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billsmom
11-26-2009, 09:27 PM
My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF.

One of my major concerns for my son is the farm. His father does NOT put a mask on him, ever. He has five horses, and there is hay in the barn at all times. Stacked all year round. He also piles up manure, then spreads it in the fields. He actually puts my son on the tractors to "help" him move hay and spread manure. I've been fighting him about this since his diagnosis, and he just says that I am just making up reasons for custody.

Billy got sick in August of this year - still going to his father's every day, and I cannot do anything about it until court in January (long story but my trial isn't until the end of Jan and I'm powerless to change it until then).

The cough would not go away. We tried Bactrim for an entire month... nothing worked. FInally, his docs admitted him for IV antibiotics. THey did his first bronchoscopy too. The bronch cultured pseudomonas, MRSA, and Aspergillus. They also tested his IgE levels, which came out at 379. Doc says that is slightly high for a kid his age - higher than they normally see.

I am LIVID. Upset... concerned. I feel that being at that farm raises his chances of APBA (is that right?) considerably if he continues to be constantly exposed to the hay and manure like that!

Does anyone have good information about it? As parents to CF children, would you allow your child to play in a barn on a daily basis, where there is always hay, peed and pooped on straw, piles of manure, and dust????

I am also currently looking for an expert witness for my trial. I would be so appreciative for any information anyone could help me with - any names of experts who would be willing to testify.

Thanks for listening.

Kristy
Bill's mommy

billsmom
11-26-2009, 09:27 PM
My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF.

One of my major concerns for my son is the farm. His father does NOT put a mask on him, ever. He has five horses, and there is hay in the barn at all times. Stacked all year round. He also piles up manure, then spreads it in the fields. He actually puts my son on the tractors to "help" him move hay and spread manure. I've been fighting him about this since his diagnosis, and he just says that I am just making up reasons for custody.

Billy got sick in August of this year - still going to his father's every day, and I cannot do anything about it until court in January (long story but my trial isn't until the end of Jan and I'm powerless to change it until then).

The cough would not go away. We tried Bactrim for an entire month... nothing worked. FInally, his docs admitted him for IV antibiotics. THey did his first bronchoscopy too. The bronch cultured pseudomonas, MRSA, and Aspergillus. They also tested his IgE levels, which came out at 379. Doc says that is slightly high for a kid his age - higher than they normally see.

I am LIVID. Upset... concerned. I feel that being at that farm raises his chances of APBA (is that right?) considerably if he continues to be constantly exposed to the hay and manure like that!

Does anyone have good information about it? As parents to CF children, would you allow your child to play in a barn on a daily basis, where there is always hay, peed and pooped on straw, piles of manure, and dust????

I am also currently looking for an expert witness for my trial. I would be so appreciative for any information anyone could help me with - any names of experts who would be willing to testify.

Thanks for listening.

Kristy
Bill's mommy

billsmom
11-26-2009, 09:27 PM
My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF.

One of my major concerns for my son is the farm. His father does NOT put a mask on him, ever. He has five horses, and there is hay in the barn at all times. Stacked all year round. He also piles up manure, then spreads it in the fields. He actually puts my son on the tractors to "help" him move hay and spread manure. I've been fighting him about this since his diagnosis, and he just says that I am just making up reasons for custody.

Billy got sick in August of this year - still going to his father's every day, and I cannot do anything about it until court in January (long story but my trial isn't until the end of Jan and I'm powerless to change it until then).

The cough would not go away. We tried Bactrim for an entire month... nothing worked. FInally, his docs admitted him for IV antibiotics. THey did his first bronchoscopy too. The bronch cultured pseudomonas, MRSA, and Aspergillus. They also tested his IgE levels, which came out at 379. Doc says that is slightly high for a kid his age - higher than they normally see.

I am LIVID. Upset... concerned. I feel that being at that farm raises his chances of APBA (is that right?) considerably if he continues to be constantly exposed to the hay and manure like that!

Does anyone have good information about it? As parents to CF children, would you allow your child to play in a barn on a daily basis, where there is always hay, peed and pooped on straw, piles of manure, and dust????

I am also currently looking for an expert witness for my trial. I would be so appreciative for any information anyone could help me with - any names of experts who would be willing to testify.

Thanks for listening.

Kristy
Bill's mommy

billsmom
11-26-2009, 09:27 PM
My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF.

One of my major concerns for my son is the farm. His father does NOT put a mask on him, ever. He has five horses, and there is hay in the barn at all times. Stacked all year round. He also piles up manure, then spreads it in the fields. He actually puts my son on the tractors to "help" him move hay and spread manure. I've been fighting him about this since his diagnosis, and he just says that I am just making up reasons for custody.

Billy got sick in August of this year - still going to his father's every day, and I cannot do anything about it until court in January (long story but my trial isn't until the end of Jan and I'm powerless to change it until then).

The cough would not go away. We tried Bactrim for an entire month... nothing worked. FInally, his docs admitted him for IV antibiotics. THey did his first bronchoscopy too. The bronch cultured pseudomonas, MRSA, and Aspergillus. They also tested his IgE levels, which came out at 379. Doc says that is slightly high for a kid his age - higher than they normally see.

I am LIVID. Upset... concerned. I feel that being at that farm raises his chances of APBA (is that right?) considerably if he continues to be constantly exposed to the hay and manure like that!

Does anyone have good information about it? As parents to CF children, would you allow your child to play in a barn on a daily basis, where there is always hay, peed and pooped on straw, piles of manure, and dust????

I am also currently looking for an expert witness for my trial. I would be so appreciative for any information anyone could help me with - any names of experts who would be willing to testify.

Thanks for listening.

Kristy
Bill's mommy

billsmom
11-26-2009, 09:27 PM
My son's father lives on a farm. We are not together, and do not get along. Unfortunately, co-parenting isn't possible with him, so I've petitioned for full custody of my son, Billy. He is 3, with CF.
<br />
<br />One of my major concerns for my son is the farm. His father does NOT put a mask on him, ever. He has five horses, and there is hay in the barn at all times. Stacked all year round. He also piles up manure, then spreads it in the fields. He actually puts my son on the tractors to "help" him move hay and spread manure. I've been fighting him about this since his diagnosis, and he just says that I am just making up reasons for custody.
<br />
<br />Billy got sick in August of this year - still going to his father's every day, and I cannot do anything about it until court in January (long story but my trial isn't until the end of Jan and I'm powerless to change it until then).
<br />
<br />The cough would not go away. We tried Bactrim for an entire month... nothing worked. FInally, his docs admitted him for IV antibiotics. THey did his first bronchoscopy too. The bronch cultured pseudomonas, MRSA, and Aspergillus. They also tested his IgE levels, which came out at 379. Doc says that is slightly high for a kid his age - higher than they normally see.
<br />
<br />I am LIVID. Upset... concerned. I feel that being at that farm raises his chances of APBA (is that right?) considerably if he continues to be constantly exposed to the hay and manure like that!
<br />
<br />Does anyone have good information about it? As parents to CF children, would you allow your child to play in a barn on a daily basis, where there is always hay, peed and pooped on straw, piles of manure, and dust????
<br />
<br />I am also currently looking for an expert witness for my trial. I would be so appreciative for any information anyone could help me with - any names of experts who would be willing to testify.
<br />
<br />Thanks for listening.
<br />
<br />Kristy
<br />Bill's mommy

tleigh
11-26-2009, 09:34 PM
Kristy,
I so appreciate your concern for your son. I will share that personally I grew up on ranch in CO and am now almost 34. I currently live in a large city and have more issues w/ allergies and things now than I did growing up.

tleigh
11-26-2009, 09:34 PM
Kristy,
I so appreciate your concern for your son. I will share that personally I grew up on ranch in CO and am now almost 34. I currently live in a large city and have more issues w/ allergies and things now than I did growing up.

tleigh
11-26-2009, 09:34 PM
Kristy,
I so appreciate your concern for your son. I will share that personally I grew up on ranch in CO and am now almost 34. I currently live in a large city and have more issues w/ allergies and things now than I did growing up.

tleigh
11-26-2009, 09:34 PM
Kristy,
I so appreciate your concern for your son. I will share that personally I grew up on ranch in CO and am now almost 34. I currently live in a large city and have more issues w/ allergies and things now than I did growing up.

tleigh
11-26-2009, 09:34 PM
Kristy,
<br />I so appreciate your concern for your son. I will share that personally I grew up on ranch in CO and am now almost 34. I currently live in a large city and have more issues w/ allergies and things now than I did growing up.

billsmom
11-26-2009, 09:39 PM
tleigh,

Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them.

I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because it is NOT common here in Baltimore.

billsmom
11-26-2009, 09:39 PM
tleigh,

Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them.

I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because it is NOT common here in Baltimore.

billsmom
11-26-2009, 09:39 PM
tleigh,

Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them.

I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because it is NOT common here in Baltimore.

billsmom
11-26-2009, 09:39 PM
tleigh,

Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them.

I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because it is NOT common here in Baltimore.

billsmom
11-26-2009, 09:39 PM
tleigh,
<br />
<br />Thank you for responding. Did you take any precautions for exposure to things like hay and manure? My son literally plays in hay and in dirt stalls that have urine and manure in them.
<br />
<br />I truly hope my son grows up riding horses with his father, and can enjoy that type of life, because it is NOT common here in Baltimore.

jenspoon
11-27-2009, 04:40 AM
Hi Billsmom
I hope you can work through this. My daughter is now 15 and we run a large horse property. She has been in a farm environment all her life. She cultures Aspergillus (always a light growth) as do many others that I know of that live in an inner city environment with no contact with horses, hay, manure etc.

We have struck a balance with enjoying horses and animals in their environment with some sensible precautions along the way after lengthly discussions with our CF specialist.

1. My daughter has had allergy testing and does not test positive to any animals that we have. She is still symptomatic of allergies in the spring time here so we actively treat her symptoms.

2. NO contact or involvement with wet hay, stable bedding, manure or compost matter. So, no mucking out of stables for her (I think she thinks she is on a good thing here). Aspergillus and probably other moulds/fungi are prolific in these environments so it just makes sense not to expose our children to these.

3. Horse/stock feed can be dusty, so avoid mixing these or pop on a mask.

4. Try to keep horse handling activities out of the barn if possible - fresh air is so much healthier than a dusty barn environment.

5. I used to allow my daughter to hop on our four wheel motor bike to harrow the manure in the paddocks but have stopped this to prevent exposure to dirt/manure particles in the air.

Other than these things, my daughter has enjoyed a very active, healthy and happy life on the farm and has become a very accomplished rider.

I think this lifestyle has actually helped keep her well. She has cultured some of the usual cf bacteria but is doing fantastically with an FEV1 of between 110 - 120%. She has had three hospital admissions in her life so far.

I am sure the positives of a farm lifestyle will be great for young Bill. Perhaps your doctor can supply a letter of recommendations about what to avoid to help in this situation.

I wish you well in your negotiation through these issues and can only suggest that you bring in specialist recommendations to support your case.

Please feel free to pm me if I can be of any help in any way.
Jenny

jenspoon
11-27-2009, 04:40 AM
Hi Billsmom
I hope you can work through this. My daughter is now 15 and we run a large horse property. She has been in a farm environment all her life. She cultures Aspergillus (always a light growth) as do many others that I know of that live in an inner city environment with no contact with horses, hay, manure etc.

We have struck a balance with enjoying horses and animals in their environment with some sensible precautions along the way after lengthly discussions with our CF specialist.

1. My daughter has had allergy testing and does not test positive to any animals that we have. She is still symptomatic of allergies in the spring time here so we actively treat her symptoms.

2. NO contact or involvement with wet hay, stable bedding, manure or compost matter. So, no mucking out of stables for her (I think she thinks she is on a good thing here). Aspergillus and probably other moulds/fungi are prolific in these environments so it just makes sense not to expose our children to these.

3. Horse/stock feed can be dusty, so avoid mixing these or pop on a mask.

4. Try to keep horse handling activities out of the barn if possible - fresh air is so much healthier than a dusty barn environment.

5. I used to allow my daughter to hop on our four wheel motor bike to harrow the manure in the paddocks but have stopped this to prevent exposure to dirt/manure particles in the air.

Other than these things, my daughter has enjoyed a very active, healthy and happy life on the farm and has become a very accomplished rider.

I think this lifestyle has actually helped keep her well. She has cultured some of the usual cf bacteria but is doing fantastically with an FEV1 of between 110 - 120%. She has had three hospital admissions in her life so far.

I am sure the positives of a farm lifestyle will be great for young Bill. Perhaps your doctor can supply a letter of recommendations about what to avoid to help in this situation.

I wish you well in your negotiation through these issues and can only suggest that you bring in specialist recommendations to support your case.

Please feel free to pm me if I can be of any help in any way.
Jenny

jenspoon
11-27-2009, 04:40 AM
Hi Billsmom
I hope you can work through this. My daughter is now 15 and we run a large horse property. She has been in a farm environment all her life. She cultures Aspergillus (always a light growth) as do many others that I know of that live in an inner city environment with no contact with horses, hay, manure etc.

We have struck a balance with enjoying horses and animals in their environment with some sensible precautions along the way after lengthly discussions with our CF specialist.

1. My daughter has had allergy testing and does not test positive to any animals that we have. She is still symptomatic of allergies in the spring time here so we actively treat her symptoms.

2. NO contact or involvement with wet hay, stable bedding, manure or compost matter. So, no mucking out of stables for her (I think she thinks she is on a good thing here). Aspergillus and probably other moulds/fungi are prolific in these environments so it just makes sense not to expose our children to these.

3. Horse/stock feed can be dusty, so avoid mixing these or pop on a mask.

4. Try to keep horse handling activities out of the barn if possible - fresh air is so much healthier than a dusty barn environment.

5. I used to allow my daughter to hop on our four wheel motor bike to harrow the manure in the paddocks but have stopped this to prevent exposure to dirt/manure particles in the air.

Other than these things, my daughter has enjoyed a very active, healthy and happy life on the farm and has become a very accomplished rider.

I think this lifestyle has actually helped keep her well. She has cultured some of the usual cf bacteria but is doing fantastically with an FEV1 of between 110 - 120%. She has had three hospital admissions in her life so far.

I am sure the positives of a farm lifestyle will be great for young Bill. Perhaps your doctor can supply a letter of recommendations about what to avoid to help in this situation.

I wish you well in your negotiation through these issues and can only suggest that you bring in specialist recommendations to support your case.

Please feel free to pm me if I can be of any help in any way.
Jenny

jenspoon
11-27-2009, 04:40 AM
Hi Billsmom
I hope you can work through this. My daughter is now 15 and we run a large horse property. She has been in a farm environment all her life. She cultures Aspergillus (always a light growth) as do many others that I know of that live in an inner city environment with no contact with horses, hay, manure etc.

We have struck a balance with enjoying horses and animals in their environment with some sensible precautions along the way after lengthly discussions with our CF specialist.

1. My daughter has had allergy testing and does not test positive to any animals that we have. She is still symptomatic of allergies in the spring time here so we actively treat her symptoms.

2. NO contact or involvement with wet hay, stable bedding, manure or compost matter. So, no mucking out of stables for her (I think she thinks she is on a good thing here). Aspergillus and probably other moulds/fungi are prolific in these environments so it just makes sense not to expose our children to these.

3. Horse/stock feed can be dusty, so avoid mixing these or pop on a mask.

4. Try to keep horse handling activities out of the barn if possible - fresh air is so much healthier than a dusty barn environment.

5. I used to allow my daughter to hop on our four wheel motor bike to harrow the manure in the paddocks but have stopped this to prevent exposure to dirt/manure particles in the air.

Other than these things, my daughter has enjoyed a very active, healthy and happy life on the farm and has become a very accomplished rider.

I think this lifestyle has actually helped keep her well. She has cultured some of the usual cf bacteria but is doing fantastically with an FEV1 of between 110 - 120%. She has had three hospital admissions in her life so far.

I am sure the positives of a farm lifestyle will be great for young Bill. Perhaps your doctor can supply a letter of recommendations about what to avoid to help in this situation.

I wish you well in your negotiation through these issues and can only suggest that you bring in specialist recommendations to support your case.

Please feel free to pm me if I can be of any help in any way.
Jenny

jenspoon
11-27-2009, 04:40 AM
Hi Billsmom
<br />I hope you can work through this. My daughter is now 15 and we run a large horse property. She has been in a farm environment all her life. She cultures Aspergillus (always a light growth) as do many others that I know of that live in an inner city environment with no contact with horses, hay, manure etc.
<br />
<br />We have struck a balance with enjoying horses and animals in their environment with some sensible precautions along the way after lengthly discussions with our CF specialist.
<br />
<br />1. My daughter has had allergy testing and does not test positive to any animals that we have. She is still symptomatic of allergies in the spring time here so we actively treat her symptoms.
<br />
<br />2. NO contact or involvement with wet hay, stable bedding, manure or compost matter. So, no mucking out of stables for her (I think she thinks she is on a good thing here). Aspergillus and probably other moulds/fungi are prolific in these environments so it just makes sense not to expose our children to these.
<br />
<br />3. Horse/stock feed can be dusty, so avoid mixing these or pop on a mask.
<br />
<br />4. Try to keep horse handling activities out of the barn if possible - fresh air is so much healthier than a dusty barn environment.
<br />
<br />5. I used to allow my daughter to hop on our four wheel motor bike to harrow the manure in the paddocks but have stopped this to prevent exposure to dirt/manure particles in the air.
<br />
<br />Other than these things, my daughter has enjoyed a very active, healthy and happy life on the farm and has become a very accomplished rider.
<br />
<br />I think this lifestyle has actually helped keep her well. She has cultured some of the usual cf bacteria but is doing fantastically with an FEV1 of between 110 - 120%. She has had three hospital admissions in her life so far.
<br />
<br />I am sure the positives of a farm lifestyle will be great for young Bill. Perhaps your doctor can supply a letter of recommendations about what to avoid to help in this situation.
<br />
<br />I wish you well in your negotiation through these issues and can only suggest that you bring in specialist recommendations to support your case.
<br />
<br />Please feel free to pm me if I can be of any help in any way.
<br />Jenny

upfrom31
11-27-2009, 04:54 AM
I also grew up on a farm. My grandparents owned a hog farm up until a few years ago (just before hog prices got ugly again <img src="i/expressions/face-icon-small-smile.gif" border="0">) Anyways I used to work out in the hog sheds all the time, I usually wasnt too concerned about the dust in there because i was stubborn. My point is I never felt sick when i was working within the dusty hog sheds, what really got me sick was scooping corn feed. Dont let your kid anywhere near that stuff, especially rotten grain! Stuff is Potent! Other than that nothin else really effected me much, I think my FEV-1's were pretty good.

upfrom31
11-27-2009, 04:54 AM
I also grew up on a farm. My grandparents owned a hog farm up until a few years ago (just before hog prices got ugly again <img src="i/expressions/face-icon-small-smile.gif" border="0">) Anyways I used to work out in the hog sheds all the time, I usually wasnt too concerned about the dust in there because i was stubborn. My point is I never felt sick when i was working within the dusty hog sheds, what really got me sick was scooping corn feed. Dont let your kid anywhere near that stuff, especially rotten grain! Stuff is Potent! Other than that nothin else really effected me much, I think my FEV-1's were pretty good.

upfrom31
11-27-2009, 04:54 AM
I also grew up on a farm. My grandparents owned a hog farm up until a few years ago (just before hog prices got ugly again <img src="i/expressions/face-icon-small-smile.gif" border="0">) Anyways I used to work out in the hog sheds all the time, I usually wasnt too concerned about the dust in there because i was stubborn. My point is I never felt sick when i was working within the dusty hog sheds, what really got me sick was scooping corn feed. Dont let your kid anywhere near that stuff, especially rotten grain! Stuff is Potent! Other than that nothin else really effected me much, I think my FEV-1's were pretty good.

upfrom31
11-27-2009, 04:54 AM
I also grew up on a farm. My grandparents owned a hog farm up until a few years ago (just before hog prices got ugly again <img src="i/expressions/face-icon-small-smile.gif" border="0">) Anyways I used to work out in the hog sheds all the time, I usually wasnt too concerned about the dust in there because i was stubborn. My point is I never felt sick when i was working within the dusty hog sheds, what really got me sick was scooping corn feed. Dont let your kid anywhere near that stuff, especially rotten grain! Stuff is Potent! Other than that nothin else really effected me much, I think my FEV-1's were pretty good.

upfrom31
11-27-2009, 04:54 AM
I also grew up on a farm. My grandparents owned a hog farm up until a few years ago (just before hog prices got ugly again <img src="i/expressions/face-icon-small-smile.gif" border="0">) Anyways I used to work out in the hog sheds all the time, I usually wasnt too concerned about the dust in there because i was stubborn. My point is I never felt sick when i was working within the dusty hog sheds, what really got me sick was scooping corn feed. Dont let your kid anywhere near that stuff, especially rotten grain! Stuff is Potent! Other than that nothin else really effected me much, I think my FEV-1's were pretty good.

tleigh
11-28-2009, 04:20 PM
Kristy,
we did take precautions-I did not do a lot w/ throwing hay and because it was a ranch we didn't work alot w/ manure. My folks were careful about treating allergies w/ otc meds. I was able to be outside-running, playing, enjoying the fresh air and yes, occasionally crashing on the motorcycle! I rode horses and was very involved in brandings. I truly value that time and firmly believe that it has helped shape me into who I am.

tleigh
11-28-2009, 04:20 PM
Kristy,
we did take precautions-I did not do a lot w/ throwing hay and because it was a ranch we didn't work alot w/ manure. My folks were careful about treating allergies w/ otc meds. I was able to be outside-running, playing, enjoying the fresh air and yes, occasionally crashing on the motorcycle! I rode horses and was very involved in brandings. I truly value that time and firmly believe that it has helped shape me into who I am.

tleigh
11-28-2009, 04:20 PM
Kristy,
we did take precautions-I did not do a lot w/ throwing hay and because it was a ranch we didn't work alot w/ manure. My folks were careful about treating allergies w/ otc meds. I was able to be outside-running, playing, enjoying the fresh air and yes, occasionally crashing on the motorcycle! I rode horses and was very involved in brandings. I truly value that time and firmly believe that it has helped shape me into who I am.

tleigh
11-28-2009, 04:20 PM
Kristy,
we did take precautions-I did not do a lot w/ throwing hay and because it was a ranch we didn't work alot w/ manure. My folks were careful about treating allergies w/ otc meds. I was able to be outside-running, playing, enjoying the fresh air and yes, occasionally crashing on the motorcycle! I rode horses and was very involved in brandings. I truly value that time and firmly believe that it has helped shape me into who I am.

tleigh
11-28-2009, 04:20 PM
Kristy,
<br />we did take precautions-I did not do a lot w/ throwing hay and because it was a ranch we didn't work alot w/ manure. My folks were careful about treating allergies w/ otc meds. I was able to be outside-running, playing, enjoying the fresh air and yes, occasionally crashing on the motorcycle! I rode horses and was very involved in brandings. I truly value that time and firmly believe that it has helped shape me into who I am.

CAandCFnewbie
09-02-2010, 08:19 PM
Regarding farm vs city: As someone who has cultured Aspergillus (3 types) since 2005 and just recently am experiencing "twitchy" lungs similiar to asthma which may be due to fungal balls and not the typical allergic response, I've done lots of research. You should be aware that asperg. is in the soil, compost, some ground spices- noting especially ground peppers- in air vents, tap water... A farm of course will exposose your son to environments of bacteria, fungus and mold. But educating people,taking precautions and enjoying the perks of visits to farm life and family can be a plus.

Pseudomonas A. grows everywhere also,on skin, in ears and noses, in showerheads, and beware hot tubs!!It is the common germ that causes ear, bladder infections and swimmers itch. It survives at outrageous high temps compared to lots of "bugs".

I have cultured a weird bacteria Serratia marcesens that grows pink on tile and around taps, also grows in milk.

I have Mycobacterium Avium Complex or MAC also in showerheads etc.

I say sincerely we can do some smart things to avoid exposure, edcate ourselves and others(See the NIMH and other sites.) The rest is unknowns and a bit of luck, good or bad.. My life is drastically different since my CF was diagnosed, preventative care will make a huge difference for your son.

I wish you well in your process of divorce. I have a grown son (unkown CF status since I wasn't diagnosed till I was 44 and I'm 50 now) who grew up with hard issues of divorce. I gently suggest that with time I hope you can get some perspective on your fears and if you can reflect that your son's father and family also love him. Appeal to them to be a team and give your son all the support and love he needs. I've learned that positive expectations on their cooperation can help to shift all the tension and judgements.I hope you have support thru your hard times.

CAandCFnewbie
09-02-2010, 08:19 PM
Regarding farm vs city: As someone who has cultured Aspergillus (3 types) since 2005 and just recently am experiencing "twitchy" lungs similiar to asthma which may be due to fungal balls and not the typical allergic response, I've done lots of research. You should be aware that asperg. is in the soil, compost, some ground spices- noting especially ground peppers- in air vents, tap water... A farm of course will exposose your son to environments of bacteria, fungus and mold. But educating people,taking precautions and enjoying the perks of visits to farm life and family can be a plus.

Pseudomonas A. grows everywhere also,on skin, in ears and noses, in showerheads, and beware hot tubs!!It is the common germ that causes ear, bladder infections and swimmers itch. It survives at outrageous high temps compared to lots of "bugs".

I have cultured a weird bacteria Serratia marcesens that grows pink on tile and around taps, also grows in milk.

I have Mycobacterium Avium Complex or MAC also in showerheads etc.

I say sincerely we can do some smart things to avoid exposure, edcate ourselves and others(See the NIMH and other sites.) The rest is unknowns and a bit of luck, good or bad.. My life is drastically different since my CF was diagnosed, preventative care will make a huge difference for your son.

I wish you well in your process of divorce. I have a grown son (unkown CF status since I wasn't diagnosed till I was 44 and I'm 50 now) who grew up with hard issues of divorce. I gently suggest that with time I hope you can get some perspective on your fears and if you can reflect that your son's father and family also love him. Appeal to them to be a team and give your son all the support and love he needs. I've learned that positive expectations on their cooperation can help to shift all the tension and judgements.I hope you have support thru your hard times.

CAandCFnewbie
09-02-2010, 08:19 PM
Regarding farm vs city: As someone who has cultured Aspergillus (3 types) since 2005 and just recently am experiencing "twitchy" lungs similiar to asthma which may be due to fungal balls and not the typical allergic response, I've done lots of research. You should be aware that asperg. is in the soil, compost, some ground spices- noting especially ground peppers- in air vents, tap water... A farm of course will exposose your son to environments of bacteria, fungus and mold. But educating people,taking precautions and enjoying the perks of visits to farm life and family can be a plus.
<br />
<br />Pseudomonas A. grows everywhere also,on skin, in ears and noses, in showerheads, and beware hot tubs!!It is the common germ that causes ear, bladder infections and swimmers itch. It survives at outrageous high temps compared to lots of "bugs".
<br />
<br />I have cultured a weird bacteria Serratia marcesens that grows pink on tile and around taps, also grows in milk.
<br />
<br />I have Mycobacterium Avium Complex or MAC also in showerheads etc.
<br />
<br />I say sincerely we can do some smart things to avoid exposure, edcate ourselves and others(See the NIMH and other sites.) The rest is unknowns and a bit of luck, good or bad.. My life is drastically different since my CF was diagnosed, preventative care will make a huge difference for your son.
<br />
<br />I wish you well in your process of divorce. I have a grown son (unkown CF status since I wasn't diagnosed till I was 44 and I'm 50 now) who grew up with hard issues of divorce. I gently suggest that with time I hope you can get some perspective on your fears and if you can reflect that your son's father and family also love him. Appeal to them to be a team and give your son all the support and love he needs. I've learned that positive expectations on their cooperation can help to shift all the tension and judgements.I hope you have support thru your hard times.

tlcquiltnut
11-18-2010, 03:07 PM
I have lived around horses all my life. I am now 60. Have shown horses and cared for them, mucked out stalls, hayed and fed, mixed grain ect.
Riding horses is very therepudic for CF.I trained horses for myself and others. Though I am not able to now it was how I stayed so healthy and my doctor said if I hadn't been so physical in my younger years I may not be so well now.
I have asthma now but it is not related to the work I did but to an accident with an exploding furnace.

tlcquiltnut
11-18-2010, 03:07 PM
I have lived around horses all my life. I am now 60. Have shown horses and cared for them, mucked out stalls, hayed and fed, mixed grain ect.
Riding horses is very therepudic for CF.I trained horses for myself and others. Though I am not able to now it was how I stayed so healthy and my doctor said if I hadn't been so physical in my younger years I may not be so well now.
I have asthma now but it is not related to the work I did but to an accident with an exploding furnace.

tlcquiltnut
11-18-2010, 03:07 PM
I have lived around horses all my life. I am now 60. Have shown horses and cared for them, mucked out stalls, hayed and fed, mixed grain ect.
<br />Riding horses is very therepudic for CF.I trained horses for myself and others. Though I am not able to now it was how I stayed so healthy and my doctor said if I hadn't been so physical in my younger years I may not be so well now.
<br />I have asthma now but it is not related to the work I did but to an accident with an exploding furnace.

countrygal9210
12-03-2010, 06:33 AM
Hello.
I am 18 years old and I work with pigs, horses, and cows for years now. Just about any animal I go around. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I had alot of trouble when my asthma was not under control when I was around hay and straw. I also had troubles with the hay/straw when the heat and humidity were extremely high too. (I have never worn a mask when I am working in the barn, fields, etc.) When that happened I became very very bad. It's just a thought, but maybe he has asthma??
I am on singular, albuteral via nebulizer, pulmozyme via nebulizer, allegra 180, and a few other med's. (I understand that he 3 and things are different, however I just thought a little advice might help...)
& I will say that my doctor tried tellin me all my high school years that what I knew was asthma, was not. He tried telling me I was wrong and didn't know my body. He was the doc-he knew it all..Finally my senior year he realized...It was asthma all along! As for the IgE, I have never heard of that term.
I wish you the best and good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">

countrygal9210
12-03-2010, 06:33 AM
Hello.
I am 18 years old and I work with pigs, horses, and cows for years now. Just about any animal I go around. <img src="i/expressions/face-icon-small-smile.gif" border="0">
I had alot of trouble when my asthma was not under control when I was around hay and straw. I also had troubles with the hay/straw when the heat and humidity were extremely high too. (I have never worn a mask when I am working in the barn, fields, etc.) When that happened I became very very bad. It's just a thought, but maybe he has asthma??
I am on singular, albuteral via nebulizer, pulmozyme via nebulizer, allegra 180, and a few other med's. (I understand that he 3 and things are different, however I just thought a little advice might help...)
& I will say that my doctor tried tellin me all my high school years that what I knew was asthma, was not. He tried telling me I was wrong and didn't know my body. He was the doc-he knew it all..Finally my senior year he realized...It was asthma all along! As for the IgE, I have never heard of that term.
I wish you the best and good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">

countrygal9210
12-03-2010, 06:33 AM
Hello.
<br />I am 18 years old and I work with pigs, horses, and cows for years now. Just about any animal I go around. <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />I had alot of trouble when my asthma was not under control when I was around hay and straw. I also had troubles with the hay/straw when the heat and humidity were extremely high too. (I have never worn a mask when I am working in the barn, fields, etc.) When that happened I became very very bad. It's just a thought, but maybe he has asthma??
<br />I am on singular, albuteral via nebulizer, pulmozyme via nebulizer, allegra 180, and a few other med's. (I understand that he 3 and things are different, however I just thought a little advice might help...)
<br />& I will say that my doctor tried tellin me all my high school years that what I knew was asthma, was not. He tried telling me I was wrong and didn't know my body. He was the doc-he knew it all..Finally my senior year he realized...It was asthma all along! As for the IgE, I have never heard of that term.
<br />I wish you the best and good luck <img src="i/expressions/face-icon-small-smile.gif" border="0">