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NanaKay
09-26-2008, 12:05 PM
My granddaughter, Khloe, is 5 weeks old and still in the hospital. She had surgery for Meconium Ileus and is recovering from that procedure. The problem she is having now is that she cannot absorb anything that she is eating. She is losing weight and they can't do the surgery to put her intestines back together until she starts gaining weight. She was on liquids through IV until last week. When they took her off that she started losing. She also may have some liver problems because her skin is very yellow. Anyone been through this or have any suggestions.

NanaKay
09-26-2008, 12:05 PM
My granddaughter, Khloe, is 5 weeks old and still in the hospital. She had surgery for Meconium Ileus and is recovering from that procedure. The problem she is having now is that she cannot absorb anything that she is eating. She is losing weight and they can't do the surgery to put her intestines back together until she starts gaining weight. She was on liquids through IV until last week. When they took her off that she started losing. She also may have some liver problems because her skin is very yellow. Anyone been through this or have any suggestions.

NanaKay
09-26-2008, 12:05 PM
My granddaughter, Khloe, is 5 weeks old and still in the hospital. She had surgery for Meconium Ileus and is recovering from that procedure. The problem she is having now is that she cannot absorb anything that she is eating. She is losing weight and they can't do the surgery to put her intestines back together until she starts gaining weight. She was on liquids through IV until last week. When they took her off that she started losing. She also may have some liver problems because her skin is very yellow. Anyone been through this or have any suggestions.

NanaKay
09-26-2008, 12:05 PM
My granddaughter, Khloe, is 5 weeks old and still in the hospital. She had surgery for Meconium Ileus and is recovering from that procedure. The problem she is having now is that she cannot absorb anything that she is eating. She is losing weight and they can't do the surgery to put her intestines back together until she starts gaining weight. She was on liquids through IV until last week. When they took her off that she started losing. She also may have some liver problems because her skin is very yellow. Anyone been through this or have any suggestions.

NanaKay
09-26-2008, 12:05 PM
My granddaughter, Khloe, is 5 weeks old and still in the hospital. She had surgery for Meconium Ileus and is recovering from that procedure. The problem she is having now is that she cannot absorb anything that she is eating. She is losing weight and they can't do the surgery to put her intestines back together until she starts gaining weight. She was on liquids through IV until last week. When they took her off that she started losing. She also may have some liver problems because her skin is very yellow. Anyone been through this or have any suggestions.

JazzysMom
09-26-2008, 12:26 PM
I think you will get more responses if you post this in the family section. We have plenty of parents whose little ones have dealt with similiar issues.

HUGS

JazzysMom
09-26-2008, 12:26 PM
I think you will get more responses if you post this in the family section. We have plenty of parents whose little ones have dealt with similiar issues.

HUGS

JazzysMom
09-26-2008, 12:26 PM
I think you will get more responses if you post this in the family section. We have plenty of parents whose little ones have dealt with similiar issues.

HUGS

JazzysMom
09-26-2008, 12:26 PM
I think you will get more responses if you post this in the family section. We have plenty of parents whose little ones have dealt with similiar issues.

HUGS

JazzysMom
09-26-2008, 12:26 PM
I think you will get more responses if you post this in the family section. We have plenty of parents whose little ones have dealt with similiar issues.
<br />
<br />HUGS

NanaKay
09-26-2008, 01:27 PM
I'm new to this! Thanks for the suggestion. Can I repost or do I have to retype in another section?

NanaKay
09-26-2008, 01:27 PM
I'm new to this! Thanks for the suggestion. Can I repost or do I have to retype in another section?

NanaKay
09-26-2008, 01:27 PM
I'm new to this! Thanks for the suggestion. Can I repost or do I have to retype in another section?

NanaKay
09-26-2008, 01:27 PM
I'm new to this! Thanks for the suggestion. Can I repost or do I have to retype in another section?

NanaKay
09-26-2008, 01:27 PM
I'm new to this! Thanks for the suggestion. Can I repost or do I have to retype in another section?

Ratatosk
09-26-2008, 01:31 PM
Is she on formula and enzymes yet? I know a couple people have posted here in the past with similar comments and it turned out they started formula, but not enzymes.

The other thing is that she could require higher calorie formula. More powder or liquid to water ratio. DS was put on a 24 calorie formula.

When DS was recovering, he was on TPN, which they gradually reduced once we were able to start feeding him formula. We had to start gradually feeding him a few ML of pedialyte, then maybe 10 ml/cc of formula. Very gradually to make sure everything was working. With him though they were able to put him back together right away, he didn't have any ostomy issues.

Ratatosk
09-26-2008, 01:31 PM
Is she on formula and enzymes yet? I know a couple people have posted here in the past with similar comments and it turned out they started formula, but not enzymes.

The other thing is that she could require higher calorie formula. More powder or liquid to water ratio. DS was put on a 24 calorie formula.

When DS was recovering, he was on TPN, which they gradually reduced once we were able to start feeding him formula. We had to start gradually feeding him a few ML of pedialyte, then maybe 10 ml/cc of formula. Very gradually to make sure everything was working. With him though they were able to put him back together right away, he didn't have any ostomy issues.

Ratatosk
09-26-2008, 01:31 PM
Is she on formula and enzymes yet? I know a couple people have posted here in the past with similar comments and it turned out they started formula, but not enzymes.

The other thing is that she could require higher calorie formula. More powder or liquid to water ratio. DS was put on a 24 calorie formula.

When DS was recovering, he was on TPN, which they gradually reduced once we were able to start feeding him formula. We had to start gradually feeding him a few ML of pedialyte, then maybe 10 ml/cc of formula. Very gradually to make sure everything was working. With him though they were able to put him back together right away, he didn't have any ostomy issues.

Ratatosk
09-26-2008, 01:31 PM
Is she on formula and enzymes yet? I know a couple people have posted here in the past with similar comments and it turned out they started formula, but not enzymes.

The other thing is that she could require higher calorie formula. More powder or liquid to water ratio. DS was put on a 24 calorie formula.

When DS was recovering, he was on TPN, which they gradually reduced once we were able to start feeding him formula. We had to start gradually feeding him a few ML of pedialyte, then maybe 10 ml/cc of formula. Very gradually to make sure everything was working. With him though they were able to put him back together right away, he didn't have any ostomy issues.

Ratatosk
09-26-2008, 01:31 PM
Is she on formula and enzymes yet? I know a couple people have posted here in the past with similar comments and it turned out they started formula, but not enzymes.
<br />
<br />The other thing is that she could require higher calorie formula. More powder or liquid to water ratio. DS was put on a 24 calorie formula.
<br />
<br />When DS was recovering, he was on TPN, which they gradually reduced once we were able to start feeding him formula. We had to start gradually feeding him a few ML of pedialyte, then maybe 10 ml/cc of formula. Very gradually to make sure everything was working. With him though they were able to put him back together right away, he didn't have any ostomy issues.

NanaKay
09-26-2008, 01:40 PM
She's on the 24 calorie formula and she's been on enzymes for over a week. She was left open until they worked all of the blockage out. She's eating but it's going into a bag and then they are putting it back in to go through her lower intestines. She is not absorbing anything. It is coming out just like it went in. My daughter mentioned something called polycose and said they increased her enzymes. They are turning her nutrition needs over to a dietician and nutritionist specialist instead of the pediatric surgeon. If anyone has anythin they could tell me I would appreciate it.

NanaKay
09-26-2008, 01:40 PM
She's on the 24 calorie formula and she's been on enzymes for over a week. She was left open until they worked all of the blockage out. She's eating but it's going into a bag and then they are putting it back in to go through her lower intestines. She is not absorbing anything. It is coming out just like it went in. My daughter mentioned something called polycose and said they increased her enzymes. They are turning her nutrition needs over to a dietician and nutritionist specialist instead of the pediatric surgeon. If anyone has anythin they could tell me I would appreciate it.

NanaKay
09-26-2008, 01:40 PM
She's on the 24 calorie formula and she's been on enzymes for over a week. She was left open until they worked all of the blockage out. She's eating but it's going into a bag and then they are putting it back in to go through her lower intestines. She is not absorbing anything. It is coming out just like it went in. My daughter mentioned something called polycose and said they increased her enzymes. They are turning her nutrition needs over to a dietician and nutritionist specialist instead of the pediatric surgeon. If anyone has anythin they could tell me I would appreciate it.

NanaKay
09-26-2008, 01:40 PM
She's on the 24 calorie formula and she's been on enzymes for over a week. She was left open until they worked all of the blockage out. She's eating but it's going into a bag and then they are putting it back in to go through her lower intestines. She is not absorbing anything. It is coming out just like it went in. My daughter mentioned something called polycose and said they increased her enzymes. They are turning her nutrition needs over to a dietician and nutritionist specialist instead of the pediatric surgeon. If anyone has anythin they could tell me I would appreciate it.

NanaKay
09-26-2008, 01:40 PM
She's on the 24 calorie formula and she's been on enzymes for over a week. She was left open until they worked all of the blockage out. She's eating but it's going into a bag and then they are putting it back in to go through her lower intestines. She is not absorbing anything. It is coming out just like it went in. My daughter mentioned something called polycose and said they increased her enzymes. They are turning her nutrition needs over to a dietician and nutritionist specialist instead of the pediatric surgeon. If anyone has anythin they could tell me I would appreciate it.

JazzysMom
09-26-2008, 01:53 PM
OOOPS Duplicate Post <img src="i/expressions/face-icon-small-smile.gif" border="0">

JazzysMom
09-26-2008, 01:53 PM
OOOPS Duplicate Post <img src="i/expressions/face-icon-small-smile.gif" border="0">

JazzysMom
09-26-2008, 01:53 PM
OOOPS Duplicate Post <img src="i/expressions/face-icon-small-smile.gif" border="0">

JazzysMom
09-26-2008, 01:53 PM
OOOPS Duplicate Post <img src="i/expressions/face-icon-small-smile.gif" border="0">

JazzysMom
09-26-2008, 01:53 PM
OOOPS Duplicate Post <img src="i/expressions/face-icon-small-smile.gif" border="0">

JazzysMom
09-26-2008, 01:54 PM
Polycose is for calories only....it goes into foods, drinks etc for a caloric intake. It just gets mixed in.

BTW we have a member named VSParks2000 who came here for info for Khloe.....I believe she is the Great Grandma!

This is quite a family doing research.

Glad to see you posted on the Family Section also!

HUGS

JazzysMom
09-26-2008, 01:54 PM
Polycose is for calories only....it goes into foods, drinks etc for a caloric intake. It just gets mixed in.

BTW we have a member named VSParks2000 who came here for info for Khloe.....I believe she is the Great Grandma!

This is quite a family doing research.

Glad to see you posted on the Family Section also!

HUGS

JazzysMom
09-26-2008, 01:54 PM
Polycose is for calories only....it goes into foods, drinks etc for a caloric intake. It just gets mixed in.

BTW we have a member named VSParks2000 who came here for info for Khloe.....I believe she is the Great Grandma!

This is quite a family doing research.

Glad to see you posted on the Family Section also!

HUGS

JazzysMom
09-26-2008, 01:54 PM
Polycose is for calories only....it goes into foods, drinks etc for a caloric intake. It just gets mixed in.

BTW we have a member named VSParks2000 who came here for info for Khloe.....I believe she is the Great Grandma!

This is quite a family doing research.

Glad to see you posted on the Family Section also!

HUGS

JazzysMom
09-26-2008, 01:54 PM
Polycose is for calories only....it goes into foods, drinks etc for a caloric intake. It just gets mixed in.
<br />
<br />BTW we have a member named VSParks2000 who came here for info for Khloe.....I believe she is the Great Grandma!
<br />
<br />This is quite a family doing research.
<br />
<br />Glad to see you posted on the Family Section also!
<br />
<br />HUGS