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Tiffado
06-20-2008, 08:40 PM
Just wondering if anyone knows if CF causes malabsorption of vitamins in everyone or only if you have pancreatic insufficiency....

My 7 week old is not expected to have any pancreatic involvement (DF08 and R117H-7T) but her CF center started her on liquid vitamins. Source CF.

Tiffado
06-20-2008, 08:40 PM
Just wondering if anyone knows if CF causes malabsorption of vitamins in everyone or only if you have pancreatic insufficiency....

My 7 week old is not expected to have any pancreatic involvement (DF08 and R117H-7T) but her CF center started her on liquid vitamins. Source CF.

Tiffado
06-20-2008, 08:40 PM
Just wondering if anyone knows if CF causes malabsorption of vitamins in everyone or only if you have pancreatic insufficiency....

My 7 week old is not expected to have any pancreatic involvement (DF08 and R117H-7T) but her CF center started her on liquid vitamins. Source CF.

Tiffado
06-20-2008, 08:40 PM
Just wondering if anyone knows if CF causes malabsorption of vitamins in everyone or only if you have pancreatic insufficiency....

My 7 week old is not expected to have any pancreatic involvement (DF08 and R117H-7T) but her CF center started her on liquid vitamins. Source CF.

Tiffado
06-20-2008, 08:40 PM
Just wondering if anyone knows if CF causes malabsorption of vitamins in everyone or only if you have pancreatic insufficiency....
<br />
<br />My 7 week old is not expected to have any pancreatic involvement (DF08 and R117H-7T) but her CF center started her on liquid vitamins. Source CF.

paysmom
06-20-2008, 09:03 PM
My son is PS and takes source cf vitamins monday wendsday and friday. He use to take them daily for 6 years but his levels where to high this last time.

paysmom
06-20-2008, 09:03 PM
My son is PS and takes source cf vitamins monday wendsday and friday. He use to take them daily for 6 years but his levels where to high this last time.

paysmom
06-20-2008, 09:03 PM
My son is PS and takes source cf vitamins monday wendsday and friday. He use to take them daily for 6 years but his levels where to high this last time.

paysmom
06-20-2008, 09:03 PM
My son is PS and takes source cf vitamins monday wendsday and friday. He use to take them daily for 6 years but his levels where to high this last time.

paysmom
06-20-2008, 09:03 PM
My son is PS and takes source cf vitamins monday wendsday and friday. He use to take them daily for 6 years but his levels where to high this last time.

Shine
06-23-2008, 12:13 PM
I think it depends on the Cfer.

I take vitamins every day. I was dignosed at the age of 2 and half years having the mutation Delta 508, which also meant I was pancreatic insufficient. So I have been on vitamins since I was a child because I was suffering from malutrition (as baby had the pot stomach thing going on, back there)lol.

Still they Doctors never put me on vitamin D til they found I was low at the age of 18 (when I transfered to adult hospital.) My dietitian said I had been low in vitamin D for a few years.

Since then, I have always found it a struggle to get my vitamin D levels up. Even with the Vitamin D supplement the Dietitian gave me at 18. So I have deciede on using trim milk with extra vitamins D and C in it.

Also I (on a different note) I find taking Flaxseed oil capsule 1000mgs, 2 times a day, has greatly helped my lungs. As we cfers often digest our essential fatty acids.

Hope this helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

Now 27yrs w/c.f mutation DF508

Shine
06-23-2008, 12:13 PM
I think it depends on the Cfer.

I take vitamins every day. I was dignosed at the age of 2 and half years having the mutation Delta 508, which also meant I was pancreatic insufficient. So I have been on vitamins since I was a child because I was suffering from malutrition (as baby had the pot stomach thing going on, back there)lol.

Still they Doctors never put me on vitamin D til they found I was low at the age of 18 (when I transfered to adult hospital.) My dietitian said I had been low in vitamin D for a few years.

Since then, I have always found it a struggle to get my vitamin D levels up. Even with the Vitamin D supplement the Dietitian gave me at 18. So I have deciede on using trim milk with extra vitamins D and C in it.

Also I (on a different note) I find taking Flaxseed oil capsule 1000mgs, 2 times a day, has greatly helped my lungs. As we cfers often digest our essential fatty acids.

Hope this helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

Now 27yrs w/c.f mutation DF508

Shine
06-23-2008, 12:13 PM
I think it depends on the Cfer.

I take vitamins every day. I was dignosed at the age of 2 and half years having the mutation Delta 508, which also meant I was pancreatic insufficient. So I have been on vitamins since I was a child because I was suffering from malutrition (as baby had the pot stomach thing going on, back there)lol.

Still they Doctors never put me on vitamin D til they found I was low at the age of 18 (when I transfered to adult hospital.) My dietitian said I had been low in vitamin D for a few years.

Since then, I have always found it a struggle to get my vitamin D levels up. Even with the Vitamin D supplement the Dietitian gave me at 18. So I have deciede on using trim milk with extra vitamins D and C in it.

Also I (on a different note) I find taking Flaxseed oil capsule 1000mgs, 2 times a day, has greatly helped my lungs. As we cfers often digest our essential fatty acids.

Hope this helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

Now 27yrs w/c.f mutation DF508

Shine
06-23-2008, 12:13 PM
I think it depends on the Cfer.

I take vitamins every day. I was dignosed at the age of 2 and half years having the mutation Delta 508, which also meant I was pancreatic insufficient. So I have been on vitamins since I was a child because I was suffering from malutrition (as baby had the pot stomach thing going on, back there)lol.

Still they Doctors never put me on vitamin D til they found I was low at the age of 18 (when I transfered to adult hospital.) My dietitian said I had been low in vitamin D for a few years.

Since then, I have always found it a struggle to get my vitamin D levels up. Even with the Vitamin D supplement the Dietitian gave me at 18. So I have deciede on using trim milk with extra vitamins D and C in it.

Also I (on a different note) I find taking Flaxseed oil capsule 1000mgs, 2 times a day, has greatly helped my lungs. As we cfers often digest our essential fatty acids.

Hope this helps <img src="i/expressions/face-icon-small-smile.gif" border="0">

Now 27yrs w/c.f mutation DF508

Shine
06-23-2008, 12:13 PM
I think it depends on the Cfer.
<br />
<br />I take vitamins every day. I was dignosed at the age of 2 and half years having the mutation Delta 508, which also meant I was pancreatic insufficient. So I have been on vitamins since I was a child because I was suffering from malutrition (as baby had the pot stomach thing going on, back there)lol.
<br />
<br />Still they Doctors never put me on vitamin D til they found I was low at the age of 18 (when I transfered to adult hospital.) My dietitian said I had been low in vitamin D for a few years.
<br />
<br />Since then, I have always found it a struggle to get my vitamin D levels up. Even with the Vitamin D supplement the Dietitian gave me at 18. So I have deciede on using trim milk with extra vitamins D and C in it.
<br />
<br />Also I (on a different note) I find taking Flaxseed oil capsule 1000mgs, 2 times a day, has greatly helped my lungs. As we cfers often digest our essential fatty acids.
<br />
<br />Hope this helps <img src="i/expressions/face-icon-small-smile.gif" border="0">
<br />
<br />Now 27yrs w/c.f mutation DF508

Shine
06-23-2008, 12:17 PM
I meant to say We DON"T Often digest our essential fatty acids.
sorry but I left out the "don't" in my sentence lol

Shine
06-23-2008, 12:17 PM
I meant to say We DON"T Often digest our essential fatty acids.
sorry but I left out the "don't" in my sentence lol

Shine
06-23-2008, 12:17 PM
I meant to say We DON"T Often digest our essential fatty acids.
sorry but I left out the "don't" in my sentence lol

Shine
06-23-2008, 12:17 PM
I meant to say We DON"T Often digest our essential fatty acids.
sorry but I left out the "don't" in my sentence lol

Shine
06-23-2008, 12:17 PM
I meant to say We DON"T Often digest our essential fatty acids.
<br />sorry but I left out the "don't" in my sentence lol

Tiffado
07-03-2008, 10:05 AM
Well I got my answer from my daughters doctor. She said that my daughter does NOT have to take the vitamins. She originally started her on them even though she was PS because the thought process was "just in case". I guess they do that a lot to be safe. We will just follow her and check levels regulary.

Tiffado
07-03-2008, 10:05 AM
Well I got my answer from my daughters doctor. She said that my daughter does NOT have to take the vitamins. She originally started her on them even though she was PS because the thought process was "just in case". I guess they do that a lot to be safe. We will just follow her and check levels regulary.

Tiffado
07-03-2008, 10:05 AM
Well I got my answer from my daughters doctor. She said that my daughter does NOT have to take the vitamins. She originally started her on them even though she was PS because the thought process was "just in case". I guess they do that a lot to be safe. We will just follow her and check levels regulary.

Tiffado
07-03-2008, 10:05 AM
Well I got my answer from my daughters doctor. She said that my daughter does NOT have to take the vitamins. She originally started her on them even though she was PS because the thought process was "just in case". I guess they do that a lot to be safe. We will just follow her and check levels regulary.

Tiffado
07-03-2008, 10:05 AM
Well I got my answer from my daughters doctor. She said that my daughter does NOT have to take the vitamins. She originally started her on them even though she was PS because the thought process was "just in case". I guess they do that a lot to be safe. We will just follow her and check levels regulary.

cheygemini
07-23-2008, 06:19 AM
Even if your doctor says she doesn't need them now, I think a small amount is very good when she is older (6 mo.+). Especially vit. D & E and Omega 3 oils. It can't hurt, as long as her levels don't get too high. And as long as you don't give her too much, the healthier her body is, the better to fight off infection. If she has extra reserves of vitamins/minerals to draw on when or if she gets sick, or at times when she might not be eating a lot, then she will be ahead of the game.
That is just my opinion. I really believe in going the extra mile when it comes to nutrition. It can be hard to get the necessary dosages of nutrients that a person with CF needs in order to thrive, especially when eating a normal american diet and not taking supplemental vitamins (let alone when you have to deal with a child's pickiness!). They not only have malabsorption to deal with, but constantly fighting bacteria puts a heavy load on their body, and they use up nutrients much more quickly than a person w/out CF.
-Willow, mom to Cheyenne, 3, w/CF

cheygemini
07-23-2008, 06:19 AM
Even if your doctor says she doesn't need them now, I think a small amount is very good when she is older (6 mo.+). Especially vit. D & E and Omega 3 oils. It can't hurt, as long as her levels don't get too high. And as long as you don't give her too much, the healthier her body is, the better to fight off infection. If she has extra reserves of vitamins/minerals to draw on when or if she gets sick, or at times when she might not be eating a lot, then she will be ahead of the game.
That is just my opinion. I really believe in going the extra mile when it comes to nutrition. It can be hard to get the necessary dosages of nutrients that a person with CF needs in order to thrive, especially when eating a normal american diet and not taking supplemental vitamins (let alone when you have to deal with a child's pickiness!). They not only have malabsorption to deal with, but constantly fighting bacteria puts a heavy load on their body, and they use up nutrients much more quickly than a person w/out CF.
-Willow, mom to Cheyenne, 3, w/CF

cheygemini
07-23-2008, 06:19 AM
Even if your doctor says she doesn't need them now, I think a small amount is very good when she is older (6 mo.+). Especially vit. D & E and Omega 3 oils. It can't hurt, as long as her levels don't get too high. And as long as you don't give her too much, the healthier her body is, the better to fight off infection. If she has extra reserves of vitamins/minerals to draw on when or if she gets sick, or at times when she might not be eating a lot, then she will be ahead of the game.
That is just my opinion. I really believe in going the extra mile when it comes to nutrition. It can be hard to get the necessary dosages of nutrients that a person with CF needs in order to thrive, especially when eating a normal american diet and not taking supplemental vitamins (let alone when you have to deal with a child's pickiness!). They not only have malabsorption to deal with, but constantly fighting bacteria puts a heavy load on their body, and they use up nutrients much more quickly than a person w/out CF.
-Willow, mom to Cheyenne, 3, w/CF

cheygemini
07-23-2008, 06:19 AM
Even if your doctor says she doesn't need them now, I think a small amount is very good when she is older (6 mo.+). Especially vit. D & E and Omega 3 oils. It can't hurt, as long as her levels don't get too high. And as long as you don't give her too much, the healthier her body is, the better to fight off infection. If she has extra reserves of vitamins/minerals to draw on when or if she gets sick, or at times when she might not be eating a lot, then she will be ahead of the game.
That is just my opinion. I really believe in going the extra mile when it comes to nutrition. It can be hard to get the necessary dosages of nutrients that a person with CF needs in order to thrive, especially when eating a normal american diet and not taking supplemental vitamins (let alone when you have to deal with a child's pickiness!). They not only have malabsorption to deal with, but constantly fighting bacteria puts a heavy load on their body, and they use up nutrients much more quickly than a person w/out CF.
-Willow, mom to Cheyenne, 3, w/CF

cheygemini
07-23-2008, 06:19 AM
Even if your doctor says she doesn't need them now, I think a small amount is very good when she is older (6 mo.+). Especially vit. D & E and Omega 3 oils. It can't hurt, as long as her levels don't get too high. And as long as you don't give her too much, the healthier her body is, the better to fight off infection. If she has extra reserves of vitamins/minerals to draw on when or if she gets sick, or at times when she might not be eating a lot, then she will be ahead of the game.
<br />That is just my opinion. I really believe in going the extra mile when it comes to nutrition. It can be hard to get the necessary dosages of nutrients that a person with CF needs in order to thrive, especially when eating a normal american diet and not taking supplemental vitamins (let alone when you have to deal with a child's pickiness!). They not only have malabsorption to deal with, but constantly fighting bacteria puts a heavy load on their body, and they use up nutrients much more quickly than a person w/out CF.
<br />-Willow, mom to Cheyenne, 3, w/CF