View Full Version : Coughing up blood on Orkambi 3 months! Help

Sarah 95
08-19-2017, 07:04 PM
Hi there im 22 years old and on orkambi 3 months, this evening i started to cough up blood! thought i was doing well but im worried now usually the blood disappears after a cough or that, but its very red and has some clots in some plugs but plugs are just pure red! bit worried has anyone else experienced this ? thanks in advance!

08-19-2017, 10:37 PM
I've had this happen a couple of times and it can happen. Just make sure you're drinking a lot of water when this happens and stop airway clearance until the bleeding stops and take it easy (like you would with a normal hemoptysis.) If the amount of blood (stuff not mixed in with mucus) is more than a tablespoon, call your doctor. However, remember your body is changing and lungs are starting to work a bit differently. There is going to be some irritation to them.

08-21-2017, 10:21 AM
Hey Sarah, Have you had any other indications that it might be the Orkambi that is causing this? Any other changes in your health?

08-21-2017, 11:25 AM
Call your CF Doctor. It is very likely nothing but he/she should know about it.