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AGRLMK
09-13-2008, 12:27 AM
Hi all!

Until recently I had been a healthy' CF patient. In june I took a few trips and didn't eat well, and worked my *** off! haha Anyway, in the beginning of June I weighed 105lbs. Everything was going up and going pretty good. Now, in the beginning of September, I'm way back down to 95 lbs. I'm not gaining anything, even though I eat like a horse! So the Gtube has come into conversation.

I am all for it, as it would take some of the pressure off of me. I understand that I will still have to eat healthily during the day, but I will be getting more calories at night.

The type of tube they're talking about is the Mic-key. I don't know a lot about the Bard, but they didnt ask what one i wanted, so it's the Mickey that im getting.

Anyway, can some of you share your experience[s] with the mickey, and what the second procedure was like for you [where they take the tube out and put the button in]?
I would sure apreciate it!

Lauren
17yo with CF, AFB, ABPA, Asthma

AGRLMK
09-13-2008, 12:27 AM
Hi all!

Until recently I had been a healthy' CF patient. In june I took a few trips and didn't eat well, and worked my *** off! haha Anyway, in the beginning of June I weighed 105lbs. Everything was going up and going pretty good. Now, in the beginning of September, I'm way back down to 95 lbs. I'm not gaining anything, even though I eat like a horse! So the Gtube has come into conversation.

I am all for it, as it would take some of the pressure off of me. I understand that I will still have to eat healthily during the day, but I will be getting more calories at night.

The type of tube they're talking about is the Mic-key. I don't know a lot about the Bard, but they didnt ask what one i wanted, so it's the Mickey that im getting.

Anyway, can some of you share your experience[s] with the mickey, and what the second procedure was like for you [where they take the tube out and put the button in]?
I would sure apreciate it!

Lauren
17yo with CF, AFB, ABPA, Asthma

AGRLMK
09-13-2008, 12:27 AM
Hi all!

Until recently I had been a healthy' CF patient. In june I took a few trips and didn't eat well, and worked my *** off! haha Anyway, in the beginning of June I weighed 105lbs. Everything was going up and going pretty good. Now, in the beginning of September, I'm way back down to 95 lbs. I'm not gaining anything, even though I eat like a horse! So the Gtube has come into conversation.

I am all for it, as it would take some of the pressure off of me. I understand that I will still have to eat healthily during the day, but I will be getting more calories at night.

The type of tube they're talking about is the Mic-key. I don't know a lot about the Bard, but they didnt ask what one i wanted, so it's the Mickey that im getting.

Anyway, can some of you share your experience[s] with the mickey, and what the second procedure was like for you [where they take the tube out and put the button in]?
I would sure apreciate it!

Lauren
17yo with CF, AFB, ABPA, Asthma

AGRLMK
09-13-2008, 12:27 AM
Hi all!

Until recently I had been a healthy' CF patient. In june I took a few trips and didn't eat well, and worked my *** off! haha Anyway, in the beginning of June I weighed 105lbs. Everything was going up and going pretty good. Now, in the beginning of September, I'm way back down to 95 lbs. I'm not gaining anything, even though I eat like a horse! So the Gtube has come into conversation.

I am all for it, as it would take some of the pressure off of me. I understand that I will still have to eat healthily during the day, but I will be getting more calories at night.

The type of tube they're talking about is the Mic-key. I don't know a lot about the Bard, but they didnt ask what one i wanted, so it's the Mickey that im getting.

Anyway, can some of you share your experience[s] with the mickey, and what the second procedure was like for you [where they take the tube out and put the button in]?
I would sure apreciate it!

Lauren
17yo with CF, AFB, ABPA, Asthma

AGRLMK
09-13-2008, 12:27 AM
Hi all!
<br />
<br />Until recently I had been a healthy' CF patient. In june I took a few trips and didn't eat well, and worked my *** off! haha Anyway, in the beginning of June I weighed 105lbs. Everything was going up and going pretty good. Now, in the beginning of September, I'm way back down to 95 lbs. I'm not gaining anything, even though I eat like a horse! So the Gtube has come into conversation.
<br />
<br />I am all for it, as it would take some of the pressure off of me. I understand that I will still have to eat healthily during the day, but I will be getting more calories at night.
<br />
<br />The type of tube they're talking about is the Mic-key. I don't know a lot about the Bard, but they didnt ask what one i wanted, so it's the Mickey that im getting.
<br />
<br />Anyway, can some of you share your experience[s] with the mickey, and what the second procedure was like for you [where they take the tube out and put the button in]?
<br />I would sure apreciate it!
<br />
<br />Lauren
<br />17yo with CF, AFB, ABPA, Asthma

Jane
09-14-2008, 04:46 PM
My boys have a Bard style button. They are like a beach ball snap. I posted pictures once before, if you'd like to see it, let me know. There are a few differences. The Mic-Key is removable so if it breaks it can be fixed quickly.

Before the Mic-key is put in, they put in a tube (peg) to keep the hole open while its healing (6 weeks I think). It is awkward but can usually be kept flat by wrapping it. After the hole heals, they just slide out the tube and slide in the button.

The Bard button is placed all at once during surgery. The Bard is all one piece. The button itself is very flat (flatter than a mic-key).
Another good thing about the Mic-key is that the extension tube locks into place so there is less chace of leakage at night.

We don't have experience with the Mic-key but you can ask me anything you can think of.

Jane
09-14-2008, 04:46 PM
My boys have a Bard style button. They are like a beach ball snap. I posted pictures once before, if you'd like to see it, let me know. There are a few differences. The Mic-Key is removable so if it breaks it can be fixed quickly.

Before the Mic-key is put in, they put in a tube (peg) to keep the hole open while its healing (6 weeks I think). It is awkward but can usually be kept flat by wrapping it. After the hole heals, they just slide out the tube and slide in the button.

The Bard button is placed all at once during surgery. The Bard is all one piece. The button itself is very flat (flatter than a mic-key).
Another good thing about the Mic-key is that the extension tube locks into place so there is less chace of leakage at night.

We don't have experience with the Mic-key but you can ask me anything you can think of.

Jane
09-14-2008, 04:46 PM
My boys have a Bard style button. They are like a beach ball snap. I posted pictures once before, if you'd like to see it, let me know. There are a few differences. The Mic-Key is removable so if it breaks it can be fixed quickly.

Before the Mic-key is put in, they put in a tube (peg) to keep the hole open while its healing (6 weeks I think). It is awkward but can usually be kept flat by wrapping it. After the hole heals, they just slide out the tube and slide in the button.

The Bard button is placed all at once during surgery. The Bard is all one piece. The button itself is very flat (flatter than a mic-key).
Another good thing about the Mic-key is that the extension tube locks into place so there is less chace of leakage at night.

We don't have experience with the Mic-key but you can ask me anything you can think of.

Jane
09-14-2008, 04:46 PM
My boys have a Bard style button. They are like a beach ball snap. I posted pictures once before, if you'd like to see it, let me know. There are a few differences. The Mic-Key is removable so if it breaks it can be fixed quickly.

Before the Mic-key is put in, they put in a tube (peg) to keep the hole open while its healing (6 weeks I think). It is awkward but can usually be kept flat by wrapping it. After the hole heals, they just slide out the tube and slide in the button.

The Bard button is placed all at once during surgery. The Bard is all one piece. The button itself is very flat (flatter than a mic-key).
Another good thing about the Mic-key is that the extension tube locks into place so there is less chace of leakage at night.

We don't have experience with the Mic-key but you can ask me anything you can think of.

Jane
09-14-2008, 04:46 PM
My boys have a Bard style button. They are like a beach ball snap. I posted pictures once before, if you'd like to see it, let me know. There are a few differences. The Mic-Key is removable so if it breaks it can be fixed quickly.
<br />
<br />Before the Mic-key is put in, they put in a tube (peg) to keep the hole open while its healing (6 weeks I think). It is awkward but can usually be kept flat by wrapping it. After the hole heals, they just slide out the tube and slide in the button.
<br />
<br />The Bard button is placed all at once during surgery. The Bard is all one piece. The button itself is very flat (flatter than a mic-key).
<br />Another good thing about the Mic-key is that the extension tube locks into place so there is less chace of leakage at night.
<br />
<br /> We don't have experience with the Mic-key but you can ask me anything you can think of.

JennyCoulon
09-15-2008, 06:45 PM
My oldest son is 8 and has had his g button for abotu 2 years. He originally got the bard but then after a while they switched it to he Mini so we could switch it out at home by ourselves.

The Mini is like the Mickey as far as it locks but it is small and not as bulky as the Mickey. We can change the Mini out at home and we do about every 2.5-3 months. It took about 6-8 months to get the granulation tissue around the site taken care of but it is now doing just fine.

I believe he got his on a Tuesday and was home on Friday. He plays soccer and is just as active as any other 8 year old boy. Hope this helps.

JennyCoulon
09-15-2008, 06:45 PM
My oldest son is 8 and has had his g button for abotu 2 years. He originally got the bard but then after a while they switched it to he Mini so we could switch it out at home by ourselves.

The Mini is like the Mickey as far as it locks but it is small and not as bulky as the Mickey. We can change the Mini out at home and we do about every 2.5-3 months. It took about 6-8 months to get the granulation tissue around the site taken care of but it is now doing just fine.

I believe he got his on a Tuesday and was home on Friday. He plays soccer and is just as active as any other 8 year old boy. Hope this helps.

JennyCoulon
09-15-2008, 06:45 PM
My oldest son is 8 and has had his g button for abotu 2 years. He originally got the bard but then after a while they switched it to he Mini so we could switch it out at home by ourselves.

The Mini is like the Mickey as far as it locks but it is small and not as bulky as the Mickey. We can change the Mini out at home and we do about every 2.5-3 months. It took about 6-8 months to get the granulation tissue around the site taken care of but it is now doing just fine.

I believe he got his on a Tuesday and was home on Friday. He plays soccer and is just as active as any other 8 year old boy. Hope this helps.

JennyCoulon
09-15-2008, 06:45 PM
My oldest son is 8 and has had his g button for abotu 2 years. He originally got the bard but then after a while they switched it to he Mini so we could switch it out at home by ourselves.

The Mini is like the Mickey as far as it locks but it is small and not as bulky as the Mickey. We can change the Mini out at home and we do about every 2.5-3 months. It took about 6-8 months to get the granulation tissue around the site taken care of but it is now doing just fine.

I believe he got his on a Tuesday and was home on Friday. He plays soccer and is just as active as any other 8 year old boy. Hope this helps.

JennyCoulon
09-15-2008, 06:45 PM
My oldest son is 8 and has had his g button for abotu 2 years. He originally got the bard but then after a while they switched it to he Mini so we could switch it out at home by ourselves.
<br />
<br />The Mini is like the Mickey as far as it locks but it is small and not as bulky as the Mickey. We can change the Mini out at home and we do about every 2.5-3 months. It took about 6-8 months to get the granulation tissue around the site taken care of but it is now doing just fine.
<br />
<br />I believe he got his on a Tuesday and was home on Friday. He plays soccer and is just as active as any other 8 year old boy. Hope this helps.

AGRLMK
09-20-2008, 12:05 AM
Thanks for replying! My surgery is scheduled on Monday...I can't wait! Was there a lot of pain for your boys after the surgery? How long did it take for them to resume 'normal' activity?

Thanks again! I honestly can't wait to get mine!!

<img src="i/expressions/face-icon-small-smile.gif" border="0"> Laur

AGRLMK
09-20-2008, 12:05 AM
Thanks for replying! My surgery is scheduled on Monday...I can't wait! Was there a lot of pain for your boys after the surgery? How long did it take for them to resume 'normal' activity?

Thanks again! I honestly can't wait to get mine!!

<img src="i/expressions/face-icon-small-smile.gif" border="0"> Laur

AGRLMK
09-20-2008, 12:05 AM
Thanks for replying! My surgery is scheduled on Monday...I can't wait! Was there a lot of pain for your boys after the surgery? How long did it take for them to resume 'normal' activity?

Thanks again! I honestly can't wait to get mine!!

<img src="i/expressions/face-icon-small-smile.gif" border="0"> Laur

AGRLMK
09-20-2008, 12:05 AM
Thanks for replying! My surgery is scheduled on Monday...I can't wait! Was there a lot of pain for your boys after the surgery? How long did it take for them to resume 'normal' activity?

Thanks again! I honestly can't wait to get mine!!

<img src="i/expressions/face-icon-small-smile.gif" border="0"> Laur

AGRLMK
09-20-2008, 12:05 AM
Thanks for replying! My surgery is scheduled on Monday...I can't wait! Was there a lot of pain for your boys after the surgery? How long did it take for them to resume 'normal' activity?
<br />
<br />Thanks again! I honestly can't wait to get mine!!
<br />
<br /><img src="i/expressions/face-icon-small-smile.gif" border="0"> Laur

Jane
09-20-2008, 10:42 AM
My boys took about a week to feel better after the button. It was hard to cough for a while though, (they had to hold a pillow on their stomach and press in).

They had the morphine pump the first 24 hours I think. AFter that they had tylenol/codeine, but I remember they didn't use it much.

Good luck and let us know how it goes!

Jane
09-20-2008, 10:42 AM
My boys took about a week to feel better after the button. It was hard to cough for a while though, (they had to hold a pillow on their stomach and press in).

They had the morphine pump the first 24 hours I think. AFter that they had tylenol/codeine, but I remember they didn't use it much.

Good luck and let us know how it goes!

Jane
09-20-2008, 10:42 AM
My boys took about a week to feel better after the button. It was hard to cough for a while though, (they had to hold a pillow on their stomach and press in).

They had the morphine pump the first 24 hours I think. AFter that they had tylenol/codeine, but I remember they didn't use it much.

Good luck and let us know how it goes!

Jane
09-20-2008, 10:42 AM
My boys took about a week to feel better after the button. It was hard to cough for a while though, (they had to hold a pillow on their stomach and press in).

They had the morphine pump the first 24 hours I think. AFter that they had tylenol/codeine, but I remember they didn't use it much.

Good luck and let us know how it goes!

Jane
09-20-2008, 10:42 AM
My boys took about a week to feel better after the button. It was hard to cough for a while though, (they had to hold a pillow on their stomach and press in).
<br />
<br />They had the morphine pump the first 24 hours I think. AFter that they had tylenol/codeine, but I remember they didn't use it much.
<br />
<br />Good luck and let us know how it goes!

Cariann2005Rob
10-23-2008, 04:05 AM
all i have to say is good luck and i hope it works out for you! I have the bard.. i refused to get the mickey cuz it was way to bulky for me! I was way down probably around 73lbs at 5'3"... my husband made me get it... if it wasnt for him i wouldnt have gotten it but for sure it has helped me out allot! i hate it though now! i am usually usually around 103lbs... but when i get sick i loose around 10lbs in less then a week! so it does help out when i get sick and dont feel like eating!!! anyways, i wish you luck and i hope you are happy with it.. the pain wasnt to bad afterwards, but it did hurt a little bit when you cough!!! good luck!

Cariann2005Rob
10-23-2008, 04:05 AM
all i have to say is good luck and i hope it works out for you! I have the bard.. i refused to get the mickey cuz it was way to bulky for me! I was way down probably around 73lbs at 5'3"... my husband made me get it... if it wasnt for him i wouldnt have gotten it but for sure it has helped me out allot! i hate it though now! i am usually usually around 103lbs... but when i get sick i loose around 10lbs in less then a week! so it does help out when i get sick and dont feel like eating!!! anyways, i wish you luck and i hope you are happy with it.. the pain wasnt to bad afterwards, but it did hurt a little bit when you cough!!! good luck!

Cariann2005Rob
10-23-2008, 04:05 AM
all i have to say is good luck and i hope it works out for you! I have the bard.. i refused to get the mickey cuz it was way to bulky for me! I was way down probably around 73lbs at 5'3"... my husband made me get it... if it wasnt for him i wouldnt have gotten it but for sure it has helped me out allot! i hate it though now! i am usually usually around 103lbs... but when i get sick i loose around 10lbs in less then a week! so it does help out when i get sick and dont feel like eating!!! anyways, i wish you luck and i hope you are happy with it.. the pain wasnt to bad afterwards, but it did hurt a little bit when you cough!!! good luck!

Cariann2005Rob
10-23-2008, 04:05 AM
all i have to say is good luck and i hope it works out for you! I have the bard.. i refused to get the mickey cuz it was way to bulky for me! I was way down probably around 73lbs at 5'3"... my husband made me get it... if it wasnt for him i wouldnt have gotten it but for sure it has helped me out allot! i hate it though now! i am usually usually around 103lbs... but when i get sick i loose around 10lbs in less then a week! so it does help out when i get sick and dont feel like eating!!! anyways, i wish you luck and i hope you are happy with it.. the pain wasnt to bad afterwards, but it did hurt a little bit when you cough!!! good luck!

Cariann2005Rob
10-23-2008, 04:05 AM
all i have to say is good luck and i hope it works out for you! I have the bard.. i refused to get the mickey cuz it was way to bulky for me! I was way down probably around 73lbs at 5'3"... my husband made me get it... if it wasnt for him i wouldnt have gotten it but for sure it has helped me out allot! i hate it though now! i am usually usually around 103lbs... but when i get sick i loose around 10lbs in less then a week! so it does help out when i get sick and dont feel like eating!!! anyways, i wish you luck and i hope you are happy with it.. the pain wasnt to bad afterwards, but it did hurt a little bit when you cough!!! good luck!

PedsNP2007
10-25-2008, 10:36 AM
I am just curious, but why wouldn't you have gotten it at that weight?

PedsNP2007
10-25-2008, 10:36 AM
I am just curious, but why wouldn't you have gotten it at that weight?

PedsNP2007
10-25-2008, 10:36 AM
I am just curious, but why wouldn't you have gotten it at that weight?

PedsNP2007
10-25-2008, 10:36 AM
I am just curious, but why wouldn't you have gotten it at that weight?

PedsNP2007
10-25-2008, 10:36 AM
I am just curious, but why wouldn't you have gotten it at that weight?

Bostonsox44
12-02-2008, 07:08 PM
The mic-key button g-tube works wonders. i was a healthy CF patient up until may of my freshman (2004-2005) year and i took a turn for the worst. I kept getting put in the hospital all the way to the end of my sophomore (2006-2007) year and around march of that time i decided to get the mic-key button. At that time i weighted 99 pounds and got up too about 125 over that summer then started doing a bolus instead of a continuous feed over night and started getting sick again in my junior (2007-2008) year and started losing weight again and now im a senior and i've started the pump back and i went from 111 pounds to 123 in just a month.

Bostonsox44
12-02-2008, 07:08 PM
The mic-key button g-tube works wonders. i was a healthy CF patient up until may of my freshman (2004-2005) year and i took a turn for the worst. I kept getting put in the hospital all the way to the end of my sophomore (2006-2007) year and around march of that time i decided to get the mic-key button. At that time i weighted 99 pounds and got up too about 125 over that summer then started doing a bolus instead of a continuous feed over night and started getting sick again in my junior (2007-2008) year and started losing weight again and now im a senior and i've started the pump back and i went from 111 pounds to 123 in just a month.

Bostonsox44
12-02-2008, 07:08 PM
The mic-key button g-tube works wonders. i was a healthy CF patient up until may of my freshman (2004-2005) year and i took a turn for the worst. I kept getting put in the hospital all the way to the end of my sophomore (2006-2007) year and around march of that time i decided to get the mic-key button. At that time i weighted 99 pounds and got up too about 125 over that summer then started doing a bolus instead of a continuous feed over night and started getting sick again in my junior (2007-2008) year and started losing weight again and now im a senior and i've started the pump back and i went from 111 pounds to 123 in just a month.

Bostonsox44
12-02-2008, 07:08 PM
The mic-key button g-tube works wonders. i was a healthy CF patient up until may of my freshman (2004-2005) year and i took a turn for the worst. I kept getting put in the hospital all the way to the end of my sophomore (2006-2007) year and around march of that time i decided to get the mic-key button. At that time i weighted 99 pounds and got up too about 125 over that summer then started doing a bolus instead of a continuous feed over night and started getting sick again in my junior (2007-2008) year and started losing weight again and now im a senior and i've started the pump back and i went from 111 pounds to 123 in just a month.

Bostonsox44
12-02-2008, 07:08 PM
The mic-key button g-tube works wonders. i was a healthy CF patient up until may of my freshman (2004-2005) year and i took a turn for the worst. I kept getting put in the hospital all the way to the end of my sophomore (2006-2007) year and around march of that time i decided to get the mic-key button. At that time i weighted 99 pounds and got up too about 125 over that summer then started doing a bolus instead of a continuous feed over night and started getting sick again in my junior (2007-2008) year and started losing weight again and now im a senior and i've started the pump back and i went from 111 pounds to 123 in just a month.