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Wheezie
06-25-2007, 01:08 AM
Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb teenager, lol.

Anyway, I'm striving for 100% compliance these days and am wondering if it's even possible to camp and be 100% compliant. I'd really like to do the whole tent thing (as opposed to RV or cabin). I have a compressor that can run using the cigarette lighter in my car, so theoretically I could still do nebs. But I wouldn't be able to use my vest. Has anybody gone camping recently? Anybody have any suggestions? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 01:08 AM
Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb teenager, lol.

Anyway, I'm striving for 100% compliance these days and am wondering if it's even possible to camp and be 100% compliant. I'd really like to do the whole tent thing (as opposed to RV or cabin). I have a compressor that can run using the cigarette lighter in my car, so theoretically I could still do nebs. But I wouldn't be able to use my vest. Has anybody gone camping recently? Anybody have any suggestions? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 01:08 AM
Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb teenager, lol.

Anyway, I'm striving for 100% compliance these days and am wondering if it's even possible to camp and be 100% compliant. I'd really like to do the whole tent thing (as opposed to RV or cabin). I have a compressor that can run using the cigarette lighter in my car, so theoretically I could still do nebs. But I wouldn't be able to use my vest. Has anybody gone camping recently? Anybody have any suggestions? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 01:08 AM
Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb teenager, lol.

Anyway, I'm striving for 100% compliance these days and am wondering if it's even possible to camp and be 100% compliant. I'd really like to do the whole tent thing (as opposed to RV or cabin). I have a compressor that can run using the cigarette lighter in my car, so theoretically I could still do nebs. But I wouldn't be able to use my vest. Has anybody gone camping recently? Anybody have any suggestions? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 01:08 AM
Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb teenager, lol.

Anyway, I'm striving for 100% compliance these days and am wondering if it's even possible to camp and be 100% compliant. I'd really like to do the whole tent thing (as opposed to RV or cabin). I have a compressor that can run using the cigarette lighter in my car, so theoretically I could still do nebs. But I wouldn't be able to use my vest. Has anybody gone camping recently? Anybody have any suggestions? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 01:08 AM
Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb teenager, lol.

Anyway, I'm striving for 100% compliance these days and am wondering if it's even possible to camp and be 100% compliant. I'd really like to do the whole tent thing (as opposed to RV or cabin). I have a compressor that can run using the cigarette lighter in my car, so theoretically I could still do nebs. But I wouldn't be able to use my vest. Has anybody gone camping recently? Anybody have any suggestions? Thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

NoExcuses
06-25-2007, 01:14 AM
Have someone that you go with do CPT on you or get a flutter (I don't think those work as well as the Vest, but a few days wouldn't kill you) and get an eFlow that runs on batteries to do your nebs.

Sterilize eFlow with alcohol.

Problem solved! <img src="">

NoExcuses
06-25-2007, 01:14 AM
Have someone that you go with do CPT on you or get a flutter (I don't think those work as well as the Vest, but a few days wouldn't kill you) and get an eFlow that runs on batteries to do your nebs.

Sterilize eFlow with alcohol.

Problem solved! <img src="">

NoExcuses
06-25-2007, 01:14 AM
Have someone that you go with do CPT on you or get a flutter (I don't think those work as well as the Vest, but a few days wouldn't kill you) and get an eFlow that runs on batteries to do your nebs.

Sterilize eFlow with alcohol.

Problem solved! <img src="">

NoExcuses
06-25-2007, 01:14 AM
Have someone that you go with do CPT on you or get a flutter (I don't think those work as well as the Vest, but a few days wouldn't kill you) and get an eFlow that runs on batteries to do your nebs.

Sterilize eFlow with alcohol.

Problem solved! <img src="">

NoExcuses
06-25-2007, 01:14 AM
Have someone that you go with do CPT on you or get a flutter (I don't think those work as well as the Vest, but a few days wouldn't kill you) and get an eFlow that runs on batteries to do your nebs.

Sterilize eFlow with alcohol.

Problem solved! <img src="">

NoExcuses
06-25-2007, 01:14 AM
Have someone that you go with do CPT on you or get a flutter (I don't think those work as well as the Vest, but a few days wouldn't kill you) and get an eFlow that runs on batteries to do your nebs.

Sterilize eFlow with alcohol.

Problem solved! <img src="">

fourkidsmom
06-25-2007, 01:21 AM
HI Wheezie:

We actually just got back from camping today. We only went for the weekend this time, but my 6 yr old with cf got all his normal breathing treatments, medications and tube feeding. It is harder, but not impossible. He had 2 albuterol treatments, 2 HS treatments, 2 pulmicort treatments and one pulmozyme treatment with the vest for 1 hour ( 3 20 minute sessions) daily. He then had his adeks, vit E, lactulose, miralax, prevacid, enzymes, vit c, zithromax, and then his 9 hour per night tube feeding. We do go in an old camper (1977) we don't have running water, or bathroom but do have electric, which is essential. I have saved old masks for treatments (that were going to get thrown away), that have been sterilized for camping and don't wash and sterilze until we get home, so there is no worrying about keeping them clean. Luckily it wasn't hot this weekend, because with no air, it does make it hard on our little guy. Good luck and happy camping!!

Fourkidsmom

fourkidsmom
06-25-2007, 01:21 AM
HI Wheezie:

We actually just got back from camping today. We only went for the weekend this time, but my 6 yr old with cf got all his normal breathing treatments, medications and tube feeding. It is harder, but not impossible. He had 2 albuterol treatments, 2 HS treatments, 2 pulmicort treatments and one pulmozyme treatment with the vest for 1 hour ( 3 20 minute sessions) daily. He then had his adeks, vit E, lactulose, miralax, prevacid, enzymes, vit c, zithromax, and then his 9 hour per night tube feeding. We do go in an old camper (1977) we don't have running water, or bathroom but do have electric, which is essential. I have saved old masks for treatments (that were going to get thrown away), that have been sterilized for camping and don't wash and sterilze until we get home, so there is no worrying about keeping them clean. Luckily it wasn't hot this weekend, because with no air, it does make it hard on our little guy. Good luck and happy camping!!

Fourkidsmom

fourkidsmom
06-25-2007, 01:21 AM
HI Wheezie:

We actually just got back from camping today. We only went for the weekend this time, but my 6 yr old with cf got all his normal breathing treatments, medications and tube feeding. It is harder, but not impossible. He had 2 albuterol treatments, 2 HS treatments, 2 pulmicort treatments and one pulmozyme treatment with the vest for 1 hour ( 3 20 minute sessions) daily. He then had his adeks, vit E, lactulose, miralax, prevacid, enzymes, vit c, zithromax, and then his 9 hour per night tube feeding. We do go in an old camper (1977) we don't have running water, or bathroom but do have electric, which is essential. I have saved old masks for treatments (that were going to get thrown away), that have been sterilized for camping and don't wash and sterilze until we get home, so there is no worrying about keeping them clean. Luckily it wasn't hot this weekend, because with no air, it does make it hard on our little guy. Good luck and happy camping!!

Fourkidsmom

fourkidsmom
06-25-2007, 01:21 AM
HI Wheezie:

We actually just got back from camping today. We only went for the weekend this time, but my 6 yr old with cf got all his normal breathing treatments, medications and tube feeding. It is harder, but not impossible. He had 2 albuterol treatments, 2 HS treatments, 2 pulmicort treatments and one pulmozyme treatment with the vest for 1 hour ( 3 20 minute sessions) daily. He then had his adeks, vit E, lactulose, miralax, prevacid, enzymes, vit c, zithromax, and then his 9 hour per night tube feeding. We do go in an old camper (1977) we don't have running water, or bathroom but do have electric, which is essential. I have saved old masks for treatments (that were going to get thrown away), that have been sterilized for camping and don't wash and sterilze until we get home, so there is no worrying about keeping them clean. Luckily it wasn't hot this weekend, because with no air, it does make it hard on our little guy. Good luck and happy camping!!

Fourkidsmom

fourkidsmom
06-25-2007, 01:21 AM
HI Wheezie:

We actually just got back from camping today. We only went for the weekend this time, but my 6 yr old with cf got all his normal breathing treatments, medications and tube feeding. It is harder, but not impossible. He had 2 albuterol treatments, 2 HS treatments, 2 pulmicort treatments and one pulmozyme treatment with the vest for 1 hour ( 3 20 minute sessions) daily. He then had his adeks, vit E, lactulose, miralax, prevacid, enzymes, vit c, zithromax, and then his 9 hour per night tube feeding. We do go in an old camper (1977) we don't have running water, or bathroom but do have electric, which is essential. I have saved old masks for treatments (that were going to get thrown away), that have been sterilized for camping and don't wash and sterilze until we get home, so there is no worrying about keeping them clean. Luckily it wasn't hot this weekend, because with no air, it does make it hard on our little guy. Good luck and happy camping!!

Fourkidsmom

fourkidsmom
06-25-2007, 01:21 AM
HI Wheezie:

We actually just got back from camping today. We only went for the weekend this time, but my 6 yr old with cf got all his normal breathing treatments, medications and tube feeding. It is harder, but not impossible. He had 2 albuterol treatments, 2 HS treatments, 2 pulmicort treatments and one pulmozyme treatment with the vest for 1 hour ( 3 20 minute sessions) daily. He then had his adeks, vit E, lactulose, miralax, prevacid, enzymes, vit c, zithromax, and then his 9 hour per night tube feeding. We do go in an old camper (1977) we don't have running water, or bathroom but do have electric, which is essential. I have saved old masks for treatments (that were going to get thrown away), that have been sterilized for camping and don't wash and sterilze until we get home, so there is no worrying about keeping them clean. Luckily it wasn't hot this weekend, because with no air, it does make it hard on our little guy. Good luck and happy camping!!

Fourkidsmom

mum2kj
06-25-2007, 01:25 AM
you could do your nebs in the car as you said and then do exercise with periods of huffing and coughing.

Could you rent a generator so that you could use your vest?

mum2kj
06-25-2007, 01:25 AM
you could do your nebs in the car as you said and then do exercise with periods of huffing and coughing.

Could you rent a generator so that you could use your vest?

mum2kj
06-25-2007, 01:25 AM
you could do your nebs in the car as you said and then do exercise with periods of huffing and coughing.

Could you rent a generator so that you could use your vest?

mum2kj
06-25-2007, 01:25 AM
you could do your nebs in the car as you said and then do exercise with periods of huffing and coughing.

Could you rent a generator so that you could use your vest?

mum2kj
06-25-2007, 01:25 AM
you could do your nebs in the car as you said and then do exercise with periods of huffing and coughing.

Could you rent a generator so that you could use your vest?

mum2kj
06-25-2007, 01:25 AM
you could do your nebs in the car as you said and then do exercise with periods of huffing and coughing.

Could you rent a generator so that you could use your vest?

robert321
06-25-2007, 03:48 AM
i go camping all the time and have a good time doing it, just because you have cf doesn't mean you can't do things like camp, you just have to get creative.

First, if you camp in a state or national park a lot of times you can arrange to take your car to one of those rv hookups that have electricity to them already to do vest and so forth, the park rangers are typically very cooperative with it.

Second, you can buy an inverter for your car, get a bigger one, at least as many watts as your vest, you're probably best off to run it directly off your battery on your car, have the engine running or you'll kill the battery for sure, it's still hard on the alternator and battery but not as much, you can do the vest in the car, not very conveinent but it works none the less, i do it a lot when i can't get to an RV outlet.

Just talk to the park rangers and explain that you need electricity for medical equipment and they can usually get you to some. If you are camping out of a state/national park you obviously can't go ask the park ranger, so it'll be easist to do the inverter thing in the car.

I hope you are able to continue to camp and enjoy the outdoors as i hope to do for years to come. Don't let cf define you, but at the same time don't ignore so a campfire might not be a good thing for you to be too close to, it makes my face swell up till i have squinted eyes, but enjoy it anyway.

robert321
06-25-2007, 03:48 AM
i go camping all the time and have a good time doing it, just because you have cf doesn't mean you can't do things like camp, you just have to get creative.

First, if you camp in a state or national park a lot of times you can arrange to take your car to one of those rv hookups that have electricity to them already to do vest and so forth, the park rangers are typically very cooperative with it.

Second, you can buy an inverter for your car, get a bigger one, at least as many watts as your vest, you're probably best off to run it directly off your battery on your car, have the engine running or you'll kill the battery for sure, it's still hard on the alternator and battery but not as much, you can do the vest in the car, not very conveinent but it works none the less, i do it a lot when i can't get to an RV outlet.

Just talk to the park rangers and explain that you need electricity for medical equipment and they can usually get you to some. If you are camping out of a state/national park you obviously can't go ask the park ranger, so it'll be easist to do the inverter thing in the car.

I hope you are able to continue to camp and enjoy the outdoors as i hope to do for years to come. Don't let cf define you, but at the same time don't ignore so a campfire might not be a good thing for you to be too close to, it makes my face swell up till i have squinted eyes, but enjoy it anyway.

robert321
06-25-2007, 03:48 AM
i go camping all the time and have a good time doing it, just because you have cf doesn't mean you can't do things like camp, you just have to get creative.

First, if you camp in a state or national park a lot of times you can arrange to take your car to one of those rv hookups that have electricity to them already to do vest and so forth, the park rangers are typically very cooperative with it.

Second, you can buy an inverter for your car, get a bigger one, at least as many watts as your vest, you're probably best off to run it directly off your battery on your car, have the engine running or you'll kill the battery for sure, it's still hard on the alternator and battery but not as much, you can do the vest in the car, not very conveinent but it works none the less, i do it a lot when i can't get to an RV outlet.

Just talk to the park rangers and explain that you need electricity for medical equipment and they can usually get you to some. If you are camping out of a state/national park you obviously can't go ask the park ranger, so it'll be easist to do the inverter thing in the car.

I hope you are able to continue to camp and enjoy the outdoors as i hope to do for years to come. Don't let cf define you, but at the same time don't ignore so a campfire might not be a good thing for you to be too close to, it makes my face swell up till i have squinted eyes, but enjoy it anyway.

robert321
06-25-2007, 03:48 AM
i go camping all the time and have a good time doing it, just because you have cf doesn't mean you can't do things like camp, you just have to get creative.

First, if you camp in a state or national park a lot of times you can arrange to take your car to one of those rv hookups that have electricity to them already to do vest and so forth, the park rangers are typically very cooperative with it.

Second, you can buy an inverter for your car, get a bigger one, at least as many watts as your vest, you're probably best off to run it directly off your battery on your car, have the engine running or you'll kill the battery for sure, it's still hard on the alternator and battery but not as much, you can do the vest in the car, not very conveinent but it works none the less, i do it a lot when i can't get to an RV outlet.

Just talk to the park rangers and explain that you need electricity for medical equipment and they can usually get you to some. If you are camping out of a state/national park you obviously can't go ask the park ranger, so it'll be easist to do the inverter thing in the car.

I hope you are able to continue to camp and enjoy the outdoors as i hope to do for years to come. Don't let cf define you, but at the same time don't ignore so a campfire might not be a good thing for you to be too close to, it makes my face swell up till i have squinted eyes, but enjoy it anyway.

robert321
06-25-2007, 03:48 AM
i go camping all the time and have a good time doing it, just because you have cf doesn't mean you can't do things like camp, you just have to get creative.

First, if you camp in a state or national park a lot of times you can arrange to take your car to one of those rv hookups that have electricity to them already to do vest and so forth, the park rangers are typically very cooperative with it.

Second, you can buy an inverter for your car, get a bigger one, at least as many watts as your vest, you're probably best off to run it directly off your battery on your car, have the engine running or you'll kill the battery for sure, it's still hard on the alternator and battery but not as much, you can do the vest in the car, not very conveinent but it works none the less, i do it a lot when i can't get to an RV outlet.

Just talk to the park rangers and explain that you need electricity for medical equipment and they can usually get you to some. If you are camping out of a state/national park you obviously can't go ask the park ranger, so it'll be easist to do the inverter thing in the car.

I hope you are able to continue to camp and enjoy the outdoors as i hope to do for years to come. Don't let cf define you, but at the same time don't ignore so a campfire might not be a good thing for you to be too close to, it makes my face swell up till i have squinted eyes, but enjoy it anyway.

robert321
06-25-2007, 03:48 AM
i go camping all the time and have a good time doing it, just because you have cf doesn't mean you can't do things like camp, you just have to get creative.

First, if you camp in a state or national park a lot of times you can arrange to take your car to one of those rv hookups that have electricity to them already to do vest and so forth, the park rangers are typically very cooperative with it.

Second, you can buy an inverter for your car, get a bigger one, at least as many watts as your vest, you're probably best off to run it directly off your battery on your car, have the engine running or you'll kill the battery for sure, it's still hard on the alternator and battery but not as much, you can do the vest in the car, not very conveinent but it works none the less, i do it a lot when i can't get to an RV outlet.

Just talk to the park rangers and explain that you need electricity for medical equipment and they can usually get you to some. If you are camping out of a state/national park you obviously can't go ask the park ranger, so it'll be easist to do the inverter thing in the car.

I hope you are able to continue to camp and enjoy the outdoors as i hope to do for years to come. Don't let cf define you, but at the same time don't ignore so a campfire might not be a good thing for you to be too close to, it makes my face swell up till i have squinted eyes, but enjoy it anyway.

Sunnie
06-25-2007, 04:28 AM
Camping is definitely possible. I've been camping since I can remember. And I don't have tip top lung function. At first my grandfather would pack a generator for me to use for my pulmo-aide. Now I have a portable one that I just pack batteries for. I don't camp alone so whomever goes with me knows that he/she is in charge of my CPT (beating). I also tend to camp along the coast line (don't know if that's possible for you). It seems to aide in the bringing crap up process.

Sunnie
06-25-2007, 04:28 AM
Camping is definitely possible. I've been camping since I can remember. And I don't have tip top lung function. At first my grandfather would pack a generator for me to use for my pulmo-aide. Now I have a portable one that I just pack batteries for. I don't camp alone so whomever goes with me knows that he/she is in charge of my CPT (beating). I also tend to camp along the coast line (don't know if that's possible for you). It seems to aide in the bringing crap up process.

Sunnie
06-25-2007, 04:28 AM
Camping is definitely possible. I've been camping since I can remember. And I don't have tip top lung function. At first my grandfather would pack a generator for me to use for my pulmo-aide. Now I have a portable one that I just pack batteries for. I don't camp alone so whomever goes with me knows that he/she is in charge of my CPT (beating). I also tend to camp along the coast line (don't know if that's possible for you). It seems to aide in the bringing crap up process.

Sunnie
06-25-2007, 04:28 AM
Camping is definitely possible. I've been camping since I can remember. And I don't have tip top lung function. At first my grandfather would pack a generator for me to use for my pulmo-aide. Now I have a portable one that I just pack batteries for. I don't camp alone so whomever goes with me knows that he/she is in charge of my CPT (beating). I also tend to camp along the coast line (don't know if that's possible for you). It seems to aide in the bringing crap up process.

Sunnie
06-25-2007, 04:28 AM
Camping is definitely possible. I've been camping since I can remember. And I don't have tip top lung function. At first my grandfather would pack a generator for me to use for my pulmo-aide. Now I have a portable one that I just pack batteries for. I don't camp alone so whomever goes with me knows that he/she is in charge of my CPT (beating). I also tend to camp along the coast line (don't know if that's possible for you). It seems to aide in the bringing crap up process.

Sunnie
06-25-2007, 04:28 AM
Camping is definitely possible. I've been camping since I can remember. And I don't have tip top lung function. At first my grandfather would pack a generator for me to use for my pulmo-aide. Now I have a portable one that I just pack batteries for. I don't camp alone so whomever goes with me knows that he/she is in charge of my CPT (beating). I also tend to camp along the coast line (don't know if that's possible for you). It seems to aide in the bringing crap up process.

lightNlife
06-25-2007, 04:37 AM
Thank you for bringing up this topic, and for the answers! I have been trying to talk my husband into going camping or something (he never did it as a kid) but I've been concerned about all the CF stuff. When I was a kid and we went camping my parents were the ones to figure out how to make it work. And if I got too sick, we'd just come home! (Mostly we camped at the beach).

This is such an encouraging post. This opens up a whole new realm of activities for us to share. With our wedding anniversary coming up in just 10 days, maybe I'll see if we can celebrate by buying a tent! Yay!

lightNlife
06-25-2007, 04:37 AM
Thank you for bringing up this topic, and for the answers! I have been trying to talk my husband into going camping or something (he never did it as a kid) but I've been concerned about all the CF stuff. When I was a kid and we went camping my parents were the ones to figure out how to make it work. And if I got too sick, we'd just come home! (Mostly we camped at the beach).

This is such an encouraging post. This opens up a whole new realm of activities for us to share. With our wedding anniversary coming up in just 10 days, maybe I'll see if we can celebrate by buying a tent! Yay!

lightNlife
06-25-2007, 04:37 AM
Thank you for bringing up this topic, and for the answers! I have been trying to talk my husband into going camping or something (he never did it as a kid) but I've been concerned about all the CF stuff. When I was a kid and we went camping my parents were the ones to figure out how to make it work. And if I got too sick, we'd just come home! (Mostly we camped at the beach).

This is such an encouraging post. This opens up a whole new realm of activities for us to share. With our wedding anniversary coming up in just 10 days, maybe I'll see if we can celebrate by buying a tent! Yay!

lightNlife
06-25-2007, 04:37 AM
Thank you for bringing up this topic, and for the answers! I have been trying to talk my husband into going camping or something (he never did it as a kid) but I've been concerned about all the CF stuff. When I was a kid and we went camping my parents were the ones to figure out how to make it work. And if I got too sick, we'd just come home! (Mostly we camped at the beach).

This is such an encouraging post. This opens up a whole new realm of activities for us to share. With our wedding anniversary coming up in just 10 days, maybe I'll see if we can celebrate by buying a tent! Yay!

lightNlife
06-25-2007, 04:37 AM
Thank you for bringing up this topic, and for the answers! I have been trying to talk my husband into going camping or something (he never did it as a kid) but I've been concerned about all the CF stuff. When I was a kid and we went camping my parents were the ones to figure out how to make it work. And if I got too sick, we'd just come home! (Mostly we camped at the beach).

This is such an encouraging post. This opens up a whole new realm of activities for us to share. With our wedding anniversary coming up in just 10 days, maybe I'll see if we can celebrate by buying a tent! Yay!

lightNlife
06-25-2007, 04:37 AM
Thank you for bringing up this topic, and for the answers! I have been trying to talk my husband into going camping or something (he never did it as a kid) but I've been concerned about all the CF stuff. When I was a kid and we went camping my parents were the ones to figure out how to make it work. And if I got too sick, we'd just come home! (Mostly we camped at the beach).

This is such an encouraging post. This opens up a whole new realm of activities for us to share. With our wedding anniversary coming up in just 10 days, maybe I'll see if we can celebrate by buying a tent! Yay!

krisjohn53223
06-25-2007, 12:13 PM
can't you get a site with electricity?? I once went camping while on IV's and rather than bringing the whole IV pole and pump, I hung my cipro from a tree branch!! My doc keeps a picture of it in my chart! Good luck and have fun!

krisjohn53223
06-25-2007, 12:13 PM
can't you get a site with electricity?? I once went camping while on IV's and rather than bringing the whole IV pole and pump, I hung my cipro from a tree branch!! My doc keeps a picture of it in my chart! Good luck and have fun!

krisjohn53223
06-25-2007, 12:13 PM
can't you get a site with electricity?? I once went camping while on IV's and rather than bringing the whole IV pole and pump, I hung my cipro from a tree branch!! My doc keeps a picture of it in my chart! Good luck and have fun!

krisjohn53223
06-25-2007, 12:13 PM
can't you get a site with electricity?? I once went camping while on IV's and rather than bringing the whole IV pole and pump, I hung my cipro from a tree branch!! My doc keeps a picture of it in my chart! Good luck and have fun!

krisjohn53223
06-25-2007, 12:13 PM
can't you get a site with electricity?? I once went camping while on IV's and rather than bringing the whole IV pole and pump, I hung my cipro from a tree branch!! My doc keeps a picture of it in my chart! Good luck and have fun!

krisjohn53223
06-25-2007, 12:13 PM
can't you get a site with electricity?? I once went camping while on IV's and rather than bringing the whole IV pole and pump, I hung my cipro from a tree branch!! My doc keeps a picture of it in my chart! Good luck and have fun!

mom2lillian
06-25-2007, 12:24 PM
We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img src="i/expressions/face-icon-small-wink.gif" border="0">, or alot of times DH woudl say we woudl do the mcd's run in the am so I could do it on the drive there and back.

Additionally, just to mention that our tent gets musty having been stored all season and so my DH worries very much about it affecting me, especially wiht ABPA. So one thing we have come up with is to pop it up and air it out ahead of time, wipe the floor with bleach, and spray it inside with lysol all ahead of time.

I woudl also think that if you bought a new tent you woudl ideally want to air it out ahead of time as the plasticy fumes can get to you (at least me).

mom2lillian
06-25-2007, 12:24 PM
We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img src="i/expressions/face-icon-small-wink.gif" border="0">, or alot of times DH woudl say we woudl do the mcd's run in the am so I could do it on the drive there and back.

Additionally, just to mention that our tent gets musty having been stored all season and so my DH worries very much about it affecting me, especially wiht ABPA. So one thing we have come up with is to pop it up and air it out ahead of time, wipe the floor with bleach, and spray it inside with lysol all ahead of time.

I woudl also think that if you bought a new tent you woudl ideally want to air it out ahead of time as the plasticy fumes can get to you (at least me).

mom2lillian
06-25-2007, 12:24 PM
We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img src="i/expressions/face-icon-small-wink.gif" border="0">, or alot of times DH woudl say we woudl do the mcd's run in the am so I could do it on the drive there and back.

Additionally, just to mention that our tent gets musty having been stored all season and so my DH worries very much about it affecting me, especially wiht ABPA. So one thing we have come up with is to pop it up and air it out ahead of time, wipe the floor with bleach, and spray it inside with lysol all ahead of time.

I woudl also think that if you bought a new tent you woudl ideally want to air it out ahead of time as the plasticy fumes can get to you (at least me).

mom2lillian
06-25-2007, 12:24 PM
We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img src="i/expressions/face-icon-small-wink.gif" border="0">, or alot of times DH woudl say we woudl do the mcd's run in the am so I could do it on the drive there and back.

Additionally, just to mention that our tent gets musty having been stored all season and so my DH worries very much about it affecting me, especially wiht ABPA. So one thing we have come up with is to pop it up and air it out ahead of time, wipe the floor with bleach, and spray it inside with lysol all ahead of time.

I woudl also think that if you bought a new tent you woudl ideally want to air it out ahead of time as the plasticy fumes can get to you (at least me).

mom2lillian
06-25-2007, 12:24 PM
We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img src="i/expressions/face-icon-small-wink.gif" border="0">, or alot of times DH woudl say we woudl do the mcd's run in the am so I could do it on the drive there and back.

Additionally, just to mention that our tent gets musty having been stored all season and so my DH worries very much about it affecting me, especially wiht ABPA. So one thing we have come up with is to pop it up and air it out ahead of time, wipe the floor with bleach, and spray it inside with lysol all ahead of time.

I woudl also think that if you bought a new tent you woudl ideally want to air it out ahead of time as the plasticy fumes can get to you (at least me).

mom2lillian
06-25-2007, 12:24 PM
We have went camping multiple times and I woudl do the portable or go visit our 'high rent friends' i.e. a camper and use their electricity. I would close my car doors and do the flutter or acapella, so the whole campground doesnt hear you coughing <img src="i/expressions/face-icon-small-wink.gif" border="0">, or alot of times DH woudl say we woudl do the mcd's run in the am so I could do it on the drive there and back.

Additionally, just to mention that our tent gets musty having been stored all season and so my DH worries very much about it affecting me, especially wiht ABPA. So one thing we have come up with is to pop it up and air it out ahead of time, wipe the floor with bleach, and spray it inside with lysol all ahead of time.

I woudl also think that if you bought a new tent you woudl ideally want to air it out ahead of time as the plasticy fumes can get to you (at least me).

miesl
06-25-2007, 01:23 PM
Absolutely! Jeremy is usually a 2 Vest a day guy, with albuterol, atrovent, mucomyst and hypertonic saline for nebs.

Here's what we do:

<b>Backpacking</b> - yes, I just said backpacking. As in carrying a 40 lb pack with all your stuff. We have a Pari Trek with 2 battery packs and an acapella. After a day of backpacking (~5 miles), he usually doesn't need any therapy - the bouncing of the pack is excellent airway clearance. If it's a short trip (~1 mile), he'll do an evening one, but it's not all that productive. In the am, I cook breakfast while he does nebs and an acapella. We love backpacking, and have plans to do it every Friday this summer. We have a local state park with backpacking sites about a mile in, so it's just fun. We're getting into shape for our anniversary trip - three nights backpacking on Isle Royale. We did two nights for our honeymoon and LOVED IT!

<b>Regular camping with no access to an electrical site </b>- We have two XPower 300 power packs (you can get them at Menards or Home Depot, I think). One will runs the VEST, and can be recharged in the car while you drive. I think we can get two 30 hour VEST therapies out of it. We use that in combination with the Trek. Sometimes it requires we drive around while he does his therapies (so the trek plugs into the car), but that's not a big deal. (Twilight = good time to look for wildlife)

<b>Camping with Electrical Access</b> - just plug stuff in! Even if you aren't in a camper - you can use the electrical. Just be sure to bring an adapter in case there isn't a standard wall plug.

miesl
06-25-2007, 01:23 PM
Absolutely! Jeremy is usually a 2 Vest a day guy, with albuterol, atrovent, mucomyst and hypertonic saline for nebs.

Here's what we do:

<b>Backpacking</b> - yes, I just said backpacking. As in carrying a 40 lb pack with all your stuff. We have a Pari Trek with 2 battery packs and an acapella. After a day of backpacking (~5 miles), he usually doesn't need any therapy - the bouncing of the pack is excellent airway clearance. If it's a short trip (~1 mile), he'll do an evening one, but it's not all that productive. In the am, I cook breakfast while he does nebs and an acapella. We love backpacking, and have plans to do it every Friday this summer. We have a local state park with backpacking sites about a mile in, so it's just fun. We're getting into shape for our anniversary trip - three nights backpacking on Isle Royale. We did two nights for our honeymoon and LOVED IT!

<b>Regular camping with no access to an electrical site </b>- We have two XPower 300 power packs (you can get them at Menards or Home Depot, I think). One will runs the VEST, and can be recharged in the car while you drive. I think we can get two 30 hour VEST therapies out of it. We use that in combination with the Trek. Sometimes it requires we drive around while he does his therapies (so the trek plugs into the car), but that's not a big deal. (Twilight = good time to look for wildlife)

<b>Camping with Electrical Access</b> - just plug stuff in! Even if you aren't in a camper - you can use the electrical. Just be sure to bring an adapter in case there isn't a standard wall plug.

miesl
06-25-2007, 01:23 PM
Absolutely! Jeremy is usually a 2 Vest a day guy, with albuterol, atrovent, mucomyst and hypertonic saline for nebs.

Here's what we do:

<b>Backpacking</b> - yes, I just said backpacking. As in carrying a 40 lb pack with all your stuff. We have a Pari Trek with 2 battery packs and an acapella. After a day of backpacking (~5 miles), he usually doesn't need any therapy - the bouncing of the pack is excellent airway clearance. If it's a short trip (~1 mile), he'll do an evening one, but it's not all that productive. In the am, I cook breakfast while he does nebs and an acapella. We love backpacking, and have plans to do it every Friday this summer. We have a local state park with backpacking sites about a mile in, so it's just fun. We're getting into shape for our anniversary trip - three nights backpacking on Isle Royale. We did two nights for our honeymoon and LOVED IT!

<b>Regular camping with no access to an electrical site </b>- We have two XPower 300 power packs (you can get them at Menards or Home Depot, I think). One will runs the VEST, and can be recharged in the car while you drive. I think we can get two 30 hour VEST therapies out of it. We use that in combination with the Trek. Sometimes it requires we drive around while he does his therapies (so the trek plugs into the car), but that's not a big deal. (Twilight = good time to look for wildlife)

<b>Camping with Electrical Access</b> - just plug stuff in! Even if you aren't in a camper - you can use the electrical. Just be sure to bring an adapter in case there isn't a standard wall plug.

miesl
06-25-2007, 01:23 PM
Absolutely! Jeremy is usually a 2 Vest a day guy, with albuterol, atrovent, mucomyst and hypertonic saline for nebs.

Here's what we do:

<b>Backpacking</b> - yes, I just said backpacking. As in carrying a 40 lb pack with all your stuff. We have a Pari Trek with 2 battery packs and an acapella. After a day of backpacking (~5 miles), he usually doesn't need any therapy - the bouncing of the pack is excellent airway clearance. If it's a short trip (~1 mile), he'll do an evening one, but it's not all that productive. In the am, I cook breakfast while he does nebs and an acapella. We love backpacking, and have plans to do it every Friday this summer. We have a local state park with backpacking sites about a mile in, so it's just fun. We're getting into shape for our anniversary trip - three nights backpacking on Isle Royale. We did two nights for our honeymoon and LOVED IT!

<b>Regular camping with no access to an electrical site </b>- We have two XPower 300 power packs (you can get them at Menards or Home Depot, I think). One will runs the VEST, and can be recharged in the car while you drive. I think we can get two 30 hour VEST therapies out of it. We use that in combination with the Trek. Sometimes it requires we drive around while he does his therapies (so the trek plugs into the car), but that's not a big deal. (Twilight = good time to look for wildlife)

<b>Camping with Electrical Access</b> - just plug stuff in! Even if you aren't in a camper - you can use the electrical. Just be sure to bring an adapter in case there isn't a standard wall plug.

miesl
06-25-2007, 01:23 PM
Absolutely! Jeremy is usually a 2 Vest a day guy, with albuterol, atrovent, mucomyst and hypertonic saline for nebs.

Here's what we do:

<b>Backpacking</b> - yes, I just said backpacking. As in carrying a 40 lb pack with all your stuff. We have a Pari Trek with 2 battery packs and an acapella. After a day of backpacking (~5 miles), he usually doesn't need any therapy - the bouncing of the pack is excellent airway clearance. If it's a short trip (~1 mile), he'll do an evening one, but it's not all that productive. In the am, I cook breakfast while he does nebs and an acapella. We love backpacking, and have plans to do it every Friday this summer. We have a local state park with backpacking sites about a mile in, so it's just fun. We're getting into shape for our anniversary trip - three nights backpacking on Isle Royale. We did two nights for our honeymoon and LOVED IT!

<b>Regular camping with no access to an electrical site </b>- We have two XPower 300 power packs (you can get them at Menards or Home Depot, I think). One will runs the VEST, and can be recharged in the car while you drive. I think we can get two 30 hour VEST therapies out of it. We use that in combination with the Trek. Sometimes it requires we drive around while he does his therapies (so the trek plugs into the car), but that's not a big deal. (Twilight = good time to look for wildlife)

<b>Camping with Electrical Access</b> - just plug stuff in! Even if you aren't in a camper - you can use the electrical. Just be sure to bring an adapter in case there isn't a standard wall plug.

miesl
06-25-2007, 01:23 PM
Absolutely! Jeremy is usually a 2 Vest a day guy, with albuterol, atrovent, mucomyst and hypertonic saline for nebs.

Here's what we do:

<b>Backpacking</b> - yes, I just said backpacking. As in carrying a 40 lb pack with all your stuff. We have a Pari Trek with 2 battery packs and an acapella. After a day of backpacking (~5 miles), he usually doesn't need any therapy - the bouncing of the pack is excellent airway clearance. If it's a short trip (~1 mile), he'll do an evening one, but it's not all that productive. In the am, I cook breakfast while he does nebs and an acapella. We love backpacking, and have plans to do it every Friday this summer. We have a local state park with backpacking sites about a mile in, so it's just fun. We're getting into shape for our anniversary trip - three nights backpacking on Isle Royale. We did two nights for our honeymoon and LOVED IT!

<b>Regular camping with no access to an electrical site </b>- We have two XPower 300 power packs (you can get them at Menards or Home Depot, I think). One will runs the VEST, and can be recharged in the car while you drive. I think we can get two 30 hour VEST therapies out of it. We use that in combination with the Trek. Sometimes it requires we drive around while he does his therapies (so the trek plugs into the car), but that's not a big deal. (Twilight = good time to look for wildlife)

<b>Camping with Electrical Access</b> - just plug stuff in! Even if you aren't in a camper - you can use the electrical. Just be sure to bring an adapter in case there isn't a standard wall plug.

robert321
06-25-2007, 10:35 PM
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me

robert321
06-25-2007, 10:35 PM
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me

robert321
06-25-2007, 10:35 PM
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me

robert321
06-25-2007, 10:35 PM
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me

robert321
06-25-2007, 10:35 PM
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me

robert321
06-25-2007, 10:35 PM
As far as backpacking i go some but not a whole lot, when you backpack you want your pack as light as you can get it and a portable neb gets really heavy fast so i avoid backpacking, shouldn't but it is a hassle. I have gone on a couple of 25mile hikes that i drug the portable neb with me

Wheezie
06-25-2007, 11:44 PM
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 11:44 PM
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 11:44 PM
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 11:44 PM
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 11:44 PM
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Wheezie
06-25-2007, 11:44 PM
Thank you all so much for these replies!! I was going to go anyway, but now I can actually feel good about it instead of thinking I'd have to compromise my compliance (and then feel guilty about it). GREAT suggestions - thanks again. <img src="i/expressions/face-icon-small-smile.gif" border="0">

madisonsmom
06-26-2007, 09:54 PM
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw

madisonsmom
06-26-2007, 09:54 PM
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw

madisonsmom
06-26-2007, 09:54 PM
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw

madisonsmom
06-26-2007, 09:54 PM
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw

madisonsmom
06-26-2007, 09:54 PM
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw

madisonsmom
06-26-2007, 09:54 PM
Great suggestions......... mydaughter was just camping at a state park, they used the car battery for nebs and she went to the closest ranger stationto do her vest.. she had a great time. Of course we had lots of preparation for all the meds, insulin....list goes on. kw

L
06-27-2007, 02:47 AM
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!

L
06-27-2007, 02:47 AM
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!

L
06-27-2007, 02:47 AM
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!

L
06-27-2007, 02:47 AM
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!

L
06-27-2007, 02:47 AM
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!

L
06-27-2007, 02:47 AM
<img src="i/expressions/face-icon-small-happy.gif" border="0">Camping? You bet! We never let CF stand in the way. We take the battery compressor ( also plugged into the cigarette lighter in the car ) and do CPT or flutter/ acapella instead of vest ( before we bought the generator ).
We have camped in Yellowstone and all over the Pacific Northwest starting when Andrew was 6 months old.

Call us crazy, but a few years ago, Andrew was discharged from the hospital the day before the opener for Deer season ( prior agreement with the CF doc ).
You guessed it, we had everything together, packed up the IV supplies and , with the CF doc's blessing, took Andrew up deer hunting for the weekend. He never missed a treatment. The only concession he made was, he came back to the camper where I could wash up to hook up his antiobiotics, then took off back out hunting with the antibiotics infusing.
<img src="i/expressions/face-icon-small-happy.gif" border="0"> Yep, he got a deer that year!
It does take some preparation and planning ahead, but it is worth it!