you're just supposed to double (at least) to push all the air out of your lungs. I have been doing this with exercise and though its kinda tricky at first, it does feel good to breath like that. And, last night when I was anxious, I did it and it immediately lowered my HR.

I'm still on O2 to sleep, but during the day I'm holding my own. I'm also still using it with exercise. We're in the process of getting approved for home O2 use since I DO go down with intense exercise. Actually, I didn't know this, but when insurance approves O2, even though its just for with exercise, many of them won't Rx it just for exercise (i.e. my particular plan), so I have to drop at room air just sitting as well. So, we'll see what happens with that. The exercise physiologist did tell me that if you drop to 88-89% sats during say a 20-30 minute exercise, its not detetrimental and they don't get too worried, but anything lower than that or staying at those levels at rest, one would warrant O2 use. So, that's also interesting. He does a lot with CF and has been giving me education sessions, so I do trust what he has to say. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, sorry this got so long. Just thought I'd update on all I'm learning and how I'm feeling. I'll keep in touch.

Thanks again for the thoughts and prayers. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

ladybug
08-24-2007, 03:58 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>ladybug</b></i>


I've also had a lot more "incidents" with the heart monitor I'm wearing, which still causes anxiety. Its going off a lot on its own when I'm just transitioning from sleep to waking, which is also kind of odd. It feels like its beating in my throat. DH has listened when its recording an incident and says it sounds like my heart is just missing a beat every 4-5 beats. odd. So, I'll keep everyone posted. This is causing me more anxiety than the CF at this point (although the lower FEV1 doesn't help... LOL).



Also, I don't actually FEEL any different than when I came in. I maybe even feel a bit worse.... My cough, etc. are all the same and with the added O2 and anxiety and heart issues, its like the hospital itself made things worse... LOL. I know this often happens to us all, but its just crappy that I felt decent coming in and now I feel exhausted and anxious, etc... Oh well. I'll get off my soap box now. <img src="i/expressions/face-icon-small-smile.gif" border="0">



Know I think of you all every day. I hope things are going well with everyone. I don't have much time to read what's been going on with everyone, but hope to get some extra time next week to catch up (or when I get out the following week).



Take care,</end quote>

Just an update regarding the above-mentioned things....

First, they found out why my heart was palpitating so much... The PICC was actually too far into the aorta and was causing spasms and misfirings in my heart when I'd move my neck certain ways! They pulled it back out about 4 cm last night and I haven't had an incident since. Crazy stuff. They had taken an x-ray and even had done the PICC in IR, but apparently it all looked good at the time.

SO.... This was probably leading to a lot of the anxiety and headaches (cutting off blood flow to my head when I'd "kink" my neck) and could even have lead to some nausea..

My appetite is back! They give me Megase 2X per day and I can't stop eating. My stomach is growling all the time. Its pretty cool to go from not eating to snacking constantly. I doubt they'll keep me on this long term, but I wouldn't mind going home on it so I put some of the 5+ pounds I've lost back on. <img src="i/expressions/face-icon-small-smile.gif" border="0">

My PFTs are scheduled Monday. I'm thinking either way I'll be heading home. They did a CT scan of my lungs a few nights ago and found a TON of air trapping and started me on pulmicort and severvent (instead of advair) to see if that helps me breath better. I'm also learning a ton about proper breathing techniques for when I'm anxious or SOB or exercising. Basically, you take a 2 count of breath in through your nose and "pursed lip breathing" out for a 4 count. It can be 3/6 or 4/8 counts as well, you're just supposed to double (at least) to push all the air out of your lungs. I have been doing this with exercise and though its kinda tricky at first, it does feel good to breath like that. And, last night when I was anxious, I did it and it immediately lowered my HR.

I'm still on O2 to sleep, but during the day I'm holding my own. I'm also still using it with exercise. We're in the process of getting approved for home O2 use since I DO go down with intense exercise. Actually, I didn't know this, but when insurance approves O2, even though its just for with exercise, many of them won't Rx it just for exercise (i.e. my particular plan), so I have to drop at room air just sitting as well. So, we'll see what happens with that. The exercise physiologist did tell me that if you drop to 88-89% sats during say a 20-30 minute exercise, its not detetrimental and they don't get too worried, but anything lower than that or staying at those levels at rest, one would warrant O2 use. So, that's also interesting. He does a lot with CF and has been giving me education sessions, so I do trust what he has to say. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Anyway, sorry this got so long. Just thought I'd update on all I'm learning and how I'm feeling. I'll keep in touch.

Thanks again for the thoughts and prayers. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Take care,

JORDYSMOM
08-24-2007, 04:09 PM
Sonya

I'm glad to hear you are feeling better. I'm glad they figured that heart thing out. I know that was scary for you. I have anxiety issues, and it's very frustrating to have those heart palpatations. Again, I'm so glad you are improving. Take care.

Stacey

JORDYSMOM
08-24-2007, 04:09 PM
Sonya

I'm glad to hear you are feeling better. I'm glad they figured that heart thing out. I know that was scary for you. I have anxiety issues, and it's very frustrating to have those heart palpatations. Again, I'm so glad you are improving. Take care.

Stacey

JORDYSMOM
08-24-2007, 04:09 PM
Sonya

I'm glad to hear you are feeling better. I'm glad they figured that heart thing out. I know that was scary for you. I have anxiety issues, and it's very frustrating to have those heart palpatations. Again, I'm so glad you are improving. Take care.

Stacey

JORDYSMOM
08-24-2007, 04:09 PM
Sonya

I'm glad to hear you are feeling better. I'm glad they figured that heart thing out. I know that was scary for you. I have anxiety issues, and it's very frustrating to have those heart palpatations. Again, I'm so glad you are improving. Take care.

Stacey

JORDYSMOM
08-24-2007, 04:09 PM
Sonya

I'm glad to hear you are feeling better. I'm glad they figured that heart thing out. I know that was scary for you. I have anxiety issues, and it's very frustrating to have those heart palpatations. Again, I'm so glad you are improving. Take care.

Stacey

Wheezie
08-24-2007, 04:13 PM
hey Sonia, thanks for sharing the proper breathing techniques - I'm going to start trying that right now!

Also, when I first started taking megace it had the same exact effects on me as you described. My appetite has been poor ever since I had my gallbladder removed 6 years ago so I now use Megace regularly. It IS a hormone, so if they do want you to take it long term, make sure you're aware of all the side-effects, etc. esp. pertaining to your CFRD.

I'm so glad things are finally on the up for you!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Scary about your PICC, but glad they figured it out (eventually *sigh*).

Wheezie
08-24-2007, 04:13 PM
hey Sonia, thanks for sharing the proper breathing techniques - I'm going to start trying that right now!

Also, when I first started taking megace it had the same exact effects on me as you described. My appetite has been poor ever since I had my gallbladder removed 6 years ago so I now use Megace regularly. It IS a hormone, so if they do want you to take it long term, make sure you're aware of all the side-effects, etc. esp. pertaining to your CFRD.

I'm so glad things are finally on the up for you!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Scary about your PICC, but glad they figured it out (eventually *sigh*).

Wheezie
08-24-2007, 04:13 PM
hey Sonia, thanks for sharing the proper breathing techniques - I'm going to start trying that right now!

Also, when I first started taking megace it had the same exact effects on me as you described. My appetite has been poor ever since I had my gallbladder removed 6 years ago so I now use Megace regularly. It IS a hormone, so if they do want you to take it long term, make sure you're aware of all the side-effects, etc. esp. pertaining to your CFRD.

I'm so glad things are finally on the up for you!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Scary about your PICC, but glad they figured it out (eventually *sigh*).

Wheezie
08-24-2007, 04:13 PM
hey Sonia, thanks for sharing the proper breathing techniques - I'm going to start trying that right now!

Also, when I first started taking megace it had the same exact effects on me as you described. My appetite has been poor ever since I had my gallbladder removed 6 years ago so I now use Megace regularly. It IS a hormone, so if they do want you to take it long term, make sure you're aware of all the side-effects, etc. esp. pertaining to your CFRD.

I'm so glad things are finally on the up for you!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Scary about your PICC, but glad they figured it out (eventually *sigh*).

Wheezie
08-24-2007, 04:13 PM
hey Sonia, thanks for sharing the proper breathing techniques - I'm going to start trying that right now!

Also, when I first started taking megace it had the same exact effects on me as you described. My appetite has been poor ever since I had my gallbladder removed 6 years ago so I now use Megace regularly. It IS a hormone, so if they do want you to take it long term, make sure you're aware of all the side-effects, etc. esp. pertaining to your CFRD.

I'm so glad things are finally on the up for you!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> Scary about your PICC, but glad they figured it out (eventually *sigh*).

kswitch
08-24-2007, 04:21 PM
that's crazy about the picc. when i had mine put in, i knew it had gone on too far because my heart would flutter. the x-ray showed it in too far by about 5cm, but the gal that put it in seemed taken aback when i said that i could feel it. it was pulled 5cm and the flutters stopped immediately.

megace does work well. i had hoped that i would not have to be on it long term, but i got a script for upon discharge. don't know if i'll actually use it, but it is nice to have on hand in case apetite does plummet for whatever reason.

hope all else is well, and here's wishing you a continued positive recovery!!

k-

kswitch
08-24-2007, 04:21 PM
that's crazy about the picc. when i had mine put in, i knew it had gone on too far because my heart would flutter. the x-ray showed it in too far by about 5cm, but the gal that put it in seemed taken aback when i said that i could feel it. it was pulled 5cm and the flutters stopped immediately.

megace does work well. i had hoped that i would not have to be on it long term, but i got a script for upon discharge. don't know if i'll actually use it, but it is nice to have on hand in case apetite does plummet for whatever reason.

hope all else is well, and here's wishing you a continued positive recovery!!

k-

kswitch
08-24-2007, 04:21 PM
that's crazy about the picc. when i had mine put in, i knew it had gone on too far because my heart would flutter. the x-ray showed it in too far by about 5cm, but the gal that put it in seemed taken aback when i said that i could feel it. it was pulled 5cm and the flutters stopped immediately.

megace does work well. i had hoped that i would not have to be on it long term, but i got a script for upon discharge. don't know if i'll actually use it, but it is nice to have on hand in case apetite does plummet for whatever reason.

hope all else is well, and here's wishing you a continued positive recovery!!

k-

kswitch
08-24-2007, 04:21 PM
that's crazy about the picc. when i had mine put in, i knew it had gone on too far because my heart would flutter. the x-ray showed it in too far by about 5cm, but the gal that put it in seemed taken aback when i said that i could feel it. it was pulled 5cm and the flutters stopped immediately.

megace does work well. i had hoped that i would not have to be on it long term, but i got a script for upon discharge. don't know if i'll actually use it, but it is nice to have on hand in case apetite does plummet for whatever reason.

hope all else is well, and here's wishing you a continued positive recovery!!

k-

kswitch
08-24-2007, 04:21 PM
that's crazy about the picc. when i had mine put in, i knew it had gone on too far because my heart would flutter. the x-ray showed it in too far by about 5cm, but the gal that put it in seemed taken aback when i said that i could feel it. it was pulled 5cm and the flutters stopped immediately.

megace does work well. i had hoped that i would not have to be on it long term, but i got a script for upon discharge. don't know if i'll actually use it, but it is nice to have on hand in case apetite does plummet for whatever reason.

hope all else is well, and here's wishing you a continued positive recovery!!

k-

kayleesgrandma
08-24-2007, 05:27 PM
This is great news!!! I'm glad things are looking up for you--it always helps when you can eliminate problems one by one! I still haven't called you!!! Jeez! I'm slipping....<img src="i/expressions/face-icon-small-happy.gif" border="0">

kayleesgrandma
08-24-2007, 05:27 PM
This is great news!!! I'm glad things are looking up for you--it always helps when you can eliminate problems one by one! I still haven't called you!!! Jeez! I'm slipping....<img src="i/expressions/face-icon-small-happy.gif" border="0">

kayleesgrandma
08-24-2007, 05:27 PM
This is great news!!! I'm glad things are looking up for you--it always helps when you can eliminate problems one by one! I still haven't called you!!! Jeez! I'm slipping....<img src="i/expressions/face-icon-small-happy.gif" border="0">

kayleesgrandma
08-24-2007, 05:27 PM
This is great news!!! I'm glad things are looking up for you--it always helps when you can eliminate problems one by one! I still haven't called you!!! Jeez! I'm slipping....<img src="i/expressions/face-icon-small-happy.gif" border="0">

kayleesgrandma
08-24-2007, 05:27 PM
This is great news!!! I'm glad things are looking up for you--it always helps when you can eliminate problems one by one! I still haven't called you!!! Jeez! I'm slipping....<img src="i/expressions/face-icon-small-happy.gif" border="0">

jodijp
08-24-2007, 07:24 PM
Hey good news! <img src="i/expressions/face-icon-small-happy.gif" border="0">

That is pretty bizarro about your PICC causing all those problems - who would have guessed??? But at least they figured it out and you're better, that's what counts. <img src="i/expressions/face-icon-small-smile.gif" border="0">

jodijp
08-24-2007, 07:24 PM
Hey good news! <img src="i/expressions/face-icon-small-happy.gif" border="0">

That is pretty bizarro about your PICC causing all those problems - who would have guessed??? But at least they figured it out and you're better, that's what counts. <img src="i/expressions/face-icon-small-smile.gif" border="0">

jodijp
08-24-2007, 07:24 PM
Hey good news! <img src="i/expressions/face-icon-small-happy.gif" border="0">

That is pretty bizarro about your PICC causing all those problems - who would have guessed??? But at least they figured it out and you're better, that's what counts. <img src="i/expressions/face-icon-small-smile.gif" border="0">

jodijp
08-24-2007, 07:24 PM
Hey good news! <img src="i/expressions/face-icon-small-happy.gif" border="0">

That is pretty bizarro about your PICC causing all those problems - who would have guessed??? But at least they figured it out and you're better, that's what counts. <img src="i/expressions/face-icon-small-smile.gif" border="0">

jodijp
08-24-2007, 07:24 PM
Hey good news! <img src="i/expressions/face-icon-small-happy.gif" border="0">

That is pretty bizarro about your PICC causing all those problems - who would have guessed??? But at least they figured it out and you're better, that's what counts. <img src="i/expressions/face-icon-small-smile.gif" border="0">