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mindy515
08-21-2007, 12:55 AM
Hi Everyone,

This is my first post, so please bare with me.

My husband and I just adopted a 2 1/2 year old with CF. He is doing wonderfully and most of his problems are GI. He has a Bard Button and the closure on the button has worn out. We saw the GI doctor at John's Hopkins 2 weeks ago and he says the button looks great. He said we could change it if we want but that it was a procedure that our son was not going to like. My husband and I don't want to put him through that if the button itself is okay.

I'm hoping there are some other CF parents out there that have experienced this before and maybe have some creative ways of keeping the button closed. The Drs. say not to cover it. We tried tiny rubberbands, but he is so active that they were pinching his skin. Medical tape won't stick to it. Any ideas?????

We are constantly having to close it and if it comes open during the night it soaks his sheets.

If anybody has any advice we would appreciate it.

Take Care,
Mindy

mindy515
08-21-2007, 12:55 AM
Hi Everyone,

This is my first post, so please bare with me.

My husband and I just adopted a 2 1/2 year old with CF. He is doing wonderfully and most of his problems are GI. He has a Bard Button and the closure on the button has worn out. We saw the GI doctor at John's Hopkins 2 weeks ago and he says the button looks great. He said we could change it if we want but that it was a procedure that our son was not going to like. My husband and I don't want to put him through that if the button itself is okay.

I'm hoping there are some other CF parents out there that have experienced this before and maybe have some creative ways of keeping the button closed. The Drs. say not to cover it. We tried tiny rubberbands, but he is so active that they were pinching his skin. Medical tape won't stick to it. Any ideas?????

We are constantly having to close it and if it comes open during the night it soaks his sheets.

If anybody has any advice we would appreciate it.

Take Care,
Mindy

mindy515
08-21-2007, 12:55 AM
Hi Everyone,

This is my first post, so please bare with me.

My husband and I just adopted a 2 1/2 year old with CF. He is doing wonderfully and most of his problems are GI. He has a Bard Button and the closure on the button has worn out. We saw the GI doctor at John's Hopkins 2 weeks ago and he says the button looks great. He said we could change it if we want but that it was a procedure that our son was not going to like. My husband and I don't want to put him through that if the button itself is okay.

I'm hoping there are some other CF parents out there that have experienced this before and maybe have some creative ways of keeping the button closed. The Drs. say not to cover it. We tried tiny rubberbands, but he is so active that they were pinching his skin. Medical tape won't stick to it. Any ideas?????

We are constantly having to close it and if it comes open during the night it soaks his sheets.

If anybody has any advice we would appreciate it.

Take Care,
Mindy

mindy515
08-21-2007, 12:55 AM
Hi Everyone,

This is my first post, so please bare with me.

My husband and I just adopted a 2 1/2 year old with CF. He is doing wonderfully and most of his problems are GI. He has a Bard Button and the closure on the button has worn out. We saw the GI doctor at John's Hopkins 2 weeks ago and he says the button looks great. He said we could change it if we want but that it was a procedure that our son was not going to like. My husband and I don't want to put him through that if the button itself is okay.

I'm hoping there are some other CF parents out there that have experienced this before and maybe have some creative ways of keeping the button closed. The Drs. say not to cover it. We tried tiny rubberbands, but he is so active that they were pinching his skin. Medical tape won't stick to it. Any ideas?????

We are constantly having to close it and if it comes open during the night it soaks his sheets.

If anybody has any advice we would appreciate it.

Take Care,
Mindy

mindy515
08-21-2007, 12:55 AM
Hi Everyone,

This is my first post, so please bare with me.

My husband and I just adopted a 2 1/2 year old with CF. He is doing wonderfully and most of his problems are GI. He has a Bard Button and the closure on the button has worn out. We saw the GI doctor at John's Hopkins 2 weeks ago and he says the button looks great. He said we could change it if we want but that it was a procedure that our son was not going to like. My husband and I don't want to put him through that if the button itself is okay.

I'm hoping there are some other CF parents out there that have experienced this before and maybe have some creative ways of keeping the button closed. The Drs. say not to cover it. We tried tiny rubberbands, but he is so active that they were pinching his skin. Medical tape won't stick to it. Any ideas?????

We are constantly having to close it and if it comes open during the night it soaks his sheets.

If anybody has any advice we would appreciate it.

Take Care,
Mindy

Jane
08-21-2007, 02:40 PM
Oh have we been there!!!

My boys also have the Bard button. They chose the Bard over the Mic-key because of the flat profile. However, the closure is a real problem.

My older son plays with the tab (nervous habit) and broke the snap part off. My husband devised a genius way to keep it closed. We ended up having it replaced later, but it worked fine for a few months.

This is what he did. Pull the hard plastic plug end off some extension tubing (the part that fits into the button for feeding). Heat the round part that attached to the tubing (he used a propane lighter). Pinch the end flat with some pliers.

Insert it just like the Bard flap, it just won't be attached. brilliant!

oh also, my son always keeps a piece of medical tape over the flap at school. It keeps him confident and has never given us any problem. Air still gets in so its not completely covered.

Jane
08-21-2007, 02:40 PM
Oh have we been there!!!

My boys also have the Bard button. They chose the Bard over the Mic-key because of the flat profile. However, the closure is a real problem.

My older son plays with the tab (nervous habit) and broke the snap part off. My husband devised a genius way to keep it closed. We ended up having it replaced later, but it worked fine for a few months.

This is what he did. Pull the hard plastic plug end off some extension tubing (the part that fits into the button for feeding). Heat the round part that attached to the tubing (he used a propane lighter). Pinch the end flat with some pliers.

Insert it just like the Bard flap, it just won't be attached. brilliant!

oh also, my son always keeps a piece of medical tape over the flap at school. It keeps him confident and has never given us any problem. Air still gets in so its not completely covered.

Jane
08-21-2007, 02:40 PM
Oh have we been there!!!

My boys also have the Bard button. They chose the Bard over the Mic-key because of the flat profile. However, the closure is a real problem.

My older son plays with the tab (nervous habit) and broke the snap part off. My husband devised a genius way to keep it closed. We ended up having it replaced later, but it worked fine for a few months.

This is what he did. Pull the hard plastic plug end off some extension tubing (the part that fits into the button for feeding). Heat the round part that attached to the tubing (he used a propane lighter). Pinch the end flat with some pliers.

Insert it just like the Bard flap, it just won't be attached. brilliant!

oh also, my son always keeps a piece of medical tape over the flap at school. It keeps him confident and has never given us any problem. Air still gets in so its not completely covered.

Jane
08-21-2007, 02:40 PM
Oh have we been there!!!

My boys also have the Bard button. They chose the Bard over the Mic-key because of the flat profile. However, the closure is a real problem.

My older son plays with the tab (nervous habit) and broke the snap part off. My husband devised a genius way to keep it closed. We ended up having it replaced later, but it worked fine for a few months.

This is what he did. Pull the hard plastic plug end off some extension tubing (the part that fits into the button for feeding). Heat the round part that attached to the tubing (he used a propane lighter). Pinch the end flat with some pliers.

Insert it just like the Bard flap, it just won't be attached. brilliant!

oh also, my son always keeps a piece of medical tape over the flap at school. It keeps him confident and has never given us any problem. Air still gets in so its not completely covered.

Jane
08-21-2007, 02:40 PM
Oh have we been there!!!

My boys also have the Bard button. They chose the Bard over the Mic-key because of the flat profile. However, the closure is a real problem.

My older son plays with the tab (nervous habit) and broke the snap part off. My husband devised a genius way to keep it closed. We ended up having it replaced later, but it worked fine for a few months.

This is what he did. Pull the hard plastic plug end off some extension tubing (the part that fits into the button for feeding). Heat the round part that attached to the tubing (he used a propane lighter). Pinch the end flat with some pliers.

Insert it just like the Bard flap, it just won't be attached. brilliant!

oh also, my son always keeps a piece of medical tape over the flap at school. It keeps him confident and has never given us any problem. Air still gets in so its not completely covered.