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datca1994
02-06-2007, 02:03 PM
Hello everyone! I thought this forum to be appropriate to ask about air travel because individuals who love to ski, surf, and more probably have to travel by air at one point or another to get to the best spots!

My son is 4-months old with the following mutations of CF: 1525-1G>A and W496X. I understand that this does not necessarily help with the prognosis so I have no questions to that end. He takes enzymes, uses a nebulizer once a day, we do a few minutes of chest therapy each day, and his chest x-ray came out clear.

With all this said we want to make plans to travel by air in the spring. The things that come to my mind as detrimental to his health and maybe solutions:

-crowded airport and germs (should he wear a mask?)
-the same air circulating on the plane
-tight quarters on the plane (would flying first class be "healthier"--it would definitely lift MY spirit!)
-should I consider using the nebulizer more frequently during the trip?

I look forward to reading about your experiences!

April from VA Beach

datca1994
02-06-2007, 02:03 PM
Hello everyone! I thought this forum to be appropriate to ask about air travel because individuals who love to ski, surf, and more probably have to travel by air at one point or another to get to the best spots!

My son is 4-months old with the following mutations of CF: 1525-1G>A and W496X. I understand that this does not necessarily help with the prognosis so I have no questions to that end. He takes enzymes, uses a nebulizer once a day, we do a few minutes of chest therapy each day, and his chest x-ray came out clear.

With all this said we want to make plans to travel by air in the spring. The things that come to my mind as detrimental to his health and maybe solutions:

-crowded airport and germs (should he wear a mask?)
-the same air circulating on the plane
-tight quarters on the plane (would flying first class be "healthier"--it would definitely lift MY spirit!)
-should I consider using the nebulizer more frequently during the trip?

I look forward to reading about your experiences!

April from VA Beach

datca1994
02-06-2007, 02:03 PM
Hello everyone! I thought this forum to be appropriate to ask about air travel because individuals who love to ski, surf, and more probably have to travel by air at one point or another to get to the best spots!

My son is 4-months old with the following mutations of CF: 1525-1G>A and W496X. I understand that this does not necessarily help with the prognosis so I have no questions to that end. He takes enzymes, uses a nebulizer once a day, we do a few minutes of chest therapy each day, and his chest x-ray came out clear.

With all this said we want to make plans to travel by air in the spring. The things that come to my mind as detrimental to his health and maybe solutions:

-crowded airport and germs (should he wear a mask?)
-the same air circulating on the plane
-tight quarters on the plane (would flying first class be "healthier"--it would definitely lift MY spirit!)
-should I consider using the nebulizer more frequently during the trip?

I look forward to reading about your experiences!

April from VA Beach

EnergyGal
02-06-2007, 02:06 PM
I wear a mask on a plane when I fly because all transplant patients are required to. I do not think it can hurt but I believe it is more of what you touch that can make you sick rather than what you breathe in. If the doctor thinks your child should wear a mask then I say always listen to the doctor.

About the nebs, I would only use them as needed.

Have a nice time

I am flying out to Las Vegas and I will be bringing many masks along with me. I will change one every two hours.

EnergyGal
02-06-2007, 02:06 PM
I wear a mask on a plane when I fly because all transplant patients are required to. I do not think it can hurt but I believe it is more of what you touch that can make you sick rather than what you breathe in. If the doctor thinks your child should wear a mask then I say always listen to the doctor.

About the nebs, I would only use them as needed.

Have a nice time

I am flying out to Las Vegas and I will be bringing many masks along with me. I will change one every two hours.

EnergyGal
02-06-2007, 02:06 PM
I wear a mask on a plane when I fly because all transplant patients are required to. I do not think it can hurt but I believe it is more of what you touch that can make you sick rather than what you breathe in. If the doctor thinks your child should wear a mask then I say always listen to the doctor.

About the nebs, I would only use them as needed.

Have a nice time

I am flying out to Las Vegas and I will be bringing many masks along with me. I will change one every two hours.

Ratatosk
02-08-2007, 01:36 PM
DS is 3 1/2 and he's flown several times with no problems. His last trip was a year ago and we went to Mexico. First trip REAL trip (not counting lifeflight after he was born), he was 14 months old.

I did bring hand sanitizer and hand wipes and made sure I washed my hands and his several times, as well as wiping off the trays when it was time for a snack/beverage.

We do pack all his meds and his equipment in carry ons -- I put the drugs for the day and ones that have to be chilled in a small lunch box cooler with an icepack I got from the CF pharmacy (they last FOREVER). I have a separate, small pill box that fits in my purse which I carry every where with me that has enzymes in it.

We'd thought about trying to give him a neb/cpt treatment last winter while waiting for a connecting flight, but we got delayed in customs. So we just did CPT on our laps and did an extra long treatment when we arrived home.

Ratatosk
02-08-2007, 01:36 PM
DS is 3 1/2 and he's flown several times with no problems. His last trip was a year ago and we went to Mexico. First trip REAL trip (not counting lifeflight after he was born), he was 14 months old.

I did bring hand sanitizer and hand wipes and made sure I washed my hands and his several times, as well as wiping off the trays when it was time for a snack/beverage.

We do pack all his meds and his equipment in carry ons -- I put the drugs for the day and ones that have to be chilled in a small lunch box cooler with an icepack I got from the CF pharmacy (they last FOREVER). I have a separate, small pill box that fits in my purse which I carry every where with me that has enzymes in it.

We'd thought about trying to give him a neb/cpt treatment last winter while waiting for a connecting flight, but we got delayed in customs. So we just did CPT on our laps and did an extra long treatment when we arrived home.

Ratatosk
02-08-2007, 01:36 PM
DS is 3 1/2 and he's flown several times with no problems. His last trip was a year ago and we went to Mexico. First trip REAL trip (not counting lifeflight after he was born), he was 14 months old.

I did bring hand sanitizer and hand wipes and made sure I washed my hands and his several times, as well as wiping off the trays when it was time for a snack/beverage.

We do pack all his meds and his equipment in carry ons -- I put the drugs for the day and ones that have to be chilled in a small lunch box cooler with an icepack I got from the CF pharmacy (they last FOREVER). I have a separate, small pill box that fits in my purse which I carry every where with me that has enzymes in it.

We'd thought about trying to give him a neb/cpt treatment last winter while waiting for a connecting flight, but we got delayed in customs. So we just did CPT on our laps and did an extra long treatment when we arrived home.

donny71
02-17-2007, 08:58 PM
I would not be to concerned about flying,

I have cystic Fibrosis my lung functions are 50% ish right now and I JUST got back from hawaii, and I really didn't have any problems with the flying, altough it made me very tired, but take into consideration that I have been up since 7am yesterday plus time change ahhh!

the only special things you should have to do is take all medication on a carry on, make sure they have a prescription labels on them with name and doctors name or they can be taken away!
also this prevents your items from getting lost should your checked luggage be lost, then you will have your meds on you.

also take a doctors note explaining his illness, and that he has permission to have these meds ect.

in my checked baggage I had a nebulizer and feeding pump I also included doctors note here just so they didn't get any ideas of my nebulizer being somethign else.

hope this helps

donny71
02-17-2007, 08:58 PM
I would not be to concerned about flying,

I have cystic Fibrosis my lung functions are 50% ish right now and I JUST got back from hawaii, and I really didn't have any problems with the flying, altough it made me very tired, but take into consideration that I have been up since 7am yesterday plus time change ahhh!

the only special things you should have to do is take all medication on a carry on, make sure they have a prescription labels on them with name and doctors name or they can be taken away!
also this prevents your items from getting lost should your checked luggage be lost, then you will have your meds on you.

also take a doctors note explaining his illness, and that he has permission to have these meds ect.

in my checked baggage I had a nebulizer and feeding pump I also included doctors note here just so they didn't get any ideas of my nebulizer being somethign else.

hope this helps

donny71
02-17-2007, 08:58 PM
I would not be to concerned about flying,

I have cystic Fibrosis my lung functions are 50% ish right now and I JUST got back from hawaii, and I really didn't have any problems with the flying, altough it made me very tired, but take into consideration that I have been up since 7am yesterday plus time change ahhh!

the only special things you should have to do is take all medication on a carry on, make sure they have a prescription labels on them with name and doctors name or they can be taken away!
also this prevents your items from getting lost should your checked luggage be lost, then you will have your meds on you.

also take a doctors note explaining his illness, and that he has permission to have these meds ect.

in my checked baggage I had a nebulizer and feeding pump I also included doctors note here just so they didn't get any ideas of my nebulizer being somethign else.

hope this helps

AnD
02-20-2007, 08:38 PM
The only problem I've had flying is they always "unpack" my vest (with me trying to politely say "Be careful with that, it's a (umpteen) thousand $ piece of medical equipment!"). And one of my meds- either the Pulmozyme or the Xopenex- sets off their "sniffer", so I just make sure it and the nebs are in the vest bag, since they are going to go through it anyways<img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Do <i>make sure </i>you have copies of your prescriptions (if I pack my weekly pill case, I make copies of the labels and keep them in the vest bag), and always pack the meds and equipment in your carry-on<img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Enjoy your trip!<img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
02-20-2007, 08:38 PM
The only problem I've had flying is they always "unpack" my vest (with me trying to politely say "Be careful with that, it's a (umpteen) thousand $ piece of medical equipment!"). And one of my meds- either the Pulmozyme or the Xopenex- sets off their "sniffer", so I just make sure it and the nebs are in the vest bag, since they are going to go through it anyways<img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Do <i>make sure </i>you have copies of your prescriptions (if I pack my weekly pill case, I make copies of the labels and keep them in the vest bag), and always pack the meds and equipment in your carry-on<img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Enjoy your trip!<img src="i/expressions/face-icon-small-smile.gif" border="0">

AnD
02-20-2007, 08:38 PM
The only problem I've had flying is they always "unpack" my vest (with me trying to politely say "Be careful with that, it's a (umpteen) thousand $ piece of medical equipment!"). And one of my meds- either the Pulmozyme or the Xopenex- sets off their "sniffer", so I just make sure it and the nebs are in the vest bag, since they are going to go through it anyways<img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Do <i>make sure </i>you have copies of your prescriptions (if I pack my weekly pill case, I make copies of the labels and keep them in the vest bag), and always pack the meds and equipment in your carry-on<img src="i/expressions/face-icon-small-wink.gif" border="0"> .

Enjoy your trip!<img src="i/expressions/face-icon-small-smile.gif" border="0">