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cincycf
08-13-2009, 02:07 PM
Our six year old daughter has had problems with digestion and bowel movements for years. She often gets partial blocks of hard stool in her rectum, and has been hospitalized once with a total blockage. Her appetite is weak and she is losing weight because the blocks fill her up with gas. It is very tough for us to figure out what is happening.
Right now they have us giving her 1 chocalate exlax square every other day and 17g of Miralax daily. Yesterday she soiled her pullups 6 times I think with applesauce like consistency. The day before that she only went once. Needless to say, we are confused. We have tried many different enzyme combinations involving Pancreacarb and Creon. She is on the maximum dose for her age and weight already. She takes Omneprazole as well for acid.
What are symptoms of too many enzymes?
What else can we do to help her digest her food?
Could her body be addicted to exlax?

She is a good eater when she isn't blocked. But for some reason she isn't processing the food very well I think.
Thanks for listening.

Ryan and Pam

cincycf
08-13-2009, 02:07 PM
Our six year old daughter has had problems with digestion and bowel movements for years. She often gets partial blocks of hard stool in her rectum, and has been hospitalized once with a total blockage. Her appetite is weak and she is losing weight because the blocks fill her up with gas. It is very tough for us to figure out what is happening.
Right now they have us giving her 1 chocalate exlax square every other day and 17g of Miralax daily. Yesterday she soiled her pullups 6 times I think with applesauce like consistency. The day before that she only went once. Needless to say, we are confused. We have tried many different enzyme combinations involving Pancreacarb and Creon. She is on the maximum dose for her age and weight already. She takes Omneprazole as well for acid.
What are symptoms of too many enzymes?
What else can we do to help her digest her food?
Could her body be addicted to exlax?

She is a good eater when she isn't blocked. But for some reason she isn't processing the food very well I think.
Thanks for listening.

Ryan and Pam

cincycf
08-13-2009, 02:07 PM
Our six year old daughter has had problems with digestion and bowel movements for years. She often gets partial blocks of hard stool in her rectum, and has been hospitalized once with a total blockage. Her appetite is weak and she is losing weight because the blocks fill her up with gas. It is very tough for us to figure out what is happening.
Right now they have us giving her 1 chocalate exlax square every other day and 17g of Miralax daily. Yesterday she soiled her pullups 6 times I think with applesauce like consistency. The day before that she only went once. Needless to say, we are confused. We have tried many different enzyme combinations involving Pancreacarb and Creon. She is on the maximum dose for her age and weight already. She takes Omneprazole as well for acid.
What are symptoms of too many enzymes?
What else can we do to help her digest her food?
Could her body be addicted to exlax?

She is a good eater when she isn't blocked. But for some reason she isn't processing the food very well I think.
Thanks for listening.

Ryan and Pam

cincycf
08-13-2009, 02:07 PM
Our six year old daughter has had problems with digestion and bowel movements for years. She often gets partial blocks of hard stool in her rectum, and has been hospitalized once with a total blockage. Her appetite is weak and she is losing weight because the blocks fill her up with gas. It is very tough for us to figure out what is happening.
Right now they have us giving her 1 chocalate exlax square every other day and 17g of Miralax daily. Yesterday she soiled her pullups 6 times I think with applesauce like consistency. The day before that she only went once. Needless to say, we are confused. We have tried many different enzyme combinations involving Pancreacarb and Creon. She is on the maximum dose for her age and weight already. She takes Omneprazole as well for acid.
What are symptoms of too many enzymes?
What else can we do to help her digest her food?
Could her body be addicted to exlax?

She is a good eater when she isn't blocked. But for some reason she isn't processing the food very well I think.
Thanks for listening.

Ryan and Pam

cincycf
08-13-2009, 02:07 PM
Our six year old daughter has had problems with digestion and bowel movements for years. She often gets partial blocks of hard stool in her rectum, and has been hospitalized once with a total blockage. Her appetite is weak and she is losing weight because the blocks fill her up with gas. It is very tough for us to figure out what is happening.
<br /> Right now they have us giving her 1 chocalate exlax square every other day and 17g of Miralax daily. Yesterday she soiled her pullups 6 times I think with applesauce like consistency. The day before that she only went once. Needless to say, we are confused. We have tried many different enzyme combinations involving Pancreacarb and Creon. She is on the maximum dose for her age and weight already. She takes Omneprazole as well for acid.
<br /> What are symptoms of too many enzymes?
<br /> What else can we do to help her digest her food?
<br /> Could her body be addicted to exlax?
<br />
<br />She is a good eater when she isn't blocked. But for some reason she isn't processing the food very well I think.
<br />Thanks for listening.
<br />
<br />Ryan and Pam

jesuscantu
08-13-2009, 02:35 PM
Dear Ryan and Pam,
Hello, my name is Jesus I live in Monterrey, Mexico. I was diagnosed with CF at 2yo, thank god I am 34 now.

Im no doctor but let me tell you what works for me regarding my diet.

Avoid:
Oily food such as french fries, nuggets, hamburgers, or any fried food. Eating meat for several days. Too much bread. Oily spaghettis, pastas, etc. Doritos, chips etc..
Cokes..

Good:
Try drinking non-gas beverages such as koolaid, fruit juices etc...
Try eating food with very little oil.
Try eating a lot of boiled vegetable with a little butter and soy sauce.
Try eating a lot of fruits.
Try eating food rich in fiber, branflakes, prunes etc...
Try eating non-oily fish and chicken.
Try drinking a lot of water.
Toasted Turkey and velveeta sandwiches are good for my stomach.

I used to have the same problem as your daughter when I was young, I must have stopped by the hospital at least 12 or 14 times with a very hard stomach ache. After 26yo Ive only been once with the same symptons.

I hope this helps your daughter..
Please say hi and let her know that she has a friend in Mexico with CF.

jesuscantu
08-13-2009, 02:35 PM
Dear Ryan and Pam,
Hello, my name is Jesus I live in Monterrey, Mexico. I was diagnosed with CF at 2yo, thank god I am 34 now.

Im no doctor but let me tell you what works for me regarding my diet.

Avoid:
Oily food such as french fries, nuggets, hamburgers, or any fried food. Eating meat for several days. Too much bread. Oily spaghettis, pastas, etc. Doritos, chips etc..
Cokes..

Good:
Try drinking non-gas beverages such as koolaid, fruit juices etc...
Try eating food with very little oil.
Try eating a lot of boiled vegetable with a little butter and soy sauce.
Try eating a lot of fruits.
Try eating food rich in fiber, branflakes, prunes etc...
Try eating non-oily fish and chicken.
Try drinking a lot of water.
Toasted Turkey and velveeta sandwiches are good for my stomach.

I used to have the same problem as your daughter when I was young, I must have stopped by the hospital at least 12 or 14 times with a very hard stomach ache. After 26yo Ive only been once with the same symptons.

I hope this helps your daughter..
Please say hi and let her know that she has a friend in Mexico with CF.

jesuscantu
08-13-2009, 02:35 PM
Dear Ryan and Pam,
Hello, my name is Jesus I live in Monterrey, Mexico. I was diagnosed with CF at 2yo, thank god I am 34 now.

Im no doctor but let me tell you what works for me regarding my diet.

Avoid:
Oily food such as french fries, nuggets, hamburgers, or any fried food. Eating meat for several days. Too much bread. Oily spaghettis, pastas, etc. Doritos, chips etc..
Cokes..

Good:
Try drinking non-gas beverages such as koolaid, fruit juices etc...
Try eating food with very little oil.
Try eating a lot of boiled vegetable with a little butter and soy sauce.
Try eating a lot of fruits.
Try eating food rich in fiber, branflakes, prunes etc...
Try eating non-oily fish and chicken.
Try drinking a lot of water.
Toasted Turkey and velveeta sandwiches are good for my stomach.

I used to have the same problem as your daughter when I was young, I must have stopped by the hospital at least 12 or 14 times with a very hard stomach ache. After 26yo Ive only been once with the same symptons.

I hope this helps your daughter..
Please say hi and let her know that she has a friend in Mexico with CF.

jesuscantu
08-13-2009, 02:35 PM
Dear Ryan and Pam,
Hello, my name is Jesus I live in Monterrey, Mexico. I was diagnosed with CF at 2yo, thank god I am 34 now.

Im no doctor but let me tell you what works for me regarding my diet.

Avoid:
Oily food such as french fries, nuggets, hamburgers, or any fried food. Eating meat for several days. Too much bread. Oily spaghettis, pastas, etc. Doritos, chips etc..
Cokes..

Good:
Try drinking non-gas beverages such as koolaid, fruit juices etc...
Try eating food with very little oil.
Try eating a lot of boiled vegetable with a little butter and soy sauce.
Try eating a lot of fruits.
Try eating food rich in fiber, branflakes, prunes etc...
Try eating non-oily fish and chicken.
Try drinking a lot of water.
Toasted Turkey and velveeta sandwiches are good for my stomach.

I used to have the same problem as your daughter when I was young, I must have stopped by the hospital at least 12 or 14 times with a very hard stomach ache. After 26yo Ive only been once with the same symptons.

I hope this helps your daughter..
Please say hi and let her know that she has a friend in Mexico with CF.

jesuscantu
08-13-2009, 02:35 PM
Dear Ryan and Pam,
<br />Hello, my name is Jesus I live in Monterrey, Mexico. I was diagnosed with CF at 2yo, thank god I am 34 now.
<br />
<br />Im no doctor but let me tell you what works for me regarding my diet.
<br />
<br />Avoid:
<br />Oily food such as french fries, nuggets, hamburgers, or any fried food. Eating meat for several days. Too much bread. Oily spaghettis, pastas, etc. Doritos, chips etc..
<br />Cokes..
<br />
<br />Good:
<br />Try drinking non-gas beverages such as koolaid, fruit juices etc...
<br />Try eating food with very little oil.
<br />Try eating a lot of boiled vegetable with a little butter and soy sauce.
<br />Try eating a lot of fruits.
<br />Try eating food rich in fiber, branflakes, prunes etc...
<br />Try eating non-oily fish and chicken.
<br />Try drinking a lot of water.
<br />Toasted Turkey and velveeta sandwiches are good for my stomach.
<br />
<br />I used to have the same problem as your daughter when I was young, I must have stopped by the hospital at least 12 or 14 times with a very hard stomach ache. After 26yo Ive only been once with the same symptons.
<br />
<br />I hope this helps your daughter..
<br />Please say hi and let her know that she has a friend in Mexico with CF.

Ratatosk
08-13-2009, 02:50 PM
I'm surprised they have her on exlax, which is a stimulant kind of laxative, which can cause extremely loose stools right away. With DS we usually tried milk of magnesia which works similarly to miralax to draw water back into the colon.

As far as too many enzymes -- DS usually has hardener stools and gets a bright red irritated monkey butt, which goes away with butt paste. But he also gets that if he doesn't wipe properly or when he was a baby and had extremely frequent, loose stools.

I do know of a local family who had issues with their child not gaining weight, loose stools and constipation issues, who I believe gave their child oral mucomyst.

We recently found out that with DS his surgery as a baby caused scarring, which slowed down his digestion, making it so his enzymes weren't working as well. It wasn't until he had an obstruction, which required surgery to get rid of the blockage that they discovered this. We actually increased his enzymes now and he has normal stool.

Ratatosk
08-13-2009, 02:50 PM
I'm surprised they have her on exlax, which is a stimulant kind of laxative, which can cause extremely loose stools right away. With DS we usually tried milk of magnesia which works similarly to miralax to draw water back into the colon.

As far as too many enzymes -- DS usually has hardener stools and gets a bright red irritated monkey butt, which goes away with butt paste. But he also gets that if he doesn't wipe properly or when he was a baby and had extremely frequent, loose stools.

I do know of a local family who had issues with their child not gaining weight, loose stools and constipation issues, who I believe gave their child oral mucomyst.

We recently found out that with DS his surgery as a baby caused scarring, which slowed down his digestion, making it so his enzymes weren't working as well. It wasn't until he had an obstruction, which required surgery to get rid of the blockage that they discovered this. We actually increased his enzymes now and he has normal stool.

Ratatosk
08-13-2009, 02:50 PM
I'm surprised they have her on exlax, which is a stimulant kind of laxative, which can cause extremely loose stools right away. With DS we usually tried milk of magnesia which works similarly to miralax to draw water back into the colon.

As far as too many enzymes -- DS usually has hardener stools and gets a bright red irritated monkey butt, which goes away with butt paste. But he also gets that if he doesn't wipe properly or when he was a baby and had extremely frequent, loose stools.

I do know of a local family who had issues with their child not gaining weight, loose stools and constipation issues, who I believe gave their child oral mucomyst.

We recently found out that with DS his surgery as a baby caused scarring, which slowed down his digestion, making it so his enzymes weren't working as well. It wasn't until he had an obstruction, which required surgery to get rid of the blockage that they discovered this. We actually increased his enzymes now and he has normal stool.

Ratatosk
08-13-2009, 02:50 PM
I'm surprised they have her on exlax, which is a stimulant kind of laxative, which can cause extremely loose stools right away. With DS we usually tried milk of magnesia which works similarly to miralax to draw water back into the colon.

As far as too many enzymes -- DS usually has hardener stools and gets a bright red irritated monkey butt, which goes away with butt paste. But he also gets that if he doesn't wipe properly or when he was a baby and had extremely frequent, loose stools.

I do know of a local family who had issues with their child not gaining weight, loose stools and constipation issues, who I believe gave their child oral mucomyst.

We recently found out that with DS his surgery as a baby caused scarring, which slowed down his digestion, making it so his enzymes weren't working as well. It wasn't until he had an obstruction, which required surgery to get rid of the blockage that they discovered this. We actually increased his enzymes now and he has normal stool.

Ratatosk
08-13-2009, 02:50 PM
I'm surprised they have her on exlax, which is a stimulant kind of laxative, which can cause extremely loose stools right away. With DS we usually tried milk of magnesia which works similarly to miralax to draw water back into the colon.
<br />
<br />As far as too many enzymes -- DS usually has hardener stools and gets a bright red irritated monkey butt, which goes away with butt paste. But he also gets that if he doesn't wipe properly or when he was a baby and had extremely frequent, loose stools.
<br />
<br />I do know of a local family who had issues with their child not gaining weight, loose stools and constipation issues, who I believe gave their child oral mucomyst.
<br />
<br />We recently found out that with DS his surgery as a baby caused scarring, which slowed down his digestion, making it so his enzymes weren't working as well. It wasn't until he had an obstruction, which required surgery to get rid of the blockage that they discovered this. We actually increased his enzymes now and he has normal stool.

jbrandonAW
08-13-2009, 03:30 PM
I would first look at changing her diet. More water, less sugary drinks, more fruit and veggies. LESS oily fatty foods. I know fatty foods are the CF diet of choice BUT they can do bad things to our tummys. There are other ways to get calories b/ oily/bad foods. Lots of breads, rice, lean protien (chicken, beans -hummus is great), lots of milk/yogart/cheese

I would also try and get her off the exlax and get her on just miralax and try mil of magnesia.

Too many enzymes would equal constipation and tummy pain - too few enzymes equals less stools and tummy pain.

I don't take may enzymes across the board. I find that if I use 6 every time I eat something I can't go to the bathroom and I am in alot of pain. SO I take them based on how much I am eating. If I am having a meal meal, Ill take 6, a little snack anywhere from 2-6, I find that days where I am eating alot of food and seem to be taking in LOTS of enzymes yes I will skip some. I find that this allows my bowels to be normal.

Its taken me some time and playing with them to find what helps me. *IMO* I say play with them and find what works BEST for your daughter. B/C all docs will say no you need to do xxx b/c thats what they want. But obviously this is NOT working for your daughter so its time to try something new.

Good Luck -PM me if you need more info on diet changes

jbrandonAW
08-13-2009, 03:30 PM
I would first look at changing her diet. More water, less sugary drinks, more fruit and veggies. LESS oily fatty foods. I know fatty foods are the CF diet of choice BUT they can do bad things to our tummys. There are other ways to get calories b/ oily/bad foods. Lots of breads, rice, lean protien (chicken, beans -hummus is great), lots of milk/yogart/cheese

I would also try and get her off the exlax and get her on just miralax and try mil of magnesia.

Too many enzymes would equal constipation and tummy pain - too few enzymes equals less stools and tummy pain.

I don't take may enzymes across the board. I find that if I use 6 every time I eat something I can't go to the bathroom and I am in alot of pain. SO I take them based on how much I am eating. If I am having a meal meal, Ill take 6, a little snack anywhere from 2-6, I find that days where I am eating alot of food and seem to be taking in LOTS of enzymes yes I will skip some. I find that this allows my bowels to be normal.

Its taken me some time and playing with them to find what helps me. *IMO* I say play with them and find what works BEST for your daughter. B/C all docs will say no you need to do xxx b/c thats what they want. But obviously this is NOT working for your daughter so its time to try something new.

Good Luck -PM me if you need more info on diet changes

jbrandonAW
08-13-2009, 03:30 PM
I would first look at changing her diet. More water, less sugary drinks, more fruit and veggies. LESS oily fatty foods. I know fatty foods are the CF diet of choice BUT they can do bad things to our tummys. There are other ways to get calories b/ oily/bad foods. Lots of breads, rice, lean protien (chicken, beans -hummus is great), lots of milk/yogart/cheese

I would also try and get her off the exlax and get her on just miralax and try mil of magnesia.

Too many enzymes would equal constipation and tummy pain - too few enzymes equals less stools and tummy pain.

I don't take may enzymes across the board. I find that if I use 6 every time I eat something I can't go to the bathroom and I am in alot of pain. SO I take them based on how much I am eating. If I am having a meal meal, Ill take 6, a little snack anywhere from 2-6, I find that days where I am eating alot of food and seem to be taking in LOTS of enzymes yes I will skip some. I find that this allows my bowels to be normal.

Its taken me some time and playing with them to find what helps me. *IMO* I say play with them and find what works BEST for your daughter. B/C all docs will say no you need to do xxx b/c thats what they want. But obviously this is NOT working for your daughter so its time to try something new.

Good Luck -PM me if you need more info on diet changes

jbrandonAW
08-13-2009, 03:30 PM
I would first look at changing her diet. More water, less sugary drinks, more fruit and veggies. LESS oily fatty foods. I know fatty foods are the CF diet of choice BUT they can do bad things to our tummys. There are other ways to get calories b/ oily/bad foods. Lots of breads, rice, lean protien (chicken, beans -hummus is great), lots of milk/yogart/cheese

I would also try and get her off the exlax and get her on just miralax and try mil of magnesia.

Too many enzymes would equal constipation and tummy pain - too few enzymes equals less stools and tummy pain.

I don't take may enzymes across the board. I find that if I use 6 every time I eat something I can't go to the bathroom and I am in alot of pain. SO I take them based on how much I am eating. If I am having a meal meal, Ill take 6, a little snack anywhere from 2-6, I find that days where I am eating alot of food and seem to be taking in LOTS of enzymes yes I will skip some. I find that this allows my bowels to be normal.

Its taken me some time and playing with them to find what helps me. *IMO* I say play with them and find what works BEST for your daughter. B/C all docs will say no you need to do xxx b/c thats what they want. But obviously this is NOT working for your daughter so its time to try something new.

Good Luck -PM me if you need more info on diet changes

jbrandonAW
08-13-2009, 03:30 PM
I would first look at changing her diet. More water, less sugary drinks, more fruit and veggies. LESS oily fatty foods. I know fatty foods are the CF diet of choice BUT they can do bad things to our tummys. There are other ways to get calories b/ oily/bad foods. Lots of breads, rice, lean protien (chicken, beans -hummus is great), lots of milk/yogart/cheese
<br />
<br />I would also try and get her off the exlax and get her on just miralax and try mil of magnesia.
<br />
<br />Too many enzymes would equal constipation and tummy pain - too few enzymes equals less stools and tummy pain.
<br />
<br />I don't take may enzymes across the board. I find that if I use 6 every time I eat something I can't go to the bathroom and I am in alot of pain. SO I take them based on how much I am eating. If I am having a meal meal, Ill take 6, a little snack anywhere from 2-6, I find that days where I am eating alot of food and seem to be taking in LOTS of enzymes yes I will skip some. I find that this allows my bowels to be normal.
<br />
<br />Its taken me some time and playing with them to find what helps me. *IMO* I say play with them and find what works BEST for your daughter. B/C all docs will say no you need to do xxx b/c thats what they want. But obviously this is NOT working for your daughter so its time to try something new.
<br />
<br />Good Luck -PM me if you need more info on diet changes

zeeannie
08-20-2009, 07:24 PM
Jessica brought up the point I was considering. If you are swinging between loose and constipated on the same meds, then what's the variable? It must be the food. We also take enzymes based on intake. You wouldn't take the full dose for a simple fruit salad, and if you are eating pizza with extra cheese and meat, then you might need a little more than the usual full meal dose.

zeeannie
08-20-2009, 07:24 PM
Jessica brought up the point I was considering. If you are swinging between loose and constipated on the same meds, then what's the variable? It must be the food. We also take enzymes based on intake. You wouldn't take the full dose for a simple fruit salad, and if you are eating pizza with extra cheese and meat, then you might need a little more than the usual full meal dose.

zeeannie
08-20-2009, 07:24 PM
Jessica brought up the point I was considering. If you are swinging between loose and constipated on the same meds, then what's the variable? It must be the food. We also take enzymes based on intake. You wouldn't take the full dose for a simple fruit salad, and if you are eating pizza with extra cheese and meat, then you might need a little more than the usual full meal dose.

zeeannie
08-20-2009, 07:24 PM
Jessica brought up the point I was considering. If you are swinging between loose and constipated on the same meds, then what's the variable? It must be the food. We also take enzymes based on intake. You wouldn't take the full dose for a simple fruit salad, and if you are eating pizza with extra cheese and meat, then you might need a little more than the usual full meal dose.

zeeannie
08-20-2009, 07:24 PM
Jessica brought up the point I was considering. If you are swinging between loose and constipated on the same meds, then what's the variable? It must be the food. We also take enzymes based on intake. You wouldn't take the full dose for a simple fruit salad, and if you are eating pizza with extra cheese and meat, then you might need a little more than the usual full meal dose.

MicheleGazelle
08-21-2009, 09:53 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cincycf</b></i>
What else can we do to help her digest her food?

Could her body be addicted to exlax?
</end quote></div>

I don't know specifically about exlax, but have heard some pretty bad things about Miralax -- like some people become dependent upon it and get to the point where they can't go without it because of what it does to the body.

Some things that helped me improve my digestion:
Sticking with oils that work for me and avoiding oils that cause me problems. The two oils/fats that work best for me are organic butter and organic coconut oil. Some I tolerate occasionally/in moderation are organic olive oil, sunflower seed oil and corn oil. Oils I do my best to avoid include Canola oil, peanut oil and soybean oil.

Switching from table salt to sea salt. The brand I use the most is Celtic sea salt, though I do keep a tin of McCormick's French Grey in my desk at work these days. It's pretty good as well, though not as good as Celtic and it costs more to boot.

I took glyconutrients for a long time and when I couldn't afford it anymore, I took aloe and arabano galactan (two of the ingredients in the glyconutrients I used to take). "Glyconutrients" is just a fancy word for some simple carbohydrates. These days, I don't take any of those supplements but I make sure to get a variety of healthy carbs on a regular basis, like organic noodles, potatoes, and rice. They absorb best and do the most for me when cooked with sea salt and a healthy oil, like organic butter. My understanding is that aloe is a good natural treatment laxative. It might be a reasonably good substitute for the laxatives she is on and a way to gradually get her off them, if you are interested in doing so.

I also worked hard on my PH balance. I suspect high acidity in the gut is part of what causes digestive problems. My doctor told me that pancreacarb has sodium bicarbonate added to it as a buffer to make the enzymes more effective by making sure they aren't destroyed by high acidity in the gut. So I am inclined to think that high acidity in the gut is part of why pwcf need prescription enzymes in the first place: we are probably destroying our own enzymes because of the high acidity we are prone to. I would guess this is part of why some people start out not needing enzymes but later need them: because over time as we deteriorate, we probably become increasingly acid.

Good luck with this.

MicheleGazelle
08-21-2009, 09:53 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cincycf</b></i>
What else can we do to help her digest her food?

Could her body be addicted to exlax?
</end quote></div>

I don't know specifically about exlax, but have heard some pretty bad things about Miralax -- like some people become dependent upon it and get to the point where they can't go without it because of what it does to the body.

Some things that helped me improve my digestion:
Sticking with oils that work for me and avoiding oils that cause me problems. The two oils/fats that work best for me are organic butter and organic coconut oil. Some I tolerate occasionally/in moderation are organic olive oil, sunflower seed oil and corn oil. Oils I do my best to avoid include Canola oil, peanut oil and soybean oil.

Switching from table salt to sea salt. The brand I use the most is Celtic sea salt, though I do keep a tin of McCormick's French Grey in my desk at work these days. It's pretty good as well, though not as good as Celtic and it costs more to boot.

I took glyconutrients for a long time and when I couldn't afford it anymore, I took aloe and arabano galactan (two of the ingredients in the glyconutrients I used to take). "Glyconutrients" is just a fancy word for some simple carbohydrates. These days, I don't take any of those supplements but I make sure to get a variety of healthy carbs on a regular basis, like organic noodles, potatoes, and rice. They absorb best and do the most for me when cooked with sea salt and a healthy oil, like organic butter. My understanding is that aloe is a good natural treatment laxative. It might be a reasonably good substitute for the laxatives she is on and a way to gradually get her off them, if you are interested in doing so.

I also worked hard on my PH balance. I suspect high acidity in the gut is part of what causes digestive problems. My doctor told me that pancreacarb has sodium bicarbonate added to it as a buffer to make the enzymes more effective by making sure they aren't destroyed by high acidity in the gut. So I am inclined to think that high acidity in the gut is part of why pwcf need prescription enzymes in the first place: we are probably destroying our own enzymes because of the high acidity we are prone to. I would guess this is part of why some people start out not needing enzymes but later need them: because over time as we deteriorate, we probably become increasingly acid.

Good luck with this.

MicheleGazelle
08-21-2009, 09:53 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cincycf</b></i>
What else can we do to help her digest her food?

Could her body be addicted to exlax?
</end quote></div>

I don't know specifically about exlax, but have heard some pretty bad things about Miralax -- like some people become dependent upon it and get to the point where they can't go without it because of what it does to the body.

Some things that helped me improve my digestion:
Sticking with oils that work for me and avoiding oils that cause me problems. The two oils/fats that work best for me are organic butter and organic coconut oil. Some I tolerate occasionally/in moderation are organic olive oil, sunflower seed oil and corn oil. Oils I do my best to avoid include Canola oil, peanut oil and soybean oil.

Switching from table salt to sea salt. The brand I use the most is Celtic sea salt, though I do keep a tin of McCormick's French Grey in my desk at work these days. It's pretty good as well, though not as good as Celtic and it costs more to boot.

I took glyconutrients for a long time and when I couldn't afford it anymore, I took aloe and arabano galactan (two of the ingredients in the glyconutrients I used to take). "Glyconutrients" is just a fancy word for some simple carbohydrates. These days, I don't take any of those supplements but I make sure to get a variety of healthy carbs on a regular basis, like organic noodles, potatoes, and rice. They absorb best and do the most for me when cooked with sea salt and a healthy oil, like organic butter. My understanding is that aloe is a good natural treatment laxative. It might be a reasonably good substitute for the laxatives she is on and a way to gradually get her off them, if you are interested in doing so.

I also worked hard on my PH balance. I suspect high acidity in the gut is part of what causes digestive problems. My doctor told me that pancreacarb has sodium bicarbonate added to it as a buffer to make the enzymes more effective by making sure they aren't destroyed by high acidity in the gut. So I am inclined to think that high acidity in the gut is part of why pwcf need prescription enzymes in the first place: we are probably destroying our own enzymes because of the high acidity we are prone to. I would guess this is part of why some people start out not needing enzymes but later need them: because over time as we deteriorate, we probably become increasingly acid.

Good luck with this.

MicheleGazelle
08-21-2009, 09:53 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cincycf</b></i>
What else can we do to help her digest her food?

Could her body be addicted to exlax?
</end quote>

I don't know specifically about exlax, but have heard some pretty bad things about Miralax -- like some people become dependent upon it and get to the point where they can't go without it because of what it does to the body.

Some things that helped me improve my digestion:
Sticking with oils that work for me and avoiding oils that cause me problems. The two oils/fats that work best for me are organic butter and organic coconut oil. Some I tolerate occasionally/in moderation are organic olive oil, sunflower seed oil and corn oil. Oils I do my best to avoid include Canola oil, peanut oil and soybean oil.

Switching from table salt to sea salt. The brand I use the most is Celtic sea salt, though I do keep a tin of McCormick's French Grey in my desk at work these days. It's pretty good as well, though not as good as Celtic and it costs more to boot.

I took glyconutrients for a long time and when I couldn't afford it anymore, I took aloe and arabano galactan (two of the ingredients in the glyconutrients I used to take). "Glyconutrients" is just a fancy word for some simple carbohydrates. These days, I don't take any of those supplements but I make sure to get a variety of healthy carbs on a regular basis, like organic noodles, potatoes, and rice. They absorb best and do the most for me when cooked with sea salt and a healthy oil, like organic butter. My understanding is that aloe is a good natural treatment laxative. It might be a reasonably good substitute for the laxatives she is on and a way to gradually get her off them, if you are interested in doing so.

I also worked hard on my PH balance. I suspect high acidity in the gut is part of what causes digestive problems. My doctor told me that pancreacarb has sodium bicarbonate added to it as a buffer to make the enzymes more effective by making sure they aren't destroyed by high acidity in the gut. So I am inclined to think that high acidity in the gut is part of why pwcf need prescription enzymes in the first place: we are probably destroying our own enzymes because of the high acidity we are prone to. I would guess this is part of why some people start out not needing enzymes but later need them: because over time as we deteriorate, we probably become increasingly acid.

Good luck with this.

MicheleGazelle
08-21-2009, 09:53 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cincycf</b></i>
<br />What else can we do to help her digest her food?
<br />
<br />Could her body be addicted to exlax?
<br /></end quote>
<br />
<br />I don't know specifically about exlax, but have heard some pretty bad things about Miralax -- like some people become dependent upon it and get to the point where they can't go without it because of what it does to the body.
<br />
<br />Some things that helped me improve my digestion:
<br />Sticking with oils that work for me and avoiding oils that cause me problems. The two oils/fats that work best for me are organic butter and organic coconut oil. Some I tolerate occasionally/in moderation are organic olive oil, sunflower seed oil and corn oil. Oils I do my best to avoid include Canola oil, peanut oil and soybean oil.
<br />
<br />Switching from table salt to sea salt. The brand I use the most is Celtic sea salt, though I do keep a tin of McCormick's French Grey in my desk at work these days. It's pretty good as well, though not as good as Celtic and it costs more to boot.
<br />
<br />I took glyconutrients for a long time and when I couldn't afford it anymore, I took aloe and arabano galactan (two of the ingredients in the glyconutrients I used to take). "Glyconutrients" is just a fancy word for some simple carbohydrates. These days, I don't take any of those supplements but I make sure to get a variety of healthy carbs on a regular basis, like organic noodles, potatoes, and rice. They absorb best and do the most for me when cooked with sea salt and a healthy oil, like organic butter. My understanding is that aloe is a good natural treatment laxative. It might be a reasonably good substitute for the laxatives she is on and a way to gradually get her off them, if you are interested in doing so.
<br />
<br />I also worked hard on my PH balance. I suspect high acidity in the gut is part of what causes digestive problems. My doctor told me that pancreacarb has sodium bicarbonate added to it as a buffer to make the enzymes more effective by making sure they aren't destroyed by high acidity in the gut. So I am inclined to think that high acidity in the gut is part of why pwcf need prescription enzymes in the first place: we are probably destroying our own enzymes because of the high acidity we are prone to. I would guess this is part of why some people start out not needing enzymes but later need them: because over time as we deteriorate, we probably become increasingly acid.
<br />
<br />Good luck with this.