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perky79
12-07-2006, 06:22 PM
So I decide to stop in a Panda Express for food today. It had been a while since my last breathing treatement so I decided to use my handicap placard as there were no other close parking spots. I noticed a cop just parked a couple of spots over. When I got out of my car he gets out of his car and says "I noticed you dont have handicap plates." "Do you have a placard?" I respond with a yes. Which he replies with "funny you dont LOOK handicapped!" Not a second later I respond "ya funny how that works cause I mean you dont LOOK ignorant." Cop just looks at me for a few seconds and gets back in his car. Wow that felt great.

perky79
12-07-2006, 06:22 PM
So I decide to stop in a Panda Express for food today. It had been a while since my last breathing treatement so I decided to use my handicap placard as there were no other close parking spots. I noticed a cop just parked a couple of spots over. When I got out of my car he gets out of his car and says "I noticed you dont have handicap plates." "Do you have a placard?" I respond with a yes. Which he replies with "funny you dont LOOK handicapped!" Not a second later I respond "ya funny how that works cause I mean you dont LOOK ignorant." Cop just looks at me for a few seconds and gets back in his car. Wow that felt great.

perky79
12-07-2006, 06:22 PM
So I decide to stop in a Panda Express for food today. It had been a while since my last breathing treatement so I decided to use my handicap placard as there were no other close parking spots. I noticed a cop just parked a couple of spots over. When I got out of my car he gets out of his car and says "I noticed you dont have handicap plates." "Do you have a placard?" I respond with a yes. Which he replies with "funny you dont LOOK handicapped!" Not a second later I respond "ya funny how that works cause I mean you dont LOOK ignorant." Cop just looks at me for a few seconds and gets back in his car. Wow that felt great.

dbtoo
12-07-2006, 06:34 PM
good response! <img src="i/expressions/face-icon-small-happy.gif" border="0">

dbtoo
12-07-2006, 06:34 PM
good response! <img src="i/expressions/face-icon-small-happy.gif" border="0">

dbtoo
12-07-2006, 06:34 PM
good response! <img src="i/expressions/face-icon-small-happy.gif" border="0">

jbrandonAW
12-07-2006, 06:49 PM
that really made my day

jbrandonAW
12-07-2006, 06:49 PM
that really made my day

jbrandonAW
12-07-2006, 06:49 PM
that really made my day

CowTown
12-07-2006, 06:57 PM
Love it!

CowTown
12-07-2006, 06:57 PM
Love it!

CowTown
12-07-2006, 06:57 PM
Love it!

beleache
12-07-2006, 07:13 PM
Thanks for sharing that, i loved it and have to remember those words for the next bone head that says " you don't look handiapped ". Joni 54 y/o w c/f

beleache
12-07-2006, 07:13 PM
Thanks for sharing that, i loved it and have to remember those words for the next bone head that says " you don't look handiapped ". Joni 54 y/o w c/f

beleache
12-07-2006, 07:13 PM
Thanks for sharing that, i loved it and have to remember those words for the next bone head that says " you don't look handiapped ". Joni 54 y/o w c/f

loriz65
12-07-2006, 07:28 PM
love it!

loriz65
12-07-2006, 07:28 PM
love it!

loriz65
12-07-2006, 07:28 PM
love it!

ladybug
12-07-2006, 07:33 PM
perfect! simply perfect!

<img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
12-07-2006, 07:33 PM
perfect! simply perfect!

<img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
12-07-2006, 07:33 PM
perfect! simply perfect!

<img src="i/expressions/face-icon-small-smile.gif" border="0">

Ratatosk
12-07-2006, 07:40 PM
My best friend in high school had lupus, was on dialysis after a failed kidney transplant... She parked at the mall in a handicapped spot -- had a permit. Got out of her car with her sister and someone started giving her grief about it. She turns around and asks, "You want I should LIMP?" and proceeds to do an exaggerated quasimoto sorta hobble into the store.

Ratatosk
12-07-2006, 07:40 PM
My best friend in high school had lupus, was on dialysis after a failed kidney transplant... She parked at the mall in a handicapped spot -- had a permit. Got out of her car with her sister and someone started giving her grief about it. She turns around and asks, "You want I should LIMP?" and proceeds to do an exaggerated quasimoto sorta hobble into the store.

Ratatosk
12-07-2006, 07:40 PM
My best friend in high school had lupus, was on dialysis after a failed kidney transplant... She parked at the mall in a handicapped spot -- had a permit. Got out of her car with her sister and someone started giving her grief about it. She turns around and asks, "You want I should LIMP?" and proceeds to do an exaggerated quasimoto sorta hobble into the store.

Jade
12-07-2006, 07:42 PM
Been there before, nothing like slamming a smarta$$ cop.....or anyone else actually.<img src="i/expressions/face-icon-small-wink.gif" border="0">

Jade
12-07-2006, 07:42 PM
Been there before, nothing like slamming a smarta$$ cop.....or anyone else actually.<img src="i/expressions/face-icon-small-wink.gif" border="0">

Jade
12-07-2006, 07:42 PM
Been there before, nothing like slamming a smarta$$ cop.....or anyone else actually.<img src="i/expressions/face-icon-small-wink.gif" border="0">

princessjdc
12-07-2006, 07:48 PM
great response!

princessjdc
12-07-2006, 07:48 PM
great response!

princessjdc
12-07-2006, 07:48 PM
great response!

EnergyGal
12-07-2006, 08:10 PM
Congratulations. that was a great one

EnergyGal
12-07-2006, 08:10 PM
Congratulations. that was a great one

EnergyGal
12-07-2006, 08:10 PM
Congratulations. that was a great one

onlyoneloveinmylife
12-07-2006, 08:40 PM
NICE!!!

onlyoneloveinmylife
12-07-2006, 08:40 PM
NICE!!!

onlyoneloveinmylife
12-07-2006, 08:40 PM
NICE!!!

Hockeypuck
12-07-2006, 08:50 PM
FANTASTIC........Had to show my co-workers.......

Hockeypuck
12-07-2006, 08:50 PM
FANTASTIC........Had to show my co-workers.......

Hockeypuck
12-07-2006, 08:50 PM
FANTASTIC........Had to show my co-workers.......

Emily65Roses
12-07-2006, 08:51 PM
I once had a cop give me attitude for using mine. He gave me a funny eyebrow and said "Is that YOUR sticker?" like he was certain I stole it from my little old granny.

I'm so glad you called him ignorant. <3

Emily65Roses
12-07-2006, 08:51 PM
I once had a cop give me attitude for using mine. He gave me a funny eyebrow and said "Is that YOUR sticker?" like he was certain I stole it from my little old granny.

I'm so glad you called him ignorant. <3

Emily65Roses
12-07-2006, 08:51 PM
I once had a cop give me attitude for using mine. He gave me a funny eyebrow and said "Is that YOUR sticker?" like he was certain I stole it from my little old granny.

I'm so glad you called him ignorant. <3

Rutgersnyy
12-07-2006, 09:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>perky79</b></i>

So I decide to stop in a Panda Express for food today. It had been a while since my last breathing treatement so I decided to use my handicap placard as there were no other close parking spots. I noticed a cop just parked a couple of spots over. When I got out of my car he gets out of his car and says "I noticed you dont have handicap plates." "Do you have a placard?" I respond with a yes. Which he replies with "funny you dont LOOK handicapped!" Not a second later I respond "ya funny how that works cause I mean you dont LOOK ignorant." Cop just looks at me for a few seconds and gets back in his car. Wow that felt great.</end quote></div>

Maybe he meant it as a compliment?

Rutgersnyy
12-07-2006, 09:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>perky79</b></i>

So I decide to stop in a Panda Express for food today. It had been a while since my last breathing treatement so I decided to use my handicap placard as there were no other close parking spots. I noticed a cop just parked a couple of spots over. When I got out of my car he gets out of his car and says "I noticed you dont have handicap plates." "Do you have a placard?" I respond with a yes. Which he replies with "funny you dont LOOK handicapped!" Not a second later I respond "ya funny how that works cause I mean you dont LOOK ignorant." Cop just looks at me for a few seconds and gets back in his car. Wow that felt great.</end quote></div>

Maybe he meant it as a compliment?

Rutgersnyy
12-07-2006, 09:14 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>perky79</b></i>

So I decide to stop in a Panda Express for food today. It had been a while since my last breathing treatement so I decided to use my handicap placard as there were no other close parking spots. I noticed a cop just parked a couple of spots over. When I got out of my car he gets out of his car and says "I noticed you dont have handicap plates." "Do you have a placard?" I respond with a yes. Which he replies with "funny you dont LOOK handicapped!" Not a second later I respond "ya funny how that works cause I mean you dont LOOK ignorant." Cop just looks at me for a few seconds and gets back in his car. Wow that felt great.</end quote></div>

Maybe he meant it as a compliment?

Alessia2dance
12-07-2006, 09:19 PM
HAHAHA! I wish I could have seen the look on his face!

Alessia2dance
12-07-2006, 09:19 PM
HAHAHA! I wish I could have seen the look on his face!

Alessia2dance
12-07-2006, 09:19 PM
HAHAHA! I wish I could have seen the look on his face!

JazzysMom
12-07-2006, 11:15 PM
I am impressed.....good job!

JazzysMom
12-07-2006, 11:15 PM
I am impressed.....good job!

JazzysMom
12-07-2006, 11:15 PM
I am impressed.....good job!

thefrogprincess
12-08-2006, 01:58 AM
Bravo!!!

thefrogprincess
12-08-2006, 01:58 AM
Bravo!!!

thefrogprincess
12-08-2006, 01:58 AM
Bravo!!!

bmombtoo
12-08-2006, 02:25 AM
I don't look handicapped either until you look closely at my pants and see the pad of the knne braces underneath, or watch me walk up the steps, or go up hill when I left my cane in the car!!!!!!!!!
Need both knees replaced....from osteo. Now if my nasal potential differential is positive, I think the knee damage is CF.

bmombtoo
12-08-2006, 02:25 AM
I don't look handicapped either until you look closely at my pants and see the pad of the knne braces underneath, or watch me walk up the steps, or go up hill when I left my cane in the car!!!!!!!!!
Need both knees replaced....from osteo. Now if my nasal potential differential is positive, I think the knee damage is CF.

bmombtoo
12-08-2006, 02:25 AM
I don't look handicapped either until you look closely at my pants and see the pad of the knne braces underneath, or watch me walk up the steps, or go up hill when I left my cane in the car!!!!!!!!!
Need both knees replaced....from osteo. Now if my nasal potential differential is positive, I think the knee damage is CF.

djotroy17
12-08-2006, 02:54 AM
Great, way to stand up for urself! You shoulda oinked at him too, that woulda been a cherry on top lol.

djotroy17
12-08-2006, 02:54 AM
Great, way to stand up for urself! You shoulda oinked at him too, that woulda been a cherry on top lol.

djotroy17
12-08-2006, 02:54 AM
Great, way to stand up for urself! You shoulda oinked at him too, that woulda been a cherry on top lol.

sam123
12-08-2006, 05:24 AM
I guess I will go out in the minority and say the handicap parking permits are way overly abused, I think they were origionally set up for people in wheelchairs, but now today anyone can get it for just having sniffles. It's amazing how most people can't walk a few extra yards into a store, but they can surely walk all over the store a few times. The last time I heard exercise was good for CF people, and I don't think just because someone has CF they should have a handicap permit. There are also too many old people that have them, these are not senior spots, they are handicap spots, so if they are on on oxygen or going to be in the store in a wheelchair, Then these are the people I think were meant to be in these spots.

sam123
12-08-2006, 05:24 AM
I guess I will go out in the minority and say the handicap parking permits are way overly abused, I think they were origionally set up for people in wheelchairs, but now today anyone can get it for just having sniffles. It's amazing how most people can't walk a few extra yards into a store, but they can surely walk all over the store a few times. The last time I heard exercise was good for CF people, and I don't think just because someone has CF they should have a handicap permit. There are also too many old people that have them, these are not senior spots, they are handicap spots, so if they are on on oxygen or going to be in the store in a wheelchair, Then these are the people I think were meant to be in these spots.

sam123
12-08-2006, 05:24 AM
I guess I will go out in the minority and say the handicap parking permits are way overly abused, I think they were origionally set up for people in wheelchairs, but now today anyone can get it for just having sniffles. It's amazing how most people can't walk a few extra yards into a store, but they can surely walk all over the store a few times. The last time I heard exercise was good for CF people, and I don't think just because someone has CF they should have a handicap permit. There are also too many old people that have them, these are not senior spots, they are handicap spots, so if they are on on oxygen or going to be in the store in a wheelchair, Then these are the people I think were meant to be in these spots.

Emily65Roses
12-08-2006, 05:34 AM
Just curious, sam123, do you have CF yourself?

As for abuse, I can only speak for myself. I have one. I use it *very* rarely. My fiance, my friends, etc. are always telling me to use it, and I'm always telling them I don't want to. I just use it if the spot is very far from where I'm going (like a college parking garage that's incredibly far from my class --- and even that I do sparingly), or if it's a really bad day. Like a day that's bitter cold and makes it hurt to breathe, etc.

I myself did not get a sticker the minute I started to drive, either. I got one when my health started to go downhill. I'm still in good shape, but like I said, I use mine very sparingly. As time goes on, I imagine I'll use it more often.

I don't like anyone who abuses their permit, no matter the reason they have it. But I think plenty of CFers have a permit because it's warranted by their declining health. I'd also be willing to bet that many only use it when they feel it's necessary, not just any ole' time they feel like it.

Emily65Roses
12-08-2006, 05:34 AM
Just curious, sam123, do you have CF yourself?

As for abuse, I can only speak for myself. I have one. I use it *very* rarely. My fiance, my friends, etc. are always telling me to use it, and I'm always telling them I don't want to. I just use it if the spot is very far from where I'm going (like a college parking garage that's incredibly far from my class --- and even that I do sparingly), or if it's a really bad day. Like a day that's bitter cold and makes it hurt to breathe, etc.

I myself did not get a sticker the minute I started to drive, either. I got one when my health started to go downhill. I'm still in good shape, but like I said, I use mine very sparingly. As time goes on, I imagine I'll use it more often.

I don't like anyone who abuses their permit, no matter the reason they have it. But I think plenty of CFers have a permit because it's warranted by their declining health. I'd also be willing to bet that many only use it when they feel it's necessary, not just any ole' time they feel like it.

Emily65Roses
12-08-2006, 05:34 AM
Just curious, sam123, do you have CF yourself?

As for abuse, I can only speak for myself. I have one. I use it *very* rarely. My fiance, my friends, etc. are always telling me to use it, and I'm always telling them I don't want to. I just use it if the spot is very far from where I'm going (like a college parking garage that's incredibly far from my class --- and even that I do sparingly), or if it's a really bad day. Like a day that's bitter cold and makes it hurt to breathe, etc.

I myself did not get a sticker the minute I started to drive, either. I got one when my health started to go downhill. I'm still in good shape, but like I said, I use mine very sparingly. As time goes on, I imagine I'll use it more often.

I don't like anyone who abuses their permit, no matter the reason they have it. But I think plenty of CFers have a permit because it's warranted by their declining health. I'd also be willing to bet that many only use it when they feel it's necessary, not just any ole' time they feel like it.

Brad
12-08-2006, 06:08 AM
Brandon

That was a good responce...

I to have a HC placard and only ues it when I am not doing well.
I just got it this year

When I have used it in the past I have gotten kinda
the same Smartass remarks from people...

I tell them that I am SYCODIC !!

The don't want to talk to me any more afte I tell them that !

ps,,,, Sam, I didn't need one when I was 26 either, it wasen't until
I was 49 that I got a placard................

Brad
12-08-2006, 06:08 AM
Brandon

That was a good responce...

I to have a HC placard and only ues it when I am not doing well.
I just got it this year

When I have used it in the past I have gotten kinda
the same Smartass remarks from people...

I tell them that I am SYCODIC !!

The don't want to talk to me any more afte I tell them that !

ps,,,, Sam, I didn't need one when I was 26 either, it wasen't until
I was 49 that I got a placard................

Brad
12-08-2006, 06:08 AM
Brandon

That was a good responce...

I to have a HC placard and only ues it when I am not doing well.
I just got it this year

When I have used it in the past I have gotten kinda
the same Smartass remarks from people...

I tell them that I am SYCODIC !!

The don't want to talk to me any more afte I tell them that !

ps,,,, Sam, I didn't need one when I was 26 either, it wasen't until
I was 49 that I got a placard................

Landy
12-08-2006, 03:18 PM
I got one too approx a year ago & it's just for those days when I feel SOB and it's terribly cold. But I do find I'm too proud to use it.
As a matter of fact, I used it only once at Lowe's and the guy parked next to me said that it was "BS...You're not handicapped" to which I replied "It's not BS, try to live one day in my shoes"
I agree, there is abuse with those. Heck, even if I wanted to park in a space at WalMart, I couldn't, there are never any open.
What gets me, though, is the older people that go to the mall to walk laps, but park in the handicap spot. If they're there to walk, what's the extra 20 feet gonna hurt?

Landy
12-08-2006, 03:18 PM
I got one too approx a year ago & it's just for those days when I feel SOB and it's terribly cold. But I do find I'm too proud to use it.
As a matter of fact, I used it only once at Lowe's and the guy parked next to me said that it was "BS...You're not handicapped" to which I replied "It's not BS, try to live one day in my shoes"
I agree, there is abuse with those. Heck, even if I wanted to park in a space at WalMart, I couldn't, there are never any open.
What gets me, though, is the older people that go to the mall to walk laps, but park in the handicap spot. If they're there to walk, what's the extra 20 feet gonna hurt?

Landy
12-08-2006, 03:18 PM
I got one too approx a year ago & it's just for those days when I feel SOB and it's terribly cold. But I do find I'm too proud to use it.
As a matter of fact, I used it only once at Lowe's and the guy parked next to me said that it was "BS...You're not handicapped" to which I replied "It's not BS, try to live one day in my shoes"
I agree, there is abuse with those. Heck, even if I wanted to park in a space at WalMart, I couldn't, there are never any open.
What gets me, though, is the older people that go to the mall to walk laps, but park in the handicap spot. If they're there to walk, what's the extra 20 feet gonna hurt?

coltsfan715
12-08-2006, 03:26 PM
OH OH OH I am going to use that if and when someone says something to me.

As for abusing the privilege. I never wanted one because I didn't want to "take advantage of the system". I actually just got mine a month ago and my lung function is at 30% - 1 month after I got it I went to my first transplant appt. So seriously think about what you say and who you direct it to before you accuse people of abusing the HC placard thing. That comment just struck me wrong.

I got my disabled tag mostly for when we go to WDW on trips at first. I have used it more than I thought I would since I got it though. It is difficult enough sometimes to just make it through the store to get what you need - let alone having to walk a mile to the entrance from the car. I don't use my tag all the time only if I am having a really hard day or if the alternative is hellishly far away or a handicapped spot - then I will use the handicap spot. If I CAN walk the distance that day I normally try too - because it is good for you, but depending on where your health is sometimes the thought of walking drains you let alone actually doing it.

Happy Holidays,
Lindsey

coltsfan715
12-08-2006, 03:26 PM
OH OH OH I am going to use that if and when someone says something to me.

As for abusing the privilege. I never wanted one because I didn't want to "take advantage of the system". I actually just got mine a month ago and my lung function is at 30% - 1 month after I got it I went to my first transplant appt. So seriously think about what you say and who you direct it to before you accuse people of abusing the HC placard thing. That comment just struck me wrong.

I got my disabled tag mostly for when we go to WDW on trips at first. I have used it more than I thought I would since I got it though. It is difficult enough sometimes to just make it through the store to get what you need - let alone having to walk a mile to the entrance from the car. I don't use my tag all the time only if I am having a really hard day or if the alternative is hellishly far away or a handicapped spot - then I will use the handicap spot. If I CAN walk the distance that day I normally try too - because it is good for you, but depending on where your health is sometimes the thought of walking drains you let alone actually doing it.

Happy Holidays,
Lindsey

coltsfan715
12-08-2006, 03:26 PM
OH OH OH I am going to use that if and when someone says something to me.

As for abusing the privilege. I never wanted one because I didn't want to "take advantage of the system". I actually just got mine a month ago and my lung function is at 30% - 1 month after I got it I went to my first transplant appt. So seriously think about what you say and who you direct it to before you accuse people of abusing the HC placard thing. That comment just struck me wrong.

I got my disabled tag mostly for when we go to WDW on trips at first. I have used it more than I thought I would since I got it though. It is difficult enough sometimes to just make it through the store to get what you need - let alone having to walk a mile to the entrance from the car. I don't use my tag all the time only if I am having a really hard day or if the alternative is hellishly far away or a handicapped spot - then I will use the handicap spot. If I CAN walk the distance that day I normally try too - because it is good for you, but depending on where your health is sometimes the thought of walking drains you let alone actually doing it.

Happy Holidays,
Lindsey

PeteRose
12-08-2006, 03:45 PM
I have one as well and like most of the others that have them, I don't use it that often. I do get the snide remarks and the dirty looks when I do use it.

I think that we have to be careful as well as others about making judgements on people who use them. Like Lynda said "older people that go to the mall to walk laps, but park in the handicap spot. If they're there to walk, what's the extra 20 feet gonna hurt?" I am truly not trying to start trouble, but maybe that older person has a problem with the air outside that day, like I sometimes do, but they still want their exercise. We cannot ask people to not judge us when we use ours, but then judge other people for using theirs.

As far as Sam goes, he is only 26 and maybe he is fortunate that he does not need one yet and I hope and pray that he does not, but he may someday and then he will see what it is like. I did not need one until I was in my late 30's.

Rosie 45 w/CF

PeteRose
12-08-2006, 03:45 PM
I have one as well and like most of the others that have them, I don't use it that often. I do get the snide remarks and the dirty looks when I do use it.

I think that we have to be careful as well as others about making judgements on people who use them. Like Lynda said "older people that go to the mall to walk laps, but park in the handicap spot. If they're there to walk, what's the extra 20 feet gonna hurt?" I am truly not trying to start trouble, but maybe that older person has a problem with the air outside that day, like I sometimes do, but they still want their exercise. We cannot ask people to not judge us when we use ours, but then judge other people for using theirs.

As far as Sam goes, he is only 26 and maybe he is fortunate that he does not need one yet and I hope and pray that he does not, but he may someday and then he will see what it is like. I did not need one until I was in my late 30's.

Rosie 45 w/CF

PeteRose
12-08-2006, 03:45 PM
I have one as well and like most of the others that have them, I don't use it that often. I do get the snide remarks and the dirty looks when I do use it.

I think that we have to be careful as well as others about making judgements on people who use them. Like Lynda said "older people that go to the mall to walk laps, but park in the handicap spot. If they're there to walk, what's the extra 20 feet gonna hurt?" I am truly not trying to start trouble, but maybe that older person has a problem with the air outside that day, like I sometimes do, but they still want their exercise. We cannot ask people to not judge us when we use ours, but then judge other people for using theirs.

As far as Sam goes, he is only 26 and maybe he is fortunate that he does not need one yet and I hope and pray that he does not, but he may someday and then he will see what it is like. I did not need one until I was in my late 30's.

Rosie 45 w/CF

JazzysMom
12-08-2006, 03:51 PM
To all but mainly Sam:
Abuse can be a problem, but having it available & being able to use when needed & not using it when not needed is a tad different. I always leave my marker on my rearview mirror (tho its against the law when driving, I dont lose it that way), I have actually had people tell me when there is a handicapped parking spot available. I tell them thank you, but as we speak I am ok. Save it for someone who isnt today. Then there are days that I might start ok & by the end of the shopping (grocery not window browsing) that the extra 20/30 steps to the car does me in. HOW DARE you say (excuse me if I just misinterpreted it wrong) that just because someone has CF that they feel they should have a parking marker. Yes exercise is good IF you can tolerate it. Everyone with any illness is different & that includes CF. I put myself thru hell not having one for much longer than I should have just because of people who think like you do. Well I have had mine for a few years now & I WILL use it....who are you to say when/how/where I am up to using it or not. OK I will shut up now!

JazzysMom
12-08-2006, 03:51 PM
To all but mainly Sam:
Abuse can be a problem, but having it available & being able to use when needed & not using it when not needed is a tad different. I always leave my marker on my rearview mirror (tho its against the law when driving, I dont lose it that way), I have actually had people tell me when there is a handicapped parking spot available. I tell them thank you, but as we speak I am ok. Save it for someone who isnt today. Then there are days that I might start ok & by the end of the shopping (grocery not window browsing) that the extra 20/30 steps to the car does me in. HOW DARE you say (excuse me if I just misinterpreted it wrong) that just because someone has CF that they feel they should have a parking marker. Yes exercise is good IF you can tolerate it. Everyone with any illness is different & that includes CF. I put myself thru hell not having one for much longer than I should have just because of people who think like you do. Well I have had mine for a few years now & I WILL use it....who are you to say when/how/where I am up to using it or not. OK I will shut up now!

JazzysMom
12-08-2006, 03:51 PM
To all but mainly Sam:
Abuse can be a problem, but having it available & being able to use when needed & not using it when not needed is a tad different. I always leave my marker on my rearview mirror (tho its against the law when driving, I dont lose it that way), I have actually had people tell me when there is a handicapped parking spot available. I tell them thank you, but as we speak I am ok. Save it for someone who isnt today. Then there are days that I might start ok & by the end of the shopping (grocery not window browsing) that the extra 20/30 steps to the car does me in. HOW DARE you say (excuse me if I just misinterpreted it wrong) that just because someone has CF that they feel they should have a parking marker. Yes exercise is good IF you can tolerate it. Everyone with any illness is different & that includes CF. I put myself thru hell not having one for much longer than I should have just because of people who think like you do. Well I have had mine for a few years now & I WILL use it....who are you to say when/how/where I am up to using it or not. OK I will shut up now!

sue35
12-08-2006, 08:07 PM
I am 24 and I have a placard and how DARE anyone pass judgement on me or anyone else in my situation. I feel like Sam, you could only say that because you do not have CF that bad and do not understand yet. But when everyday is a struggle for you I hope you look at things differently. I am not going to suffer when it is 10 degrees outside and walk when I don't have to. That is not exercise to me, that is just abusing myself.

I go through enough with this illness. I don't need people telling me when to use my handicapped sign. I got one, therefore I have just as much of a right to use it whenever I want.

I don't know what state you live in, but my lung function had to drop below 40% to get mine, and THAT is not just a "sniffle".

sue35
12-08-2006, 08:07 PM
I am 24 and I have a placard and how DARE anyone pass judgement on me or anyone else in my situation. I feel like Sam, you could only say that because you do not have CF that bad and do not understand yet. But when everyday is a struggle for you I hope you look at things differently. I am not going to suffer when it is 10 degrees outside and walk when I don't have to. That is not exercise to me, that is just abusing myself.

I go through enough with this illness. I don't need people telling me when to use my handicapped sign. I got one, therefore I have just as much of a right to use it whenever I want.

I don't know what state you live in, but my lung function had to drop below 40% to get mine, and THAT is not just a "sniffle".

sue35
12-08-2006, 08:07 PM
I am 24 and I have a placard and how DARE anyone pass judgement on me or anyone else in my situation. I feel like Sam, you could only say that because you do not have CF that bad and do not understand yet. But when everyday is a struggle for you I hope you look at things differently. I am not going to suffer when it is 10 degrees outside and walk when I don't have to. That is not exercise to me, that is just abusing myself.

I go through enough with this illness. I don't need people telling me when to use my handicapped sign. I got one, therefore I have just as much of a right to use it whenever I want.

I don't know what state you live in, but my lung function had to drop below 40% to get mine, and THAT is not just a "sniffle".

sue35
12-08-2006, 08:08 PM
And btw, to the original poster, now all I can think about it how much I want Panda Express right now<img src="i/expressions/face-icon-small-smile.gif" border="0"> Yummmmm

sue35
12-08-2006, 08:08 PM
And btw, to the original poster, now all I can think about it how much I want Panda Express right now<img src="i/expressions/face-icon-small-smile.gif" border="0"> Yummmmm

sue35
12-08-2006, 08:08 PM
And btw, to the original poster, now all I can think about it how much I want Panda Express right now<img src="i/expressions/face-icon-small-smile.gif" border="0"> Yummmmm

sam123
12-08-2006, 08:14 PM
wow, peole are a little too sensitive make me wonder, I never directed my statement to anyone or said they were abusing them, If u need one, then u should have one, Like I could see Lindsey having one, with low FEVs and possible lung transplant, if she felt she needed it, but I've never had to park a mile from a store entrance, and if your going in to walk around at disney or the grocery store then I don't see the logic of using the permit unless you are going to be getting in one of those scotters. And for as Emily said I agreee for large college campuses, it would be a great ideal for many CF people. But then because i have a difference in my views, I get attacked, so okay to attack some, yeah, again CF does not entitle u to a reserved parking space, , perky79, who I know nothing about his current health, was almost bragging about his permit, saying there was NO CLOSE SPOT to park to go in and get his food, come on. Just as a few of u mentioned older people parking in them and then going to walk in the mall or fat people because they are too lazy. I really think the state's BMVs need to set clear guidelines in issuing these permits, everyone has thought a time or two, that they are abused, like Lynda said walmart with their 30 handicap spots all look full. So park all your want when u need to and one day I may too, I just don't think having CF makes u get front row spots and if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them

sam123
12-08-2006, 08:14 PM
wow, peole are a little too sensitive make me wonder, I never directed my statement to anyone or said they were abusing them, If u need one, then u should have one, Like I could see Lindsey having one, with low FEVs and possible lung transplant, if she felt she needed it, but I've never had to park a mile from a store entrance, and if your going in to walk around at disney or the grocery store then I don't see the logic of using the permit unless you are going to be getting in one of those scotters. And for as Emily said I agreee for large college campuses, it would be a great ideal for many CF people. But then because i have a difference in my views, I get attacked, so okay to attack some, yeah, again CF does not entitle u to a reserved parking space, , perky79, who I know nothing about his current health, was almost bragging about his permit, saying there was NO CLOSE SPOT to park to go in and get his food, come on. Just as a few of u mentioned older people parking in them and then going to walk in the mall or fat people because they are too lazy. I really think the state's BMVs need to set clear guidelines in issuing these permits, everyone has thought a time or two, that they are abused, like Lynda said walmart with their 30 handicap spots all look full. So park all your want when u need to and one day I may too, I just don't think having CF makes u get front row spots and if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them

sam123
12-08-2006, 08:14 PM
wow, peole are a little too sensitive make me wonder, I never directed my statement to anyone or said they were abusing them, If u need one, then u should have one, Like I could see Lindsey having one, with low FEVs and possible lung transplant, if she felt she needed it, but I've never had to park a mile from a store entrance, and if your going in to walk around at disney or the grocery store then I don't see the logic of using the permit unless you are going to be getting in one of those scotters. And for as Emily said I agreee for large college campuses, it would be a great ideal for many CF people. But then because i have a difference in my views, I get attacked, so okay to attack some, yeah, again CF does not entitle u to a reserved parking space, , perky79, who I know nothing about his current health, was almost bragging about his permit, saying there was NO CLOSE SPOT to park to go in and get his food, come on. Just as a few of u mentioned older people parking in them and then going to walk in the mall or fat people because they are too lazy. I really think the state's BMVs need to set clear guidelines in issuing these permits, everyone has thought a time or two, that they are abused, like Lynda said walmart with their 30 handicap spots all look full. So park all your want when u need to and one day I may too, I just don't think having CF makes u get front row spots and if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them

perky79
12-08-2006, 08:47 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sam123</b></i>

wow, peole are a little too sensitive make me wonder, I never directed my statement to anyone or said they were abusing them, If u need one, then u should have one, Like I could see Lindsey having one, with low FEVs and possible lung transplant, if she felt she needed it, but I've never had to park a mile from a store entrance, and if your going in to walk around at disney or the grocery store then I don't see the logic of using the permit unless you are going to be getting in one of those scotters. And for as Emily said I agreee for large college campuses, it would be a great ideal for many CF people. But then because i have a difference in my views, I get attacked, so okay to attack some, yeah, again CF does not entitle u to a reserved parking space, , perky79, who I know nothing about his current health, was almost bragging about his permit, saying there was NO CLOSE SPOT to park to go in and get his food, come on. Just as a few of u mentioned older people parking in them and then going to walk in the mall or fat people because they are too lazy. I really think the state's BMVs need to set clear guidelines in issuing these permits, everyone has thought a time or two, that they are abused, like Lynda said walmart with their 30 handicap spots all look full. So park all your want when u need to and one day I may too, I just don't think having CF makes u get front row spots and if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them</end quote></div>


WHAT?!?!?! bragging? You ever pick your teeth up with broken fingers? j/k. Dude my Fev's are in the low 30's bud and am awaiting a double lung transplant. I can barely walk room to room without running out of breath.

perky79
12-08-2006, 08:47 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sam123</b></i>

wow, peole are a little too sensitive make me wonder, I never directed my statement to anyone or said they were abusing them, If u need one, then u should have one, Like I could see Lindsey having one, with low FEVs and possible lung transplant, if she felt she needed it, but I've never had to park a mile from a store entrance, and if your going in to walk around at disney or the grocery store then I don't see the logic of using the permit unless you are going to be getting in one of those scotters. And for as Emily said I agreee for large college campuses, it would be a great ideal for many CF people. But then because i have a difference in my views, I get attacked, so okay to attack some, yeah, again CF does not entitle u to a reserved parking space, , perky79, who I know nothing about his current health, was almost bragging about his permit, saying there was NO CLOSE SPOT to park to go in and get his food, come on. Just as a few of u mentioned older people parking in them and then going to walk in the mall or fat people because they are too lazy. I really think the state's BMVs need to set clear guidelines in issuing these permits, everyone has thought a time or two, that they are abused, like Lynda said walmart with their 30 handicap spots all look full. So park all your want when u need to and one day I may too, I just don't think having CF makes u get front row spots and if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them</end quote></div>


WHAT?!?!?! bragging? You ever pick your teeth up with broken fingers? j/k. Dude my Fev's are in the low 30's bud and am awaiting a double lung transplant. I can barely walk room to room without running out of breath.

perky79
12-08-2006, 08:47 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sam123</b></i>

wow, peole are a little too sensitive make me wonder, I never directed my statement to anyone or said they were abusing them, If u need one, then u should have one, Like I could see Lindsey having one, with low FEVs and possible lung transplant, if she felt she needed it, but I've never had to park a mile from a store entrance, and if your going in to walk around at disney or the grocery store then I don't see the logic of using the permit unless you are going to be getting in one of those scotters. And for as Emily said I agreee for large college campuses, it would be a great ideal for many CF people. But then because i have a difference in my views, I get attacked, so okay to attack some, yeah, again CF does not entitle u to a reserved parking space, , perky79, who I know nothing about his current health, was almost bragging about his permit, saying there was NO CLOSE SPOT to park to go in and get his food, come on. Just as a few of u mentioned older people parking in them and then going to walk in the mall or fat people because they are too lazy. I really think the state's BMVs need to set clear guidelines in issuing these permits, everyone has thought a time or two, that they are abused, like Lynda said walmart with their 30 handicap spots all look full. So park all your want when u need to and one day I may too, I just don't think having CF makes u get front row spots and if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them</end quote></div>


WHAT?!?!?! bragging? You ever pick your teeth up with broken fingers? j/k. Dude my Fev's are in the low 30's bud and am awaiting a double lung transplant. I can barely walk room to room without running out of breath.

perky79
12-08-2006, 09:06 PM
Sam123 I thought this was the one place I could come and have to explain my condition to no one........

perky79
12-08-2006, 09:06 PM
Sam123 I thought this was the one place I could come and have to explain my condition to no one........

perky79
12-08-2006, 09:06 PM
Sam123 I thought this was the one place I could come and have to explain my condition to no one........

coltsfan715
12-08-2006, 09:37 PM
<div class="FTQUOTE"><begin quote>Sam123 I thought this was the one place I could come and have to explain my condition to no one........</end quote></div>

Hey Brandon .. if it makes you feel ANY better. I had a guy come on here - he was NOT a CFer but the brother to a CFer - and tell me that I need to stop being lazy and get off my butt and exercise and thus proceed to get into EVERYTHING he was able to do in the day and how if you put your mind to it you can - and if you get out of your warm cozy bed lol. That was said within the past few months too - so mylung function was still at about 30% - even though at the time I thought it was 40% (my old doc had been giving me the wrong numbers).

It just goes to show that just because people frequent this site doesn't mean they have insight into how straining and demanding having CF CAN be. It isn't like that for all people - at least not at present, it may get there eventually but who knows I hope it doesn't, but know it probably will for most.

Take Care and Happy Holidays,
Lindsey

GOOD LUCK with Transplant!!

coltsfan715
12-08-2006, 09:37 PM
<div class="FTQUOTE"><begin quote>Sam123 I thought this was the one place I could come and have to explain my condition to no one........</end quote></div>

Hey Brandon .. if it makes you feel ANY better. I had a guy come on here - he was NOT a CFer but the brother to a CFer - and tell me that I need to stop being lazy and get off my butt and exercise and thus proceed to get into EVERYTHING he was able to do in the day and how if you put your mind to it you can - and if you get out of your warm cozy bed lol. That was said within the past few months too - so mylung function was still at about 30% - even though at the time I thought it was 40% (my old doc had been giving me the wrong numbers).

It just goes to show that just because people frequent this site doesn't mean they have insight into how straining and demanding having CF CAN be. It isn't like that for all people - at least not at present, it may get there eventually but who knows I hope it doesn't, but know it probably will for most.

Take Care and Happy Holidays,
Lindsey

GOOD LUCK with Transplant!!

coltsfan715
12-08-2006, 09:37 PM
<div class="FTQUOTE"><begin quote>Sam123 I thought this was the one place I could come and have to explain my condition to no one........</end quote></div>

Hey Brandon .. if it makes you feel ANY better. I had a guy come on here - he was NOT a CFer but the brother to a CFer - and tell me that I need to stop being lazy and get off my butt and exercise and thus proceed to get into EVERYTHING he was able to do in the day and how if you put your mind to it you can - and if you get out of your warm cozy bed lol. That was said within the past few months too - so mylung function was still at about 30% - even though at the time I thought it was 40% (my old doc had been giving me the wrong numbers).

It just goes to show that just because people frequent this site doesn't mean they have insight into how straining and demanding having CF CAN be. It isn't like that for all people - at least not at present, it may get there eventually but who knows I hope it doesn't, but know it probably will for most.

Take Care and Happy Holidays,
Lindsey

GOOD LUCK with Transplant!!

DietRootBeer
12-08-2006, 10:00 PM
Ignorant *****! EXCELLENT reply <img src="i/expressions/face-icon-small-smile.gif" border="0">

DietRootBeer
12-08-2006, 10:00 PM
Ignorant *****! EXCELLENT reply <img src="i/expressions/face-icon-small-smile.gif" border="0">

DietRootBeer
12-08-2006, 10:00 PM
Ignorant *****! EXCELLENT reply <img src="i/expressions/face-icon-small-smile.gif" border="0">

Rutgersnyy
12-08-2006, 10:02 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

<div class="FTQUOTE"><begin quote>Sam123 I thought this was the one place I could come and have to explain my condition to no one........</end quote></div>



Hey Brandon .. if it makes you feel ANY better. I had a guy come on here - he was NOT a CFer but the brother to a CFer - and tell me that I need to stop being lazy and get off my butt and exercise and thus proceed to get into EVERYTHING he was able to do in the day and how if you put your mind to it you can - and if you get out of your warm cozy bed lol. That was said within the past few months too - so mylung function was still at about 30% - even though at the time I thought it was 40% (my old doc had been giving me the wrong numbers).



It just goes to show that just because people frequent this site doesn't mean they have insight into how straining and demanding having CF CAN be. It isn't like that for all people - at least not at present, it may get there eventually but who knows I hope it doesn't, but know it probably will for most.



Take Care and Happy Holidays,

Lindsey



GOOD LUCK with Transplant!!</end quote></div>


Getting off my butt works for me. Exericise works 100x better than any treatment.

If you put your mind to anything you CAN do it. Nowadays we are taught that you will never reach you goal so just don't try. I don't subscribe to that theory and I am living proof even if you don't reach your goal you can reach satisfaction. I recently ran a half marathon and was gratified and unsatisfied at the same time, I was dissapointed in my time and the fact I didn't eat enough bananas beforehand.

I have also been told I don't look handicapped and I take that as a compliment because not everyone knows what CF is. How much would you know about it if you didn't have it?

One time I popped a few enzymes and the person looked at me and asked, "Are they steroids"? I was flattered because she thought I looked good enough to be on steroids.

I realize not everyone knows as much about CF as I do and most don't even know what it is, but it doesn't bother me. Fatalists bother me. But I am in the minority on this issue.

Rutgersnyy
12-08-2006, 10:02 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

<div class="FTQUOTE"><begin quote>Sam123 I thought this was the one place I could come and have to explain my condition to no one........</end quote></div>



Hey Brandon .. if it makes you feel ANY better. I had a guy come on here - he was NOT a CFer but the brother to a CFer - and tell me that I need to stop being lazy and get off my butt and exercise and thus proceed to get into EVERYTHING he was able to do in the day and how if you put your mind to it you can - and if you get out of your warm cozy bed lol. That was said within the past few months too - so mylung function was still at about 30% - even though at the time I thought it was 40% (my old doc had been giving me the wrong numbers).



It just goes to show that just because people frequent this site doesn't mean they have insight into how straining and demanding having CF CAN be. It isn't like that for all people - at least not at present, it may get there eventually but who knows I hope it doesn't, but know it probably will for most.



Take Care and Happy Holidays,

Lindsey



GOOD LUCK with Transplant!!</end quote></div>


Getting off my butt works for me. Exericise works 100x better than any treatment.

If you put your mind to anything you CAN do it. Nowadays we are taught that you will never reach you goal so just don't try. I don't subscribe to that theory and I am living proof even if you don't reach your goal you can reach satisfaction. I recently ran a half marathon and was gratified and unsatisfied at the same time, I was dissapointed in my time and the fact I didn't eat enough bananas beforehand.

I have also been told I don't look handicapped and I take that as a compliment because not everyone knows what CF is. How much would you know about it if you didn't have it?

One time I popped a few enzymes and the person looked at me and asked, "Are they steroids"? I was flattered because she thought I looked good enough to be on steroids.

I realize not everyone knows as much about CF as I do and most don't even know what it is, but it doesn't bother me. Fatalists bother me. But I am in the minority on this issue.

Rutgersnyy
12-08-2006, 10:02 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>coltsfan715</b></i>

<div class="FTQUOTE"><begin quote>Sam123 I thought this was the one place I could come and have to explain my condition to no one........</end quote></div>



Hey Brandon .. if it makes you feel ANY better. I had a guy come on here - he was NOT a CFer but the brother to a CFer - and tell me that I need to stop being lazy and get off my butt and exercise and thus proceed to get into EVERYTHING he was able to do in the day and how if you put your mind to it you can - and if you get out of your warm cozy bed lol. That was said within the past few months too - so mylung function was still at about 30% - even though at the time I thought it was 40% (my old doc had been giving me the wrong numbers).



It just goes to show that just because people frequent this site doesn't mean they have insight into how straining and demanding having CF CAN be. It isn't like that for all people - at least not at present, it may get there eventually but who knows I hope it doesn't, but know it probably will for most.



Take Care and Happy Holidays,

Lindsey



GOOD LUCK with Transplant!!</end quote></div>


Getting off my butt works for me. Exericise works 100x better than any treatment.

If you put your mind to anything you CAN do it. Nowadays we are taught that you will never reach you goal so just don't try. I don't subscribe to that theory and I am living proof even if you don't reach your goal you can reach satisfaction. I recently ran a half marathon and was gratified and unsatisfied at the same time, I was dissapointed in my time and the fact I didn't eat enough bananas beforehand.

I have also been told I don't look handicapped and I take that as a compliment because not everyone knows what CF is. How much would you know about it if you didn't have it?

One time I popped a few enzymes and the person looked at me and asked, "Are they steroids"? I was flattered because she thought I looked good enough to be on steroids.

I realize not everyone knows as much about CF as I do and most don't even know what it is, but it doesn't bother me. Fatalists bother me. But I am in the minority on this issue.

sue35
12-08-2006, 11:38 PM
I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.

So no, no everyone can just put their mind to it.

sue35
12-08-2006, 11:38 PM
I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.

So no, no everyone can just put their mind to it.

sue35
12-08-2006, 11:38 PM
I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.

So no, no everyone can just put their mind to it.

Rutgersnyy
12-09-2006, 12:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.



So no, no everyone can just put their mind to it.</end quote></div>

I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.

You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.

I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.

CF is an obstacle to my goals not an excuse to not fulfill them.

Rutgersnyy
12-09-2006, 12:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.



So no, no everyone can just put their mind to it.</end quote></div>

I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.

You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.

I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.

CF is an obstacle to my goals not an excuse to not fulfill them.

Rutgersnyy
12-09-2006, 12:21 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.



So no, no everyone can just put their mind to it.</end quote></div>

I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.

You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.

I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.

CF is an obstacle to my goals not an excuse to not fulfill them.

JazzysMom
12-09-2006, 12:28 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rutgersnyy</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.


So no, no everyone can just put their mind to it.</end quote></div>

I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.



You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.



I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.



CF is an obstacle to my goals not an excuse to not fulfill them.</end quote></div>



Enjoy it now....no offense, but CF IS progresssive & at some point you will lose the control & ability that you NOW have to maintain. UNTIL that point I dont think you truly understand.....I hope your current status remains for a long time!

JazzysMom
12-09-2006, 12:28 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rutgersnyy</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.


So no, no everyone can just put their mind to it.</end quote></div>

I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.



You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.



I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.



CF is an obstacle to my goals not an excuse to not fulfill them.</end quote></div>



Enjoy it now....no offense, but CF IS progresssive & at some point you will lose the control & ability that you NOW have to maintain. UNTIL that point I dont think you truly understand.....I hope your current status remains for a long time!

JazzysMom
12-09-2006, 12:28 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rutgersnyy</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sue35</b></i>

I understand what you are saying Adam but the whole, "you can do anything you put your mind to" doesn't really work when it comes to terminal illness. I know many people on this site, myself included, who truly do "put their mind to" getting their lung function higher and it just doesn't work. Hence, the whole progressive disease thing.


So no, no everyone can just put their mind to it.</end quote></div>

I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.



You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.



I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.



CF is an obstacle to my goals not an excuse to not fulfill them.</end quote></div>



Enjoy it now....no offense, but CF IS progresssive & at some point you will lose the control & ability that you NOW have to maintain. UNTIL that point I dont think you truly understand.....I hope your current status remains for a long time!

Emily65Roses
12-09-2006, 12:53 AM
I hope you didn't think I was attacking you personally, I couldn't tell. But I wasn't.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sam123</b></i>
if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them</end quote></div>

I just have something to say to this: You're right, no one knows unless we tell them. CF isn't like a wheelchair, that you see instantly. <i>However</i>, if you have a sticker, people should give the benefit of the doubt and keep their mouths shut. I understand a lot of people steal granny's sticker, etc. But not *every* disability is visible, and that's what most of us get pissed at. Just because I don't <b>look</b> sick doesn't mean I'm not.

Basically... people shouldn't assume. And that's what they're doing by yelling at us when we get out of cars and "look" healthy.

Emily65Roses
12-09-2006, 12:53 AM
I hope you didn't think I was attacking you personally, I couldn't tell. But I wasn't.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sam123</b></i>
if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them</end quote></div>

I just have something to say to this: You're right, no one knows unless we tell them. CF isn't like a wheelchair, that you see instantly. <i>However</i>, if you have a sticker, people should give the benefit of the doubt and keep their mouths shut. I understand a lot of people steal granny's sticker, etc. But not *every* disability is visible, and that's what most of us get pissed at. Just because I don't <b>look</b> sick doesn't mean I'm not.

Basically... people shouldn't assume. And that's what they're doing by yelling at us when we get out of cars and "look" healthy.

Emily65Roses
12-09-2006, 12:53 AM
I hope you didn't think I was attacking you personally, I couldn't tell. But I wasn't.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sam123</b></i>
if u r looked at funny, then that is human nature, no one knows u have CF unless u tell them</end quote></div>

I just have something to say to this: You're right, no one knows unless we tell them. CF isn't like a wheelchair, that you see instantly. <i>However</i>, if you have a sticker, people should give the benefit of the doubt and keep their mouths shut. I understand a lot of people steal granny's sticker, etc. But not *every* disability is visible, and that's what most of us get pissed at. Just because I don't <b>look</b> sick doesn't mean I'm not.

Basically... people shouldn't assume. And that's what they're doing by yelling at us when we get out of cars and "look" healthy.

Emily65Roses
12-09-2006, 12:56 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rutgersnyy</b></i>
I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.



You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.



I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.



CF is an obstacle to my goals not an excuse to not fulfill them.</end quote></div>

Good for you, that you can exercise and stay in the 90 range. A lot of us can't, and no I don't just mean it's "difficult." I mean we CAN'T. Period. After bacteria takes over, there's little you can do to get your PFTs back up to "normal range." You can be in the best shape possible, but to get back to "normal" condition is a bit much. CF is progressive, and one day... despite all your efforts, you <u>will</u> fall under it, and then you'll see what some of us are saying.

Emily65Roses
12-09-2006, 12:56 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rutgersnyy</b></i>
I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.



You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.



I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.



CF is an obstacle to my goals not an excuse to not fulfill them.</end quote></div>

Good for you, that you can exercise and stay in the 90 range. A lot of us can't, and no I don't just mean it's "difficult." I mean we CAN'T. Period. After bacteria takes over, there's little you can do to get your PFTs back up to "normal range." You can be in the best shape possible, but to get back to "normal" condition is a bit much. CF is progressive, and one day... despite all your efforts, you <u>will</u> fall under it, and then you'll see what some of us are saying.

Emily65Roses
12-09-2006, 12:56 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rutgersnyy</b></i>
I have the terminal illness. However, I will not use that as an excuse to be weaker or sicker than a normal lung function person. I have worked very hard to keep my lung function in the 90s to the point where it is harder for me not to work out.



You might be different but my experience with people who say they "can't" is that they really mean "difficult" and they use any excuse for why they are are not happy. These people either use their upbringing, someone being mean or some other cop-out for their unhappiness.



I have many CF symptoms: I cough a lot to get up the mucus, sneeze many times in a row, chronic stuffy nose and have to take my enzymes and meds just like everyone else. I have gotten healthier as I have gotten older do to more strenuous exercise, especially now that I am living on my own.



CF is an obstacle to my goals not an excuse to not fulfill them.</end quote></div>

Good for you, that you can exercise and stay in the 90 range. A lot of us can't, and no I don't just mean it's "difficult." I mean we CAN'T. Period. After bacteria takes over, there's little you can do to get your PFTs back up to "normal range." You can be in the best shape possible, but to get back to "normal" condition is a bit much. CF is progressive, and one day... despite all your efforts, you <u>will</u> fall under it, and then you'll see what some of us are saying.

Rutgersnyy
12-09-2006, 01:05 AM
I don't have that fatalistic mentality, I will not accept that. I plan on living a long and healthy life. I never thought of myself as having a fatal disease until I starting reading this board. I always did my meds w/o any depression or "why me" attitude, I have never called in sick from work or school because of CF.

Maybe I am in the minority in this day and age in that I actually believe I can do anything and if I don't, I look for improvement from within. Society concedes to fatalism today so people like me are laughed at for striving for perfection. I guess I am too old fashioned.

As for as CF being a Progressive disease. It seems to be a regressive disease for me. You can laugh, but know I remain optimistic at whatever crap gets thrown at me. I was admitted for the first and only time in 2000 (although I wasn't sick) and I made it my mission to never get admitted again.

Optimism, some American President personified that doctrine. He was someone to look up to.

Rutgersnyy
12-09-2006, 01:05 AM
I don't have that fatalistic mentality, I will not accept that. I plan on living a long and healthy life. I never thought of myself as having a fatal disease until I starting reading this board. I always did my meds w/o any depression or "why me" attitude, I have never called in sick from work or school because of CF.

Maybe I am in the minority in this day and age in that I actually believe I can do anything and if I don't, I look for improvement from within. Society concedes to fatalism today so people like me are laughed at for striving for perfection. I guess I am too old fashioned.

As for as CF being a Progressive disease. It seems to be a regressive disease for me. You can laugh, but know I remain optimistic at whatever crap gets thrown at me. I was admitted for the first and only time in 2000 (although I wasn't sick) and I made it my mission to never get admitted again.

Optimism, some American President personified that doctrine. He was someone to look up to.

Rutgersnyy
12-09-2006, 01:05 AM
I don't have that fatalistic mentality, I will not accept that. I plan on living a long and healthy life. I never thought of myself as having a fatal disease until I starting reading this board. I always did my meds w/o any depression or "why me" attitude, I have never called in sick from work or school because of CF.

Maybe I am in the minority in this day and age in that I actually believe I can do anything and if I don't, I look for improvement from within. Society concedes to fatalism today so people like me are laughed at for striving for perfection. I guess I am too old fashioned.

As for as CF being a Progressive disease. It seems to be a regressive disease for me. You can laugh, but know I remain optimistic at whatever crap gets thrown at me. I was admitted for the first and only time in 2000 (although I wasn't sick) and I made it my mission to never get admitted again.

Optimism, some American President personified that doctrine. He was someone to look up to.

Brad
12-09-2006, 01:13 AM
Adam

You have a Postive out look on Life.
That is Great.

when I was 23 , I was benching 350 lbs
and could run for ever.
I am still lifting 300 lbs, but I can't run as I once did....

I Wish You good Luck and that You Never Need to
go into the Hospital again and that You never Need a placard.........

Brad
12-09-2006, 01:13 AM
Adam

You have a Postive out look on Life.
That is Great.

when I was 23 , I was benching 350 lbs
and could run for ever.
I am still lifting 300 lbs, but I can't run as I once did....

I Wish You good Luck and that You Never Need to
go into the Hospital again and that You never Need a placard.........

Brad
12-09-2006, 01:13 AM
Adam

You have a Postive out look on Life.
That is Great.

when I was 23 , I was benching 350 lbs
and could run for ever.
I am still lifting 300 lbs, but I can't run as I once did....

I Wish You good Luck and that You Never Need to
go into the Hospital again and that You never Need a placard.........

onlyoneloveinmylife
12-09-2006, 01:15 AM
you don't have the same mentality has other people here do, because it appears that you CF isn't nearly as bad.


if you can run 6 miles a day twice a week, your are truly blessed. but your attitude may change one day when you realize that you won't live to be very old.

i used to play fast pitch softball when i was younger, back then my lung function was from 60-70%. now i want i can't play anymore, i've tried but my body won't let me. when you get to that point then you will know what you are talking about.


until then count your blessings.

onlyoneloveinmylife
12-09-2006, 01:15 AM
you don't have the same mentality has other people here do, because it appears that you CF isn't nearly as bad.


if you can run 6 miles a day twice a week, your are truly blessed. but your attitude may change one day when you realize that you won't live to be very old.

i used to play fast pitch softball when i was younger, back then my lung function was from 60-70%. now i want i can't play anymore, i've tried but my body won't let me. when you get to that point then you will know what you are talking about.


until then count your blessings.

onlyoneloveinmylife
12-09-2006, 01:15 AM
you don't have the same mentality has other people here do, because it appears that you CF isn't nearly as bad.


if you can run 6 miles a day twice a week, your are truly blessed. but your attitude may change one day when you realize that you won't live to be very old.

i used to play fast pitch softball when i was younger, back then my lung function was from 60-70%. now i want i can't play anymore, i've tried but my body won't let me. when you get to that point then you will know what you are talking about.


until then count your blessings.

sam123
12-09-2006, 01:20 AM
Emily and Brandon, Thanks for the post, I again want to say I was not attacking anyone either, and I had Brandon wrong about how I thought he was posting this thread, Like a cop thought I was healthy and was being a smart butt, when he had no clue about what u r struggling with, so yeah he may have set u off, BUT, he didn't know, and for the people that need the handicap parking, thank goodness there r cops and people that r watching out for granny stealing lazy butts. So I never meant to tell people not to use their permits, I just meant just having CF in general does not make u a canidate for a handicap parking space, we all like the close spots, especially in the cold, but even for ones that r waiting for a lung tansplant, I would think the docs would like to see u exercising to be stronger to make the surgery go better, and it probably takes more energy to drive and go into a store than it takes to walk and extra 30ft from your space. If your not strong enough to walk, I would question how strong u r to drive a 1000 pound weapon, a car. WHen I need a permit I will get one or better yet let someone take me to the store and drop me off at the front door to save even the steps from some of the handicap spaces that r actually furhter from the door than other spaces. When I have been feeling really horrible I have been known to jump in one of those scooters and do my shopping, plus they r fun to drive, HAPPY HOLIDAY PARKING

sam123
12-09-2006, 01:20 AM
Emily and Brandon, Thanks for the post, I again want to say I was not attacking anyone either, and I had Brandon wrong about how I thought he was posting this thread, Like a cop thought I was healthy and was being a smart butt, when he had no clue about what u r struggling with, so yeah he may have set u off, BUT, he didn't know, and for the people that need the handicap parking, thank goodness there r cops and people that r watching out for granny stealing lazy butts. So I never meant to tell people not to use their permits, I just meant just having CF in general does not make u a canidate for a handicap parking space, we all like the close spots, especially in the cold, but even for ones that r waiting for a lung tansplant, I would think the docs would like to see u exercising to be stronger to make the surgery go better, and it probably takes more energy to drive and go into a store than it takes to walk and extra 30ft from your space. If your not strong enough to walk, I would question how strong u r to drive a 1000 pound weapon, a car. WHen I need a permit I will get one or better yet let someone take me to the store and drop me off at the front door to save even the steps from some of the handicap spaces that r actually furhter from the door than other spaces. When I have been feeling really horrible I have been known to jump in one of those scooters and do my shopping, plus they r fun to drive, HAPPY HOLIDAY PARKING

sam123
12-09-2006, 01:20 AM
Emily and Brandon, Thanks for the post, I again want to say I was not attacking anyone either, and I had Brandon wrong about how I thought he was posting this thread, Like a cop thought I was healthy and was being a smart butt, when he had no clue about what u r struggling with, so yeah he may have set u off, BUT, he didn't know, and for the people that need the handicap parking, thank goodness there r cops and people that r watching out for granny stealing lazy butts. So I never meant to tell people not to use their permits, I just meant just having CF in general does not make u a canidate for a handicap parking space, we all like the close spots, especially in the cold, but even for ones that r waiting for a lung tansplant, I would think the docs would like to see u exercising to be stronger to make the surgery go better, and it probably takes more energy to drive and go into a store than it takes to walk and extra 30ft from your space. If your not strong enough to walk, I would question how strong u r to drive a 1000 pound weapon, a car. WHen I need a permit I will get one or better yet let someone take me to the store and drop me off at the front door to save even the steps from some of the handicap spaces that r actually furhter from the door than other spaces. When I have been feeling really horrible I have been known to jump in one of those scooters and do my shopping, plus they r fun to drive, HAPPY HOLIDAY PARKING

Rutgersnyy
12-09-2006, 01:23 AM
Good for you, that you can exercise and stay in the 90 range. A lot of us can't, and no I don't just mean it's "difficult." I mean we CAN'T. Period. After bacteria takes over, there's little you can do to get your PFTs back up to "normal range." You can be in the best shape possible, but to get back to "normal" condition is a bit much. CF is progressive, and one day... despite all your efforts, you <u>will</u> fall under it, and then you'll see what some of us are saying.</end quote></div>

You do not know what I have.

Unfortunately, we are told that there is nothing you can do to get better. So to attempt to get better is to reach ultimate failure and then you will feel worse, so why try?

In my warped mind, the only people who have the right to say they can't are those who are paralyzed. But I am way outside the mainstream. Hell, I can't even see the mainstream.

Call me naive, but I refuse to believe all the published reports that say there is no hope. I will defeat it, and I will not die from CF.

There was a time in our history that I was in the mainstream and everyone else would have been thought less of. With today's technology and yesteryear's optimism we could do great things. But then again, maybe the technology precipitates hopelessness.

The pessimism doesn't deter me, it just saddens me many people feel that way.

Rutgersnyy
12-09-2006, 01:23 AM
Good for you, that you can exercise and stay in the 90 range. A lot of us can't, and no I don't just mean it's "difficult." I mean we CAN'T. Period. After bacteria takes over, there's little you can do to get your PFTs back up to "normal range." You can be in the best shape possible, but to get back to "normal" condition is a bit much. CF is progressive, and one day... despite all your efforts, you <u>will</u> fall under it, and then you'll see what some of us are saying.</end quote></div>

You do not know what I have.

Unfortunately, we are told that there is nothing you can do to get better. So to attempt to get better is to reach ultimate failure and then you will feel worse, so why try?

In my warped mind, the only people who have the right to say they can't are those who are paralyzed. But I am way outside the mainstream. Hell, I can't even see the mainstream.

Call me naive, but I refuse to believe all the published reports that say there is no hope. I will defeat it, and I will not die from CF.

There was a time in our history that I was in the mainstream and everyone else would have been thought less of. With today's technology and yesteryear's optimism we could do great things. But then again, maybe the technology precipitates hopelessness.

The pessimism doesn't deter me, it just saddens me many people feel that way.

Rutgersnyy
12-09-2006, 01:23 AM
Good for you, that you can exercise and stay in the 90 range. A lot of us can't, and no I don't just mean it's "difficult." I mean we CAN'T. Period. After bacteria takes over, there's little you can do to get your PFTs back up to "normal range." You can be in the best shape possible, but to get back to "normal" condition is a bit much. CF is progressive, and one day... despite all your efforts, you <u>will</u> fall under it, and then you'll see what some of us are saying.</end quote></div>

You do not know what I have.

Unfortunately, we are told that there is nothing you can do to get better. So to attempt to get better is to reach ultimate failure and then you will feel worse, so why try?

In my warped mind, the only people who have the right to say they can't are those who are paralyzed. But I am way outside the mainstream. Hell, I can't even see the mainstream.

Call me naive, but I refuse to believe all the published reports that say there is no hope. I will defeat it, and I will not die from CF.

There was a time in our history that I was in the mainstream and everyone else would have been thought less of. With today's technology and yesteryear's optimism we could do great things. But then again, maybe the technology precipitates hopelessness.

The pessimism doesn't deter me, it just saddens me many people feel that way.

Rokiss12
12-09-2006, 01:28 AM
that boarderline just made my life <img src="i/expressions/face-icon-small-smile.gif" border="0"> GOOD JOB, hehe...

Rokiss12
12-09-2006, 01:28 AM
that boarderline just made my life <img src="i/expressions/face-icon-small-smile.gif" border="0"> GOOD JOB, hehe...

Rokiss12
12-09-2006, 01:28 AM
that boarderline just made my life <img src="i/expressions/face-icon-small-smile.gif" border="0"> GOOD JOB, hehe...

sam123
12-09-2006, 01:29 AM
P.S.
WHY does this board have to be so negative. I don't think Rutgersnyy is braging, and who's to say they won;t live to 70 w/o any real issues. Someone can do all the treatments in the world and die at 18 and others can do none at all and live more than 40 years, WE are not all the same and should be able to reconize that there are diff views of CF and accept them for the purpose they serve. I want to hear the severe cases and I want to hear the exemplary ones, if it was not for both views, this site would be boring and could be titled, MY CF and NEAR DEATH or MILD CF FOREVER......u guys r right, CF is progressive and we all know our limitations or where we think they r, but some can push these limits to the extreme, others can't because they don't want to or in most cases just truly can't, because of their health, but in the end we all still live daily w/CF

sam123
12-09-2006, 01:29 AM
P.S.
WHY does this board have to be so negative. I don't think Rutgersnyy is braging, and who's to say they won;t live to 70 w/o any real issues. Someone can do all the treatments in the world and die at 18 and others can do none at all and live more than 40 years, WE are not all the same and should be able to reconize that there are diff views of CF and accept them for the purpose they serve. I want to hear the severe cases and I want to hear the exemplary ones, if it was not for both views, this site would be boring and could be titled, MY CF and NEAR DEATH or MILD CF FOREVER......u guys r right, CF is progressive and we all know our limitations or where we think they r, but some can push these limits to the extreme, others can't because they don't want to or in most cases just truly can't, because of their health, but in the end we all still live daily w/CF

sam123
12-09-2006, 01:29 AM
P.S.
WHY does this board have to be so negative. I don't think Rutgersnyy is braging, and who's to say they won;t live to 70 w/o any real issues. Someone can do all the treatments in the world and die at 18 and others can do none at all and live more than 40 years, WE are not all the same and should be able to reconize that there are diff views of CF and accept them for the purpose they serve. I want to hear the severe cases and I want to hear the exemplary ones, if it was not for both views, this site would be boring and could be titled, MY CF and NEAR DEATH or MILD CF FOREVER......u guys r right, CF is progressive and we all know our limitations or where we think they r, but some can push these limits to the extreme, others can't because they don't want to or in most cases just truly can't, because of their health, but in the end we all still live daily w/CF

Emily65Roses
12-09-2006, 02:31 AM
Rock on if you want to live that way, Rutgers.

But don't call the rest of us down for accepting what we perceive (and the rest of the world, for that matter) perceives to be <b><u>reality</b></u>. Mmkay?

Emily65Roses
12-09-2006, 02:31 AM
Rock on if you want to live that way, Rutgers.

But don't call the rest of us down for accepting what we perceive (and the rest of the world, for that matter) perceives to be <b><u>reality</b></u>. Mmkay?

Emily65Roses
12-09-2006, 02:31 AM
Rock on if you want to live that way, Rutgers.

But don't call the rest of us down for accepting what we perceive (and the rest of the world, for that matter) perceives to be <b><u>reality</b></u>. Mmkay?

Rutgersnyy
12-09-2006, 02:57 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Rock on if you want to live that way, Rutgers.



But don't call the rest of us down for accepting what we perceive (and the rest of the world, for that matter) perceives to be <b><u>reality</b></u>. Mmkay?</end quote></div>

That is my whole point, the rest of the world accepts that so you feel comfortable believing there is nothing you can do so why try. No one preaches tough love, no one wants to sound cold hearted, not even doctors. If you can look in the mirror and truly believe are doing all you can do then my hat's off to you.

I try not to take what everyone else says to heart, so what they believe means nothing to me. I do know my body, and even though I am human and have CF, I know I can accomplish much. That is my reality. And I have already achieved so much more than anyone thought when I was born.

A Progressive Disease does not mean you don't have a say in how fast it progresses. I know it might be easier to ignore that because it will take a lot of work and you may fail. And that might be too tough of a reality.

Rutgersnyy
12-09-2006, 02:57 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Rock on if you want to live that way, Rutgers.



But don't call the rest of us down for accepting what we perceive (and the rest of the world, for that matter) perceives to be <b><u>reality</b></u>. Mmkay?</end quote></div>

That is my whole point, the rest of the world accepts that so you feel comfortable believing there is nothing you can do so why try. No one preaches tough love, no one wants to sound cold hearted, not even doctors. If you can look in the mirror and truly believe are doing all you can do then my hat's off to you.

I try not to take what everyone else says to heart, so what they believe means nothing to me. I do know my body, and even though I am human and have CF, I know I can accomplish much. That is my reality. And I have already achieved so much more than anyone thought when I was born.

A Progressive Disease does not mean you don't have a say in how fast it progresses. I know it might be easier to ignore that because it will take a lot of work and you may fail. And that might be too tough of a reality.

Rutgersnyy
12-09-2006, 02:57 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Emily65Roses</b></i>

Rock on if you want to live that way, Rutgers.



But don't call the rest of us down for accepting what we perceive (and the rest of the world, for that matter) perceives to be <b><u>reality</b></u>. Mmkay?</end quote></div>

That is my whole point, the rest of the world accepts that so you feel comfortable believing there is nothing you can do so why try. No one preaches tough love, no one wants to sound cold hearted, not even doctors. If you can look in the mirror and truly believe are doing all you can do then my hat's off to you.

I try not to take what everyone else says to heart, so what they believe means nothing to me. I do know my body, and even though I am human and have CF, I know I can accomplish much. That is my reality. And I have already achieved so much more than anyone thought when I was born.

A Progressive Disease does not mean you don't have a say in how fast it progresses. I know it might be easier to ignore that because it will take a lot of work and you may fail. And that might be too tough of a reality.

coltsfan715
12-09-2006, 03:54 AM
Okay maybe I have no reason to take offense to practically EVERYTHING that you have said Rutgers ... BUT I have.

For one - I try and I do things that I am able to do - BUT when you are functioning with 30% lung function and working with O2 sats in the low 90s because your lungs have been beaten and battered from infection after infection then explain to me how I am supposed to run a mile - or climb a gajillion stairs a day or bench anything weighing more than a gallon of milk (lol - exagerating people), or ride a bike without hyperventilating or feeling like I am going to die because I can't breathe.

I am not miserable I am not unhappy. I get scared at times but that is because I have NOT been able to control things with my health in recent years. I used to have no problem keeping things under control with CF - though I will say I NEVER recall having lung function in the 90s - except maybe when I was under the age of 10. I thought for a period of time that I would never -- NEVER -- let CF get me.

I have tried supplements and am still trying them I am trying walking as a form of exercise because it is all I can do right now and YA KNOW WHAT? I am still losing lung function. I am STILL short of breath I am still feeling physically crummy many days - BUT I keep going.

Just because someone may be having difficulty with their health does not mean they are unhappy. Just because someone has low lung function and is UNABLE To do things doesn't mean they don't try. To sit and assume that someone at 30% could run a mile IF THEY PUT THEIR MIND TO IT is crazy to me.

I also think you are wrong I think people do preach tough love - I hear that phrase more times than I care to recall, people I know sound cold hearted all the time. On this site people may not always be that way, but I think that is because people try to support others on here even if they don't see things the same way or even if they are not in the same position as the other person.

I do not think that everyone with CF will die from CF - but I think the odds may be against many and that most of us probably will at least have some serious issues/setbacks with CF and some very tough moments on the way. I try not to listen to people sometimes too - but I do listen to my body and believe it or not there IS more to a person's ability than mental strength at times. If mental strength were all that was needed I could defeat the nation's army with my hands binded and my eye's blindfolded, but alas I can't because my body is not strong enough at present. I say that NOT because I have convinced it it isn't strong enough but because IT has convinced me it is not strong enough to do the things that I used to be able to do.

Why would anyone NOT try to get better because they are afraid they will fail that is just dumb. I know there are things - supplement wise - that I have not tried because they can be dangerous and I don't want to play around with what little lung function I have left at this point, but if someone could offer me something that could help and had relatively few side effects then I would try it.

Anyone on the face of this planet has the right to say the can't do something, but because of people with your mentality many of them don't. I went for years practically killing myself to do things that were too much for me and all I would do is get sick and end up in the hospital. I have JUST now in recent months gotten to a point where I can accept that some things are out of my reach at the current moment. Does that mean I am not going to try to get them back .. NO but I am accepting I can't do them now and I am not going to be depressed if I don't get those abilities back either. It is a part of life at times.

That is great that you have never had to call in sick and that you have only been hospitalized once ... to put things into perspective for you and make you realize that sometimes things just don't work out the same way for everyone with CF. I have been hospitalized roughly every year of my life - with the past few years increasing in frequency to 2 times a year and this year 3. I WISH that I had only been sick and in the hospital once, but it didn't work out that way - not because I didn't put my mind to not being sick - but because I couldn't get rid of the cold that didn't listen to my mind saying ... I am not going to get sick.

As for not looking handicapped that is fine and I enjoy not having any obvious physical problems BUT at the same time I sometimes just wish there was something about me that screamed ... SHE CAN'T BREATHE(cause that is how I feel sometimes) lol it would make things so much easier than having to explain why I can't walk faster, why I can't lift heavy things AND carry them and so on.

I don't believe you should use CF as an excuse and for that reason I never told anyone I had CF because I didn't want to be treated differently - as MANY people on this site deal with everyday. I do think CF is a reason or explanation that is perfectly viable and realistic though. It IS the reason that our lung function ultimately takes a hit - when it does - I know YOURS isn't going too ... but whatever I mean in general.

I can appreciate your point of view but like I said pretty much everything you said offended me because I am someone that HAS tried several things to improve my health in the past year and a half since I have become more "sick" as my lung function slipped I started grappling at different things HOPING something would make a difference and ya know what - no matter how many times I thought THIS IS GOING TO HELP THIS IS GOING TO DO THE TRICK ... it hasn't yet. I am still sitting here struggling to get better. I think your point of view is admirable in some respects but I also think it is a bit misguided in others. Learn to appreciate other people's struggles and not just compare them to your own and say or indicate that if they person REALLY tried they could do it. I know for me I REALLY tried alot of things and I am sure many others on here have as well. For some the things they tried helped a little for some they helped a lot, for others not so much. It is the way of life. If there was ONE sure fire way to stay healthy life would be easy and we all know it isn't - there is NO sure fire way for anything let alone staying healthy with CF.

Then again .. if you put your mind to it .. maybe you can cure yourself ... okay sorry that was catty but seriously. There ARE some things that are just not in our control no matter how badly we want them to be.

Happy Holidays,
Linds

coltsfan715
12-09-2006, 03:54 AM
Okay maybe I have no reason to take offense to practically EVERYTHING that you have said Rutgers ... BUT I have.

For one - I try and I do things that I am able to do - BUT when you are functioning with 30% lung function and working with O2 sats in the low 90s because your lungs have been beaten and battered from infection after infection then explain to me how I am supposed to run a mile - or climb a gajillion stairs a day or bench anything weighing more than a gallon of milk (lol - exagerating people), or ride a bike without hyperventilating or feeling like I am going to die because I can't breathe.

I am not miserable I am not unhappy. I get scared at times but that is because I have NOT been able to control things with my health in recent years. I used to have no problem keeping things under control with CF - though I will say I NEVER recall having lung function in the 90s - except maybe when I was under the age of 10. I thought for a period of time that I would never -- NEVER -- let CF get me.

I have tried supplements and am still trying them I am trying walking as a form of exercise because it is all I can do right now and YA KNOW WHAT? I am still losing lung function. I am STILL short of breath I am still feeling physically crummy many days - BUT I keep going.

Just because someone may be having difficulty with their health does not mean they are unhappy. Just because someone has low lung function and is UNABLE To do things doesn't mean they don't try. To sit and assume that someone at 30% could run a mile IF THEY PUT THEIR MIND TO IT is crazy to me.

I also think you are wrong I think people do preach tough love - I hear that phrase more times than I care to recall, people I know sound cold hearted all the time. On this site people may not always be that way, but I think that is because people try to support others on here even if they don't see things the same way or even if they are not in the same position as the other person.

I do not think that everyone with CF will die from CF - but I think the odds may be against many and that most of us probably will at least have some serious issues/setbacks with CF and some very tough moments on the way. I try not to listen to people sometimes too - but I do listen to my body and believe it or not there IS more to a person's ability than mental strength at times. If mental strength were all that was needed I could defeat the nation's army with my hands binded and my eye's blindfolded, but alas I can't because my body is not strong enough at present. I say that NOT because I have convinced it it isn't strong enough but because IT has convinced me it is not strong enough to do the things that I used to be able to do.

Why would anyone NOT try to get better because they are afraid they will fail that is just dumb. I know there are things - supplement wise - that I have not tried because they can be dangerous and I don't want to play around with what little lung function I have left at this point, but if someone could offer me something that could help and had relatively few side effects then I would try it.

Anyone on the face of this planet has the right to say the can't do something, but because of people with your mentality many of them don't. I went for years practically killing myself to do things that were too much for me and all I would do is get sick and end up in the hospital. I have JUST now in recent months gotten to a point where I can accept that some things are out of my reach at the current moment. Does that mean I am not going to try to get them back .. NO but I am accepting I can't do them now and I am not going to be depressed if I don't get those abilities back either. It is a part of life at times.

That is great that you have never had to call in sick and that you have only been hospitalized once ... to put things into perspective for you and make you realize that sometimes things just don't work out the same way for everyone with CF. I have been hospitalized roughly every year of my life - with the past few years increasing in frequency to 2 times a year and this year 3. I WISH that I had only been sick and in the hospital once, but it didn't work out that way - not because I didn't put my mind to not being sick - but because I couldn't get rid of the cold that didn't listen to my mind saying ... I am not going to get sick.

As for not looking handicapped that is fine and I enjoy not having any obvious physical problems BUT at the same time I sometimes just wish there was something about me that screamed ... SHE CAN'T BREATHE(cause that is how I feel sometimes) lol it would make things so much easier than having to explain why I can't walk faster, why I can't lift heavy things AND carry them and so on.

I don't believe you should use CF as an excuse and for that reason I never told anyone I had CF because I didn't want to be treated differently - as MANY people on this site deal with everyday. I do think CF is a reason or explanation that is perfectly viable and realistic though. It IS the reason that our lung function ultimately takes a hit - when it does - I know YOURS isn't going too ... but whatever I mean in general.

I can appreciate your point of view but like I said pretty much everything you said offended me because I am someone that HAS tried several things to improve my health in the past year and a half since I have become more "sick" as my lung function slipped I started grappling at different things HOPING something would make a difference and ya know what - no matter how many times I thought THIS IS GOING TO HELP THIS IS GOING TO DO THE TRICK ... it hasn't yet. I am still sitting here struggling to get better. I think your point of view is admirable in some respects but I also think it is a bit misguided in others. Learn to appreciate other people's struggles and not just compare them to your own and say or indicate that if they person REALLY tried they could do it. I know for me I REALLY tried alot of things and I am sure many others on here have as well. For some the things they tried helped a little for some they helped a lot, for others not so much. It is the way of life. If there was ONE sure fire way to stay healthy life would be easy and we all know it isn't - there is NO sure fire way for anything let alone staying healthy with CF.

Then again .. if you put your mind to it .. maybe you can cure yourself ... okay sorry that was catty but seriously. There ARE some things that are just not in our control no matter how badly we want them to be.

Happy Holidays,
Linds

coltsfan715
12-09-2006, 03:54 AM
Okay maybe I have no reason to take offense to practically EVERYTHING that you have said Rutgers ... BUT I have.

For one - I try and I do things that I am able to do - BUT when you are functioning with 30% lung function and working with O2 sats in the low 90s because your lungs have been beaten and battered from infection after infection then explain to me how I am supposed to run a mile - or climb a gajillion stairs a day or bench anything weighing more than a gallon of milk (lol - exagerating people), or ride a bike without hyperventilating or feeling like I am going to die because I can't breathe.

I am not miserable I am not unhappy. I get scared at times but that is because I have NOT been able to control things with my health in recent years. I used to have no problem keeping things under control with CF - though I will say I NEVER recall having lung function in the 90s - except maybe when I was under the age of 10. I thought for a period of time that I would never -- NEVER -- let CF get me.

I have tried supplements and am still trying them I am trying walking as a form of exercise because it is all I can do right now and YA KNOW WHAT? I am still losing lung function. I am STILL short of breath I am still feeling physically crummy many days - BUT I keep going.

Just because someone may be having difficulty with their health does not mean they are unhappy. Just because someone has low lung function and is UNABLE To do things doesn't mean they don't try. To sit and assume that someone at 30% could run a mile IF THEY PUT THEIR MIND TO IT is crazy to me.

I also think you are wrong I think people do preach tough love - I hear that phrase more times than I care to recall, people I know sound cold hearted all the time. On this site people may not always be that way, but I think that is because people try to support others on here even if they don't see things the same way or even if they are not in the same position as the other person.

I do not think that everyone with CF will die from CF - but I think the odds may be against many and that most of us probably will at least have some serious issues/setbacks with CF and some very tough moments on the way. I try not to listen to people sometimes too - but I do listen to my body and believe it or not there IS more to a person's ability than mental strength at times. If mental strength were all that was needed I could defeat the nation's army with my hands binded and my eye's blindfolded, but alas I can't because my body is not strong enough at present. I say that NOT because I have convinced it it isn't strong enough but because IT has convinced me it is not strong enough to do the things that I used to be able to do.

Why would anyone NOT try to get better because they are afraid they will fail that is just dumb. I know there are things - supplement wise - that I have not tried because they can be dangerous and I don't want to play around with what little lung function I have left at this point, but if someone could offer me something that could help and had relatively few side effects then I would try it.

Anyone on the face of this planet has the right to say the can't do something, but because of people with your mentality many of them don't. I went for years practically killing myself to do things that were too much for me and all I would do is get sick and end up in the hospital. I have JUST now in recent months gotten to a point where I can accept that some things are out of my reach at the current moment. Does that mean I am not going to try to get them back .. NO but I am accepting I can't do them now and I am not going to be depressed if I don't get those abilities back either. It is a part of life at times.

That is great that you have never had to call in sick and that you have only been hospitalized once ... to put things into perspective for you and make you realize that sometimes things just don't work out the same way for everyone with CF. I have been hospitalized roughly every year of my life - with the past few years increasing in frequency to 2 times a year and this year 3. I WISH that I had only been sick and in the hospital once, but it didn't work out that way - not because I didn't put my mind to not being sick - but because I couldn't get rid of the cold that didn't listen to my mind saying ... I am not going to get sick.

As for not looking handicapped that is fine and I enjoy not having any obvious physical problems BUT at the same time I sometimes just wish there was something about me that screamed ... SHE CAN'T BREATHE(cause that is how I feel sometimes) lol it would make things so much easier than having to explain why I can't walk faster, why I can't lift heavy things AND carry them and so on.

I don't believe you should use CF as an excuse and for that reason I never told anyone I had CF because I didn't want to be treated differently - as MANY people on this site deal with everyday. I do think CF is a reason or explanation that is perfectly viable and realistic though. It IS the reason that our lung function ultimately takes a hit - when it does - I know YOURS isn't going too ... but whatever I mean in general.

I can appreciate your point of view but like I said pretty much everything you said offended me because I am someone that HAS tried several things to improve my health in the past year and a half since I have become more "sick" as my lung function slipped I started grappling at different things HOPING something would make a difference and ya know what - no matter how many times I thought THIS IS GOING TO HELP THIS IS GOING TO DO THE TRICK ... it hasn't yet. I am still sitting here struggling to get better. I think your point of view is admirable in some respects but I also think it is a bit misguided in others. Learn to appreciate other people's struggles and not just compare them to your own and say or indicate that if they person REALLY tried they could do it. I know for me I REALLY tried alot of things and I am sure many others on here have as well. For some the things they tried helped a little for some they helped a lot, for others not so much. It is the way of life. If there was ONE sure fire way to stay healthy life would be easy and we all know it isn't - there is NO sure fire way for anything let alone staying healthy with CF.

Then again .. if you put your mind to it .. maybe you can cure yourself ... okay sorry that was catty but seriously. There ARE some things that are just not in our control no matter how badly we want them to be.

Happy Holidays,
Linds

shauna
12-09-2006, 09:47 AM
just had to say perfectly said Lindsay! I was going to reply...and say how my entire life i've always thought CF wont kill me until i uncontrollably got sicker...but you said it all for me!

happy holidays to all

x

shauna
12-09-2006, 09:47 AM
just had to say perfectly said Lindsay! I was going to reply...and say how my entire life i've always thought CF wont kill me until i uncontrollably got sicker...but you said it all for me!

happy holidays to all

x

shauna
12-09-2006, 09:47 AM
just had to say perfectly said Lindsay! I was going to reply...and say how my entire life i've always thought CF wont kill me until i uncontrollably got sicker...but you said it all for me!

happy holidays to all

x

JazzysMom
12-09-2006, 12:25 PM
Lindsey, you took the words right out of my head, but presented it so much better. For that I thank you & as already said....Happy Holidays to All!

JazzysMom
12-09-2006, 12:25 PM
Lindsey, you took the words right out of my head, but presented it so much better. For that I thank you & as already said....Happy Holidays to All!

JazzysMom
12-09-2006, 12:25 PM
Lindsey, you took the words right out of my head, but presented it so much better. For that I thank you & as already said....Happy Holidays to All!

PeteRose
12-09-2006, 12:45 PM
Lindsey I think you spoke volumes with your post. Thank You

PeteRose
12-09-2006, 12:45 PM
Lindsey I think you spoke volumes with your post. Thank You

PeteRose
12-09-2006, 12:45 PM
Lindsey I think you spoke volumes with your post. Thank You

onlyoneloveinmylife
12-10-2006, 01:12 AM
Lindsay, well said. Bravo.


some people just won't get it until they are in our shoes. for most CFers there comes a time when we just can't control CF anymore, and it's not from a lack of trying. hopefully these people never have to learn. i think it's best to ignore these kinds of people, cause you can't win. it's like talking to a wall.

onlyoneloveinmylife
12-10-2006, 01:12 AM
Lindsay, well said. Bravo.


some people just won't get it until they are in our shoes. for most CFers there comes a time when we just can't control CF anymore, and it's not from a lack of trying. hopefully these people never have to learn. i think it's best to ignore these kinds of people, cause you can't win. it's like talking to a wall.

onlyoneloveinmylife
12-10-2006, 01:12 AM
Lindsay, well said. Bravo.


some people just won't get it until they are in our shoes. for most CFers there comes a time when we just can't control CF anymore, and it's not from a lack of trying. hopefully these people never have to learn. i think it's best to ignore these kinds of people, cause you can't win. it's like talking to a wall.