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mamaj
09-22-2006, 02:42 AM
My son was diagnosed with CF yesterday.  I am interested in
talking with anyone that might be living in Canada, that has an
infant with CF. &nbsp;<br>
<br>

mamaj
09-22-2006, 02:42 AM
My son was diagnosed with CF yesterday. &nbsp;I am interested in
talking with anyone that might be living in Canada, that has an
infant with CF. &nbsp;<br>
<br>

mamaj
09-22-2006, 02:42 AM
My son was diagnosed with CF yesterday. &nbsp;I am interested in
talking with anyone that might be living in Canada, that has an
infant with CF. &nbsp;<br>
<br>

momtosilas
09-22-2006, 09:48 PM
Hello,<br>
<br>
My name is Amanda, and my 15months old may have CF. I live in
Canada...<br>
<br>
Amanda

momtosilas
09-22-2006, 09:48 PM
Hello,<br>
<br>
My name is Amanda, and my 15months old may have CF. I live in
Canada...<br>
<br>
Amanda

momtosilas
09-22-2006, 09:48 PM
Hello,<br>
<br>
My name is Amanda, and my 15months old may have CF. I live in
Canada...<br>
<br>
Amanda

mamaj
09-24-2006, 05:55 PM
Hi Amanda,<br>
<br>
I hope that your child and you are doing well... whatever the
prognosis. &nbsp;I thought I would, from the get-go, seek out other
Canadians, as I've already discovered, there are some differences
in treatment/aid etc. &nbsp;With any luck... you won't have to even
come back to this site... but if you do, let me know if you are
interested in sharing information, or just want to chat with
someone in the same boat.<br>
<br>
Best wishes,<br>
<br>
Jana

mamaj
09-24-2006, 05:55 PM
Hi Amanda,<br>
<br>
I hope that your child and you are doing well... whatever the
prognosis. &nbsp;I thought I would, from the get-go, seek out other
Canadians, as I've already discovered, there are some differences
in treatment/aid etc. &nbsp;With any luck... you won't have to even
come back to this site... but if you do, let me know if you are
interested in sharing information, or just want to chat with
someone in the same boat.<br>
<br>
Best wishes,<br>
<br>
Jana

mamaj
09-24-2006, 05:55 PM
Hi Amanda,<br>
<br>
I hope that your child and you are doing well... whatever the
prognosis. &nbsp;I thought I would, from the get-go, seek out other
Canadians, as I've already discovered, there are some differences
in treatment/aid etc. &nbsp;With any luck... you won't have to even
come back to this site... but if you do, let me know if you are
interested in sharing information, or just want to chat with
someone in the same boat.<br>
<br>
Best wishes,<br>
<br>
Jana

momtosilas
09-24-2006, 06:43 PM
where in canada are you?<br>
<br>
Amanda

momtosilas
09-24-2006, 06:43 PM
where in canada are you?<br>
<br>
Amanda

momtosilas
09-24-2006, 06:43 PM
where in canada are you?<br>
<br>
Amanda

mamaj
09-25-2006, 01:45 AM
I'm in Edmonton, Alberta.

mamaj
09-25-2006, 01:45 AM
I'm in Edmonton, Alberta.

mamaj
09-25-2006, 01:45 AM
I'm in Edmonton, Alberta.

momtosilas
09-25-2006, 02:18 PM
I too in Edmonton... &nbsp;Perhaps we should get together for a
play date or something... It would nice to know another mom with a
baby with health needs...<br>
<br>
Amanda

momtosilas
09-25-2006, 02:18 PM
I too in Edmonton... &nbsp;Perhaps we should get together for a
play date or something... It would nice to know another mom with a
baby with health needs...<br>
<br>
Amanda

momtosilas
09-25-2006, 02:18 PM
I too in Edmonton... &nbsp;Perhaps we should get together for a
play date or something... It would nice to know another mom with a
baby with health needs...<br>
<br>
Amanda

Ratatosk
09-25-2006, 02:27 PM
As new parents of cfers, it might be fine for you adults to meet, but there may be issues with cross-contamination. Usually CFers should keep at least a 3' distance. Liza

Ratatosk
09-25-2006, 02:27 PM
As new parents of cfers, it might be fine for you adults to meet, but there may be issues with cross-contamination. Usually CFers should keep at least a 3' distance. Liza

Ratatosk
09-25-2006, 02:27 PM
As new parents of cfers, it might be fine for you adults to meet, but there may be issues with cross-contamination. Usually CFers should keep at least a 3' distance. Liza

mamaj
09-25-2006, 04:36 PM
Hi Amanda,<br>
<br>
I will send you a private message, with contact information.
&nbsp;It is true, CF's are at risk from each other. &nbsp;I have a
clinic appointment on Wednesday, and will ask them so more
questions about it (all the CF's go to the same clinic... so there
is some space to breathe regarding this subject). &nbsp;We just
have to be careful. &nbsp;Either way, it would be nice for us to
chat.

mamaj
09-25-2006, 04:36 PM
Hi Amanda,<br>
<br>
I will send you a private message, with contact information.
&nbsp;It is true, CF's are at risk from each other. &nbsp;I have a
clinic appointment on Wednesday, and will ask them so more
questions about it (all the CF's go to the same clinic... so there
is some space to breathe regarding this subject). &nbsp;We just
have to be careful. &nbsp;Either way, it would be nice for us to
chat.

mamaj
09-25-2006, 04:36 PM
Hi Amanda,<br>
<br>
I will send you a private message, with contact information.
&nbsp;It is true, CF's are at risk from each other. &nbsp;I have a
clinic appointment on Wednesday, and will ask them so more
questions about it (all the CF's go to the same clinic... so there
is some space to breathe regarding this subject). &nbsp;We just
have to be careful. &nbsp;Either way, it would be nice for us to
chat.

mamaj
09-25-2006, 04:36 PM
Hi Liza,<br>
<br>
Are you from Canada?

mamaj
09-25-2006, 04:36 PM
Hi Liza,<br>
<br>
Are you from Canada?

mamaj
09-25-2006, 04:36 PM
Hi Liza,<br>
<br>
Are you from Canada?

Ratatosk
09-25-2006, 05:21 PM
Close... North Dakota. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Welcome to the board! Hope I didn't sound to harsh about the cross contamination issue. I just wanted you to be aware of it. It isn't something our local clinic talks about, but we were told about it when DS was first diagnosed in the city at an accreditted clinic.

Our son has cultured pseudomonas, HIB and Enterbacter Cholae in the past. While you can get pseudo from just about anywhere, someone on this site has posted that it can live on surfaces for 8 days. I know of people who go to our CF clinic whose children have cultured staph.

Ratatosk
09-25-2006, 05:21 PM
Close... North Dakota. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Welcome to the board! Hope I didn't sound to harsh about the cross contamination issue. I just wanted you to be aware of it. It isn't something our local clinic talks about, but we were told about it when DS was first diagnosed in the city at an accreditted clinic.

Our son has cultured pseudomonas, HIB and Enterbacter Cholae in the past. While you can get pseudo from just about anywhere, someone on this site has posted that it can live on surfaces for 8 days. I know of people who go to our CF clinic whose children have cultured staph.

Ratatosk
09-25-2006, 05:21 PM
Close... North Dakota. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Welcome to the board! Hope I didn't sound to harsh about the cross contamination issue. I just wanted you to be aware of it. It isn't something our local clinic talks about, but we were told about it when DS was first diagnosed in the city at an accreditted clinic.

Our son has cultured pseudomonas, HIB and Enterbacter Cholae in the past. While you can get pseudo from just about anywhere, someone on this site has posted that it can live on surfaces for 8 days. I know of people who go to our CF clinic whose children have cultured staph.

mamaj
09-25-2006, 07:40 PM
Thanks Liza. &nbsp;I'm a bit sensitive... still reeling. &nbsp;<br>
<br>
You mentioned your son had HiB.<br>
<br>
Do you have any thoughts on vaccinations? &nbsp;I was completely on
the no-vax train, but now, with the CF diagnosis, I'm trying to
figure out the lesser of the two evils. &nbsp;My CF doctor is
primarily concerned with the Hib, Pertusis, and Polio shots.
&nbsp;Did your son have the Hib vaccination? &nbsp;How did he get
Hib?<br>
<br>
<br>
Jana

mamaj
09-25-2006, 07:40 PM
Thanks Liza. &nbsp;I'm a bit sensitive... still reeling. &nbsp;<br>
<br>
You mentioned your son had HiB.<br>
<br>
Do you have any thoughts on vaccinations? &nbsp;I was completely on
the no-vax train, but now, with the CF diagnosis, I'm trying to
figure out the lesser of the two evils. &nbsp;My CF doctor is
primarily concerned with the Hib, Pertusis, and Polio shots.
&nbsp;Did your son have the Hib vaccination? &nbsp;How did he get
Hib?<br>
<br>
<br>
Jana

mamaj
09-25-2006, 07:40 PM
Thanks Liza. &nbsp;I'm a bit sensitive... still reeling. &nbsp;<br>
<br>
You mentioned your son had HiB.<br>
<br>
Do you have any thoughts on vaccinations? &nbsp;I was completely on
the no-vax train, but now, with the CF diagnosis, I'm trying to
figure out the lesser of the two evils. &nbsp;My CF doctor is
primarily concerned with the Hib, Pertusis, and Polio shots.
&nbsp;Did your son have the Hib vaccination? &nbsp;How did he get
Hib?<br>
<br>
<br>
Jana

Ratatosk
09-25-2006, 07:57 PM
My son has had all his vaccinations, including HIB. Wondered the same thing -- some docs consider it to be "natural flora". Our doctor thought zithromax might take care of it once he started.

Our primary cf physician is an infectious disease specialist. Stresses vaccinations -- chicken pox can get into the lungs and cause damage, ditto with pertussis... I've never had a problem with vaccinations, so I'm probably the wrong person to ask. I believe there are several people on this site who have an opposite opinion and have chosen not to vaccinate. Hopefully they can give some insight. You may want to post this question on the family forum area to get more of a response. L

Ratatosk
09-25-2006, 07:57 PM
My son has had all his vaccinations, including HIB. Wondered the same thing -- some docs consider it to be "natural flora". Our doctor thought zithromax might take care of it once he started.

Our primary cf physician is an infectious disease specialist. Stresses vaccinations -- chicken pox can get into the lungs and cause damage, ditto with pertussis... I've never had a problem with vaccinations, so I'm probably the wrong person to ask. I believe there are several people on this site who have an opposite opinion and have chosen not to vaccinate. Hopefully they can give some insight. You may want to post this question on the family forum area to get more of a response. L

Ratatosk
09-25-2006, 07:57 PM
My son has had all his vaccinations, including HIB. Wondered the same thing -- some docs consider it to be "natural flora". Our doctor thought zithromax might take care of it once he started.

Our primary cf physician is an infectious disease specialist. Stresses vaccinations -- chicken pox can get into the lungs and cause damage, ditto with pertussis... I've never had a problem with vaccinations, so I'm probably the wrong person to ask. I believe there are several people on this site who have an opposite opinion and have chosen not to vaccinate. Hopefully they can give some insight. You may want to post this question on the family forum area to get more of a response. L

Jackie
10-19-2006, 03:42 PM
<div class="messagetext_container">I posted some messages on the
"newly diagnosed"<br>
<br>
I thought I would come here since some of you are from Canada. My 5
year old had the sweat test done here at the hospital and it came
back at a 51. The doctor said that's only one over what its
supposed to be and that he wants to retest her in 3 months. If in 3
months she tests the same then we would get sent to Vancouver for a
definite test.<br>
<br>
Everything i read on the net says 51 is borderline. But he says no.
So I guess there testing here is different??</div>

Jackie
10-19-2006, 03:42 PM
<div class="messagetext_container">I posted some messages on the
"newly diagnosed"<br>
<br>
I thought I would come here since some of you are from Canada. My 5
year old had the sweat test done here at the hospital and it came
back at a 51. The doctor said that's only one over what its
supposed to be and that he wants to retest her in 3 months. If in 3
months she tests the same then we would get sent to Vancouver for a
definite test.<br>
<br>
Everything i read on the net says 51 is borderline. But he says no.
So I guess there testing here is different??</div>

Jackie
10-19-2006, 03:42 PM
<div class="messagetext_container">I posted some messages on the
"newly diagnosed"<br>
<br>
I thought I would come here since some of you are from Canada. My 5
year old had the sweat test done here at the hospital and it came
back at a 51. The doctor said that's only one over what its
supposed to be and that he wants to retest her in 3 months. If in 3
months she tests the same then we would get sent to Vancouver for a
definite test.<br>
<br>
Everything i read on the net says 51 is borderline. But he says no.
So I guess there testing here is different??</div>

khmommy
10-22-2006, 02:11 AM
I'm in Nova Scotia, Canada. I'm not sure what the numbers were when my 10 year old was diagnosed 6 1/2 years ago, but my 2 year old was tested when she was 2 months old.

They told me that since her numbers were below 50...she does not have CF.

khmommy
10-22-2006, 02:11 AM
I'm in Nova Scotia, Canada. I'm not sure what the numbers were when my 10 year old was diagnosed 6 1/2 years ago, but my 2 year old was tested when she was 2 months old.

They told me that since her numbers were below 50...she does not have CF.

khmommy
10-22-2006, 02:11 AM
I'm in Nova Scotia, Canada. I'm not sure what the numbers were when my 10 year old was diagnosed 6 1/2 years ago, but my 2 year old was tested when she was 2 months old.

They told me that since her numbers were below 50...she does not have CF.