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suni
11-21-2011, 05:23 PM
<P>I have notice that my doughter with CF(3 year old ) always have cold hands when she is jumping or running...or doing something why she<SPAN id=result_box lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"> <SPAN class=hps closure_uid_mf5bjr="206" rc="null">must breathe</SPAN> <SPAN class=hps closure_uid_mf5bjr="207" rc="null">rapidly.</SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null">This is very interesting to me because I havebeen studying <SPAN class=hps rc="null" closure_uid_3ssbhl="309">the</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="310">cold hands</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="311">mean</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="312">a kind</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="313">of stress</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="314">to the organism. </SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN id=result_box lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1404">The fact is</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1405">that</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1406">just</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1407">a lot of exercise</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1408">recommended for</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1409">people</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1410">suffering from</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1411">CF</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1412">and</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1413">I am <FONT color=#ff0033>interested in</FONT></SPAN><FONT color=#ff0033> <SPAN class=hps rc="null" closure_uid_3ssbhl="1414">your</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1415">experience</SPAN></FONT> <SPAN class=hps rc="null" closure_uid_3ssbhl="1416">have you noticed</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1417">that</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1418">your CF</SPAN><SPAN class=hps rc="null" closure_uid_3ssbhl="1419">child</SPAN> have <SPAN class=hps rc="null" closure_uid_3ssbhl="1423">cold</SPAN> hands <SPAN class=hps rc="null" closure_uid_3ssbhl="1424">when</SPAN>he<SPAN class=hps rc="null" closure_uid_3ssbhl="1425"> get less air - due to some of mentioned activities.</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN>According to GNMCF patientsshould avoid any situation which couse cold hands again and again.</P>
<P>GNM explanation of progress in CF symptoms: "However, if the healing process is continuously interrupted by<EM> </EM><A class=rvts76 href="http://learninggnm.com/documents/secondlaw.html#Tracks" target=_top><FONT color=#000000><EM>relapses</EM></FONT></A><SPAN class=rvts72><FONT color=#000000><EM>,</EM></FONT> this causes mucoviscidosis in the bronchia or so-called </SPAN><SPAN class=rvts72>[B]cystic fibrosis</B></SPAN><SPAN class=rvts72>."</SPAN></P>
<P><SPAN class=rvts72></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"><FONT color=#ff0033>I would like to see some comments</FONT> on this topic because if we can do something to controlCF for me is not important what is the name of medicine - alternative or standard.</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429">Suni</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429">mother of 3y old Ena (DDF508)</SPAN></SPAN></SPAN></SPAN></SPAN></P>

suni
11-21-2011, 05:23 PM
<P>I have notice that my doughter with CF(3 year old ) always have cold hands when she is jumping or running...or doing something why she<SPAN id=result_box lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"> <SPAN class=hps closure_uid_mf5bjr="206" rc="null">must breathe</SPAN> <SPAN class=hps closure_uid_mf5bjr="207" rc="null">rapidly.</SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null">This is very interesting to me because I havebeen studying <SPAN class=hps rc="null" closure_uid_3ssbhl="309">the</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="310">cold hands</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="311">mean</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="312">a kind</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="313">of stress</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="314">to the organism. </SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN id=result_box lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1404">The fact is</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1405">that</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1406">just</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1407">a lot of exercise</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1408">recommended for</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1409">people</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1410">suffering from</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1411">CF</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1412">and</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1413">I am <FONT color=#ff0033>interested in</FONT></SPAN><FONT color=#ff0033> <SPAN class=hps rc="null" closure_uid_3ssbhl="1414">your</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1415">experience</SPAN></FONT> <SPAN class=hps rc="null" closure_uid_3ssbhl="1416">have you noticed</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1417">that</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1418">your CF</SPAN><SPAN class=hps rc="null" closure_uid_3ssbhl="1419">child</SPAN> have <SPAN class=hps rc="null" closure_uid_3ssbhl="1423">cold</SPAN> hands <SPAN class=hps rc="null" closure_uid_3ssbhl="1424">when</SPAN>he<SPAN class=hps rc="null" closure_uid_3ssbhl="1425"> get less air - due to some of mentioned activities.</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN>According to GNMCF patientsshould avoid any situation which couse cold hands again and again.</P>
<P>GNM explanation of progress in CF symptoms: "However, if the healing process is continuously interrupted by<EM> </EM><A class=rvts76 href="http://learninggnm.com/documents/secondlaw.html#Tracks" target=_top><FONT color=#000000><EM>relapses</EM></FONT></A><SPAN class=rvts72><FONT color=#000000><EM>,</EM></FONT> this causes mucoviscidosis in the bronchia or so-called </SPAN><SPAN class=rvts72>[B]cystic fibrosis</B></SPAN><SPAN class=rvts72>."</SPAN></P>
<P><SPAN class=rvts72></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"><FONT color=#ff0033>I would like to see some comments</FONT> on this topic because if we can do something to controlCF for me is not important what is the name of medicine - alternative or standard.</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429">Suni</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429">mother of 3y old Ena (DDF508)</SPAN></SPAN></SPAN></SPAN></SPAN></P>

suni
11-21-2011, 05:23 PM
<P>I have notice that my doughter with CF(3 year old ) always have cold hands when she is jumping or running...or doing something why she<SPAN id=result_box lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"> <SPAN class=hps closure_uid_mf5bjr="206" rc="null">must breathe</SPAN> <SPAN class=hps closure_uid_mf5bjr="207" rc="null">rapidly.</SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null">This is very interesting to me because I havebeen studying <SPAN class=hps rc="null" closure_uid_3ssbhl="309">the</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="310">cold hands</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="311">mean</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="312">a kind</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="313">of stress</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="314">to the organism. </SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN id=result_box lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1404">The fact is</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1405">that</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1406">just</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1407">a lot of exercise</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1408">recommended for</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1409">people</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1410">suffering from</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1411">CF</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1412">and</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1413">I am <FONT color=#ff0033>interested in</FONT></SPAN><FONT color=#ff0033> <SPAN class=hps rc="null" closure_uid_3ssbhl="1414">your</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1415">experience</SPAN></FONT> <SPAN class=hps rc="null" closure_uid_3ssbhl="1416">have you noticed</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1417">that</SPAN> <SPAN class=hps rc="null" closure_uid_3ssbhl="1418">your CF</SPAN><SPAN class=hps rc="null" closure_uid_3ssbhl="1419">child</SPAN> have <SPAN class=hps rc="null" closure_uid_3ssbhl="1423">cold</SPAN> hands <SPAN class=hps rc="null" closure_uid_3ssbhl="1424">when</SPAN>he<SPAN class=hps rc="null" closure_uid_3ssbhl="1425"> get less air - due to some of mentioned activities.</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN>According to GNMCF patientsshould avoid any situation which couse cold hands again and again.</P>
<P>GNM explanation of progress in CF symptoms: "However, if the healing process is continuously interrupted by<EM> </EM><A class=rvts76 href="http://learninggnm.com/documents/secondlaw.html#Tracks" target=_top><FONT color=#000000><EM>relapses</EM></FONT></A><SPAN class=rvts72><FONT color=#000000><EM>,</EM></FONT> this causes mucoviscidosis in the bronchia or so-called </SPAN><SPAN class=rvts72>[B]cystic fibrosis</B></SPAN><SPAN class=rvts72>."</SPAN></P>
<P><SPAN class=rvts72></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"><FONT color=#ff0033>I would like to see some comments</FONT> on this topic because if we can do something to controlCF for me is not important what is the name of medicine - alternative or standard.</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429">Suni</SPAN></SPAN></SPAN></SPAN></SPAN></P>
<P><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429"></SPAN></SPAN></SPAN></SPAN></SPAN><SPAN lang=en class=short_text c="4" closure_uid_mf5bjr="220" rc="null" a="undefined"><SPAN class=hps closure_uid_mf5bjr="207" rc="null"><SPAN class=hps rc="null" closure_uid_3ssbhl="314"><SPAN lang=en c="4" rc="null" a="undefined" closure_uid_3ssbhl="323"><SPAN class=hps rc="null" closure_uid_3ssbhl="1429">mother of 3y old Ena (DDF508)</SPAN></SPAN></SPAN></SPAN></SPAN></P>

bethylove
02-26-2012, 02:55 PM
Hi Suni,

I tend to experience cold hands and especially cold feet sometimes normally, sometimes when exercising. When I do experience this without exercising, I'm usually not feeling so great. I can tell how well I'm feeling by the color of my toes. Pink= normal, purple = sick. Basically when I'm fighting an infection my appendages aren't the most important part of my body that needs oxygen, therefore I experience lack of blood flow to my feet and hands. (Sometimes my feet feel cold all the way up to mid calf!)

Sometimes when exercising the opposite happens to my feet. They get BRIGHT red and swell up. I was told that my body has a hard time pumping the blood back up once it reaches my feet because that's not what my body is focusing on when I exercise; it's focusing on making sure my lungs and brain get enough oxygen.

If it's a real concern I would take her in for an exercise test (or 6 minute walk) where they measure her oxygen levels as she increases exercise. I know my 02 stats drop well into the low 80's when I did my 6 minute walk and I know when I exercise full out they go even lower. It could be she may need supplemental oxygen when she exercises?

bethylove
02-26-2012, 02:55 PM
Hi Suni,

I tend to experience cold hands and especially cold feet sometimes normally, sometimes when exercising. When I do experience this without exercising, I'm usually not feeling so great. I can tell how well I'm feeling by the color of my toes. Pink= normal, purple = sick. Basically when I'm fighting an infection my appendages aren't the most important part of my body that needs oxygen, therefore I experience lack of blood flow to my feet and hands. (Sometimes my feet feel cold all the way up to mid calf!)

Sometimes when exercising the opposite happens to my feet. They get BRIGHT red and swell up. I was told that my body has a hard time pumping the blood back up once it reaches my feet because that's not what my body is focusing on when I exercise; it's focusing on making sure my lungs and brain get enough oxygen.

If it's a real concern I would take her in for an exercise test (or 6 minute walk) where they measure her oxygen levels as she increases exercise. I know my 02 stats drop well into the low 80's when I did my 6 minute walk and I know when I exercise full out they go even lower. It could be she may need supplemental oxygen when she exercises?