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sarabeth87
12-11-2006, 09:00 PM
I'm supposed to be getting a new compressor tomorrow. I wanted a Pulmo-Aide Devilbiss because that is the one approved for pulmozyme and Tobi, but no one seems to carry them anymore. Every medical supply store I called around here and I called quite a few, said they were old and outdated. I found them online, but I don't really like buying things like that online. I did, however, buy some parts for the old one that I already have. My Pulmo-Aide Devilbiss is about 18 years old, but it still works. I also have a newer model at home, but I'm not sure what kind it is. Anyways, the medical supply store that my doc called the prescription in to is getting me the Aeroneb Go. It's suppose to cut treatment time in half, be quieter, and waste less medication, but I'm kinda worried that I'm not suppose to use it. Has anyone heard of it?

sarabeth87
12-11-2006, 09:00 PM
I'm supposed to be getting a new compressor tomorrow. I wanted a Pulmo-Aide Devilbiss because that is the one approved for pulmozyme and Tobi, but no one seems to carry them anymore. Every medical supply store I called around here and I called quite a few, said they were old and outdated. I found them online, but I don't really like buying things like that online. I did, however, buy some parts for the old one that I already have. My Pulmo-Aide Devilbiss is about 18 years old, but it still works. I also have a newer model at home, but I'm not sure what kind it is. Anyways, the medical supply store that my doc called the prescription in to is getting me the Aeroneb Go. It's suppose to cut treatment time in half, be quieter, and waste less medication, but I'm kinda worried that I'm not suppose to use it. Has anyone heard of it?

sarabeth87
12-11-2006, 09:00 PM
I'm supposed to be getting a new compressor tomorrow. I wanted a Pulmo-Aide Devilbiss because that is the one approved for pulmozyme and Tobi, but no one seems to carry them anymore. Every medical supply store I called around here and I called quite a few, said they were old and outdated. I found them online, but I don't really like buying things like that online. I did, however, buy some parts for the old one that I already have. My Pulmo-Aide Devilbiss is about 18 years old, but it still works. I also have a newer model at home, but I'm not sure what kind it is. Anyways, the medical supply store that my doc called the prescription in to is getting me the Aeroneb Go. It's suppose to cut treatment time in half, be quieter, and waste less medication, but I'm kinda worried that I'm not suppose to use it. Has anyone heard of it?

NoExcuses
12-11-2006, 11:59 PM
i haven't heard of it. i would be wary of a no-name brand because not all compressors are created equal. They may create droplet sizes that are too large for your lungs to work, etc.

i have a pari ProNeb Ultra which I know that a lton of CFers use.

NoExcuses
12-11-2006, 11:59 PM
i haven't heard of it. i would be wary of a no-name brand because not all compressors are created equal. They may create droplet sizes that are too large for your lungs to work, etc.

i have a pari ProNeb Ultra which I know that a lton of CFers use.

NoExcuses
12-11-2006, 11:59 PM
i haven't heard of it. i would be wary of a no-name brand because not all compressors are created equal. They may create droplet sizes that are too large for your lungs to work, etc.

i have a pari ProNeb Ultra which I know that a lton of CFers use.

luke
12-12-2006, 12:42 AM
Sara,

I was going to tell you that neb machines are the same...really they are just air compressors and the more important part is the nebulizer kit. However, I looked this one up and it is not a conventional nebulizer. It looks like it is an ultrasonic neb, they work just fine but I haven't seen any studies delivering the specialty drugs we take so I would recommend getting a different machine.

For this one I will even through out my credentials...

Luke RRT

luke
12-12-2006, 12:42 AM
Sara,

I was going to tell you that neb machines are the same...really they are just air compressors and the more important part is the nebulizer kit. However, I looked this one up and it is not a conventional nebulizer. It looks like it is an ultrasonic neb, they work just fine but I haven't seen any studies delivering the specialty drugs we take so I would recommend getting a different machine.

For this one I will even through out my credentials...

Luke RRT

luke
12-12-2006, 12:42 AM
Sara,

I was going to tell you that neb machines are the same...really they are just air compressors and the more important part is the nebulizer kit. However, I looked this one up and it is not a conventional nebulizer. It looks like it is an ultrasonic neb, they work just fine but I haven't seen any studies delivering the specialty drugs we take so I would recommend getting a different machine.

For this one I will even through out my credentials...

Luke RRT

NoExcuses
12-12-2006, 12:51 AM
yup ultrasonic nebs are a no-no for CFers. they denature some of our meds like Pulmozyme.

good call Luke

NoExcuses
12-12-2006, 12:51 AM
yup ultrasonic nebs are a no-no for CFers. they denature some of our meds like Pulmozyme.

good call Luke

NoExcuses
12-12-2006, 12:51 AM
yup ultrasonic nebs are a no-no for CFers. they denature some of our meds like Pulmozyme.

good call Luke

sarabeth87
12-12-2006, 11:28 AM
i found this brochure on the aeroneb go...


The Aeroneb Go® - a silent, portable, vibrating mesh nebuliser manufactured by Aerogen and utilising a horizontal mesh containing 1,000 holes obtained by electrolysis, and vibrates at 100 kHz.

The Aeroneb Go is a single patient use device for patients to use at home, at work and when travelling.

The Aeroneb Go has been designed for the efficient delivery of commonly inhaled medications including Bronchodilators, Inhaled Antibiotics and Pulmozyme* (rhDNase), particularly in the treatment of Cystic Fibrosis and Bronchiectasis.

Aerogen's OnQ® Aerosol Generator is a wafer-thin electronic micro-pump which uses no compressed air, generates negligible heat and efficiently nebulises solutions, suspensions, proteins and peptides.

The mesh and the other alloy components in the Aeroneb Go are coated with "Nickel Palladium" which is completely resistant to corrosion; therefore the Aeroneb Go is suitable for use with Hypertonic Saline.

In an independent validation study, the Aeroneb Go delivered 2.5ml of Pulmozyme* (rhDNase) with an inhaled mass of 798 micro grams at a particle size (MMAD) of 4.5 microns within 4.4 minutes.

The Aeroneb Go consists of a hand-held nebuliser and a separate battery pack and an AC power adapter.

Unlike conventional nebulisers, the Aeroneb Go runs completely silently allowing for discreet operation.

*Pulmozyme is a trademark of Roche Products Pty Ltd

You can download information on the Aeroneb Go® by clicking on the following links:

sarabeth87
12-12-2006, 11:28 AM
i found this brochure on the aeroneb go...


The Aeroneb Go® - a silent, portable, vibrating mesh nebuliser manufactured by Aerogen and utilising a horizontal mesh containing 1,000 holes obtained by electrolysis, and vibrates at 100 kHz.

The Aeroneb Go is a single patient use device for patients to use at home, at work and when travelling.

The Aeroneb Go has been designed for the efficient delivery of commonly inhaled medications including Bronchodilators, Inhaled Antibiotics and Pulmozyme* (rhDNase), particularly in the treatment of Cystic Fibrosis and Bronchiectasis.

Aerogen's OnQ® Aerosol Generator is a wafer-thin electronic micro-pump which uses no compressed air, generates negligible heat and efficiently nebulises solutions, suspensions, proteins and peptides.

The mesh and the other alloy components in the Aeroneb Go are coated with "Nickel Palladium" which is completely resistant to corrosion; therefore the Aeroneb Go is suitable for use with Hypertonic Saline.

In an independent validation study, the Aeroneb Go delivered 2.5ml of Pulmozyme* (rhDNase) with an inhaled mass of 798 micro grams at a particle size (MMAD) of 4.5 microns within 4.4 minutes.

The Aeroneb Go consists of a hand-held nebuliser and a separate battery pack and an AC power adapter.

Unlike conventional nebulisers, the Aeroneb Go runs completely silently allowing for discreet operation.

*Pulmozyme is a trademark of Roche Products Pty Ltd

You can download information on the Aeroneb Go® by clicking on the following links:

sarabeth87
12-12-2006, 11:28 AM
i found this brochure on the aeroneb go...


The Aeroneb Go® - a silent, portable, vibrating mesh nebuliser manufactured by Aerogen and utilising a horizontal mesh containing 1,000 holes obtained by electrolysis, and vibrates at 100 kHz.

The Aeroneb Go is a single patient use device for patients to use at home, at work and when travelling.

The Aeroneb Go has been designed for the efficient delivery of commonly inhaled medications including Bronchodilators, Inhaled Antibiotics and Pulmozyme* (rhDNase), particularly in the treatment of Cystic Fibrosis and Bronchiectasis.

Aerogen's OnQ® Aerosol Generator is a wafer-thin electronic micro-pump which uses no compressed air, generates negligible heat and efficiently nebulises solutions, suspensions, proteins and peptides.

The mesh and the other alloy components in the Aeroneb Go are coated with "Nickel Palladium" which is completely resistant to corrosion; therefore the Aeroneb Go is suitable for use with Hypertonic Saline.

In an independent validation study, the Aeroneb Go delivered 2.5ml of Pulmozyme* (rhDNase) with an inhaled mass of 798 micro grams at a particle size (MMAD) of 4.5 microns within 4.4 minutes.

The Aeroneb Go consists of a hand-held nebuliser and a separate battery pack and an AC power adapter.

Unlike conventional nebulisers, the Aeroneb Go runs completely silently allowing for discreet operation.

*Pulmozyme is a trademark of Roche Products Pty Ltd

You can download information on the Aeroneb Go® by clicking on the following links:

Ratatosk
12-12-2006, 12:21 PM
I ordered a devilbiss pulmoaide online after DH's cousin gave us one that was about 10 years old to use as a spare at the outlaws. I shopped around and think I paid less than $100. It was brand new, in the box. In fact last spring, it started getting louder and louder, so I took it to our local medical supply place thru the clinic, they sent it back to the company and I got a brand new one. Think there's a 3-5 year warranty on it. We use this one as our regular one and use a pari proneb ultra, which was orginally prescribed shortly after DS was born, for travel.

Ratatosk
12-12-2006, 12:21 PM
I ordered a devilbiss pulmoaide online after DH's cousin gave us one that was about 10 years old to use as a spare at the outlaws. I shopped around and think I paid less than $100. It was brand new, in the box. In fact last spring, it started getting louder and louder, so I took it to our local medical supply place thru the clinic, they sent it back to the company and I got a brand new one. Think there's a 3-5 year warranty on it. We use this one as our regular one and use a pari proneb ultra, which was orginally prescribed shortly after DS was born, for travel.

Ratatosk
12-12-2006, 12:21 PM
I ordered a devilbiss pulmoaide online after DH's cousin gave us one that was about 10 years old to use as a spare at the outlaws. I shopped around and think I paid less than $100. It was brand new, in the box. In fact last spring, it started getting louder and louder, so I took it to our local medical supply place thru the clinic, they sent it back to the company and I got a brand new one. Think there's a 3-5 year warranty on it. We use this one as our regular one and use a pari proneb ultra, which was orginally prescribed shortly after DS was born, for travel.

NoExcuses
12-12-2006, 12:38 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sarabeth87</b></i>

i found this brochure on the aeroneb go...





The Aeroneb Go® - a silent, portable, vibrating mesh nebuliser manufactured by Aerogen and utilising a horizontal mesh containing 1,000 holes obtained by electrolysis, and vibrates at 100 kHz.



The Aeroneb Go is a single patient use device for patients to use at home, at work and when travelling.



The Aeroneb Go has been designed for the efficient delivery of commonly inhaled medications including Bronchodilators, Inhaled Antibiotics and Pulmozyme* (rhDNase), particularly in the treatment of Cystic Fibrosis and Bronchiectasis.



Aerogen's OnQ® Aerosol Generator is a wafer-thin electronic micro-pump which uses no compressed air, generates negligible heat and efficiently nebulises solutions, suspensions, proteins and peptides.



The mesh and the other alloy components in the Aeroneb Go are coated with "Nickel Palladium" which is completely resistant to corrosion; therefore the Aeroneb Go is suitable for use with Hypertonic Saline.



In an independent validation study, the Aeroneb Go delivered 2.5ml of Pulmozyme* (rhDNase) with an inhaled mass of 798 micro grams at a particle size (MMAD) of 4.5 microns within 4.4 minutes.



The Aeroneb Go consists of a hand-held nebuliser and a separate battery pack and an AC power adapter.



Unlike conventional nebulisers, the Aeroneb Go runs completely silently allowing for discreet operation.



*Pulmozyme is a trademark of Roche Products Pty Ltd



You can download information on the Aeroneb Go® by clicking on the following links:</end quote></div>

I would ask for a copy of the independent validation study that they claim to have.

Pulmozyme isn't made by Roche, as they say. It's made by Genentech. Odd

NoExcuses
12-12-2006, 12:38 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sarabeth87</b></i>

i found this brochure on the aeroneb go...





The Aeroneb Go® - a silent, portable, vibrating mesh nebuliser manufactured by Aerogen and utilising a horizontal mesh containing 1,000 holes obtained by electrolysis, and vibrates at 100 kHz.



The Aeroneb Go is a single patient use device for patients to use at home, at work and when travelling.



The Aeroneb Go has been designed for the efficient delivery of commonly inhaled medications including Bronchodilators, Inhaled Antibiotics and Pulmozyme* (rhDNase), particularly in the treatment of Cystic Fibrosis and Bronchiectasis.



Aerogen's OnQ® Aerosol Generator is a wafer-thin electronic micro-pump which uses no compressed air, generates negligible heat and efficiently nebulises solutions, suspensions, proteins and peptides.



The mesh and the other alloy components in the Aeroneb Go are coated with "Nickel Palladium" which is completely resistant to corrosion; therefore the Aeroneb Go is suitable for use with Hypertonic Saline.



In an independent validation study, the Aeroneb Go delivered 2.5ml of Pulmozyme* (rhDNase) with an inhaled mass of 798 micro grams at a particle size (MMAD) of 4.5 microns within 4.4 minutes.



The Aeroneb Go consists of a hand-held nebuliser and a separate battery pack and an AC power adapter.



Unlike conventional nebulisers, the Aeroneb Go runs completely silently allowing for discreet operation.



*Pulmozyme is a trademark of Roche Products Pty Ltd



You can download information on the Aeroneb Go® by clicking on the following links:</end quote></div>

I would ask for a copy of the independent validation study that they claim to have.

Pulmozyme isn't made by Roche, as they say. It's made by Genentech. Odd

NoExcuses
12-12-2006, 12:38 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sarabeth87</b></i>

i found this brochure on the aeroneb go...





The Aeroneb Go® - a silent, portable, vibrating mesh nebuliser manufactured by Aerogen and utilising a horizontal mesh containing 1,000 holes obtained by electrolysis, and vibrates at 100 kHz.



The Aeroneb Go is a single patient use device for patients to use at home, at work and when travelling.



The Aeroneb Go has been designed for the efficient delivery of commonly inhaled medications including Bronchodilators, Inhaled Antibiotics and Pulmozyme* (rhDNase), particularly in the treatment of Cystic Fibrosis and Bronchiectasis.



Aerogen's OnQ® Aerosol Generator is a wafer-thin electronic micro-pump which uses no compressed air, generates negligible heat and efficiently nebulises solutions, suspensions, proteins and peptides.



The mesh and the other alloy components in the Aeroneb Go are coated with "Nickel Palladium" which is completely resistant to corrosion; therefore the Aeroneb Go is suitable for use with Hypertonic Saline.



In an independent validation study, the Aeroneb Go delivered 2.5ml of Pulmozyme* (rhDNase) with an inhaled mass of 798 micro grams at a particle size (MMAD) of 4.5 microns within 4.4 minutes.



The Aeroneb Go consists of a hand-held nebuliser and a separate battery pack and an AC power adapter.



Unlike conventional nebulisers, the Aeroneb Go runs completely silently allowing for discreet operation.



*Pulmozyme is a trademark of Roche Products Pty Ltd



You can download information on the Aeroneb Go® by clicking on the following links:</end quote></div>

I would ask for a copy of the independent validation study that they claim to have.

Pulmozyme isn't made by Roche, as they say. It's made by Genentech. Odd

sarabeth87
12-12-2006, 02:18 PM
Yea Amy, I found that a little fishy about the Pulmozyme being made by Roche, so I looked up the aeroneb on this web site and I found where JennifersHope posted that she has one and she had to have special formulas of her medicine for it, so I called the CF social worker. She also handles the nebulizers. Anyways, she told me I could NOT use the aeroneb go. It does not allow you to use the Pari LC plus anyways. I think the medical supply store was trying to sell me that one because it cost $450, whereas the regular compressor is like $150. Also, the aeroneb go is a micropump, not an ultrasonic. So anyways, now I'm getting the Minimate compressor.

sarabeth87
12-12-2006, 02:18 PM
Yea Amy, I found that a little fishy about the Pulmozyme being made by Roche, so I looked up the aeroneb on this web site and I found where JennifersHope posted that she has one and she had to have special formulas of her medicine for it, so I called the CF social worker. She also handles the nebulizers. Anyways, she told me I could NOT use the aeroneb go. It does not allow you to use the Pari LC plus anyways. I think the medical supply store was trying to sell me that one because it cost $450, whereas the regular compressor is like $150. Also, the aeroneb go is a micropump, not an ultrasonic. So anyways, now I'm getting the Minimate compressor.

sarabeth87
12-12-2006, 02:18 PM
Yea Amy, I found that a little fishy about the Pulmozyme being made by Roche, so I looked up the aeroneb on this web site and I found where JennifersHope posted that she has one and she had to have special formulas of her medicine for it, so I called the CF social worker. She also handles the nebulizers. Anyways, she told me I could NOT use the aeroneb go. It does not allow you to use the Pari LC plus anyways. I think the medical supply store was trying to sell me that one because it cost $450, whereas the regular compressor is like $150. Also, the aeroneb go is a micropump, not an ultrasonic. So anyways, now I'm getting the Minimate compressor.

Ratatosk
12-12-2006, 03:07 PM
Recently I came across the receipt for our Pari Proneb, which we got from the hospital, via a medical supply company. I've seen the same machine online for about $79; however, our insurance company was charged $350 for it. At the time, we needed a nebulizer upon discharge and didn't have a doctor yet back home (250 miles away).

Ratatosk
12-12-2006, 03:07 PM
Recently I came across the receipt for our Pari Proneb, which we got from the hospital, via a medical supply company. I've seen the same machine online for about $79; however, our insurance company was charged $350 for it. At the time, we needed a nebulizer upon discharge and didn't have a doctor yet back home (250 miles away).

Ratatosk
12-12-2006, 03:07 PM
Recently I came across the receipt for our Pari Proneb, which we got from the hospital, via a medical supply company. I've seen the same machine online for about $79; however, our insurance company was charged $350 for it. At the time, we needed a nebulizer upon discharge and didn't have a doctor yet back home (250 miles away).

Justsmurfin
12-12-2006, 10:43 PM
<a target=_blank class=ftalternatingbarlinklarge href="http://www.roche.com/home/products/prod_rx.htm
">http://www.roche.com/home/products/prod_rx.htm
</a>

straight from Roche's website, scroll down to the p's. They do list Pulmozyme as a product

And the Aeroneb Go has been around quite awhile, its not a no name brand.

Check out About.com's asthma site for a good review of it.

Its also electronic NOT ultrasonic.

Lots of incorrect info and assumptions in this thread!

Justsmurfin
12-12-2006, 10:43 PM
<a target=_blank class=ftalternatingbarlinklarge href="http://www.roche.com/home/products/prod_rx.htm
">http://www.roche.com/home/products/prod_rx.htm
</a>

straight from Roche's website, scroll down to the p's. They do list Pulmozyme as a product

And the Aeroneb Go has been around quite awhile, its not a no name brand.

Check out About.com's asthma site for a good review of it.

Its also electronic NOT ultrasonic.

Lots of incorrect info and assumptions in this thread!

Justsmurfin
12-12-2006, 10:43 PM
<a target=_blank class=ftalternatingbarlinklarge href="http://www.roche.com/home/products/prod_rx.htm
">http://www.roche.com/home/products/prod_rx.htm
</a>

straight from Roche's website, scroll down to the p's. They do list Pulmozyme as a product

And the Aeroneb Go has been around quite awhile, its not a no name brand.

Check out About.com's asthma site for a good review of it.

Its also electronic NOT ultrasonic.

Lots of incorrect info and assumptions in this thread!