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anonymous
12-05-2003, 05:16 PM
Hey Guys!Just found out I have mono!! Yikes!! Anyway, I was wondering if any of you other CFers have had mono and if it got in the way of your CF, made your lungs worse, or didn't seem to effect it? My only worry is they told me no exercise and I am worried the lack of movement may increase my chances of a lung infection. Anyway I am a little freaked out right now (and tired hahaha) so any advice would be great! Thanks!!

amys
12-05-2003, 05:20 PM
I can totally relate to everything that you said. I had mono almost 2 years ago, and it's turned into Chronic Mono, and I have Anemia as well due to the Mono and a few other things...and I have to say, it can be scary. Watch out for it because it can cause a lot of problems for your liver just keep all lab appointmnets so your liver doesn't get damaged by the mono. But I wish you all the best of luck! Take care and take it easy. Gob Bless! ------------------The best things in life are worth waiting for! ~ If you love someone, tell them...don't wait, because you will never know when it's to late!

anonymous
12-05-2003, 05:24 PM
What about sports and exercise?Avoid sports, activities or exercise of any kind until your doctor tells you it's safe. Moving around too much puts you at risk of rupturing your spleen. You need to avoid physical activities for about 3 to 4 weeks after the infection starts.

anonymous
12-06-2003, 02:47 AM
I had mono too. Its difficult for a "healthy" non cf person to get over. My brother just got it and he plays football. and it ahs taken him over 5 weeks to get over it. he is also ADHD so keeping him in actvie is hard to do but the mono slowed him down. But for me it seemed to take forever to get over it. I was so down from mono and stress from school it was really easy to catch other things. so i had more infections that year than usual. but taking it easy is really important. not to over stress your body so it can rest and fight things it needs to. if you feel that not exersising will be bad. just take it slow. do half or 1/4 of your normal rutine. so that your still active but your not over doing it. with mono all you can do is take it as it comes. there is no garuantee that it will stick around a long time or that it will go away fast. depends on the person as always. so keep your head up and just becarefull and take it easy.amanda

anonymous
12-06-2003, 06:24 AM
Please please, what is mono???

RadChevy
12-06-2003, 08:48 AM
The docs may of said not excercise, but what about chest physiotherapy? I know the docs will not want you to stop that. Have someone do hand cupping on your back. You need to continue that... what about nebulizing TOBI and pulmozyme? Joanne [email protected]

RadChevy
12-06-2003, 08:49 AM
Mono is mononucleosis - not sure I have that spelled right.It is also known as Epstein Barr Virus, or also known as kissing disease. Or EBV.The people that get it most are college students, due to their eating, health, and sleep habits. Joanne [email protected]

anonymous
12-06-2003, 07:47 PM
I don't really know the technical explaination for it. But I can tell you what happened to me when I got it. Mono made me really tired, sorta achy (sometimes sometimes not depends on how i was feeling on the day), some fever. Also made my immune system slow down so I was more suseptible to other things like a cold or flu. Mono is kinda like having the flu with out alot of vomiting or nausea and it can last a long time. Also it is contagious before you know you have it. So rule of thumb is to NEVER drink or eat after someone espicially at school because they may have mono and not know it and then spread it to you. But syptoms of mono can be different for everyone depending on the person, meds givin to that person and how bad the strain is. Good thing is its like chicken pox once you have it its harder to get again but you still don't want it in the first place.Hope this helps you some.

anonymous
12-08-2003, 03:12 AM
Hey guys thanks for the advice! Sorry I didn't respond sooner, I went home for the weekend to spend it resting (I am a college student and taking it easy in the dorms is never easy hahah). I do not want to push my body so i am not exercising, I actually stopped when I first started feeling bad, but only expected to not exercise for a few days, but with mono I think it will be several weeks before I get back to my water polo <img src="i/expressions/face-icon-small-frown.gif" border="0"> Anyway to the person who asked what mono is...for me it made me very tired and I have been running a fever for two weeks today. My tonsils got swollen and covered in white spots. Another sysmtom is swollen glands. It is considered the kissing disease because it is spread through saliva, but that doesn't mean you only get it if you kiss someone or share a drink or utensils. I have always been SO careful about not sharing anything that contains saliva ( drinks, lip gloss...) with other people just because being sick is harder for a CFer, but living with hundreds of college students its hard not to catch a lot of stuff. HAHAH oh well. I am actually feeling much better today and I only have one week of classes left and then one week of finals and then....I get 5 weeks off till next semester so I have plenty of time to rest up then. Anyway thanks again for the support!Emily 19 w/CF (I don't think I signed when I first posted sorry I am really bad about remembering that because my other site does it by itself. Anyway I was the original person who posted)

anonymous
12-08-2003, 08:54 PM
Hi I am the one who asked what mono is...Thanks for your explanations. It's a good reminder for me not to share drinks etc. I always used to but have gotten slack the last couple of years....even the Hepatitis risks are reason enough!Thanks again Cindo

anonymous
12-12-2003, 12:51 AM
The key with not letting mono get out of hand w/ CF is to CONTINUE your CF therapies to a tee! AND BE ON TOP OF YOUR AIRWAY CLEARANCE!! An ounce of prevention...

Liza
12-17-2003, 12:08 AM
People with Mononucleosis can exercise, you need to avoid contact sports/ sports that can result in blows to the abdomen. When you have mono the spleen may enlarge to the point where it is not completely protected by the ribcage. Splenic injuries can result in abdominal bleeding that can be severe. When you feel up to exercising just go slow...fatigue is the limiting factor. The treatment otherwise is for symptoms ie, bodyaches, fluids, nutrition and analgesics. Additionally, quite a few people will develop an underlying strep throat as well. Treating your CF is always paramount- do your physiotherapy, percussion, etc. A small percentage of people can develop a longer illness similar to chronic fatigue syndrome but that is not all that common in younger (&lt;35) patients. Most can return to normal activity in about 6 weeks.Good luck and chin up,Liza's husband