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Ricky123
06-11-2007, 07:02 AM
on a scale of 1 to 10 1=never do anything or 10 totally compliant and never miss any treatments

i would say iam a 7




i admit at the weekend i dont do that much but during the week i try to be pretty religous with my treatments i have realised from own personal experience that i have had to relax some treatments or i end up being a slave to cf up until around 23 i have been more or less 100% compliant physio 3 times a day ie i was doing 20 minutes 3 x daily and from the age of 17 all my nebulisers (when the docs put me on them) but with hindsight i have found from a personal opinion that doing treatments so religously it has messed up my social life to a extent ie doing all this tratment does tire you somewhat and ya cant be 100% like ya mates(ive told them the situation and thank god they understand)
and on a education level my grades at uni this year have suffered bit as to do near 2 hours treatments daily on a full time course is like carrying a heavy burden

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially

Ricky123
06-11-2007, 07:02 AM
on a scale of 1 to 10 1=never do anything or 10 totally compliant and never miss any treatments

i would say iam a 7




i admit at the weekend i dont do that much but during the week i try to be pretty religous with my treatments i have realised from own personal experience that i have had to relax some treatments or i end up being a slave to cf up until around 23 i have been more or less 100% compliant physio 3 times a day ie i was doing 20 minutes 3 x daily and from the age of 17 all my nebulisers (when the docs put me on them) but with hindsight i have found from a personal opinion that doing treatments so religously it has messed up my social life to a extent ie doing all this tratment does tire you somewhat and ya cant be 100% like ya mates(ive told them the situation and thank god they understand)
and on a education level my grades at uni this year have suffered bit as to do near 2 hours treatments daily on a full time course is like carrying a heavy burden

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially

Ricky123
06-11-2007, 07:02 AM
on a scale of 1 to 10 1=never do anything or 10 totally compliant and never miss any treatments

i would say iam a 7




i admit at the weekend i dont do that much but during the week i try to be pretty religous with my treatments i have realised from own personal experience that i have had to relax some treatments or i end up being a slave to cf up until around 23 i have been more or less 100% compliant physio 3 times a day ie i was doing 20 minutes 3 x daily and from the age of 17 all my nebulisers (when the docs put me on them) but with hindsight i have found from a personal opinion that doing treatments so religously it has messed up my social life to a extent ie doing all this tratment does tire you somewhat and ya cant be 100% like ya mates(ive told them the situation and thank god they understand)
and on a education level my grades at uni this year have suffered bit as to do near 2 hours treatments daily on a full time course is like carrying a heavy burden

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially

Ricky123
06-11-2007, 07:02 AM
on a scale of 1 to 10 1=never do anything or 10 totally compliant and never miss any treatments

i would say iam a 7




i admit at the weekend i dont do that much but during the week i try to be pretty religous with my treatments i have realised from own personal experience that i have had to relax some treatments or i end up being a slave to cf up until around 23 i have been more or less 100% compliant physio 3 times a day ie i was doing 20 minutes 3 x daily and from the age of 17 all my nebulisers (when the docs put me on them) but with hindsight i have found from a personal opinion that doing treatments so religously it has messed up my social life to a extent ie doing all this tratment does tire you somewhat and ya cant be 100% like ya mates(ive told them the situation and thank god they understand)
and on a education level my grades at uni this year have suffered bit as to do near 2 hours treatments daily on a full time course is like carrying a heavy burden

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially

Ricky123
06-11-2007, 07:02 AM
on a scale of 1 to 10 1=never do anything or 10 totally compliant and never miss any treatments

i would say iam a 7




i admit at the weekend i dont do that much but during the week i try to be pretty religous with my treatments i have realised from own personal experience that i have had to relax some treatments or i end up being a slave to cf up until around 23 i have been more or less 100% compliant physio 3 times a day ie i was doing 20 minutes 3 x daily and from the age of 17 all my nebulisers (when the docs put me on them) but with hindsight i have found from a personal opinion that doing treatments so religously it has messed up my social life to a extent ie doing all this tratment does tire you somewhat and ya cant be 100% like ya mates(ive told them the situation and thank god they understand)
and on a education level my grades at uni this year have suffered bit as to do near 2 hours treatments daily on a full time course is like carrying a heavy burden

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially

Ricky123
06-11-2007, 07:02 AM
on a scale of 1 to 10 1=never do anything or 10 totally compliant and never miss any treatments

i would say iam a 7




i admit at the weekend i dont do that much but during the week i try to be pretty religous with my treatments i have realised from own personal experience that i have had to relax some treatments or i end up being a slave to cf up until around 23 i have been more or less 100% compliant physio 3 times a day ie i was doing 20 minutes 3 x daily and from the age of 17 all my nebulisers (when the docs put me on them) but with hindsight i have found from a personal opinion that doing treatments so religously it has messed up my social life to a extent ie doing all this tratment does tire you somewhat and ya cant be 100% like ya mates(ive told them the situation and thank god they understand)
and on a education level my grades at uni this year have suffered bit as to do near 2 hours treatments daily on a full time course is like carrying a heavy burden

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially

mom2lillian
06-11-2007, 07:34 AM
I would say I was a 5 (meaning 50% time doing what I should)

NOw having had my daughter I am 90-95% (occasionally I have fallen asleep without last CPT or truly forgotten something but rarely make the choice to skip). In hindsight I owed this to my husband as well and should have been doing it all along but I feel that I owe it to my family to stick around as long as possible otherwise I have no right having a family. That is just my opinion.

mom2lillian
06-11-2007, 07:34 AM
I would say I was a 5 (meaning 50% time doing what I should)

NOw having had my daughter I am 90-95% (occasionally I have fallen asleep without last CPT or truly forgotten something but rarely make the choice to skip). In hindsight I owed this to my husband as well and should have been doing it all along but I feel that I owe it to my family to stick around as long as possible otherwise I have no right having a family. That is just my opinion.

mom2lillian
06-11-2007, 07:34 AM
I would say I was a 5 (meaning 50% time doing what I should)

NOw having had my daughter I am 90-95% (occasionally I have fallen asleep without last CPT or truly forgotten something but rarely make the choice to skip). In hindsight I owed this to my husband as well and should have been doing it all along but I feel that I owe it to my family to stick around as long as possible otherwise I have no right having a family. That is just my opinion.

mom2lillian
06-11-2007, 07:34 AM
I would say I was a 5 (meaning 50% time doing what I should)

NOw having had my daughter I am 90-95% (occasionally I have fallen asleep without last CPT or truly forgotten something but rarely make the choice to skip). In hindsight I owed this to my husband as well and should have been doing it all along but I feel that I owe it to my family to stick around as long as possible otherwise I have no right having a family. That is just my opinion.

mom2lillian
06-11-2007, 07:34 AM
I would say I was a 5 (meaning 50% time doing what I should)

NOw having had my daughter I am 90-95% (occasionally I have fallen asleep without last CPT or truly forgotten something but rarely make the choice to skip). In hindsight I owed this to my husband as well and should have been doing it all along but I feel that I owe it to my family to stick around as long as possible otherwise I have no right having a family. That is just my opinion.

mom2lillian
06-11-2007, 07:34 AM
I would say I was a 5 (meaning 50% time doing what I should)

NOw having had my daughter I am 90-95% (occasionally I have fallen asleep without last CPT or truly forgotten something but rarely make the choice to skip). In hindsight I owed this to my husband as well and should have been doing it all along but I feel that I owe it to my family to stick around as long as possible otherwise I have no right having a family. That is just my opinion.

JazzysMom
06-11-2007, 08:45 AM
I would probably put myself at an 8-9. I never miss two treatments in a row, but there have been times where sleep is more of a need so I have skipped my vest. I have NEVER skipped a neb/inhaler treatment altogether. I just wouldnt be able to breath then. IF I dont have time for a neb then I will do my inhaler of albeuterol & then my pulmicort neb.

JazzysMom
06-11-2007, 08:45 AM
I would probably put myself at an 8-9. I never miss two treatments in a row, but there have been times where sleep is more of a need so I have skipped my vest. I have NEVER skipped a neb/inhaler treatment altogether. I just wouldnt be able to breath then. IF I dont have time for a neb then I will do my inhaler of albeuterol & then my pulmicort neb.

JazzysMom
06-11-2007, 08:45 AM
I would probably put myself at an 8-9. I never miss two treatments in a row, but there have been times where sleep is more of a need so I have skipped my vest. I have NEVER skipped a neb/inhaler treatment altogether. I just wouldnt be able to breath then. IF I dont have time for a neb then I will do my inhaler of albeuterol & then my pulmicort neb.

JazzysMom
06-11-2007, 08:45 AM
I would probably put myself at an 8-9. I never miss two treatments in a row, but there have been times where sleep is more of a need so I have skipped my vest. I have NEVER skipped a neb/inhaler treatment altogether. I just wouldnt be able to breath then. IF I dont have time for a neb then I will do my inhaler of albeuterol & then my pulmicort neb.

JazzysMom
06-11-2007, 08:45 AM
I would probably put myself at an 8-9. I never miss two treatments in a row, but there have been times where sleep is more of a need so I have skipped my vest. I have NEVER skipped a neb/inhaler treatment altogether. I just wouldnt be able to breath then. IF I dont have time for a neb then I will do my inhaler of albeuterol & then my pulmicort neb.

JazzysMom
06-11-2007, 08:45 AM
I would probably put myself at an 8-9. I never miss two treatments in a row, but there have been times where sleep is more of a need so I have skipped my vest. I have NEVER skipped a neb/inhaler treatment altogether. I just wouldnt be able to breath then. IF I dont have time for a neb then I will do my inhaler of albeuterol & then my pulmicort neb.

moxie1
06-11-2007, 09:11 AM
I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.

moxie1
06-11-2007, 09:11 AM
I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.

moxie1
06-11-2007, 09:11 AM
I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.

moxie1
06-11-2007, 09:11 AM
I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.

moxie1
06-11-2007, 09:11 AM
I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.

moxie1
06-11-2007, 09:11 AM
I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.

MCGrad2006
06-11-2007, 09:21 AM
I am probably a 7-8. When I was in college, I wasnt very good at all and I have been through times where I just wouldnt do my nebs or even my enzyme...but NOW esp with HTS I am noticing that I have become more compliant. I have said this before on these forums, I feel like with the HTS, I notice a difference right away if I dont do it. Before it was so much easier to just say, Oh I dont see the difference right now(but would notice after a few days of missed treatments). As far as the ezyme thing for me, I just started doing them more religiously, I dont tend to forget to bring them places anymore....stuff like that. I just try to make myself think that, everyone takes pills, so if someone sees me taking mine (although, I do have to take several mouthfuls b/c I cant swallow them all) its not a big deal.

MCGrad2006
06-11-2007, 09:21 AM
I am probably a 7-8. When I was in college, I wasnt very good at all and I have been through times where I just wouldnt do my nebs or even my enzyme...but NOW esp with HTS I am noticing that I have become more compliant. I have said this before on these forums, I feel like with the HTS, I notice a difference right away if I dont do it. Before it was so much easier to just say, Oh I dont see the difference right now(but would notice after a few days of missed treatments). As far as the ezyme thing for me, I just started doing them more religiously, I dont tend to forget to bring them places anymore....stuff like that. I just try to make myself think that, everyone takes pills, so if someone sees me taking mine (although, I do have to take several mouthfuls b/c I cant swallow them all) its not a big deal.

MCGrad2006
06-11-2007, 09:21 AM
I am probably a 7-8. When I was in college, I wasnt very good at all and I have been through times where I just wouldnt do my nebs or even my enzyme...but NOW esp with HTS I am noticing that I have become more compliant. I have said this before on these forums, I feel like with the HTS, I notice a difference right away if I dont do it. Before it was so much easier to just say, Oh I dont see the difference right now(but would notice after a few days of missed treatments). As far as the ezyme thing for me, I just started doing them more religiously, I dont tend to forget to bring them places anymore....stuff like that. I just try to make myself think that, everyone takes pills, so if someone sees me taking mine (although, I do have to take several mouthfuls b/c I cant swallow them all) its not a big deal.

MCGrad2006
06-11-2007, 09:21 AM
I am probably a 7-8. When I was in college, I wasnt very good at all and I have been through times where I just wouldnt do my nebs or even my enzyme...but NOW esp with HTS I am noticing that I have become more compliant. I have said this before on these forums, I feel like with the HTS, I notice a difference right away if I dont do it. Before it was so much easier to just say, Oh I dont see the difference right now(but would notice after a few days of missed treatments). As far as the ezyme thing for me, I just started doing them more religiously, I dont tend to forget to bring them places anymore....stuff like that. I just try to make myself think that, everyone takes pills, so if someone sees me taking mine (although, I do have to take several mouthfuls b/c I cant swallow them all) its not a big deal.

MCGrad2006
06-11-2007, 09:21 AM
I am probably a 7-8. When I was in college, I wasnt very good at all and I have been through times where I just wouldnt do my nebs or even my enzyme...but NOW esp with HTS I am noticing that I have become more compliant. I have said this before on these forums, I feel like with the HTS, I notice a difference right away if I dont do it. Before it was so much easier to just say, Oh I dont see the difference right now(but would notice after a few days of missed treatments). As far as the ezyme thing for me, I just started doing them more religiously, I dont tend to forget to bring them places anymore....stuff like that. I just try to make myself think that, everyone takes pills, so if someone sees me taking mine (although, I do have to take several mouthfuls b/c I cant swallow them all) its not a big deal.

MCGrad2006
06-11-2007, 09:21 AM
I am probably a 7-8. When I was in college, I wasnt very good at all and I have been through times where I just wouldnt do my nebs or even my enzyme...but NOW esp with HTS I am noticing that I have become more compliant. I have said this before on these forums, I feel like with the HTS, I notice a difference right away if I dont do it. Before it was so much easier to just say, Oh I dont see the difference right now(but would notice after a few days of missed treatments). As far as the ezyme thing for me, I just started doing them more religiously, I dont tend to forget to bring them places anymore....stuff like that. I just try to make myself think that, everyone takes pills, so if someone sees me taking mine (although, I do have to take several mouthfuls b/c I cant swallow them all) its not a big deal.

Ricky123
06-11-2007, 10:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i>

I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.</end quote></div>i have the utmost respect for ya if ya never miss anything fair play

Ricky123
06-11-2007, 10:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i>

I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.</end quote></div>i have the utmost respect for ya if ya never miss anything fair play

Ricky123
06-11-2007, 10:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i>

I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.</end quote></div>i have the utmost respect for ya if ya never miss anything fair play

Ricky123
06-11-2007, 10:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i>

I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.</end quote></div>i have the utmost respect for ya if ya never miss anything fair play

Ricky123
06-11-2007, 10:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i>

I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.</end quote>i have the utmost respect for ya if ya never miss anything fair play

Ricky123
06-11-2007, 10:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>moxie1</b></i>

I'm a 10. I never miss anything unless the doctors have me stopped due to bleeding. If I am going somewhere that evening, I do my 2nd vest in the afternoon. It's just not worth missing any to me.</end quote>i have the utmost respect for ya if ya never miss anything fair play

Jennifer1981
06-11-2007, 10:57 AM
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.

Jennifer1981
06-11-2007, 10:57 AM
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.

Jennifer1981
06-11-2007, 10:57 AM
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.

Jennifer1981
06-11-2007, 10:57 AM
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.

Jennifer1981
06-11-2007, 10:57 AM
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.

Jennifer1981
06-11-2007, 10:57 AM
I would say a 9.

I NEVER miss a whole treatment. The past weekend we visited my parents and came home at 11:00pm. I STILL did my treatment. I did the Albuterol, HS, Vest, and Pulmozyme; however, I shorten the length of the Vest from 30 minutes to 20. That is why I said a 9. I don't miss.

If we are up until 1:00 am, I still do a treatment. Yeah, I get to bed at like 2:00, but I still do it.

catboogie
06-11-2007, 11:58 AM
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">

catboogie
06-11-2007, 11:58 AM
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">

catboogie
06-11-2007, 11:58 AM
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">

catboogie
06-11-2007, 11:58 AM
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">

catboogie
06-11-2007, 11:58 AM
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">

catboogie
06-11-2007, 11:58 AM
i am a 9...i've been known to come home and go to bed instead of doing my treatment after a good night of beer. (incidentally, i'm always mad at myself after the fact for doing this.) but that rarely happens.

there was a time when i could be more slack on the weekends and i certainly was when i could. now i can't anymore. well, we always have a choice. it's just not worth it to me.

i know what you mean about feeling like a slave to your CF. it is possible to fit everything in, though, with a different attitude besides that you are being a slave to CF. (i am happy to sacrifice time now for more time later, and for less hospital time later.) i think that's ultimately what we all want.

you want to be able to go out with your friends, but if you get run down, or you're coughing more than you would be with treatments, or down the road if you have trouble keeping up with them...you will have realized too late that your treatments should have had a higher priority.

*end of lecture* <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
06-11-2007, 12:11 PM
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
06-11-2007, 12:11 PM
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
06-11-2007, 12:11 PM
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
06-11-2007, 12:11 PM
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
06-11-2007, 12:11 PM
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
06-11-2007, 12:11 PM
I'm probably a 9.9. I don't miss a whole treatment (I can't remember the last time I did that), and the only time I may miss part of one is when I absolutely have to be somewhere else (like on vacation and running behind, and checkout is at 11am sharp). I also wasn't particularly compliant before I had my daughter- better, as I got older, but not dedicated to it. Now, I too feel that I owe it to my family, as well as myself, to do a better job.

It is a bummer that it takes about an hour and a half, twice a day. However, the extra time and energy I get from feeling well and being healthier on the other end are so worth it! <img src="i/expressions/face-icon-small-smile.gif" border="0">

LouLou
06-11-2007, 12:14 PM
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.

LouLou
06-11-2007, 12:14 PM
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.

LouLou
06-11-2007, 12:14 PM
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.

LouLou
06-11-2007, 12:14 PM
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.

LouLou
06-11-2007, 12:14 PM
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.

LouLou
06-11-2007, 12:14 PM
I haven't always been able to say this so it makes me proud.
I'm a 10 - have been since 2003. Prior to that I was an 8-9 for the majority of my life. Before the age of 6 I was also a 10 (thanks Mom!)

Does it effect my life? Absolutely I feel wonderful the majority of the time and I know it's because I'm so compliant. It also does provide a stringent schedule but we work around the treatments to not let it control our lives.

lightNlife
06-11-2007, 12:36 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree. The more compliant I am with my treatments the easier it is to have the energy to do other stuff.

By the way, I'm a 9. Sometimes my treatments are at odd hours, but that's because I'm busy being normal and successful in most aspects of my life.

The reason I'm a 9 and not a 10 is because I consider eating to be part of treatment. There are days when I don't eat as much as I should or eat the right things.

lightNlife
06-11-2007, 12:36 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree. The more compliant I am with my treatments the easier it is to have the energy to do other stuff.

By the way, I'm a 9. Sometimes my treatments are at odd hours, but that's because I'm busy being normal and successful in most aspects of my life.

The reason I'm a 9 and not a 10 is because I consider eating to be part of treatment. There are days when I don't eat as much as I should or eat the right things.

lightNlife
06-11-2007, 12:36 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree. The more compliant I am with my treatments the easier it is to have the energy to do other stuff.

By the way, I'm a 9. Sometimes my treatments are at odd hours, but that's because I'm busy being normal and successful in most aspects of my life.

The reason I'm a 9 and not a 10 is because I consider eating to be part of treatment. There are days when I don't eat as much as I should or eat the right things.

lightNlife
06-11-2007, 12:36 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree. The more compliant I am with my treatments the easier it is to have the energy to do other stuff.

By the way, I'm a 9. Sometimes my treatments are at odd hours, but that's because I'm busy being normal and successful in most aspects of my life.

The reason I'm a 9 and not a 10 is because I consider eating to be part of treatment. There are days when I don't eat as much as I should or eat the right things.

lightNlife
06-11-2007, 12:36 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote>

I disagree. The more compliant I am with my treatments the easier it is to have the energy to do other stuff.

By the way, I'm a 9. Sometimes my treatments are at odd hours, but that's because I'm busy being normal and successful in most aspects of my life.

The reason I'm a 9 and not a 10 is because I consider eating to be part of treatment. There are days when I don't eat as much as I should or eat the right things.

lightNlife
06-11-2007, 12:36 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>

my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote>

I disagree. The more compliant I am with my treatments the easier it is to have the energy to do other stuff.

By the way, I'm a 9. Sometimes my treatments are at odd hours, but that's because I'm busy being normal and successful in most aspects of my life.

The reason I'm a 9 and not a 10 is because I consider eating to be part of treatment. There are days when I don't eat as much as I should or eat the right things.

NoExcuses
06-11-2007, 12:52 PM
I'm an 11. <img src="i/expressions/face-icon-small-smile.gif" border="0">

There's only so much I can control with this disease (so much is out of my control), I do all I can to control the controllable.

Being compliant with meds is one of the few things I have 100% control over.

NoExcuses
06-11-2007, 12:52 PM
I'm an 11. <img src="i/expressions/face-icon-small-smile.gif" border="0">

There's only so much I can control with this disease (so much is out of my control), I do all I can to control the controllable.

Being compliant with meds is one of the few things I have 100% control over.

NoExcuses
06-11-2007, 12:52 PM
I'm an 11. <img src="i/expressions/face-icon-small-smile.gif" border="0">

There's only so much I can control with this disease (so much is out of my control), I do all I can to control the controllable.

Being compliant with meds is one of the few things I have 100% control over.

NoExcuses
06-11-2007, 12:52 PM
I'm an 11. <img src="i/expressions/face-icon-small-smile.gif" border="0">

There's only so much I can control with this disease (so much is out of my control), I do all I can to control the controllable.

Being compliant with meds is one of the few things I have 100% control over.

NoExcuses
06-11-2007, 12:52 PM
I'm an 11. <img src="i/expressions/face-icon-small-smile.gif" border="0">

There's only so much I can control with this disease (so much is out of my control), I do all I can to control the controllable.

Being compliant with meds is one of the few things I have 100% control over.

NoExcuses
06-11-2007, 12:52 PM
I'm an 11. <img src="i/expressions/face-icon-small-smile.gif" border="0">

There's only so much I can control with this disease (so much is out of my control), I do all I can to control the controllable.

Being compliant with meds is one of the few things I have 100% control over.

Ratatosk
06-11-2007, 01:46 PM
10 -- our schedule, social events revolve around DS's treatments.

We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.

Ratatosk
06-11-2007, 01:46 PM
10 -- our schedule, social events revolve around DS's treatments.

We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.

Ratatosk
06-11-2007, 01:46 PM
10 -- our schedule, social events revolve around DS's treatments.

We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.

Ratatosk
06-11-2007, 01:46 PM
10 -- our schedule, social events revolve around DS's treatments.

We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.

Ratatosk
06-11-2007, 01:46 PM
10 -- our schedule, social events revolve around DS's treatments.

We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.

Ratatosk
06-11-2007, 01:46 PM
10 -- our schedule, social events revolve around DS's treatments.

We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.

Lilith
06-11-2007, 01:48 PM
I'm a 9. On average I miss one or two treatments a week, though never in a row, usually because I'm out to dinner late or the like. Pills I never miss. Though I can't say its helped my lung fuction improve at all, at least I don't cough so much in the morning *shrug*

Lilith
06-11-2007, 01:48 PM
I'm a 9. On average I miss one or two treatments a week, though never in a row, usually because I'm out to dinner late or the like. Pills I never miss. Though I can't say its helped my lung fuction improve at all, at least I don't cough so much in the morning *shrug*

Lilith
06-11-2007, 01:48 PM
I'm a 9. On average I miss one or two treatments a week, though never in a row, usually because I'm out to dinner late or the like. Pills I never miss. Though I can't say its helped my lung fuction improve at all, at least I don't cough so much in the morning *shrug*

Lilith
06-11-2007, 01:48 PM
I'm a 9. On average I miss one or two treatments a week, though never in a row, usually because I'm out to dinner late or the like. Pills I never miss. Though I can't say its helped my lung fuction improve at all, at least I don't cough so much in the morning *shrug*

Lilith
06-11-2007, 01:48 PM
I'm a 9. On average I miss one or two treatments a week, though never in a row, usually because I'm out to dinner late or the like. Pills I never miss. Though I can't say its helped my lung fuction improve at all, at least I don't cough so much in the morning *shrug*

Lilith
06-11-2007, 01:48 PM
I'm a 9. On average I miss one or two treatments a week, though never in a row, usually because I'm out to dinner late or the like. Pills I never miss. Though I can't say its helped my lung fuction improve at all, at least I don't cough so much in the morning *shrug*

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote></div>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

NoExcuses
06-11-2007, 02:19 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ricky123</b></i>



my point is it is damm near impossible to have a normal successful life and do treatments so religously without being affected somewhat being academically or socially</end quote>

I disagree as well.

I work full time. When I was in school, I completed two bachelors degrees in 4.5 years.

I have even worked overseas for many months at a time and I've been 100% compliant.

I have an active social life as well. I went to two parties this weekend in fact - and I did all my meds.

It can be done - and many of us do it.

beleache
06-11-2007, 04:06 PM
I would say at this point in time, i'm about a 9... Joni 55 y/o f w c/f

beleache
06-11-2007, 04:06 PM
I would say at this point in time, i'm about a 9... Joni 55 y/o f w c/f

beleache
06-11-2007, 04:06 PM
I would say at this point in time, i'm about a 9... Joni 55 y/o f w c/f

beleache
06-11-2007, 04:06 PM
I would say at this point in time, i'm about a 9... Joni 55 y/o f w c/f

beleache
06-11-2007, 04:06 PM
I would say at this point in time, i'm about a 9... Joni 55 y/o f w c/f

beleache
06-11-2007, 04:06 PM
I would say at this point in time, i'm about a 9... Joni 55 y/o f w c/f

Ricky123
06-11-2007, 04:53 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view

Ricky123
06-11-2007, 04:53 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view

Ricky123
06-11-2007, 04:53 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view

Ricky123
06-11-2007, 04:53 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote></div>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view

Ricky123
06-11-2007, 04:53 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view

Ricky123
06-11-2007, 04:53 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Ratatosk</b></i>

10 -- our schedule, social events revolve around DS's treatments.



We do 3 CPT/Vest treatments a day. Early morning 6 during the week, 7 on weekends, 5:30 p.m. & 10 p.m. The past few weeks we've had graduations to attend, so we've done the vest before leaving for the party and made sure we were back in time for the 10 pm treatment. If he's on Tobi, then we bring along a nebulizer take time to do his treatments wherever we're at.</end quote>thats what my mum use to do to me 3 times a day but i found it affected me as a kid i use to feel different to the other kids because i knew i had treatments to do ie i developed a inferiority complex i know it might not be the case for everyone but for me it cetainly was if i had a child with cf from my own personal experiences i would relxax his treatments evry now and then say once every 2 weeks i let him him have a day off because i think phychologically he would be better off i know people will disagree with me but that is just my personal view

Jennifer1981
06-11-2007, 05:06 PM
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">

Jennifer1981
06-11-2007, 05:06 PM
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">

Jennifer1981
06-11-2007, 05:06 PM
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">

Jennifer1981
06-11-2007, 05:06 PM
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">

Jennifer1981
06-11-2007, 05:06 PM
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">

Jennifer1981
06-11-2007, 05:06 PM
I have a comment on that too...

Ratatosk, Is it possible to just keep the treatments before or after a family event? I thinks it's great that you as a parent are so diligent. Please don't read me wrong. I am thankful when a parent really makes such an effort to not let their kids miss treatments.

I HATE/REFUSE doing my treatments during social events. As a kid, my Mom was much like you with that. It really bothered me. Instead of having fun like the other kids, I was sitting and watching out the window while the other kids played. I use to get so sad and disappointed. After my treatments, I would slowly creep out of the house and kind of slowly mingle back in to play with the kids again. I felt out of place. Then, I had questions to answer when I only wanted to be "normal" for one moment. To this day if I do treatments for any reason during a social event, I get depressed and feel like I'm missing out. Plus, I feel sooooo akward and uneasy. I make sure at all costs to avoid treatments during social events. I take my enzymes and such, but I REFUSE to do treatments. If I need my inhaler, I disappear for 2 seconds, which is a VERY RARE thing.

I'm not saying that your child will be that way. Hopefully, he won't, but I know how I felt and still feel about it. Please I am not bashing you. Please don't misunderstand...<img src="i/expressions/face-icon-small-smile.gif" border="0">

Ratatosk
06-11-2007, 05:25 PM
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.

Ratatosk
06-11-2007, 05:25 PM
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.

Ratatosk
06-11-2007, 05:25 PM
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.

Ratatosk
06-11-2007, 05:25 PM
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.

Ratatosk
06-11-2007, 05:25 PM
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.

Ratatosk
06-11-2007, 05:25 PM
It is something to keep in mind.

These days it's very rare that we do treatments elsewhere because we don't want to drag him away from something fun. But we have done it for the all day long social events. We bring along his portable DVD player, grab a snack and sneak off somewhere away from the action. With family events, he's pretty much the only one in his age group anyway, so we end up bringing along a backpack full of toys, movies, coloring supplies to keep him entertained.

It seems to work best for us to neb and beat him before we head out the door and then make sure we're home by 10 for his final treatment. And makes for a nice excuse, having to get him home and to bed if the social event is one of those long, tedius family reunions.

Would be nice if one could plug the vest & nebs into the cigarrette lighter and hit the road, but imagine that takes wayyyy too much juice.

cdale613
06-11-2007, 08:03 PM
10

It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.

Chris

27 m w/CF

cdale613
06-11-2007, 08:03 PM
10

It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.

Chris

27 m w/CF

cdale613
06-11-2007, 08:03 PM
10

It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.

Chris

27 m w/CF

cdale613
06-11-2007, 08:03 PM
10

It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.

Chris

27 m w/CF

cdale613
06-11-2007, 08:03 PM
10

It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.

Chris

27 m w/CF

cdale613
06-11-2007, 08:03 PM
10

It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.

Chris

27 m w/CF

Ricky123
06-12-2007, 07:39 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

10



It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.



Chris



27 m w/CF</end quote></div>yeah i respect you for being so religous about doing ya treatments but life is about having fun and relaxing a little ie we are not robots my point is i think you need to have a balance in this life all treatments everyday of the year and 100% compliance affects ya quality of life ie to be hypothetical and i have discussed this with someone with cf i know and he agrees with me wouldent you prefer to live till about 45(missing the occasional treatment and actually enjoying life) as opposed to 55 its like anything on a wider issue docters tell you eat right but people still do junk food ,dont drink to excess poeple still do ,
see what iam implying my personal view on cf is to be 100% compliant you loose some enjoyment for life as your always thinking in the back of your mind you have treatments to do(for me that was the case anyway)

my take on life is even with cf you have to live a little get drunk everynow and then smoke the occasional joint (around 2 a year) and relax on treatments sometimes ive find i get a lot more out of life now but that is what works for me

the most important thing for me i found was when i was being 100% complaint it affected my character i was stressed always worrying about when i should take my next medicines or do my next treatment now i feel a lot better i have changed my treatment (relax a bit at the weekend) and i think that is the most important how you feel within yourself over the physical health of your body your mental side is more important than your physical side

Ricky123
06-12-2007, 07:39 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

10



It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.



Chris



27 m w/CF</end quote></div>yeah i respect you for being so religous about doing ya treatments but life is about having fun and relaxing a little ie we are not robots my point is i think you need to have a balance in this life all treatments everyday of the year and 100% compliance affects ya quality of life ie to be hypothetical and i have discussed this with someone with cf i know and he agrees with me wouldent you prefer to live till about 45(missing the occasional treatment and actually enjoying life) as opposed to 55 its like anything on a wider issue docters tell you eat right but people still do junk food ,dont drink to excess poeple still do ,
see what iam implying my personal view on cf is to be 100% compliant you loose some enjoyment for life as your always thinking in the back of your mind you have treatments to do(for me that was the case anyway)

my take on life is even with cf you have to live a little get drunk everynow and then smoke the occasional joint (around 2 a year) and relax on treatments sometimes ive find i get a lot more out of life now but that is what works for me

the most important thing for me i found was when i was being 100% complaint it affected my character i was stressed always worrying about when i should take my next medicines or do my next treatment now i feel a lot better i have changed my treatment (relax a bit at the weekend) and i think that is the most important how you feel within yourself over the physical health of your body your mental side is more important than your physical side

Ricky123
06-12-2007, 07:39 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

10



It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.



Chris



27 m w/CF</end quote></div>yeah i respect you for being so religous about doing ya treatments but life is about having fun and relaxing a little ie we are not robots my point is i think you need to have a balance in this life all treatments everyday of the year and 100% compliance affects ya quality of life ie to be hypothetical and i have discussed this with someone with cf i know and he agrees with me wouldent you prefer to live till about 45(missing the occasional treatment and actually enjoying life) as opposed to 55 its like anything on a wider issue docters tell you eat right but people still do junk food ,dont drink to excess poeple still do ,
see what iam implying my personal view on cf is to be 100% compliant you loose some enjoyment for life as your always thinking in the back of your mind you have treatments to do(for me that was the case anyway)

my take on life is even with cf you have to live a little get drunk everynow and then smoke the occasional joint (around 2 a year) and relax on treatments sometimes ive find i get a lot more out of life now but that is what works for me

the most important thing for me i found was when i was being 100% complaint it affected my character i was stressed always worrying about when i should take my next medicines or do my next treatment now i feel a lot better i have changed my treatment (relax a bit at the weekend) and i think that is the most important how you feel within yourself over the physical health of your body your mental side is more important than your physical side

Ricky123
06-12-2007, 07:39 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

10



It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.



Chris



27 m w/CF</end quote></div>yeah i respect you for being so religous about doing ya treatments but life is about having fun and relaxing a little ie we are not robots my point is i think you need to have a balance in this life all treatments everyday of the year and 100% compliance affects ya quality of life ie to be hypothetical and i have discussed this with someone with cf i know and he agrees with me wouldent you prefer to live till about 45(missing the occasional treatment and actually enjoying life) as opposed to 55 its like anything on a wider issue docters tell you eat right but people still do junk food ,dont drink to excess poeple still do ,
see what iam implying my personal view on cf is to be 100% compliant you loose some enjoyment for life as your always thinking in the back of your mind you have treatments to do(for me that was the case anyway)

my take on life is even with cf you have to live a little get drunk everynow and then smoke the occasional joint (around 2 a year) and relax on treatments sometimes ive find i get a lot more out of life now but that is what works for me

the most important thing for me i found was when i was being 100% complaint it affected my character i was stressed always worrying about when i should take my next medicines or do my next treatment now i feel a lot better i have changed my treatment (relax a bit at the weekend) and i think that is the most important how you feel within yourself over the physical health of your body your mental side is more important than your physical side

Ricky123
06-12-2007, 07:39 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

10



It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.



Chris



27 m w/CF</end quote>yeah i respect you for being so religous about doing ya treatments but life is about having fun and relaxing a little ie we are not robots my point is i think you need to have a balance in this life all treatments everyday of the year and 100% compliance affects ya quality of life ie to be hypothetical and i have discussed this with someone with cf i know and he agrees with me wouldent you prefer to live till about 45(missing the occasional treatment and actually enjoying life) as opposed to 55 its like anything on a wider issue docters tell you eat right but people still do junk food ,dont drink to excess poeple still do ,
see what iam implying my personal view on cf is to be 100% compliant you loose some enjoyment for life as your always thinking in the back of your mind you have treatments to do(for me that was the case anyway)

my take on life is even with cf you have to live a little get drunk everynow and then smoke the occasional joint (around 2 a year) and relax on treatments sometimes ive find i get a lot more out of life now but that is what works for me

the most important thing for me i found was when i was being 100% complaint it affected my character i was stressed always worrying about when i should take my next medicines or do my next treatment now i feel a lot better i have changed my treatment (relax a bit at the weekend) and i think that is the most important how you feel within yourself over the physical health of your body your mental side is more important than your physical side

Ricky123
06-12-2007, 07:39 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

10



It can be done. Establish a routine and stick to it. Prioritize your health care needs above all the other stuff, and surround yourself with people who support you and understand the importance of your health needs.



Chris



27 m w/CF</end quote>yeah i respect you for being so religous about doing ya treatments but life is about having fun and relaxing a little ie we are not robots my point is i think you need to have a balance in this life all treatments everyday of the year and 100% compliance affects ya quality of life ie to be hypothetical and i have discussed this with someone with cf i know and he agrees with me wouldent you prefer to live till about 45(missing the occasional treatment and actually enjoying life) as opposed to 55 its like anything on a wider issue docters tell you eat right but people still do junk food ,dont drink to excess poeple still do ,
see what iam implying my personal view on cf is to be 100% compliant you loose some enjoyment for life as your always thinking in the back of your mind you have treatments to do(for me that was the case anyway)

my take on life is even with cf you have to live a little get drunk everynow and then smoke the occasional joint (around 2 a year) and relax on treatments sometimes ive find i get a lot more out of life now but that is what works for me

the most important thing for me i found was when i was being 100% complaint it affected my character i was stressed always worrying about when i should take my next medicines or do my next treatment now i feel a lot better i have changed my treatment (relax a bit at the weekend) and i think that is the most important how you feel within yourself over the physical health of your body your mental side is more important than your physical side

moxie1
06-12-2007, 09:25 AM
It's funny...we do get to be a little like robots. When I'm in the hospital and away from my CPT and medicine routine, I get all turned around. Usually I do things on automatic pilot.


I guess you have to do what works for you. For me, I am still able to be 100% compliant and have fun. It just means I have to be organized about things and shift things around, so I have room for both in my life.

moxie1
06-12-2007, 09:25 AM
It's funny...we do get to be a little like robots. When I'm in the hospital and away from my CPT and medicine routine, I get all turned around. Usually I do things on automatic pilot.


I guess you have to do what works for you. For me, I am still able to be 100% compliant and have fun. It just means I have to be organized about things and shift things around, so I have room for both in my life.

moxie1
06-12-2007, 09:25 AM
It's funny...we do get to be a little like robots. When I'm in the hospital and away from my CPT and medicine routine, I get all turned around. Usually I do things on automatic pilot.


I guess you have to do what works for you. For me, I am still able to be 100% compliant and have fun. It just means I have to be organized about things and shift things around, so I have room for both in my life.

moxie1
06-12-2007, 09:25 AM
It's funny...we do get to be a little like robots. When I'm in the hospital and away from my CPT and medicine routine, I get all turned around. Usually I do things on automatic pilot.


I guess you have to do what works for you. For me, I am still able to be 100% compliant and have fun. It just means I have to be organized about things and shift things around, so I have room for both in my life.

moxie1
06-12-2007, 09:25 AM
It's funny...we do get to be a little like robots. When I'm in the hospital and away from my CPT and medicine routine, I get all turned around. Usually I do things on automatic pilot.


I guess you have to do what works for you. For me, I am still able to be 100% compliant and have fun. It just means I have to be organized about things and shift things around, so I have room for both in my life.

moxie1
06-12-2007, 09:25 AM
It's funny...we do get to be a little like robots. When I'm in the hospital and away from my CPT and medicine routine, I get all turned around. Usually I do things on automatic pilot.


I guess you have to do what works for you. For me, I am still able to be 100% compliant and have fun. It just means I have to be organized about things and shift things around, so I have room for both in my life.

cdale613
06-12-2007, 12:58 PM
I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

cdale613
06-12-2007, 12:58 PM
I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

cdale613
06-12-2007, 12:58 PM
I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

cdale613
06-12-2007, 12:58 PM
I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

cdale613
06-12-2007, 12:58 PM
I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

cdale613
06-12-2007, 12:58 PM
I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.

What are your goals? What are your responsibilities? What are your dreams?

I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.

I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.

I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.

The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.

100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.

And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.

Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.

Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.

Chris

27 m w/CF

Ricky123
06-12-2007, 03:21 PM
cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

Ricky123
06-12-2007, 03:21 PM
cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

Ricky123
06-12-2007, 03:21 PM
cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

Ricky123
06-12-2007, 03:21 PM
cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

Ricky123
06-12-2007, 03:21 PM
cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

Ricky123
06-12-2007, 03:21 PM
cdale i take on board on what ya saying but still have to disagree with you and still maintain my argument of living a little bit what may work for you will not work for me ive had this discussion with my mates and they agree with me ie reminds me a bit of people at school who done everything by the book ate right ,never smoked ,never got drunk yes i use to do everthing by the book as well in fact i was a proper mummys boy and yes i use to run every day ,use to be in my football teams(but my health declined anyway even though i was doing everything right and i couldent keep it up as i got breathless) i think you have got to get the right balance but i still maintain what works for you may not work for me i genuinly do feel better within myself since i relax more its not fooling myself its finding what works for me and i feel better phycholigically i think thats the crux over the physical benefits whatever way you look at it

CyndiW555
06-14-2007, 12:48 AM
Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

CyndiW555
06-14-2007, 12:48 AM
Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

CyndiW555
06-14-2007, 12:48 AM
Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

CyndiW555
06-14-2007, 12:48 AM
Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

CyndiW555
06-14-2007, 12:48 AM
Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

CyndiW555
06-14-2007, 12:48 AM
Ricky123 , You said you are 18 right? well, I remember that. I didn't have cf then. Dr. told me about it when I was 24. ( thats how I think about it). Yes you are young and free and feelin fine! no you think goin' till 44 or 45 is ok and the most you might get anyway is 55? Well, I am now 42 and let me tell you 44 is not ok. I WANT 70, I'm hoping for 60. Just think of all the fun I can have!!! I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).

FUN FUN FUN that is what you are talking about in your post. All we are saying is you can have even more fun the more meds you do. REALLY, just try it. Do your morning and evening stuff. You can't tell me you don't know your going out later and don't have time Nebs don't take that long. look into different kinds of cups. Stop talking to your buddies about this stuff and start listening to your lungs. Your head will tell you to skip it but your bod will tell you how wrong you are. You are 18 now and need to live YOUR life not the life of "wanting to fit in". Look at your buddies, seriously, do they look or act like they "fit in"???lol.

Good luck to you.

NoExcuses
06-14-2007, 12:11 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

NoExcuses
06-14-2007, 12:11 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

NoExcuses
06-14-2007, 12:11 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

NoExcuses
06-14-2007, 12:11 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote></div>




Bravo! Bravo! Bravo!!!!

NoExcuses
06-14-2007, 12:11 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote>




Bravo! Bravo! Bravo!!!!

NoExcuses
06-14-2007, 12:11 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cdale613</b></i>

I'm sorry, but you and I strongly disagree on some fundamental ideas of happiness, health, and how to live life with CF.



What are your goals? What are your responsibilities? What are your dreams?



I'm engaged to be married in 3 months. I could not ask my fiance to marry me and risk the heartache of losing me to CF if I wasn't willing to give 110% in keeping myself healthy. I'm 27. My FEV1 baseline is still 90 percent. That makes it possible to look optimistically to the future and consider children (we don't care what the board thinks btw). Ask my fiance the difference between 45 and 55. Its worth it, and to suggest that its ok compromise any of that for 2 joints a year or getting drunk every so often is just sad.



I like to exercise. I am scared of not being able to do the things I love to do - biking, hiking, running, etc. Compliance with my meds is nothing compared to what I'd be giving up if I couldn't do these activities.



I work full time, I have a Masters degree. I'm not done achieving, and I'm not willing to sit around watching my life pass me by just because I have CF. I took the LSAT yesterday. I am competing in a half-ironman triathlon in three weeks. I'm biking 150 miles for the CFF in 5 weeks. I'm going on my honeymoon to Croatia in 14 weeks. I'm living a full life, and compliance with my meds makes that possible.



The guilt and shame I would feel if I was unable to provide for my wife and family; lost the ability to do the activities I love doing; lost the drive and ability to achieve... while knowing that I hadn't been fully compliant would be more than I could handle. Now, CF is chronic... I understand that. I can live with myself if I know I've done everything I can do to stave it off as long as possible.



100 percent compliance with my health care makes everything else I do possible. The 3-4 hours I spend taking care of myself each day is a small price to pay for the other 20.



And seriously.... you do realize you can do other things while you inhale meds through a neb... right? Be it LSAT prep tests, reading, watching TV, being online... a lot of it is time you would spend sitting anyway.



Don't try to justify your lack of compliance. Set goals that necessitate full compliance, and achieve them. That is how you live a full live with CF.



Sorry, but there no shortcuts. You get one chance at life. No do-overs. Don't make foolish decisions that appear to gratify you in the short-term that sacrifice your long-term health and happiness. Its really not worth it.



Chris



27 m w/CF</end quote>




Bravo! Bravo! Bravo!!!!

NoExcuses
06-14-2007, 12:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

NoExcuses
06-14-2007, 12:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

NoExcuses
06-14-2007, 12:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

NoExcuses
06-14-2007, 12:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote></div>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

NoExcuses
06-14-2007, 12:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

NoExcuses
06-14-2007, 12:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

You are 18 now and need to live YOUR life not the life of "wanting to fit in". L

</end quote>


You hit the nail on the head.

But people like this always find out what needs to be done one way or the other - either they decide to do meds or they get so sick they'll never reecover lung function that they've lost.

It's a tragedy.

sue35
06-14-2007, 02:27 PM
I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

sue35
06-14-2007, 02:27 PM
I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

sue35
06-14-2007, 02:27 PM
I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

sue35
06-14-2007, 02:27 PM
I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

sue35
06-14-2007, 02:27 PM
I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

sue35
06-14-2007, 02:27 PM
I think Ricky is 23 or older. Doesn't it say that in his first thread. I would say I am a 9 (don't exercise enough) but I do understand what Ricky is saying. I do feel like a robot and my medicine interfers with a lot. I would love to just be able to go from doing something at night to go sleep at my boyfriend's but I can't because I have to go home and do the stupid medicine.

I think it is very hard to do your medicine perfectly, like Ricky originally did, and then still get very sick. It would make a lot of people want to give up a little. I am sure he will get back on the wagon again. This is how he wants to live his life and he still is a 7<img src="i/expressions/face-icon-small-smile.gif" border="0">

While I don't agree I do see how he can do that. To each his own I guess. Its true, some people need to get really sick to get kicked in the butt.

mom2lillian
06-15-2007, 09:34 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

mom2lillian
06-15-2007, 09:34 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

mom2lillian
06-15-2007, 09:34 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

mom2lillian
06-15-2007, 09:34 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote></div>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

mom2lillian
06-15-2007, 09:34 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
</end quote>


Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.

mom2lillian
06-15-2007, 09:34 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CyndiW555</b></i>

I am a 9 I do all the inhailing things the dr. wants. I also do all the pills the dr. wants. I don't do the vest or chest pt. I don't like them. I work out. I know its not the same and now at this age I am comming to terms with doing the vest. I read about it a lot on here and people seem to like it. (Mine is gathering dust as we speak).
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Cyndi-I hear you on this, I was this way, I had the vest for 4 years and had logged maybe 100 hours. I HATED the thing. I had it on a plant dollie and lugged it all around trying to get to a place where it was comfortable to do it wehn it was 'convenient'. I never thought it did any good so I figured why bother? I continued to store it and figured I woudl do it when, "I got sick enough to need it".

Now I do it every day 2x a day and leave it sitting udner my computer. In addition to the forums and email I am big into pictures and organizing them and goign to start scrapbooking electronically. These things make dong the vest not so bad. I just started it this year and it has helped me alot.

I would just say to try it for a 1 month committment and find something you can enjoy doing while vesting to make it more enjoyable. Learn to do the setting right as that made all the difference for me (read the Warwick letter on Amy's blog) do some good huffing and coughing and just commit for 1 month. See how you feel. I changed my mind 100% on the vest. I still do not get up alot while doing it but after doing it and excercise is when I get the benefit.