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EB24
10-21-2005, 11:01 PM
I was recently asked if I could choose to live again with CF or without, what would I do. I honestly would live again with CF, instead of without. I think I would be worse of spiritually, and I believe I would miss out on some of life's lessons. I think CF has had a profound affect on the person I am. I am proud to be me. I would definately do some things differently, but I would do it with CF.

How about you?

anonymous
10-22-2005, 12:16 AM
I have seen this question before and it makes no sense to me why someone would want to live again with CF.

If you had the chance to live again wouldn't you want to do it without CF, considering there are probably many things that some people wanted to do but couldn't because of CF. For example, sports some people with CF never got to play a certain sport that they wanted to try because their lungs just wouldn't let them do physical activities (e.g. hockey).

Wouldn't you want the chance to do things you were not able to do before?

I was lucky, I was not diagnosed until I was 22. I played hockey until I was 18, but now CF keeps me off the ice because my lungs can't handle that type of activity. I tried to jog last summer for a bout 2 months and it wasn't pretty.

If there is life after death, I hope I can breathe normally in that life.


Dave 30w/cf

Emily65Roses
10-22-2005, 12:24 AM
I'd want to be born again with CF, for two major reasons.
1. I believe that the tiniest thing can make a huge difference. And going back and being born without CF is a BIG thing. It would change a lot of my life. Maybe my parents would've moved to a different town, or maybe one day (while in this life with CF, I was at clinic), I'd meet someone that would keep me from finding who I'm really supposed to be with, etc. If I was born without CF, would I still end up with Mike? Probably not, based solely on the fact that being born healthy would change a LOT of my life. And who am I to go back and change all that? Basically that whole "a butterfly flaps its wings in China and it causes a hurricane halfway around the world." The smallest thing can change a lot, so I'm certainly not going to change such a big thing.
2. CF made me who I am. I'd be much different if I was born healthy. I wouldn't be as understanding or compassionate or ready to stand up for myself and those I love and things I believe in. I wouldn't enjoy things as much as I do now. I still hold to that I get a huge kick out of something as simple and walking in the snow. If I was healthy, I wouldn't know enough to enjoy stuff like that.
A candle that burns twice as fast burns twice as bright.

anonymous
10-22-2005, 12:25 AM
I'd come back again with CF.
It helps make me the awesome person that I am.<img src="i/expressions/heart.gif" border="0">

anonymous
10-22-2005, 12:26 AM
<img src="i/expressions/coughing.gif" border="0"><img src="i/expressions/nebulizer.gif" border="0"><img src="i/expressions/oxygen.gif" border="0"><img src="i/expressions/puppy_eyes.gif" border="0"><img src="i/expressions/iv.gif" border="0"><img src="i/expressions/gas.gif" border="0"><img src="i/expressions/angel_ani.gif" border="0"><img src="i/expressions/angel.gif" border="0">

Sorry, I was just taking time to look at the graphics.
I am dork.

Mockingbird
10-22-2005, 01:47 AM
I'd be keeping the CF as well. =-)

Someone once asked me; what do i think I would do if I woke up tomorow and my CF was gone. I said, "I'd probably get really fat because I'm used to eating so much." They weren't very happy with that answer, but it was the only one they got. I mean, how am I supposed to know what life without CF is like? Would I want to try it? Mmmm, nah. To tell the truth, I'm pretty damn happy with what I have as it is. I don't think I would change anything at all. Isn't that the way life should be lived? I think so, anyway.

luke
10-22-2005, 08:56 AM
I would come back healthy, no CF and a life expectancy of 80 years.

anonymous
10-22-2005, 09:18 AM
Hi Luke - are u still online?

anonymous
10-22-2005, 11:59 AM
I would choose not to have CF too. Then there's not this thing hanging over my head, this feeling that I'm living on borrowed time.
True, I would not be the person I am now, but I would hope that with the foundation my parents set for me that I would do OK.

JazzysMom
10-22-2005, 12:11 PM
I have thought about this topic quite often over the years & believe it or not its a tough decision for me. Since I dont know any other way of life it would seem odd almost wrong. I believe a lot of who/what/how I am is from CF, but not all. I come from very strong/stubborn parents & believe that would still be a part of me, but CF has definetely given me a different outlook on things that I dont think I would have without it. Would I like to be able to breath normal so I can play soccer with my daughter like she deserves--Yes, but at the same time maybe our "special" times together would be jeopardized. How do you truly answer that ???

anonymous
10-22-2005, 06:21 PM
I believe CF does not make anybody who they are. If you are a good and honest person, you would be a good and honest even if you didn't have CF.

CF did not make me into the person I am today, It's just an illness that I have to deal with.

When I made my comments I was mainly referring to the unlucky people who have a severe case of this illness. The people who spend there entire life going in and out of the hospital and might not live long enough to graduate from high school or get their drivers license. If there is reincarnation, I hope those people get a second without CF.

Dave 30 w/cf

Emily65Roses
10-22-2005, 06:38 PM
Maybe CF didn't make you the person you are today. And I'm sure I wouldn't have been a TOTALLY different person. But I know for a fact CF had a lot to do with the way I am now.

WinAce
10-22-2005, 06:40 PM
I honestly can't believe this is a serious question.

Perhaps we need to rephrase it, a bit, to make it more obviously ludicrous. I don't think the question is <i>"Would you take your old, comfortably familiar life with CF, or a new, hypothetical one which you don't know anything about?"</i> Rather, the question should be <i>"If you were given a chance to lead a <b>new life altogether</b>, and knew nothing else about what would happen, would you pick CF or no-CF?"</i> There can only be one answer to that, unless you're a masochist, or your idea of CF is taking a digestive enzyme with meals until 30, at which point your FEV score declines to a "horrible" 75%.

<blockquote>Quote
<hr> <i>Originally posted by me in another thread</i>

It's very hard to consider counterfactuals (situations that didn't happen) when we're emotionally invested in what did happen. But, I believe, if we try to divorce our reasoning from our emotion, it can be done, and can lead to some startling conclusions.

If you have CF, it's true that, had you never existed, all the joy and good times you experienced would not have happened. But what other good things would have happened? Would you be a different person, without CF, who would shine as much in the world? Would your hypothetical, alternate-universe self be as happy as you are (or more so, without needing to consider IVs, potential early deaths and the like)?

If the Ice Age hadn't made our world largely uninhabitable... if the Aztecs hadn't been slaughtered by the Spanish... if the medieval Plague epidemics hadn't killed millions... All events without which, most likely, none of us would be here today. (They affected so much of history that, per Chaos Theory, every single person alive today wouldn't exist, in lieu of another person who was born under vastly different circumstances.) But before the crop of people alive today was born, did those events deserve to happen more--with the subsequent people they helped create--than the Warming Periods, invasion fleet-wrecking storms, and other diseases that would have given rise to an altogether different world?

I find it hard to contemplate not having Jessica... but, imagine I was born without this illness. Would we find different "soul mates"? Get jobs and work on our careers, perhaps helping those with some horrible illness by developing a new drug, or creating a much-needed charitable organization? Run into each other anyway, fall in love and be considering our first house right now, instead of wondering how to pay the same amount of money for a transplant?

I would not give her up, even if it meant I could never face the ravages of CF again. But, the rational part of me simply MUST acknowledge that this is the "me" of this timeline, universe--call it what you will--who'd make that decision. Until our romance blossomed, it was only a hypothetical, like trillions of other potential romances that will never see the light of day for the most pithy reasons (a cold that kept someone in bed, instead of bumping into a potential mate; a sliding door that prevented a young woman from breaking up with her philandering boyfriend, and meeting the true love of her life...). <hr></blockquote>

The "me" of another universe, who never experienced CF (and, say, encountered me in the hospital) would have every reason to be horrified and consider me nuts. I wouldn't, on the other hand, have any grounds to consider <i>him</i> irrational.

JazzysMom
10-22-2005, 06:43 PM
Obviously, to me, now that its presented in this manner that I would choose the latter. As you put it, just like I dont know any different now, I wouldnt know any different then. However; if we are taling about having CF & then finding a cure I stand my ground. There is a huge difference when you never know something.

Allie
10-22-2005, 06:44 PM
If I had the option to choose for Ry, I'd give him a life without CF, even if it meant I never got to meet up with him and have the life I did. OR if I had the option to take it instead of him, I would do that.

lovingBenandCambree
10-22-2005, 06:46 PM
I agree with Emily, Although I know I wouldn't be a completely different person. CF has helped to mold me into who I am and I am very proud of that person. On the second hand I also agree with Winace in that why ask questions in which there can truly never be an answer or a result in this case. I am very grateful for the life that I have and the life that I lead and I hope to live life with no regrets. To live it to its fullest and to enjoy each and every moment that I can.

Emilee

anonymous
10-22-2005, 07:01 PM
<blockquote>Quote<br><hr><i>Originally posted by: <b>WinAce</b></i><br>I honestly can't believe this is a serious question.

There can only be one answer to that, unless you're a masochist, or your idea of CF is taking a digestive enzyme with meals until 30, at which point your FEV score declines to a "horrible" 75%.
<hr></blockquote>

I agree, there is only one answer. What WinAce said above is just about my "idea" of CF, and I'd still prefer life without it if I had a choice. No matter the severity - as "lucky" as I may be, I am still afflicted by and affected by this disease. Given the choice, no matter how it has shaped who I am, and I truly believe that it has, I'd take life without it.

wanderlost 28 w/CF

EB24
10-22-2005, 09:20 PM
Well WinAce is it a serious question. My CF is in end stage, my FEV are less than 25% and I need a double Lung and liver and I have B Cepacia. I <b>would</b> pick CF again. I wasn't a lucky person( if there is such thing as a lucky person with CF) but I also didn't have it horrible the whole time.
This isn't a flame toward you Win, but I think you are the type person that would find something to complain about and not be happy, no matter what. JMO.

anonymous
10-22-2005, 10:47 PM
Looks like we are pretty much split on this question. I have to say that if I had a "fantacy" choice, Id like to be wealthy and healthy, hehe. But maybe it goes back to this fpr some of us; do you believe in coincidense, luck and random chance? Or maybe you believe things happen for a reason? So for me I think I have CF for many reasons. By me having CF, I underatand people when they say they are struggling with an illness, I can empathize with others and no one can tell me "you dont understand" because we do understand, if I hadnt had CF I would have made different choices, and they probably would have been worse choices. Maybe I would have grew up to be just like my parents (which I am thankful did not happen) Then I would abuse drugs and alcohol and be dead or maybe in jail. I could go on and on, but I know you dont want to hear all of it. The fact is we are who we are. Some people are diabetic, some have cancer, heart problems, aids, down syndrome, or any one of hundreds of different conditions. Some people live in Africa or Russia or Ethiopia. Some people are abused sexually or physically, or even verbally. Some are shot in gangs robberies, etc. You see for me, I know if it hadnt been CF, more than likely it would have been something. And that something could be a lot worse than CF. People who were born perfectly healthy commit suicide everyday. What their excuse? We can sit on this website and wish we didnt have CF, or we can get out there and encourage these kids who have it and let them know that we care about them and we know how they feel. I hope that this does not offend anyone. I do my share of complaining and groaning about CF. If I had it to do again, I would change alot of things and choices I have made, but I think I might be safe keeping the CF. Maybe I would try to have parents who didnt smoke : ) Anyway have a good night.

JazzysMom
10-22-2005, 10:55 PM
you are going to start a new war with your post, anonymous......just warning you!

anonymous
10-22-2005, 11:04 PM
I think you should write a book win ace. Maybe if you didnt have CF, you wouldnt be as good of a writer. Why, you are considering "what if everything was perfect, and I didnt have CF" Well, let me tell you, you can wish right on, but it wouldnt be as wonderful as you might think. You wouldnt find the perfect soul mate, never have to worry about yur health, help find a cure for a disease, and help children who have a disease.

I am glad you have found love for someone (Jessica). I hope you are not as negative about CF towards her as you are on here.

This is a good question EB24, thanks for asking. I understand that we need to vent every now and then about the struggles we go through, but the overwhelming negativity on this portion of the website alone is enough to make someone depressed if you arent already.

anonymous
10-22-2005, 11:10 PM
JazzysMom, why would someone giving an opinion start a war. Nothing said in that post takes a claim of being factual or true. A question was asked, and anonymous answered. Just because someone doesnt like what someone has to say, that should not constitute a war of sorts. We can simply disagree with one another and move on. But thanks for the warning, i will be ready for whatever.

EB24
10-22-2005, 11:38 PM
OK people please don't fight over this, let's just drop it.
Everybody be cool.

Lilith
10-23-2005, 02:21 AM
Well...I go half way on this. I would have CF again, I think, but I would not have it as severely as I do now. I'd like to be one of those people with a mild case that get to be in their thirties or forties w/out a transplant. I'd like to have CF just to keep the knowledge that I do now, but still be able to work (I worked for a total of 2 weeks at Taco Bell and quit because I was going to be hospitalized if I kept pushing myself). I'd like to be able to get married without having to worry about what Medicaid would say, or be able to wake up in the morning and not cough my brains out, which in turn leads to a massive headache. A mild case would be nice because I would still understand the effects and the consequenses and still have a better appreciation for life, but now my doc tells me I should start considering signing up for a lung tx (which, quite frankly, scares the s*it out of me). Thought I wouldn't have to deal with that for a while, but...I guess I'm not that lucky. It would be nice to have my cake and eat it too, I suppose. So, if that qualifies as an answer, there it is.

anonymous
10-23-2005, 02:41 AM
I can't quite honestly reply to this question until my survey of the experience is either nearing it's conclusion or over. I too can at least say CF has beneficially inpacted my character, though, I suppose it could be said I had my character before, and possibly the same character without CF, just not tested as much or in the same ways. I do hate CF though, and also, I would hope I wouldn't be the same fool that chose to have CF, and choose the same to repeat this expereince again. At best, I'd like to think I learned all I can from this experience, and have evolved such that having the same expereince would be useless.

Grendel
33 m
w/CF

JazzysMom
10-23-2005, 11:39 AM
I wish I knew why someone giving an opinion would start a war. I dont know WHY, I just know it HAS. There are some topics that are hot & some posters that arent willing to see outside their view even for a second. I just wasnt sure if the anonymous poster knew how the words in their post could easily start a flareup. I personally dont have a problem, but I hate to see people get scared away because of an attack on their opinion so I try to give warning. Nothing ill felt was meant by my warning~

WinAce
10-24-2005, 03:20 AM
<blockquote>Quote<br><hr><i>Originally posted by EB24</i>
I think you are the type person that would find something to complain about and not be happy, no matter what.<hr></blockquote>

That's what facts were invented for; to dispell misconceptions like yours, adapted after a cursory skim of anothers' words.

<blockquote>Quote<br><hr><i>Originally posted by Anonymous #1</i>
But maybe it goes back to this fpr some of us; do you believe in coincidense, luck and random chance? Or maybe you believe things happen for a reason? <hr></blockquote>

What role do you suppose chance and "reason" play, here? There are healthy people who never abuse drugs, or are healthy AND wealthy, and CF'ers who are poor, suicidal and were sexually abused, to boot. You would have noticed, if you actually read my post, that I mentioned one little fact that tends to be ignored:

<i>It's not a choice between CF, and everything else. It's a choice between CF <b>and</b>/or everything else.</i>

<blockquote>Quote<br><hr><i>Originally posted by Anonymous #2</i>
I think you should write a book win ace. Maybe if you didnt have CF, you wouldnt be as good of a writer. Why, you are considering "what if everything was perfect, and I didnt have CF" Well, let me tell you, you can wish right on, but it wouldnt be as wonderful as you might think. You wouldnt find the perfect soul mate, never have to worry about yur health, help find a cure for a disease, and help children who have a disease. <hr></blockquote>

Nice to meet you, Professor Farnsworth. I had no idea your "peer into alternate realities" device actually worked! <img src="i/expressions/face-icon-small-happy.gif" border="0">

<blockquote>Quote<br><hr><i>Originally posted by Lilith</i>
I would have CF again, I think, but I would not have it as severely as I do now. I'd like to be one of those people with a mild case that get to be in their thirties or forties w/out a transplant.<hr></blockquote>

It would still need to have some pretty clear, well-documented advantages it gave you in other areas to be justified, though. Being too sick to work at 30 might not suck as much as dropping out of school after almost dying, but it's still something that ideally, no one would go through.

<blockquote>Quote<br><hr><i>Originally posted by Grendel</i>
I can't quite honestly reply to this question until my survey of the experience is either nearing it's conclusion or over.<hr></blockquote>

Very keen answer. Until I did some thinking about counterfactuals, that was my take on the issue, too. Just like with a book, only time may tell whether, on balance, it would be a life worth re-living.

I conclude differently because, with very few exceptions (none that I can think of as more likely to occur with CF than without), there's nothing that can outweigh the negative effect it'll have on your life.

miesl
10-24-2005, 12:28 PM
Hehe, Professor Farnsworth.

anonymous
10-24-2005, 08:17 PM
Hi i'm 29 with cf and asked that question i have to say i would have to live with it, after all what you don't have you don't miss i can never imagine life without cf, all the people i have met doctors and nurses and have become friends with. I have learnt lots of lessons too and i belive having cf can make you a stronger more determined person.
I keep quite well with my cf so am lucky, and can lead the life i want for now, but had things been different or were to change it would make you ask yourself that question.

EB24
10-24-2005, 11:53 PM
WinAce I have been praying for you. I know you don't believe in that but I do and I hope it helps. I haven't prayed for you to get better, because that would be ignorant on my part, but I have prayed that your pain will go away. How that will happen isn't up to me, but I hope it is soon.

ClashPunk82
10-25-2005, 12:07 AM
It is a tough question. If I had a choice I would choose having CF again. I don't know any different and it's a part of me. But I would like a less severe case and live until I'm 80 <img src="i/expressions/face-icon-small-smile.gif" border="0"> But then again I would like to see what it would be like to be normal and not have to think about anything that goes along with CF. I think I would have it again but if I could have a week or so of being normal that would be great! <img src="i/expressions/face-icon-small-happy.gif" border="0">

WinAce
10-25-2005, 02:47 AM
Might help you think you're making a difference, EB24; I personally doubt it, and your prayer, to be honest, sounds creepy. I have specific ideas of how I'd like my "pain to go away," none of which involve death, which you're alluding to.

EB24
10-25-2005, 02:08 PM
Didn't mean it to sound that way, and yes it gives me comfort to pray for others. Actually I have been praying that you get a transplant and your pain goes away that route.

supermanfan
10-25-2005, 02:30 PM
I think having CF also matures someone, and allows them to appreciate the simple things in life that many people don't even think of. I am happy to have been born with CF compared to some other diseases out there.

JennifersHope
10-25-2005, 03:07 PM
Wish we had a choice, but we don't but just to play along.. WIthout a question of a doubt I would NOT have CF...No thank you, I don't really care what kind of a person it may or may not have made me.. Being that I didn't know I had it my whole life, it didn't really make or mold me into anything different than what I already was.

The events in my life that are non CF related are the things that made me who I am.. The non CF hardships molded me, and well I guess I wouldn't trade those things, though most of time I wish I could, so I guess if CF was the reason I was compassionate or had a relationship with GOd or something then I wouldn't trade them but being that it isn't .. I would like to return the CF if I could. Anyone know where they do returns on it????
<img src="i/expressions/face-icon-small-happy.gif" border="0">

EB24
10-25-2005, 03:18 PM
Wal-Mart, they'll take anything back, with or without a receipt!

JazzysMom
10-25-2005, 04:59 PM
After a certain point you can only get store credit tho....

princessjdc
10-26-2005, 08:44 PM
Id come back without cf.

anonymous
10-27-2005, 02:08 PM
Me 2 - not because I am really ill or anything but have a major fear of dying young!<img src="i/expressions/face-icon-small-sad.gif" border="0">

anonymous
10-27-2005, 02:23 PM
If I had a choice I would want my 2 children to not have it! If someone were to have to have it I would wish it were me. It is hard to watch your kids miss out in many ways to a diagnosis and to have to go thru so much crap everyday just to fill good. It sucks!!!

anonymous
10-27-2005, 05:21 PM
<blockquote>Quote<br><hr>Might help you think you're making a difference, EB24; I personally doubt it, and your prayer, to be honest, sounds creepy. I have specific ideas of how I'd like my "pain to go away," none of which involve death, which you're alluding to.<hr></blockquote>


that is so mean WinAce! He was just trying to be kind, and it seems like you are a little paranoid because he DEFINITELY did not seem like he was alluding to death! At least EB24 was trying to be nice, and help someone other than himself, even if it is in his own "praying" way. Errrrr

anonymous
10-27-2005, 05:22 PM
I would have CF so I could learn everything I have learned and be the fabulous person I am today, but then I'd get rid of it...right about now. BUT, you never know, I might become even more wonderful because of it. Ha

Caitlin

Emily65Roses
10-27-2005, 05:31 PM
<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br><blockquote>Quote
<hr>Might help you think you're making a difference, EB24; I personally doubt it, and your prayer, to be honest, sounds creepy. I have specific ideas of how I'd like my "pain to go away," none of which involve death, which you're alluding to.<hr></blockquote>
that is so mean WinAce! He was just trying to be kind, and it seems like you are a little paranoid because he DEFINITELY did not seem like he was alluding to death! At least EB24 was trying to be nice, and help someone other than himself, even if it is in his own "praying" way. Errrrr<hr></blockquote>

Actually, I too thought it sounded like he was referring to death. I'm not a part of this, so I'm not judging, certainly now since he has said it's not what he meant. But don't jump down Allan's throat, because I thought the same thing myself.

anonymous
10-27-2005, 06:22 PM
<blockquote>Quote<br><hr>Might help you think you're making a difference, EB24; I personally doubt it, and your prayer, to be honest, sounds creepy. I have specific ideas of how I'd like my "pain to go away," none of which involve death, which you're alluding to.<hr></blockquote>

Just so you know, the above was not written by ccflewallen; he has no idea who wrote it or what it is referring to.

anonymous
10-27-2005, 06:27 PM
WinAce, do you really think people wish you would die? Surely not.

I dont know where or why you thought EB24's post had ANYTHING whatsoever to do with death. If that wasnt bad enough, there were actually people who agreed with the notion. That is really sad. Some of us cannot win for losing.

Emily65Roses
10-27-2005, 07:30 PM
I said it looked like it at first glance. If EB24 now says it's not what he meant, then fine. But I understood why Allan may have seen what he saw. It just was worded a little off. That doesn't mean I think EB runs around wishing for people's deaths.

EB24
10-28-2005, 12:57 AM
I did not mean it, but after I re-read, I can see where it may have come off that way. Again that is not what I meant and am again sorry. I don't wish death on anyone.