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abloedel
02-13-2006, 02:09 AM
...otherwise known as my third "boob". Hi everyone. I had my port put in last Wednesday. I was very apprehensive going in, but it went better than I thought it would. They wouldn't let us take any pictures during the procedure, but I've taken some since being home for your viewing pleasure. (See below)

I was really hoping to get the port placed below my breast on the left side, but the surgeon who implanted the port said in order to do that, he would have had to tunnel it up through my femoral artery, and it sounded like it would be more painful, so I opted to have the "easy" placement just under my collarbone.

My decision to get the port was reinforced when two people had to stick me 6 times to get my IV started. They gave me Versed and Phentonal during the procedure. The had to give me a second dose of Versed as they wanted me more relaxed, but, even after the 2nd dose, I was still pretty awake for most of it. I only felt pressure though - absolutely no pain. In recovery, I was fine until the nurse pulled the IV, then a wave of nausea overtook me. The nurse taught me a neat trick though that I never knew about. She opened an alcohol swab and told me to inhale through my nose and smell it. It really helped...thought that was interesting.

Pain wise, the first night was bad for sleeping. I woke up probably every hour because it hurt. I did go to work the next day, but I should have just told them I would work from home as lugging my laptop around seemed to make it hurt more. Day 2 still hurt quite a bit, even when moving my arm, but by day 3, it didn't hurt to move, although my chest was and still is sore. I'm sure I'll get used to it and not even notice it in a few more days, but I can totally feel the port in me - it's a very strange sensation.

Today, day 4, there are still steri-strips covering the stiches, and those are supposed to fall off on their own. So, when they do, I'll take another picture and update it.

I doubt I've spelled all of the medical things right here, but I tried! I'm posting a picture of the side view hoping you can get an idea of how much it sticks out...which I think part of it is still swollen. I'm also putting in a picture of my face since I'm showing you all my chest (no porn shots though).

abloedel
02-13-2006, 02:09 AM
...otherwise known as my third "boob". Hi everyone. I had my port put in last Wednesday. I was very apprehensive going in, but it went better than I thought it would. They wouldn't let us take any pictures during the procedure, but I've taken some since being home for your viewing pleasure. (See below)

I was really hoping to get the port placed below my breast on the left side, but the surgeon who implanted the port said in order to do that, he would have had to tunnel it up through my femoral artery, and it sounded like it would be more painful, so I opted to have the "easy" placement just under my collarbone.

My decision to get the port was reinforced when two people had to stick me 6 times to get my IV started. They gave me Versed and Phentonal during the procedure. The had to give me a second dose of Versed as they wanted me more relaxed, but, even after the 2nd dose, I was still pretty awake for most of it. I only felt pressure though - absolutely no pain. In recovery, I was fine until the nurse pulled the IV, then a wave of nausea overtook me. The nurse taught me a neat trick though that I never knew about. She opened an alcohol swab and told me to inhale through my nose and smell it. It really helped...thought that was interesting.

Pain wise, the first night was bad for sleeping. I woke up probably every hour because it hurt. I did go to work the next day, but I should have just told them I would work from home as lugging my laptop around seemed to make it hurt more. Day 2 still hurt quite a bit, even when moving my arm, but by day 3, it didn't hurt to move, although my chest was and still is sore. I'm sure I'll get used to it and not even notice it in a few more days, but I can totally feel the port in me - it's a very strange sensation.

Today, day 4, there are still steri-strips covering the stiches, and those are supposed to fall off on their own. So, when they do, I'll take another picture and update it.

I doubt I've spelled all of the medical things right here, but I tried! I'm posting a picture of the side view hoping you can get an idea of how much it sticks out...which I think part of it is still swollen. I'm also putting in a picture of my face since I'm showing you all my chest (no porn shots though).

Diane
02-13-2006, 01:31 PM
Wow Amy,
It doesnt look like it sticks out too much at all. Thanks for sharing your pictures. It just makes it easier for me to get a glimpse of what it all entails, for when/ if i ever have to get one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Diane
02-13-2006, 01:31 PM
Wow Amy,
It doesnt look like it sticks out too much at all. Thanks for sharing your pictures. It just makes it easier for me to get a glimpse of what it all entails, for when/ if i ever have to get one. <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky
02-13-2006, 02:15 PM
Amy, yours is exactly where mine is located! Makes for easy access that's for sure...I remember that I was sore only for a few days too, but it took a bit to be completely painfree, maybe because they had to access it immediately after surgery. The only thing different is where your surgeon tunneled it (I think)...my steristrips were right above my port, so they must have started there. I don't regret it at all...actually mine is accessed now, I told the nurse who flushes it monthly to leave it there as i am fighting a nasty infection of my sinuses and dealing with a cold and if I have to go to IV's, then I will already be accessed.
Glad it went well, Hugs JEnn <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky
02-13-2006, 02:15 PM
Amy, yours is exactly where mine is located! Makes for easy access that's for sure...I remember that I was sore only for a few days too, but it took a bit to be completely painfree, maybe because they had to access it immediately after surgery. The only thing different is where your surgeon tunneled it (I think)...my steristrips were right above my port, so they must have started there. I don't regret it at all...actually mine is accessed now, I told the nurse who flushes it monthly to leave it there as i am fighting a nasty infection of my sinuses and dealing with a cold and if I have to go to IV's, then I will already be accessed.
Glad it went well, Hugs JEnn <img src="i/expressions/face-icon-small-smile.gif" border="0">

abloedel
02-13-2006, 03:15 PM
I really think once all the swelling is gone it will barely stick out.

Hope you are feeling better soon, Jenn! I know they tunneled mine into my jugular vein. Did they tunnel yours into the same place? I'm assuming they probably did if your port is in the same place.

abloedel
02-13-2006, 03:15 PM
I really think once all the swelling is gone it will barely stick out.

Hope you are feeling better soon, Jenn! I know they tunneled mine into my jugular vein. Did they tunnel yours into the same place? I'm assuming they probably did if your port is in the same place.

anonymous
02-13-2006, 05:54 PM
My son is 7 and is getting a port tomorrow. When you say accessed, does that mean you have a needle and tube sticking out of it? When it is accessed, can you do normal activities? What about baseball, soccer and swimming? Thanks for you input.

anonymous
02-13-2006, 05:54 PM
My son is 7 and is getting a port tomorrow. When you say accessed, does that mean you have a needle and tube sticking out of it? When it is accessed, can you do normal activities? What about baseball, soccer and swimming? Thanks for you input.

anonymous
02-13-2006, 06:31 PM
Amy your port looks good, it doesn't stick out much! My 4 year old has had one in the same place yours is since he was 2 months old. He is on his second one, just being replaced 3/05. His sticks out REALLY bad, you can even see the line under his skin stick out. He is a little guy. I am working on those high calorie shakes for him. Good luck with your new port and hopefully it will make everything alot easier

Angie

anonymous
02-13-2006, 06:31 PM
Amy your port looks good, it doesn't stick out much! My 4 year old has had one in the same place yours is since he was 2 months old. He is on his second one, just being replaced 3/05. His sticks out REALLY bad, you can even see the line under his skin stick out. He is a little guy. I am working on those high calorie shakes for him. Good luck with your new port and hopefully it will make everything alot easier

Angie

abloedel
02-19-2006, 03:49 PM
Here is the latest picture....

It actually hurts more on the smaller incision. Sort of weird...

Definitely still sore in the chest...I am surprised by how much.

abloedel
02-19-2006, 03:49 PM
Here is the latest picture....

It actually hurts more on the smaller incision. Sort of weird...

Definitely still sore in the chest...I am surprised by how much.

anonymous
02-19-2006, 04:03 PM
are you happy that you got it done? I got mine put in in November after fighting with the docs for years about it. Im so glad I did it- I mean you can see the tubing under my skin in my neck (I just tell people its a big vein). Its much much better than getting PICC lines done all the time. The doctor did a real good job placing mine- its basically right under my left boob- you can't see a thing. Mine is a little painful at times- I think mostly after its just been poked at. I think it is a good choice to have one put in.


Amy.21.cf.cfrd

anonymous
02-19-2006, 04:03 PM
are you happy that you got it done? I got mine put in in November after fighting with the docs for years about it. Im so glad I did it- I mean you can see the tubing under my skin in my neck (I just tell people its a big vein). Its much much better than getting PICC lines done all the time. The doctor did a real good job placing mine- its basically right under my left boob- you can't see a thing. Mine is a little painful at times- I think mostly after its just been poked at. I think it is a good choice to have one put in.


Amy.21.cf.cfrd

abloedel
02-19-2006, 04:07 PM
I'm glad I did it. Although it does hurt more than I thought it would, this will be soooo much easier than a PICC - which I HATE!

Fortunately, haven't had to access it yet, but my lung function is declining again. They usually have me go on the IV's when it gets below 45%...I'm at 52% right now.

So, I'll have to update again the 1st time we access it....

abloedel
02-19-2006, 04:07 PM
I'm glad I did it. Although it does hurt more than I thought it would, this will be soooo much easier than a PICC - which I HATE!

Fortunately, haven't had to access it yet, but my lung function is declining again. They usually have me go on the IV's when it gets below 45%...I'm at 52% right now.

So, I'll have to update again the 1st time we access it....

JustDucky
02-19-2006, 08:06 PM
To the mom who asked what accessed meant, you do have the needle in with a dressing over it, it is clear and there is tubing, but it isn't that long. You really can't swim with it when it is accessed, but other sports as long as he isn't being slam dunked and roughed around too much should'nt be too bad. I would ask his doc though.

Usually, the port is accessed once a month to be flushed, at least it is in my case. I always tell the nurse to leave it accessed for a week (when it is accessed, the needles are changed weekly along with the dressing) just in case the doc changes her mind about the antibiotics I take by mouth and have to take the IV's...which unfortunately, I think is the case now. My lungs are junkier and lots of crazy looking gunk coming up despite the antibiotics. I will know tomorrow if I have to do the IV's again....good thilng is that I always feel better after a course of them. When the nurse accessed my port the last time, I barely felt it...I think it gets better over time, it definitely is bettter than scrounging around for a vein that's for sure.

I pray that your soreness gets better, it will...definitely takes time!
Good luck!
Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

JustDucky
02-19-2006, 08:06 PM
To the mom who asked what accessed meant, you do have the needle in with a dressing over it, it is clear and there is tubing, but it isn't that long. You really can't swim with it when it is accessed, but other sports as long as he isn't being slam dunked and roughed around too much should'nt be too bad. I would ask his doc though.

Usually, the port is accessed once a month to be flushed, at least it is in my case. I always tell the nurse to leave it accessed for a week (when it is accessed, the needles are changed weekly along with the dressing) just in case the doc changes her mind about the antibiotics I take by mouth and have to take the IV's...which unfortunately, I think is the case now. My lungs are junkier and lots of crazy looking gunk coming up despite the antibiotics. I will know tomorrow if I have to do the IV's again....good thilng is that I always feel better after a course of them. When the nurse accessed my port the last time, I barely felt it...I think it gets better over time, it definitely is bettter than scrounging around for a vein that's for sure.

I pray that your soreness gets better, it will...definitely takes time!
Good luck!
Jenn <img src="i/expressions/face-icon-small-smile.gif" border="0">

princessjdc
02-20-2006, 12:00 AM
question, can you still play rough like for guys if they wanted could they play tackle football with a port?

princessjdc
02-20-2006, 12:00 AM
question, can you still play rough like for guys if they wanted could they play tackle football with a port?

littledebbie
02-20-2006, 04:04 AM
My experience/opinion: You can play as rough as you want with a port as long as it's not accessed at the time, it just becomes like another part of you. At least I always roughed around with mine, I never treated it like it was fragile. I wouldn't want to take a direct punch to a port, but then again i just wouldn't want to take a direct punch <img src="i/expressions/face-icon-small-happy.gif" border="0">.

littledebbie
02-20-2006, 04:04 AM
My experience/opinion: You can play as rough as you want with a port as long as it's not accessed at the time, it just becomes like another part of you. At least I always roughed around with mine, I never treated it like it was fragile. I wouldn't want to take a direct punch to a port, but then again i just wouldn't want to take a direct punch <img src="i/expressions/face-icon-small-happy.gif" border="0">.