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anonymous
03-30-2006, 07:13 PM
Hey everyone

I am wondering how many of you would be willing to get together with other cystics. I went to a camp as a child, and it closed due to spreading bacteria, but i always felt that the psychological benefits far outweighed the physical risks.

anyways, i am just wondering if as adults, you would be willing to take that 'risk'?

thanks!

maggie
18 w/cf

42 days until africa!

Seana30
03-30-2006, 07:20 PM
I know this can be a VERY touchy subject around here.

Everyone seems to have such different views on CF camps.

If you would have asked me a year ago if I would allow Courtney to go to one I would have said yes.

Now that we got a scare with her lungs I think reality sat in and I realize just how much of a chance you are taking by going to the camp. Now I would have to say no, I would not allow Courtney to go.

I believe the psychological benefits would be GREAT but I don't think I would be willing to chance it!!

Seana

EnergyGal
03-30-2006, 07:25 PM
If I had a CF child I would not allow my child to go. They have wonderful websites for people with CF to share with others.

anonymous
03-30-2006, 07:28 PM
I got lambasted on another site 'cuz I stated concerns about CF camps. I know there's someone who still operates one and they require cultures before people can attend, but it's not something I'd risk sending DS, too.

Liza

anonymous
03-30-2006, 07:30 PM
wow, the websites dont even compare in a million years to the actual camp. I went to cf camp for about 9 years. I was lucky to miss the cepacia. I dont think id go back now with other cfs. But I believe camp made me alot of who I am today. I learned alot about the different degrees of cf, life experiences, and had the most fun I will ever have. No fun will ever compare in life to that of going to that cf camp. Its sad that this crap thing called cepacia killed it all, so many cfs couldve benefitted from those camps.

Chad

Seana30
03-30-2006, 07:31 PM
I know one is Camp Funshine in Texas......and they do require sputum cultures before you can go.


Seana

Allie
03-30-2006, 07:36 PM
*dips her toe back onto the forum*

Ry went to camp Huff n' Puff, which is in the state and usually for kids with asthma, but they let kids with Cf come too. When Ry went there only 2 other kids with Cf, and they were different ages, so it wasn't a big deal.

When he was a counselor in later years, they just didn't put the few Cf kids in his cabin. I know he really liked the experience, maybe you could see if there's an asthma camp?

anonymous
03-30-2006, 07:39 PM
chad

i totally agree. websites are not at all an adequate substitute compared to the camps.

everyone else

thanks for your responses <img src="i/expressions/face-icon-small-smile.gif" border="0">

maggie

coltsfan715
03-30-2006, 08:03 PM
I went to camp as a teen ... Church Camp not CF Camp and had a great time and wouldn't change having gone. I can honestly say I wouldn't go to a CF Camp now and I most likely wouldn't have gone then.
Camp in itself is a wonderful experience to interact with others in your age range from different areas. I think Camp in general can do alot for kids, but I personally wouldn't want to be hanging out with a bunch of other CFs with everyone each having their own little bacteria cocktail party in their lungs.
That is what is nice about this site, you can get to know people if you want, use it as simply a source of info and let people get to know you without the fear of passing germies to one another.

Lindsey

anonymous
03-30-2006, 08:15 PM
Hi i live in Ireland and my friend is meeting up with 9 other cf's tomorrow for the annual cf conference don't see the harm really they've all given sputums tomake sure they have no harmful infections and i know that he benifits alot from it

Brenco
03-30-2006, 08:20 PM
hey
the camps really works as much as the hospitals hate it. but its so benificial to me. its better than any of the drus im on, so if you do decide to organise something or hear of anything please email me. at [email protected]
but yeah im in full support of meeting up with other pwcf. From anywhere in de world.
Brendan (ireland)

Brenco
03-30-2006, 08:35 PM
Can i please ask y you all wouldnt go on one of these camps, if you are afradi of picking up infections then there are ways and means for infection control b4 any1 sets foot on the bus, if you are intrested in hearing more email me [email protected]

thanks
Brendan (Ireland)

JazzysMom
03-30-2006, 09:26 PM
Never went to a CF camp. Had no interest & still wouldnt. I did go to girlscout camp & didnt really like it, but thats me.

anonymous
03-30-2006, 09:29 PM
My cf doc as a kid always spoke highly of the cf camps. I never went, I'm 26, but now knowing about Cepacia, it sounds like it could have been dangerous. I was very, very healthy as a child and to think I could have picked something up at camp is a little scary. I guess I'm glad I didn't go.

CFRI
03-30-2006, 09:36 PM
Hi Maggie et al:<br>
<br>
Take a look at the retreat that CFRI is preparing for August 6-11,
2006 at the CFRI blog site.<br>
<br>
Regards,<br>
David<br>

HairGirl
03-30-2006, 09:53 PM
I really liked CF camp but I have Cepacia and know they wouldn't
let me go and I could have gotten it from there! But I'm glad this
website is here, it's hard not to be able to socialize with other
people with CF, I think it would help alot.

ChelsAnn
03-30-2006, 09:56 PM
Totally have been thinking about bringing this topic up. About 3-4 years ago my dad got the manager position at the camprgrounds that Camp Funshine goes to. Needless to say, the camp is considered an outlaw camp and they basically freaked when they found out that the manger's daughter has CF and cepacia. I usually leave and go to my grandparents' house or stay secluded in my house when the camp comes. Personally, I don't agree with the camp although I know it must be great spending time with other CFers. Although they culture all the kids that come to the camp, I have had experiences with my own bacteria where it won't show up in my cultures for a while and then all of a sudden show up again. Doesn't mean it went away... just means that the bacteria was dormant for a while. Who's to say that there might be a kid at the camp who has bacteria in their lungs that is dormant and that they possibly don't even know about yet?

anonymous
03-30-2006, 10:34 PM
Allie - I will look into asthma camps, i'm glad ry enjoyed it.

Brendan - I will email you\

David - I will actually be in Africa then, but I will definitly keep my schedule open for next year, thank you so much for telling me about that!

Hairgirl - I don't have cepacia, but still can't find a camp to go to, it would help so much to be able to go.

Everyone else - Thanks for the imput

Maggie

thelizardqueen
03-30-2006, 11:41 PM
I attended the CF camps a couple of times when I was younger, and yes did enjoy interacting with other CFers. That being said, I would never go back due to the cross contamination that closed them down. I find that I interact more then enough with Cfer's on this site. With this site you can interact with EVERYONE, not just the small group of friends you form at the camp, because lets face it, not everyone gets along in person. We've all had our type of "cliques" growing up.

anonymous
03-31-2006, 12:21 AM
I would love to be able to do this, since I know from when I was a child that it was an invaluable experience. However, knowing now what I do, I would not ever go again. Just too much risk. You can culture different things depending upon the week you are tested, and some things don't show up in a culture until later. I wish it wasn't like this, but my personal opinion is that I wouldn't go.

I also am not a big fan of anything with the word "camp" in it anyway. I'm more of a Hotel-type person. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sonia

anonymous
03-31-2006, 08:35 AM
I wouldn't want my daughter 2 go cos of cross-infection. Betta 2 be safe than sorry.

Charlotte<img src="i/expressions/face-icon-small-frown.gif" border="0">

IG
03-31-2006, 06:31 PM
I personally when I went to Camp Onkoi Benek loved it. Back then I wouldn´t have traded it for the world.
Shortly after my last camp stay I was diagnosed with having MRSA. While it? not a positive ´you got it from there´ I believe it is where I got it from.
I personally would not attend one if my life depended on it (actually it does, so I wouldn´t). I believe personal contact between CFers is essential, I know MANY people with CF in person (my boyfriend has it [yes I am post tx]) and wouldn´t trade it for the world. But a group as large as it takes to fill a camp... it? just too dangerous..

anonymous
03-31-2006, 07:34 PM
I went to a cf camp in high school - it was a lot of fun, and I learned a lot about cf. If I had the chance to back now, I wouldn't for two reasons: the first would be the contamination issue. Yes, the fear of catching something, but also that I would pass something on that I didn't know I had.

The second would be that as a adult, I would rather use the vacation time for something more fun (for lack of a better word). You don't see a lot of adult camps for a reason. Conferences are fine, and I do go to those in my area.

--Wallflower

anonymous
03-31-2006, 07:54 PM
candice- i went to onkoi benek too...if you go <a target=_blank class=ftalternatingbarlinklarge href="http://not-sick-enough.livejournal.com/profile">here</a> i have a picture, i think you're sitting, wearing the white shirt with a blue design on it? i am standing next to you wearing a tye dyed shirt.

i hope the link worked.

maggie

IG
04-01-2006, 07:16 AM
Oh my ... that was a long time ago.
But yup that is me.
<img src="i/expressions/face-icon-small-smile.gif" border="0">

Faust
04-01-2006, 07:29 AM
If CF people (regardless of age) just had normal social contact, there is extremely low chances of anything happening, unless one of them directly coughed in your face and sprayed you with their funk...Even then unless any of it hit a mucous membrane or you breathed in when they did it, theres low chance you would get their bugs. Say if there was some form of adult get together at some hotel or something, where we would eat and have some drinks and talk, i'd go if I had the time. Of course if someone is extremely sick and coughing like mad and the like, please stay home.

JazzysMom
04-01-2006, 11:40 AM
So Candice.....do you still run around wearing your mask for pictures? LOL!

anonymous
04-01-2006, 07:53 PM
I went to a CF Camp for about 14 years. Once cepacia became a big issue they started holding seperate camps. It wasn't until about 6 years ago that they stopped camp, even then we continued for a few years to meet once a year for a day at an amusement park. It was great and I feel it was very beneficial for my life. I would definetly still go if they had it. I don't go through life scared of what might happen. I could just as easily die in a car accident as catch something from another CFer.


-Ann 26 w/cf

shauna
04-02-2006, 04:16 AM
I went to camps when I was little and I loved them. Now though I don't think I'd risk going. As much as they were beneficial, and I always had a great time, so many of the people I went on camp with either have cepacia now...or worse. So no I wouldnt risk it anymore.

Scarlett81
04-03-2006, 02:28 AM
I've avoided this particular thread cause I'm a teeny tired of debates, but just giving my opinion. Would I love to meet other Cfers face to face?-yes. I saw "one" last month on cepacia day-the only day I can visit the clinic. And just accidently running into one was like seeing an alien. It's like -ohhhhhhh-what species are you?!
But I personally couldn't stand myself for risking giving someone cepacia. I know the extra worry having cepaica has caused my life. It's just another shot of worry to living with CF. And I'm sorry-but till you have it-you have no clue.
It throws a whole wrench into the disease. For example-if it wasn't for my cepacia-there's a very high chance I'd be able to safely get pregnant.
And-my contact with other CFers is here. And its enough for me. I'm grateful for it. I don't think about the what if-I just try to happy that I at least have this!

letsrockcfem
04-03-2006, 03:46 PM
Whoa I went to Onkoi Benek too. What year did you guys go? I was there in 89 and maybe 91...? Who were your counselors? I think I'm a little older than you guys but we could've been there the same years.
The blone lady in the picture with you guys is who I had to dress up as one year at the talent show.
Whoa that is crazy! I loved CF camp!
Em

anonymous
04-03-2006, 05:39 PM
Emily-
I was only there 95 and 96, the last two years...my couselors were julie and sue.
That's so cool that you were there! I look for people from camp all the time- I feel like everyone dropped off the face of the earth.
Anyways good to hear from another camper!

Maggie
18w/cf

aim-eatm0regreens

IG
04-03-2006, 07:20 PM
Eh, I stopped wearing hand me downs a while ago. Not to mention raiding my grandmother's cool shirt collection.

I believe I was at that camp for 93, 95, and 96? Maybe it was 94. I don't remember really I was so young. Buuuuut.. I did, until recently, have the t-shirt for '95.. so I'm positive I was there in 95. Everything else is flexible though.
My counselors were Julie and Sue at one point as well, and I know I had a Maggie in my group. I have a ton of pics.. back in Texas, naturally. I can't go through them... which is a pity.

smleiter
11-10-2007, 03:03 AM
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.

smleiter
11-10-2007, 03:03 AM
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.

smleiter
11-10-2007, 03:03 AM
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.

smleiter
11-10-2007, 03:03 AM
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.

smleiter
11-10-2007, 03:03 AM
I think everyone should heed the warnings about cross infections, if not for the sake of yourself then for others, escpially children.
As a person with cf I don't think it is a good idea. Now as a mother to a child without cf I would not intentionally go against science and experts and put my child in a poitenally harmful situation, if my child did have cf. Children with cf now have so much hope for the future it would be ashame to take it from them.

Emily65Roses
11-10-2007, 03:15 AM
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.

Emily65Roses
11-10-2007, 03:15 AM
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.

Emily65Roses
11-10-2007, 03:15 AM
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.

Emily65Roses
11-10-2007, 03:15 AM
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.

Emily65Roses
11-10-2007, 03:15 AM
That's fine. But as an adult, if everyone involved understands the risks, and are still willing to spend time together, I think that's fine. I grew up around CFers and I wouldn't give it up (just use common sense, don't lick each other, etc.) just so the CFF can cover its ass. Keep in mind that it's just as easy to get a nasty bug in the hospital as it is to get it from another CFer. And we're all in the hospital often enough.

Keepercjr
11-11-2007, 01:40 PM
I have attended the CFRI retreat and I went to Camp Funshine for about 5 years. After having my son I haven't gone back (just logistics since I'm in CA and Funshine is in Texas) but I do hope to make it again - maybe next summer - if its still around. They have pretty strict cross contamination and sputum culture guidelines. I have never once felt like I was risking my life or someone else's by being there. For some of the kids, especially the sicker ones, it was the ONE time each year they felt normal and looked forward to. We're not coughing in each other's faces or anything like that - and there is heavy use of that antibacterial gel. Anyway, I know the CFF guidelines and am knowledgeable about the science (I have my degree in Biology). But if you take the appropriate precautions then I don't see anything wrong with it. I feel much safer at a Camp Funshine than I do in the hospital thats for sure.

Keepercjr
11-11-2007, 01:40 PM
I have attended the CFRI retreat and I went to Camp Funshine for about 5 years. After having my son I haven't gone back (just logistics since I'm in CA and Funshine is in Texas) but I do hope to make it again - maybe next summer - if its still around. They have pretty strict cross contamination and sputum culture guidelines. I have never once felt like I was risking my life or someone else's by being there. For some of the kids, especially the sicker ones, it was the ONE time each year they felt normal and looked forward to. We're not coughing in each other's faces or anything like that - and there is heavy use of that antibacterial gel. Anyway, I know the CFF guidelines and am knowledgeable about the science (I have my degree in Biology). But if you take the appropriate precautions then I don't see anything wrong with it. I feel much safer at a Camp Funshine than I do in the hospital thats for sure.

Keepercjr
11-11-2007, 01:40 PM
I have attended the CFRI retreat and I went to Camp Funshine for about 5 years. After having my son I haven't gone back (just logistics since I'm in CA and Funshine is in Texas) but I do hope to make it again - maybe next summer - if its still around. They have pretty strict cross contamination and sputum culture guidelines. I have never once felt like I was risking my life or someone else's by being there. For some of the kids, especially the sicker ones, it was the ONE time each year they felt normal and looked forward to. We're not coughing in each other's faces or anything like that - and there is heavy use of that antibacterial gel. Anyway, I know the CFF guidelines and am knowledgeable about the science (I have my degree in Biology). But if you take the appropriate precautions then I don't see anything wrong with it. I feel much safer at a Camp Funshine than I do in the hospital thats for sure.

Keepercjr
11-11-2007, 01:40 PM
I have attended the CFRI retreat and I went to Camp Funshine for about 5 years. After having my son I haven't gone back (just logistics since I'm in CA and Funshine is in Texas) but I do hope to make it again - maybe next summer - if its still around. They have pretty strict cross contamination and sputum culture guidelines. I have never once felt like I was risking my life or someone else's by being there. For some of the kids, especially the sicker ones, it was the ONE time each year they felt normal and looked forward to. We're not coughing in each other's faces or anything like that - and there is heavy use of that antibacterial gel. Anyway, I know the CFF guidelines and am knowledgeable about the science (I have my degree in Biology). But if you take the appropriate precautions then I don't see anything wrong with it. I feel much safer at a Camp Funshine than I do in the hospital thats for sure.

Keepercjr
11-11-2007, 01:40 PM
I have attended the CFRI retreat and I went to Camp Funshine for about 5 years. After having my son I haven't gone back (just logistics since I'm in CA and Funshine is in Texas) but I do hope to make it again - maybe next summer - if its still around. They have pretty strict cross contamination and sputum culture guidelines. I have never once felt like I was risking my life or someone else's by being there. For some of the kids, especially the sicker ones, it was the ONE time each year they felt normal and looked forward to. We're not coughing in each other's faces or anything like that - and there is heavy use of that antibacterial gel. Anyway, I know the CFF guidelines and am knowledgeable about the science (I have my degree in Biology). But if you take the appropriate precautions then I don't see anything wrong with it. I feel much safer at a Camp Funshine than I do in the hospital thats for sure.

tara
11-11-2007, 02:07 PM
I went to the CFRI camp in Northern California from 1984-1994. I wouldn't trade those memories for the world. And yes, knowing what I know today, I would do it all over again in a heartbeat.

After 1994, I went to college and my summers were "too busy" for camp. They changed the "camp" at CFRI to a "retreat". It's sooooo different. There are individual hotel rooms onsite (no cabins anymore) and the "camp" idea is no more. No kids allowed. I think you have to be at least 15 years old to go. (I'm not positive)

I visited once for a day in 2005, and it was so good to see familiar faces. Unfortunately upon arrival I was told no children were allowed at the facility, and I had my 10 month old twins with me. Even the director of the retreat didn't know this. I was able to stay that day, but it's hard for me to get up there now, since I am the weekday, daytime care provider to the twins. I might make time next year. It's a great group of people. I miss them dearly.

tara
11-11-2007, 02:07 PM
I went to the CFRI camp in Northern California from 1984-1994. I wouldn't trade those memories for the world. And yes, knowing what I know today, I would do it all over again in a heartbeat.

After 1994, I went to college and my summers were "too busy" for camp. They changed the "camp" at CFRI to a "retreat". It's sooooo different. There are individual hotel rooms onsite (no cabins anymore) and the "camp" idea is no more. No kids allowed. I think you have to be at least 15 years old to go. (I'm not positive)

I visited once for a day in 2005, and it was so good to see familiar faces. Unfortunately upon arrival I was told no children were allowed at the facility, and I had my 10 month old twins with me. Even the director of the retreat didn't know this. I was able to stay that day, but it's hard for me to get up there now, since I am the weekday, daytime care provider to the twins. I might make time next year. It's a great group of people. I miss them dearly.

tara
11-11-2007, 02:07 PM
I went to the CFRI camp in Northern California from 1984-1994. I wouldn't trade those memories for the world. And yes, knowing what I know today, I would do it all over again in a heartbeat.

After 1994, I went to college and my summers were "too busy" for camp. They changed the "camp" at CFRI to a "retreat". It's sooooo different. There are individual hotel rooms onsite (no cabins anymore) and the "camp" idea is no more. No kids allowed. I think you have to be at least 15 years old to go. (I'm not positive)

I visited once for a day in 2005, and it was so good to see familiar faces. Unfortunately upon arrival I was told no children were allowed at the facility, and I had my 10 month old twins with me. Even the director of the retreat didn't know this. I was able to stay that day, but it's hard for me to get up there now, since I am the weekday, daytime care provider to the twins. I might make time next year. It's a great group of people. I miss them dearly.

tara
11-11-2007, 02:07 PM
I went to the CFRI camp in Northern California from 1984-1994. I wouldn't trade those memories for the world. And yes, knowing what I know today, I would do it all over again in a heartbeat.

After 1994, I went to college and my summers were "too busy" for camp. They changed the "camp" at CFRI to a "retreat". It's sooooo different. There are individual hotel rooms onsite (no cabins anymore) and the "camp" idea is no more. No kids allowed. I think you have to be at least 15 years old to go. (I'm not positive)

I visited once for a day in 2005, and it was so good to see familiar faces. Unfortunately upon arrival I was told no children were allowed at the facility, and I had my 10 month old twins with me. Even the director of the retreat didn't know this. I was able to stay that day, but it's hard for me to get up there now, since I am the weekday, daytime care provider to the twins. I might make time next year. It's a great group of people. I miss them dearly.

tara
11-11-2007, 02:07 PM
I went to the CFRI camp in Northern California from 1984-1994. I wouldn't trade those memories for the world. And yes, knowing what I know today, I would do it all over again in a heartbeat.

After 1994, I went to college and my summers were "too busy" for camp. They changed the "camp" at CFRI to a "retreat". It's sooooo different. There are individual hotel rooms onsite (no cabins anymore) and the "camp" idea is no more. No kids allowed. I think you have to be at least 15 years old to go. (I'm not positive)

I visited once for a day in 2005, and it was so good to see familiar faces. Unfortunately upon arrival I was told no children were allowed at the facility, and I had my 10 month old twins with me. Even the director of the retreat didn't know this. I was able to stay that day, but it's hard for me to get up there now, since I am the weekday, daytime care provider to the twins. I might make time next year. It's a great group of people. I miss them dearly.

welshwitch
11-12-2007, 03:26 PM
Cool. I never went to the CF camps as a kid, 'cause I was too "stubborn" and refused to even identify with a "sick" kid. But in retrospect it could've been great!

Question: What types of screening or contamination guidelines are there for the current CF retreats that I know that CFRI puts on? I'd be curious to find out, and perhaps even attend if I met the criteria. I could definitely use some tips on living healthy w/ CF as an adult.

welshwitch
11-12-2007, 03:26 PM
Cool. I never went to the CF camps as a kid, 'cause I was too "stubborn" and refused to even identify with a "sick" kid. But in retrospect it could've been great!

Question: What types of screening or contamination guidelines are there for the current CF retreats that I know that CFRI puts on? I'd be curious to find out, and perhaps even attend if I met the criteria. I could definitely use some tips on living healthy w/ CF as an adult.

welshwitch
11-12-2007, 03:26 PM
Cool. I never went to the CF camps as a kid, 'cause I was too "stubborn" and refused to even identify with a "sick" kid. But in retrospect it could've been great!

Question: What types of screening or contamination guidelines are there for the current CF retreats that I know that CFRI puts on? I'd be curious to find out, and perhaps even attend if I met the criteria. I could definitely use some tips on living healthy w/ CF as an adult.

welshwitch
11-12-2007, 03:26 PM
Cool. I never went to the CF camps as a kid, 'cause I was too "stubborn" and refused to even identify with a "sick" kid. But in retrospect it could've been great!

Question: What types of screening or contamination guidelines are there for the current CF retreats that I know that CFRI puts on? I'd be curious to find out, and perhaps even attend if I met the criteria. I could definitely use some tips on living healthy w/ CF as an adult.

welshwitch
11-12-2007, 03:26 PM
Cool. I never went to the CF camps as a kid, 'cause I was too "stubborn" and refused to even identify with a "sick" kid. But in retrospect it could've been great!

Question: What types of screening or contamination guidelines are there for the current CF retreats that I know that CFRI puts on? I'd be curious to find out, and perhaps even attend if I met the criteria. I could definitely use some tips on living healthy w/ CF as an adult.

TWEETY2549
11-12-2007, 05:01 PM
I never knew of all the dangerous stuff going on when I sent my daughter to cf camp over 20 yrs ago. She hated it, missed her family and never went again.

TWEETY2549
11-12-2007, 05:01 PM
I never knew of all the dangerous stuff going on when I sent my daughter to cf camp over 20 yrs ago. She hated it, missed her family and never went again.

TWEETY2549
11-12-2007, 05:01 PM
I never knew of all the dangerous stuff going on when I sent my daughter to cf camp over 20 yrs ago. She hated it, missed her family and never went again.

TWEETY2549
11-12-2007, 05:01 PM
I never knew of all the dangerous stuff going on when I sent my daughter to cf camp over 20 yrs ago. She hated it, missed her family and never went again.

TWEETY2549
11-12-2007, 05:01 PM
I never knew of all the dangerous stuff going on when I sent my daughter to cf camp over 20 yrs ago. She hated it, missed her family and never went again.

tara
11-12-2007, 06:18 PM
Welshwitch,

You have to have clean sputum culture, as in no b.cepacia or MRSA in the last two years. Or any other bug that is resistant to all antibiotics.

The cost of the CFRI retreat is fairly inexpensive. $65 covers the whole week, meals and snacks included. Plus $40/night accommodations are available onsite at the retreat center. Most people stay there, though you can stay at any hotel in the area, or friends house too. And if the tradition continues there are scholarships available.

tara
11-12-2007, 06:18 PM
Welshwitch,

You have to have clean sputum culture, as in no b.cepacia or MRSA in the last two years. Or any other bug that is resistant to all antibiotics.

The cost of the CFRI retreat is fairly inexpensive. $65 covers the whole week, meals and snacks included. Plus $40/night accommodations are available onsite at the retreat center. Most people stay there, though you can stay at any hotel in the area, or friends house too. And if the tradition continues there are scholarships available.

tara
11-12-2007, 06:18 PM
Welshwitch,

You have to have clean sputum culture, as in no b.cepacia or MRSA in the last two years. Or any other bug that is resistant to all antibiotics.

The cost of the CFRI retreat is fairly inexpensive. $65 covers the whole week, meals and snacks included. Plus $40/night accommodations are available onsite at the retreat center. Most people stay there, though you can stay at any hotel in the area, or friends house too. And if the tradition continues there are scholarships available.

tara
11-12-2007, 06:18 PM
Welshwitch,

You have to have clean sputum culture, as in no b.cepacia or MRSA in the last two years. Or any other bug that is resistant to all antibiotics.

The cost of the CFRI retreat is fairly inexpensive. $65 covers the whole week, meals and snacks included. Plus $40/night accommodations are available onsite at the retreat center. Most people stay there, though you can stay at any hotel in the area, or friends house too. And if the tradition continues there are scholarships available.

tara
11-12-2007, 06:18 PM
Welshwitch,

You have to have clean sputum culture, as in no b.cepacia or MRSA in the last two years. Or any other bug that is resistant to all antibiotics.

The cost of the CFRI retreat is fairly inexpensive. $65 covers the whole week, meals and snacks included. Plus $40/night accommodations are available onsite at the retreat center. Most people stay there, though you can stay at any hotel in the area, or friends house too. And if the tradition continues there are scholarships available.