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emudge3
09-25-2017, 12:24 PM
Hello!

My daughter carries the DeltaF508 and 5T, (a variant) she is not diagnosed with the disease but with her combo, its a variant of the disease and can show signs of mostly the respiratory parts of it. (Which so far, she hasn't but you never know what the future will bring)

I collected cord blood from my older son, no CF genes and from my daughter. My question is, would her cord blood be of any use in the future? As I understand, it's obviously her genes and carries the same combo so IF she needed any type of cord blood assistance, it would be from my son's collection. Do I keep her cord blood? I've been researching and put a call in to our CF specialist but was wondering if anyone had input, thank you!

Liz

kenna2
09-26-2017, 09:03 PM
I have honestly never heard of anything like this, nor do I know anything about cord blood. I'd say it's highly unlikely that it could be used for her benefit.

MissAlexsBP
10-08-2017, 10:03 AM
Hello,

When we shared your post on social media @emudge3, some of our members replied "My daughter had the cord blood saved for her daughter who was diagnosed with CF while she was still pregnant. I know that it's an expensive procedure but my daughter & her husband felt that it was an important thing to do. I am pretty much uneducated about cord blood but I would save it if I were you. My daughter & son-in-law are very smart and investigate everything so I'm just using them as an example." as well as "Not sure about her cord blood but I think your sons cord blood would be benificial to her..."