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Gentrygirl
09-11-2009, 10:31 AM
We are new to all of this. My 12 yr old son was diagnosed in June of this year. We have never gone without insurance, but I did switch to a new policy under BCBS in Feb of this year. He has always been treated for "Athsma". The insurance company is denying all claims, saying it is pre-existing. How does ANY CFer get covered? Obviously, any child with CF has a pre-existing condition. What do we do? We are out of meds, $10,000 + in bills looming over us, and no reimbursement in sight. Insurance companies are so greedy - it's more important to them to make a buck than see a child live. I'm sure someone out there had gone through this. Do I have an arguement? Do I need to see a lawyer?

Gentrygirl
09-11-2009, 10:31 AM
We are new to all of this. My 12 yr old son was diagnosed in June of this year. We have never gone without insurance, but I did switch to a new policy under BCBS in Feb of this year. He has always been treated for "Athsma". The insurance company is denying all claims, saying it is pre-existing. How does ANY CFer get covered? Obviously, any child with CF has a pre-existing condition. What do we do? We are out of meds, $10,000 + in bills looming over us, and no reimbursement in sight. Insurance companies are so greedy - it's more important to them to make a buck than see a child live. I'm sure someone out there had gone through this. Do I have an arguement? Do I need to see a lawyer?

Gentrygirl
09-11-2009, 10:31 AM
We are new to all of this. My 12 yr old son was diagnosed in June of this year. We have never gone without insurance, but I did switch to a new policy under BCBS in Feb of this year. He has always been treated for "Athsma". The insurance company is denying all claims, saying it is pre-existing. How does ANY CFer get covered? Obviously, any child with CF has a pre-existing condition. What do we do? We are out of meds, $10,000 + in bills looming over us, and no reimbursement in sight. Insurance companies are so greedy - it's more important to them to make a buck than see a child live. I'm sure someone out there had gone through this. Do I have an arguement? Do I need to see a lawyer?

Gentrygirl
09-11-2009, 10:31 AM
We are new to all of this. My 12 yr old son was diagnosed in June of this year. We have never gone without insurance, but I did switch to a new policy under BCBS in Feb of this year. He has always been treated for "Athsma". The insurance company is denying all claims, saying it is pre-existing. How does ANY CFer get covered? Obviously, any child with CF has a pre-existing condition. What do we do? We are out of meds, $10,000 + in bills looming over us, and no reimbursement in sight. Insurance companies are so greedy - it's more important to them to make a buck than see a child live. I'm sure someone out there had gone through this. Do I have an arguement? Do I need to see a lawyer?

Gentrygirl
09-11-2009, 10:31 AM
We are new to all of this. My 12 yr old son was diagnosed in June of this year. We have never gone without insurance, but I did switch to a new policy under BCBS in Feb of this year. He has always been treated for "Athsma". The insurance company is denying all claims, saying it is pre-existing. How does ANY CFer get covered? Obviously, any child with CF has a pre-existing condition. What do we do? We are out of meds, $10,000 + in bills looming over us, and no reimbursement in sight. Insurance companies are so greedy - it's more important to them to make a buck than see a child live. I'm sure someone out there had gone through this. Do I have an arguement? Do I need to see a lawyer?

jrotier
09-11-2009, 10:06 PM
I sent you a pm.

jrotier
09-11-2009, 10:06 PM
I sent you a pm.

jrotier
09-11-2009, 10:06 PM
I sent you a pm.

jrotier
09-11-2009, 10:06 PM
I sent you a pm.

jrotier
09-11-2009, 10:06 PM
I sent you a pm.

Boser
09-20-2009, 10:56 PM
Go to this site. There is an attorney who will answer all your insurance questions free of charge I believe.

https://www.cfservicespharmacy.com/CFLegalInformationHotline/

Boser
09-20-2009, 10:56 PM
Go to this site. There is an attorney who will answer all your insurance questions free of charge I believe.

https://www.cfservicespharmacy.com/CFLegalInformationHotline/

Boser
09-20-2009, 10:56 PM
Go to this site. There is an attorney who will answer all your insurance questions free of charge I believe.

https://www.cfservicespharmacy.com/CFLegalInformationHotline/

Boser
09-20-2009, 10:56 PM
Go to this site. There is an attorney who will answer all your insurance questions free of charge I believe.

https://www.cfservicespharmacy.com/CFLegalInformationHotline/

Boser
09-20-2009, 10:56 PM
Go to this site. There is an attorney who will answer all your insurance questions free of charge I believe.
<br />
<br />https://www.cfservicespharmacy.com/CFLegalInformationHotline/

Boser
09-20-2009, 10:57 PM
The Cystic Fibrosis Legal Information Hotline

Have you had difficulties obtaining coverage for cystic fibrosis medications? Has your insurance company rejected your specialized cystic fibrosis care bills? Have you had trouble getting your child's cystic fibrosis needs met at school? Do you need information about applying for government benefits? Contact the Cystic Fibrosis Legal Information Hotline for help with your questions.

Boser
09-20-2009, 10:57 PM
The Cystic Fibrosis Legal Information Hotline

Have you had difficulties obtaining coverage for cystic fibrosis medications? Has your insurance company rejected your specialized cystic fibrosis care bills? Have you had trouble getting your child's cystic fibrosis needs met at school? Do you need information about applying for government benefits? Contact the Cystic Fibrosis Legal Information Hotline for help with your questions.

Boser
09-20-2009, 10:57 PM
The Cystic Fibrosis Legal Information Hotline

Have you had difficulties obtaining coverage for cystic fibrosis medications? Has your insurance company rejected your specialized cystic fibrosis care bills? Have you had trouble getting your child's cystic fibrosis needs met at school? Do you need information about applying for government benefits? Contact the Cystic Fibrosis Legal Information Hotline for help with your questions.

Boser
09-20-2009, 10:57 PM
The Cystic Fibrosis Legal Information Hotline

Have you had difficulties obtaining coverage for cystic fibrosis medications? Has your insurance company rejected your specialized cystic fibrosis care bills? Have you had trouble getting your child's cystic fibrosis needs met at school? Do you need information about applying for government benefits? Contact the Cystic Fibrosis Legal Information Hotline for help with your questions.

Boser
09-20-2009, 10:57 PM
The Cystic Fibrosis Legal Information Hotline
<br />
<br />Have you had difficulties obtaining coverage for cystic fibrosis medications? Has your insurance company rejected your specialized cystic fibrosis care bills? Have you had trouble getting your child's cystic fibrosis needs met at school? Do you need information about applying for government benefits? Contact the Cystic Fibrosis Legal Information Hotline for help with your questions.

Gentrygirl
09-30-2009, 09:41 AM
Have had NO help getting ANY meds OR clinic coverage for him. Have applied for help with every govt agency I know of, state or otherwise. For one, I make $238 too much ANNUALLY to receive help. For another, even though my income would qualify me, they want me to sell my house, car, and empty my itty bitty retirement acct before I get any help. For another, they won't cover anythign because he has insurance. Insurance won't cover it because they call it a pre-existing condition. Spoke to legal hotline. They said with 12,000 calls in, this is a first for them. They said I am completely in the right, so I guess in addition to fighting CF, I have a legal battle ahead of me, too. Not only will I sue for the coverage, but for the amount of time that they have shortened his life because of their greed.

Gentrygirl
09-30-2009, 09:41 AM
Have had NO help getting ANY meds OR clinic coverage for him. Have applied for help with every govt agency I know of, state or otherwise. For one, I make $238 too much ANNUALLY to receive help. For another, even though my income would qualify me, they want me to sell my house, car, and empty my itty bitty retirement acct before I get any help. For another, they won't cover anythign because he has insurance. Insurance won't cover it because they call it a pre-existing condition. Spoke to legal hotline. They said with 12,000 calls in, this is a first for them. They said I am completely in the right, so I guess in addition to fighting CF, I have a legal battle ahead of me, too. Not only will I sue for the coverage, but for the amount of time that they have shortened his life because of their greed.

Gentrygirl
09-30-2009, 09:41 AM
Have had NO help getting ANY meds OR clinic coverage for him. Have applied for help with every govt agency I know of, state or otherwise. For one, I make $238 too much ANNUALLY to receive help. For another, even though my income would qualify me, they want me to sell my house, car, and empty my itty bitty retirement acct before I get any help. For another, they won't cover anythign because he has insurance. Insurance won't cover it because they call it a pre-existing condition. Spoke to legal hotline. They said with 12,000 calls in, this is a first for them. They said I am completely in the right, so I guess in addition to fighting CF, I have a legal battle ahead of me, too. Not only will I sue for the coverage, but for the amount of time that they have shortened his life because of their greed.

Gentrygirl
09-30-2009, 09:41 AM
Have had NO help getting ANY meds OR clinic coverage for him. Have applied for help with every govt agency I know of, state or otherwise. For one, I make $238 too much ANNUALLY to receive help. For another, even though my income would qualify me, they want me to sell my house, car, and empty my itty bitty retirement acct before I get any help. For another, they won't cover anythign because he has insurance. Insurance won't cover it because they call it a pre-existing condition. Spoke to legal hotline. They said with 12,000 calls in, this is a first for them. They said I am completely in the right, so I guess in addition to fighting CF, I have a legal battle ahead of me, too. Not only will I sue for the coverage, but for the amount of time that they have shortened his life because of their greed.

Gentrygirl
09-30-2009, 09:41 AM
Have had NO help getting ANY meds OR clinic coverage for him. Have applied for help with every govt agency I know of, state or otherwise. For one, I make $238 too much ANNUALLY to receive help. For another, even though my income would qualify me, they want me to sell my house, car, and empty my itty bitty retirement acct before I get any help. For another, they won't cover anythign because he has insurance. Insurance won't cover it because they call it a pre-existing condition. Spoke to legal hotline. They said with 12,000 calls in, this is a first for them. They said I am completely in the right, so I guess in addition to fighting CF, I have a legal battle ahead of me, too. Not only will I sue for the coverage, but for the amount of time that they have shortened his life because of their greed.

bkc3
10-01-2009, 06:51 AM
Contact your local news agency they may be able to help escalate the issue quickly.
pre-existing? what isn't...I think every issue probably has a gene associated with it. They just haven't been discovered yet. up until 1989 would it have been pre-existing? nope...
they aren't treating the CF...they are treating the conditions which CF may or may not cause increased susceptibility to...because there is a gene that increases the likely hood of a condition manifesting itself doesn't sound like a pre-existing condition to me...Check with some of the drug manufactures there are a few with excellent programs so I've heard. Contact them directly. Please post what you end up doing. If I lost my job I would be in the same position...I'd probably have to get divorced so we could get help ;(...What meds do you need and maybe some others can help do some research for you?
The important thing is that your boy has what he needs while these greedy a-holes and our selectively benevolent government pulls their heads out of their cans <img src="i/expressions/face-icon-small-wink.gif" border="0">

bkc3
10-01-2009, 06:51 AM
Contact your local news agency they may be able to help escalate the issue quickly.
pre-existing? what isn't...I think every issue probably has a gene associated with it. They just haven't been discovered yet. up until 1989 would it have been pre-existing? nope...
they aren't treating the CF...they are treating the conditions which CF may or may not cause increased susceptibility to...because there is a gene that increases the likely hood of a condition manifesting itself doesn't sound like a pre-existing condition to me...Check with some of the drug manufactures there are a few with excellent programs so I've heard. Contact them directly. Please post what you end up doing. If I lost my job I would be in the same position...I'd probably have to get divorced so we could get help ;(...What meds do you need and maybe some others can help do some research for you?
The important thing is that your boy has what he needs while these greedy a-holes and our selectively benevolent government pulls their heads out of their cans <img src="i/expressions/face-icon-small-wink.gif" border="0">

bkc3
10-01-2009, 06:51 AM
Contact your local news agency they may be able to help escalate the issue quickly.
pre-existing? what isn't...I think every issue probably has a gene associated with it. They just haven't been discovered yet. up until 1989 would it have been pre-existing? nope...
they aren't treating the CF...they are treating the conditions which CF may or may not cause increased susceptibility to...because there is a gene that increases the likely hood of a condition manifesting itself doesn't sound like a pre-existing condition to me...Check with some of the drug manufactures there are a few with excellent programs so I've heard. Contact them directly. Please post what you end up doing. If I lost my job I would be in the same position...I'd probably have to get divorced so we could get help ;(...What meds do you need and maybe some others can help do some research for you?
The important thing is that your boy has what he needs while these greedy a-holes and our selectively benevolent government pulls their heads out of their cans <img src="i/expressions/face-icon-small-wink.gif" border="0">

bkc3
10-01-2009, 06:51 AM
Contact your local news agency they may be able to help escalate the issue quickly.
pre-existing? what isn't...I think every issue probably has a gene associated with it. They just haven't been discovered yet. up until 1989 would it have been pre-existing? nope...
they aren't treating the CF...they are treating the conditions which CF may or may not cause increased susceptibility to...because there is a gene that increases the likely hood of a condition manifesting itself doesn't sound like a pre-existing condition to me...Check with some of the drug manufactures there are a few with excellent programs so I've heard. Contact them directly. Please post what you end up doing. If I lost my job I would be in the same position...I'd probably have to get divorced so we could get help ;(...What meds do you need and maybe some others can help do some research for you?
The important thing is that your boy has what he needs while these greedy a-holes and our selectively benevolent government pulls their heads out of their cans <img src="i/expressions/face-icon-small-wink.gif" border="0">

bkc3
10-01-2009, 06:51 AM
Contact your local news agency they may be able to help escalate the issue quickly.
<br />pre-existing? what isn't...I think every issue probably has a gene associated with it. They just haven't been discovered yet. up until 1989 would it have been pre-existing? nope...
<br />they aren't treating the CF...they are treating the conditions which CF may or may not cause increased susceptibility to...because there is a gene that increases the likely hood of a condition manifesting itself doesn't sound like a pre-existing condition to me...Check with some of the drug manufactures there are a few with excellent programs so I've heard. Contact them directly. Please post what you end up doing. If I lost my job I would be in the same position...I'd probably have to get divorced so we could get help ;(...What meds do you need and maybe some others can help do some research for you?
<br />The important thing is that your boy has what he needs while these greedy a-holes and our selectively benevolent government pulls their heads out of their cans <img src="i/expressions/face-icon-small-wink.gif" border="0">

bkc3
10-01-2009, 07:08 AM
There are some contacts here:
I'd check here:
https://www.cfservicespharmacy.com/PatientAssistance/
Might want to talk to someone here as well:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.genentechaccesssolutions.com/pulmozyme/patient/resources/about.jsp">http://www.genentechaccesssolu...nt/resources/about.jsp</a>

bkc3
10-01-2009, 07:08 AM
There are some contacts here:
I'd check here:
https://www.cfservicespharmacy.com/PatientAssistance/
Might want to talk to someone here as well:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.genentechaccesssolutions.com/pulmozyme/patient/resources/about.jsp">http://www.genentechaccesssolu...nt/resources/about.jsp</a>

bkc3
10-01-2009, 07:08 AM
There are some contacts here:
I'd check here:
https://www.cfservicespharmacy.com/PatientAssistance/
Might want to talk to someone here as well:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.genentechaccesssolutions.com/pulmozyme/patient/resources/about.jsp">http://www.genentechaccesssolu...nt/resources/about.jsp</a>

bkc3
10-01-2009, 07:08 AM
There are some contacts here:
I'd check here:
https://www.cfservicespharmacy.com/PatientAssistance/
Might want to talk to someone here as well:
<a target=_blank class=ftalternatingbarlinklarge href="http://www.genentechaccesssolutions.com/pulmozyme/patient/resources/about.jsp">http://www.genentechaccesssolu...nt/resources/about.jsp</a>

bkc3
10-01-2009, 07:08 AM
There are some contacts here:
<br />I'd check here:
<br />https://www.cfservicespharmacy.com/PatientAssistance/
<br />Might want to talk to someone here as well:
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.genentechaccesssolutions.com/pulmozyme/patient/resources/about.jsp">http://www.genentechaccesssolu...nt/resources/about.jsp</a>

Tammy15
10-01-2009, 04:18 PM
I am sorry to hear of all this trouble. Perhaps contacting your local congressman/senator esp now when one of the items all seem to agree on is pre-existing clause of insurance companies. I hope you get favorable resolution soon it is hard enough to worry about your child's health without having to worry about fighting ins company. I would also have the insurance company send you a copy of your plan's summary plan description so you can verify this pre existing clause how its worded etc

Tammy15
10-01-2009, 04:18 PM
I am sorry to hear of all this trouble. Perhaps contacting your local congressman/senator esp now when one of the items all seem to agree on is pre-existing clause of insurance companies. I hope you get favorable resolution soon it is hard enough to worry about your child's health without having to worry about fighting ins company. I would also have the insurance company send you a copy of your plan's summary plan description so you can verify this pre existing clause how its worded etc

Tammy15
10-01-2009, 04:18 PM
I am sorry to hear of all this trouble. Perhaps contacting your local congressman/senator esp now when one of the items all seem to agree on is pre-existing clause of insurance companies. I hope you get favorable resolution soon it is hard enough to worry about your child's health without having to worry about fighting ins company. I would also have the insurance company send you a copy of your plan's summary plan description so you can verify this pre existing clause how its worded etc

Tammy15
10-01-2009, 04:18 PM
I am sorry to hear of all this trouble. Perhaps contacting your local congressman/senator esp now when one of the items all seem to agree on is pre-existing clause of insurance companies. I hope you get favorable resolution soon it is hard enough to worry about your child's health without having to worry about fighting ins company. I would also have the insurance company send you a copy of your plan's summary plan description so you can verify this pre existing clause how its worded etc

Tammy15
10-01-2009, 04:18 PM
I am sorry to hear of all this trouble. Perhaps contacting your local congressman/senator esp now when one of the items all seem to agree on is pre-existing clause of insurance companies. I hope you get favorable resolution soon it is hard enough to worry about your child's health without having to worry about fighting ins company. I would also have the insurance company send you a copy of your plan's summary plan description so you can verify this pre existing clause how its worded etc

hmw
10-04-2009, 01:45 AM
Take a look at this:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dol.gov/ebsa/faqs/faq_consumer_hipaa.html">FAQs About Portability Of Health Coverage And HIPAA</a>

The Health Insurance Portability and Accountability Act of 1996 (HIPAA) really limits how much health insurance can legally deny coverage based on pre-existing conditions. Even if you've changed plans, if you've had continuous coverage for the last couple years, there should be virtually no waiting period during which they can refuse to cover so-called pre-existing conditions. (Gaps in coverage can stretch out a period of non-coverage, but not indefinitely- only about a year.) I am so sorry you are going through this!

I would definitely contact all of the manufacturers of his meds; most have programs for those who don't have coverage to provide them for low (or even no) cost. Many hospitals also offer financial aid if you can find the right person to talk to (perhaps ask the clinic social worker, if she is empathetic, who to contact rather than someone in billing!); I'd contact them and explain what you are going through and see if they are willing to work with you. I hope you are able to get this worked out as soon as possible.

hmw
10-04-2009, 01:45 AM
Take a look at this:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dol.gov/ebsa/faqs/faq_consumer_hipaa.html">FAQs About Portability Of Health Coverage And HIPAA</a>

The Health Insurance Portability and Accountability Act of 1996 (HIPAA) really limits how much health insurance can legally deny coverage based on pre-existing conditions. Even if you've changed plans, if you've had continuous coverage for the last couple years, there should be virtually no waiting period during which they can refuse to cover so-called pre-existing conditions. (Gaps in coverage can stretch out a period of non-coverage, but not indefinitely- only about a year.) I am so sorry you are going through this!

I would definitely contact all of the manufacturers of his meds; most have programs for those who don't have coverage to provide them for low (or even no) cost. Many hospitals also offer financial aid if you can find the right person to talk to (perhaps ask the clinic social worker, if she is empathetic, who to contact rather than someone in billing!); I'd contact them and explain what you are going through and see if they are willing to work with you. I hope you are able to get this worked out as soon as possible.

hmw
10-04-2009, 01:45 AM
Take a look at this:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dol.gov/ebsa/faqs/faq_consumer_hipaa.html">FAQs About Portability Of Health Coverage And HIPAA</a>

The Health Insurance Portability and Accountability Act of 1996 (HIPAA) really limits how much health insurance can legally deny coverage based on pre-existing conditions. Even if you've changed plans, if you've had continuous coverage for the last couple years, there should be virtually no waiting period during which they can refuse to cover so-called pre-existing conditions. (Gaps in coverage can stretch out a period of non-coverage, but not indefinitely- only about a year.) I am so sorry you are going through this!

I would definitely contact all of the manufacturers of his meds; most have programs for those who don't have coverage to provide them for low (or even no) cost. Many hospitals also offer financial aid if you can find the right person to talk to (perhaps ask the clinic social worker, if she is empathetic, who to contact rather than someone in billing!); I'd contact them and explain what you are going through and see if they are willing to work with you. I hope you are able to get this worked out as soon as possible.

hmw
10-04-2009, 01:45 AM
Take a look at this:

<a target=_blank class=ftalternatingbarlinklarge href="http://www.dol.gov/ebsa/faqs/faq_consumer_hipaa.html">FAQs About Portability Of Health Coverage And HIPAA</a>

The Health Insurance Portability and Accountability Act of 1996 (HIPAA) really limits how much health insurance can legally deny coverage based on pre-existing conditions. Even if you've changed plans, if you've had continuous coverage for the last couple years, there should be virtually no waiting period during which they can refuse to cover so-called pre-existing conditions. (Gaps in coverage can stretch out a period of non-coverage, but not indefinitely- only about a year.) I am so sorry you are going through this!

I would definitely contact all of the manufacturers of his meds; most have programs for those who don't have coverage to provide them for low (or even no) cost. Many hospitals also offer financial aid if you can find the right person to talk to (perhaps ask the clinic social worker, if she is empathetic, who to contact rather than someone in billing!); I'd contact them and explain what you are going through and see if they are willing to work with you. I hope you are able to get this worked out as soon as possible.

hmw
10-04-2009, 01:45 AM
Take a look at this:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.dol.gov/ebsa/faqs/faq_consumer_hipaa.html">FAQs About Portability Of Health Coverage And HIPAA</a>
<br />
<br />The Health Insurance Portability and Accountability Act of 1996 (HIPAA) really limits how much health insurance can legally deny coverage based on pre-existing conditions. Even if you've changed plans, if you've had continuous coverage for the last couple years, there should be virtually no waiting period during which they can refuse to cover so-called pre-existing conditions. (Gaps in coverage can stretch out a period of non-coverage, but not indefinitely- only about a year.) I am so sorry you are going through this!
<br />
<br />I would definitely contact all of the manufacturers of his meds; most have programs for those who don't have coverage to provide them for low (or even no) cost. Many hospitals also offer financial aid if you can find the right person to talk to (perhaps ask the clinic social worker, if she is empathetic, who to contact rather than someone in billing!); I'd contact them and explain what you are going through and see if they are willing to work with you. I hope you are able to get this worked out as soon as possible.

Gentrygirl
10-11-2009, 10:56 AM
Thank you for your encouragement. I get alot of people that shrug their shoulders. I need that "Go get 'em!" to keep me strong. I don't know what people do that get the same thing and don't have the time or resources to pursue it. Again, CF Legal team says we are in the right. Have a lawyer hired, will pursue with guns a blazin! Drafting a letter for the news, congressman, insurance board, etc. This company will be made an example of if it is the last thing I do. People die every day because of their greed, and it needs to be stopped.

Solvay has been great - got a good amount of Creon to get us through, Pulmozyme just started, Tobi on its way, too. There is NO WAY to afford these things on our own. We got denied help from the state because I have insurance (that won't pay), and I make $24,000 a year.

Gentrygirl
10-11-2009, 10:56 AM
Thank you for your encouragement. I get alot of people that shrug their shoulders. I need that "Go get 'em!" to keep me strong. I don't know what people do that get the same thing and don't have the time or resources to pursue it. Again, CF Legal team says we are in the right. Have a lawyer hired, will pursue with guns a blazin! Drafting a letter for the news, congressman, insurance board, etc. This company will be made an example of if it is the last thing I do. People die every day because of their greed, and it needs to be stopped.

Solvay has been great - got a good amount of Creon to get us through, Pulmozyme just started, Tobi on its way, too. There is NO WAY to afford these things on our own. We got denied help from the state because I have insurance (that won't pay), and I make $24,000 a year.

Gentrygirl
10-11-2009, 10:56 AM
Thank you for your encouragement. I get alot of people that shrug their shoulders. I need that "Go get 'em!" to keep me strong. I don't know what people do that get the same thing and don't have the time or resources to pursue it. Again, CF Legal team says we are in the right. Have a lawyer hired, will pursue with guns a blazin! Drafting a letter for the news, congressman, insurance board, etc. This company will be made an example of if it is the last thing I do. People die every day because of their greed, and it needs to be stopped.

Solvay has been great - got a good amount of Creon to get us through, Pulmozyme just started, Tobi on its way, too. There is NO WAY to afford these things on our own. We got denied help from the state because I have insurance (that won't pay), and I make $24,000 a year.

Gentrygirl
10-11-2009, 10:56 AM
Thank you for your encouragement. I get alot of people that shrug their shoulders. I need that "Go get 'em!" to keep me strong. I don't know what people do that get the same thing and don't have the time or resources to pursue it. Again, CF Legal team says we are in the right. Have a lawyer hired, will pursue with guns a blazin! Drafting a letter for the news, congressman, insurance board, etc. This company will be made an example of if it is the last thing I do. People die every day because of their greed, and it needs to be stopped.

Solvay has been great - got a good amount of Creon to get us through, Pulmozyme just started, Tobi on its way, too. There is NO WAY to afford these things on our own. We got denied help from the state because I have insurance (that won't pay), and I make $24,000 a year.

Gentrygirl
10-11-2009, 10:56 AM
Thank you for your encouragement. I get alot of people that shrug their shoulders. I need that "Go get 'em!" to keep me strong. I don't know what people do that get the same thing and don't have the time or resources to pursue it. Again, CF Legal team says we are in the right. Have a lawyer hired, will pursue with guns a blazin! Drafting a letter for the news, congressman, insurance board, etc. This company will be made an example of if it is the last thing I do. People die every day because of their greed, and it needs to be stopped.
<br />
<br />Solvay has been great - got a good amount of Creon to get us through, Pulmozyme just started, Tobi on its way, too. There is NO WAY to afford these things on our own. We got denied help from the state because I have insurance (that won't pay), and I make $24,000 a year.

Landy
10-14-2009, 10:56 AM
When you switched policies, did you go 61 days or more without coverage or COBRA? Is this private insurance or a group insurance (i.e. employer sponsored) plan?

Landy
10-14-2009, 10:56 AM
When you switched policies, did you go 61 days or more without coverage or COBRA? Is this private insurance or a group insurance (i.e. employer sponsored) plan?

Landy
10-14-2009, 10:56 AM
When you switched policies, did you go 61 days or more without coverage or COBRA? Is this private insurance or a group insurance (i.e. employer sponsored) plan?

Landy
10-14-2009, 10:56 AM
When you switched policies, did you go 61 days or more without coverage or COBRA? Is this private insurance or a group insurance (i.e. employer sponsored) plan?

Landy
10-14-2009, 10:56 AM
When you switched policies, did you go 61 days or more without coverage or COBRA? Is this private insurance or a group insurance (i.e. employer sponsored) plan?

melx
10-14-2009, 11:12 AM
fight fight fight!!!

melx
10-14-2009, 11:12 AM
fight fight fight!!!

melx
10-14-2009, 11:12 AM
fight fight fight!!!

melx
10-14-2009, 11:12 AM
fight fight fight!!!

melx
10-14-2009, 11:12 AM
fight fight fight!!!

Gnub
10-18-2009, 11:12 AM
I don't know if this will help. I'm without health insurance right now, but receive my medications through assistance programs offered by the companies that make the medications that I need (Tobi foundation (Tobramycin), Solvay Pharmaceuticals (Creon), Genetech Access Solutions (Pulmozyme)) If you are accepted into the program you are covered for 1 year. Here are some sites that may be helpful for you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.com/
">http://www.rxassist.com/
</a> Type in the medication that your son takes and it will give you the information you need (if it is available). The programs will cover uninsured or insured who's medications are not covered by insurance companies.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfservicespharmacy.com/PatientAssistance/
">http://www.cfservicespharmacy.com/PatientAssistance/
</a> This is a subsidiary of the cystic fibrosis foundation. it could also help.

Insurance companies are extremely greedy. I have inquired for health coverage, but because I have cystic fibrosis, they said they wouldn't take me. The only insurer that would was BCBS, but my premium would go be through the roof. If I had to choose between insurance or rent... well...

So fight for all its worth. No person should be left to suffer. Fight on.

26 years old

Gnub
10-18-2009, 11:12 AM
I don't know if this will help. I'm without health insurance right now, but receive my medications through assistance programs offered by the companies that make the medications that I need (Tobi foundation (Tobramycin), Solvay Pharmaceuticals (Creon), Genetech Access Solutions (Pulmozyme)) If you are accepted into the program you are covered for 1 year. Here are some sites that may be helpful for you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.com/
">http://www.rxassist.com/
</a> Type in the medication that your son takes and it will give you the information you need (if it is available). The programs will cover uninsured or insured who's medications are not covered by insurance companies.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfservicespharmacy.com/PatientAssistance/
">http://www.cfservicespharmacy.com/PatientAssistance/
</a> This is a subsidiary of the cystic fibrosis foundation. it could also help.

Insurance companies are extremely greedy. I have inquired for health coverage, but because I have cystic fibrosis, they said they wouldn't take me. The only insurer that would was BCBS, but my premium would go be through the roof. If I had to choose between insurance or rent... well...

So fight for all its worth. No person should be left to suffer. Fight on.

26 years old

Gnub
10-18-2009, 11:12 AM
I don't know if this will help. I'm without health insurance right now, but receive my medications through assistance programs offered by the companies that make the medications that I need (Tobi foundation (Tobramycin), Solvay Pharmaceuticals (Creon), Genetech Access Solutions (Pulmozyme)) If you are accepted into the program you are covered for 1 year. Here are some sites that may be helpful for you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.com/
">http://www.rxassist.com/
</a> Type in the medication that your son takes and it will give you the information you need (if it is available). The programs will cover uninsured or insured who's medications are not covered by insurance companies.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfservicespharmacy.com/PatientAssistance/
">http://www.cfservicespharmacy.com/PatientAssistance/
</a> This is a subsidiary of the cystic fibrosis foundation. it could also help.

Insurance companies are extremely greedy. I have inquired for health coverage, but because I have cystic fibrosis, they said they wouldn't take me. The only insurer that would was BCBS, but my premium would go be through the roof. If I had to choose between insurance or rent... well...

So fight for all its worth. No person should be left to suffer. Fight on.

26 years old

Gnub
10-18-2009, 11:12 AM
I don't know if this will help. I'm without health insurance right now, but receive my medications through assistance programs offered by the companies that make the medications that I need (Tobi foundation (Tobramycin), Solvay Pharmaceuticals (Creon), Genetech Access Solutions (Pulmozyme)) If you are accepted into the program you are covered for 1 year. Here are some sites that may be helpful for you.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.com/
">http://www.rxassist.com/
</a> Type in the medication that your son takes and it will give you the information you need (if it is available). The programs will cover uninsured or insured who's medications are not covered by insurance companies.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.cfservicespharmacy.com/PatientAssistance/
">http://www.cfservicespharmacy.com/PatientAssistance/
</a> This is a subsidiary of the cystic fibrosis foundation. it could also help.

Insurance companies are extremely greedy. I have inquired for health coverage, but because I have cystic fibrosis, they said they wouldn't take me. The only insurer that would was BCBS, but my premium would go be through the roof. If I had to choose between insurance or rent... well...

So fight for all its worth. No person should be left to suffer. Fight on.

26 years old

Gnub
10-18-2009, 11:12 AM
I don't know if this will help. I'm without health insurance right now, but receive my medications through assistance programs offered by the companies that make the medications that I need (Tobi foundation (Tobramycin), Solvay Pharmaceuticals (Creon), Genetech Access Solutions (Pulmozyme)) If you are accepted into the program you are covered for 1 year. Here are some sites that may be helpful for you.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.rxassist.com/
">http://www.rxassist.com/
</a><br /> Type in the medication that your son takes and it will give you the information you need (if it is available). The programs will cover uninsured or insured who's medications are not covered by insurance companies.
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cfservicespharmacy.com/PatientAssistance/
">http://www.cfservicespharmacy.com/PatientAssistance/
</a><br /> This is a subsidiary of the cystic fibrosis foundation. it could also help.
<br />
<br />Insurance companies are extremely greedy. I have inquired for health coverage, but because I have cystic fibrosis, they said they wouldn't take me. The only insurer that would was BCBS, but my premium would go be through the roof. If I had to choose between insurance or rent... well...
<br />
<br />So fight for all its worth. No person should be left to suffer. Fight on.
<br />
<br />26 years old