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Giggles
11-05-2009, 03:23 PM
I have a really hard time on my "off" month of TOBI and I was thinking of trying Colistin although it sounds like a pain. Anyone with experience, tips etc. I welcome the feedback.

Jennifer 37 with CF and CFRD

Giggles
11-05-2009, 03:23 PM
I have a really hard time on my "off" month of TOBI and I was thinking of trying Colistin although it sounds like a pain. Anyone with experience, tips etc. I welcome the feedback.

Jennifer 37 with CF and CFRD

Giggles
11-05-2009, 03:23 PM
I have a really hard time on my "off" month of TOBI and I was thinking of trying Colistin although it sounds like a pain. Anyone with experience, tips etc. I welcome the feedback.

Jennifer 37 with CF and CFRD

Giggles
11-05-2009, 03:23 PM
I have a really hard time on my "off" month of TOBI and I was thinking of trying Colistin although it sounds like a pain. Anyone with experience, tips etc. I welcome the feedback.

Jennifer 37 with CF and CFRD

Giggles
11-05-2009, 03:23 PM
I have a really hard time on my "off" month of TOBI and I was thinking of trying Colistin although it sounds like a pain. Anyone with experience, tips etc. I welcome the feedback.
<br />
<br />Jennifer 37 with CF and CFRD

Rokiss12
11-05-2009, 03:32 PM
The process of mixing it etc. really isnt that bad- you get used to it. I like the trade off- it takes half the time of TOBI!

Rokiss12
11-05-2009, 03:32 PM
The process of mixing it etc. really isnt that bad- you get used to it. I like the trade off- it takes half the time of TOBI!

Rokiss12
11-05-2009, 03:32 PM
The process of mixing it etc. really isnt that bad- you get used to it. I like the trade off- it takes half the time of TOBI!

Rokiss12
11-05-2009, 03:32 PM
The process of mixing it etc. really isnt that bad- you get used to it. I like the trade off- it takes half the time of TOBI!

Rokiss12
11-05-2009, 03:32 PM
The process of mixing it etc. really isnt that bad- you get used to it. I like the trade off- it takes half the time of TOBI!

Skye
11-05-2009, 04:00 PM
I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session.

Tips.....put sterile water into the vial a bit slowly, do not shake the bottle just roll it, let the bottle sit while you are doing albuterol before, draw it out, and put it in neb by injecting it slowly and letting run down the inside of neb instead of just pushing it straight into the neb...that helps with foaming.

PM if you have any other questions.

Skye
11-05-2009, 04:00 PM
I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session.

Tips.....put sterile water into the vial a bit slowly, do not shake the bottle just roll it, let the bottle sit while you are doing albuterol before, draw it out, and put it in neb by injecting it slowly and letting run down the inside of neb instead of just pushing it straight into the neb...that helps with foaming.

PM if you have any other questions.

Skye
11-05-2009, 04:00 PM
I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session.

Tips.....put sterile water into the vial a bit slowly, do not shake the bottle just roll it, let the bottle sit while you are doing albuterol before, draw it out, and put it in neb by injecting it slowly and letting run down the inside of neb instead of just pushing it straight into the neb...that helps with foaming.

PM if you have any other questions.

Skye
11-05-2009, 04:00 PM
I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session.

Tips.....put sterile water into the vial a bit slowly, do not shake the bottle just roll it, let the bottle sit while you are doing albuterol before, draw it out, and put it in neb by injecting it slowly and letting run down the inside of neb instead of just pushing it straight into the neb...that helps with foaming.

PM if you have any other questions.

Skye
11-05-2009, 04:00 PM
I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session.
<br />
<br />Tips.....put sterile water into the vial a bit slowly, do not shake the bottle just roll it, let the bottle sit while you are doing albuterol before, draw it out, and put it in neb by injecting it slowly and letting run down the inside of neb instead of just pushing it straight into the neb...that helps with foaming.
<br />
<br />PM if you have any other questions.

JazzysMom
11-05-2009, 05:19 PM
I liked colistin except its not as user friendly as Tobi.

I like the smell/taste better. It foams alot, but as its said....dont shake it & let it warm up etc.

It worked great for me

JazzysMom
11-05-2009, 05:19 PM
I liked colistin except its not as user friendly as Tobi.

I like the smell/taste better. It foams alot, but as its said....dont shake it & let it warm up etc.

It worked great for me

JazzysMom
11-05-2009, 05:19 PM
I liked colistin except its not as user friendly as Tobi.

I like the smell/taste better. It foams alot, but as its said....dont shake it & let it warm up etc.

It worked great for me

JazzysMom
11-05-2009, 05:19 PM
I liked colistin except its not as user friendly as Tobi.

I like the smell/taste better. It foams alot, but as its said....dont shake it & let it warm up etc.

It worked great for me

JazzysMom
11-05-2009, 05:19 PM
I liked colistin except its not as user friendly as Tobi.
<br />
<br />I like the smell/taste better. It foams alot, but as its said....dont shake it & let it warm up etc.
<br />
<br />It worked great for me

pegsoninthepresent
11-05-2009, 06:04 PM
colliston is a harsh mother...i found it horrific to breath and about for 2 hours fater but reallys its the nest best thing to tobi for the month or month off....try the collistamethate** its the specialised collistion neb solution..i think made by tadim or something

pegsoninthepresent
11-05-2009, 06:04 PM
colliston is a harsh mother...i found it horrific to breath and about for 2 hours fater but reallys its the nest best thing to tobi for the month or month off....try the collistamethate** its the specialised collistion neb solution..i think made by tadim or something

pegsoninthepresent
11-05-2009, 06:04 PM
colliston is a harsh mother...i found it horrific to breath and about for 2 hours fater but reallys its the nest best thing to tobi for the month or month off....try the collistamethate** its the specialised collistion neb solution..i think made by tadim or something

pegsoninthepresent
11-05-2009, 06:04 PM
colliston is a harsh mother...i found it horrific to breath and about for 2 hours fater but reallys its the nest best thing to tobi for the month or month off....try the collistamethate** its the specialised collistion neb solution..i think made by tadim or something

pegsoninthepresent
11-05-2009, 06:04 PM
colliston is a harsh mother...i found it horrific to breath and about for 2 hours fater but reallys its the nest best thing to tobi for the month or month off....try the collistamethate** its the specialised collistion neb solution..i think made by tadim or something

Marjolein
11-05-2009, 08:31 PM
I nebbed Colistin for a long long time. I think ever since the neb solution came at the market. First in these yellow boxes. After that I got it from Grunenthal, that is still on the market, at least overhere. And very handy as they have all in one. A box with a vial of saline and a closed vial with the powder that you can only go in with, with a syringe.

I never got any reactions from it. No SOB, didn't need inhalers before nebbing it.

Like everyone said before. It is best to put the water in the vial a bit slowly. Don't inject any air in it, only the (for me it was 3 ml) water solution (with Grunenthal that is water for injection combined with saline). And I always used a long needle on the syringe, a needle of 5 cm. This way I could move the needle around at the bottom of te vial in case I got any powder that didn't dissolve right away.
Don't shake it but gentle move the vial around.
Let it sit for a little in case of any foaming.
Then just get it up out of the vial with the syringe and put it in your neb, also kind of slowly. Also, some nebulizers produce more foam than others.

Marjolein
11-05-2009, 08:31 PM
I nebbed Colistin for a long long time. I think ever since the neb solution came at the market. First in these yellow boxes. After that I got it from Grunenthal, that is still on the market, at least overhere. And very handy as they have all in one. A box with a vial of saline and a closed vial with the powder that you can only go in with, with a syringe.

I never got any reactions from it. No SOB, didn't need inhalers before nebbing it.

Like everyone said before. It is best to put the water in the vial a bit slowly. Don't inject any air in it, only the (for me it was 3 ml) water solution (with Grunenthal that is water for injection combined with saline). And I always used a long needle on the syringe, a needle of 5 cm. This way I could move the needle around at the bottom of te vial in case I got any powder that didn't dissolve right away.
Don't shake it but gentle move the vial around.
Let it sit for a little in case of any foaming.
Then just get it up out of the vial with the syringe and put it in your neb, also kind of slowly. Also, some nebulizers produce more foam than others.

Marjolein
11-05-2009, 08:31 PM
I nebbed Colistin for a long long time. I think ever since the neb solution came at the market. First in these yellow boxes. After that I got it from Grunenthal, that is still on the market, at least overhere. And very handy as they have all in one. A box with a vial of saline and a closed vial with the powder that you can only go in with, with a syringe.

I never got any reactions from it. No SOB, didn't need inhalers before nebbing it.

Like everyone said before. It is best to put the water in the vial a bit slowly. Don't inject any air in it, only the (for me it was 3 ml) water solution (with Grunenthal that is water for injection combined with saline). And I always used a long needle on the syringe, a needle of 5 cm. This way I could move the needle around at the bottom of te vial in case I got any powder that didn't dissolve right away.
Don't shake it but gentle move the vial around.
Let it sit for a little in case of any foaming.
Then just get it up out of the vial with the syringe and put it in your neb, also kind of slowly. Also, some nebulizers produce more foam than others.

Marjolein
11-05-2009, 08:31 PM
I nebbed Colistin for a long long time. I think ever since the neb solution came at the market. First in these yellow boxes. After that I got it from Grunenthal, that is still on the market, at least overhere. And very handy as they have all in one. A box with a vial of saline and a closed vial with the powder that you can only go in with, with a syringe.

I never got any reactions from it. No SOB, didn't need inhalers before nebbing it.

Like everyone said before. It is best to put the water in the vial a bit slowly. Don't inject any air in it, only the (for me it was 3 ml) water solution (with Grunenthal that is water for injection combined with saline). And I always used a long needle on the syringe, a needle of 5 cm. This way I could move the needle around at the bottom of te vial in case I got any powder that didn't dissolve right away.
Don't shake it but gentle move the vial around.
Let it sit for a little in case of any foaming.
Then just get it up out of the vial with the syringe and put it in your neb, also kind of slowly. Also, some nebulizers produce more foam than others.

Marjolein
11-05-2009, 08:31 PM
I nebbed Colistin for a long long time. I think ever since the neb solution came at the market. First in these yellow boxes. After that I got it from Grunenthal, that is still on the market, at least overhere. And very handy as they have all in one. A box with a vial of saline and a closed vial with the powder that you can only go in with, with a syringe.
<br />
<br />I never got any reactions from it. No SOB, didn't need inhalers before nebbing it.
<br />
<br />Like everyone said before. It is best to put the water in the vial a bit slowly. Don't inject any air in it, only the (for me it was 3 ml) water solution (with Grunenthal that is water for injection combined with saline). And I always used a long needle on the syringe, a needle of 5 cm. This way I could move the needle around at the bottom of te vial in case I got any powder that didn't dissolve right away.
<br />Don't shake it but gentle move the vial around.
<br />Let it sit for a little in case of any foaming.
<br />Then just get it up out of the vial with the syringe and put it in your neb, also kind of slowly. Also, some nebulizers produce more foam than others.

princessjdc
11-06-2009, 04:48 PM
I didnt like colistin simply bc it gave me SOB. I must not of mixed it right or something but Id rather stay on Tobi instead cause its easier and faster then having to mix all the stuff up.

princessjdc
11-06-2009, 04:48 PM
I didnt like colistin simply bc it gave me SOB. I must not of mixed it right or something but Id rather stay on Tobi instead cause its easier and faster then having to mix all the stuff up.

princessjdc
11-06-2009, 04:48 PM
I didnt like colistin simply bc it gave me SOB. I must not of mixed it right or something but Id rather stay on Tobi instead cause its easier and faster then having to mix all the stuff up.

princessjdc
11-06-2009, 04:48 PM
I didnt like colistin simply bc it gave me SOB. I must not of mixed it right or something but Id rather stay on Tobi instead cause its easier and faster then having to mix all the stuff up.

princessjdc
11-06-2009, 04:48 PM
I didnt like colistin simply bc it gave me SOB. I must not of mixed it right or something but Id rather stay on Tobi instead cause its easier and faster then having to mix all the stuff up.

Giggles
11-06-2009, 05:15 PM
Thanks for the input. I think I am going to try tobi 3 weeks on, 3 weeks off and see if that helps and if not then try the colistin.


Jennifer 37 with CF and CFRD

Giggles
11-06-2009, 05:15 PM
Thanks for the input. I think I am going to try tobi 3 weeks on, 3 weeks off and see if that helps and if not then try the colistin.


Jennifer 37 with CF and CFRD

Giggles
11-06-2009, 05:15 PM
Thanks for the input. I think I am going to try tobi 3 weeks on, 3 weeks off and see if that helps and if not then try the colistin.


Jennifer 37 with CF and CFRD

Giggles
11-06-2009, 05:15 PM
Thanks for the input. I think I am going to try tobi 3 weeks on, 3 weeks off and see if that helps and if not then try the colistin.


Jennifer 37 with CF and CFRD

Giggles
11-06-2009, 05:15 PM
Thanks for the input. I think I am going to try tobi 3 weeks on, 3 weeks off and see if that helps and if not then try the colistin.
<br />
<br />
<br />Jennifer 37 with CF and CFRD

vladober
11-06-2009, 06:23 PM
Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.

vladober
11-06-2009, 06:23 PM
Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.

vladober
11-06-2009, 06:23 PM
Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.

vladober
11-06-2009, 06:23 PM
Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.

vladober
11-06-2009, 06:23 PM
Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.

Marjolein
11-06-2009, 06:48 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>vladober</b></i>

Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.</end quote></div>

Vlad, Pseudo can become resistent to Colimycine. Only, not that fast.
I have nebbed Colimycine for 16 years I think, till I had my transplant. In the last year before my transplant my sputum cultures came back sometimes telling us that my Pseudo's were I (saying that they were becoming resistent).

So they definitaly can become Resistent to Colimycine.

I never had TOBI. This is because you get resitent to TOBI fasther then you do to Colimycine. I was resistent to lots of antibiotics. Only Tobra and Colimycine were still available. We saved Tobra for my many IV's. We didn't want to risk me nebbing it and becoming resistent.

Marjolein
11-06-2009, 06:48 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>vladober</b></i>

Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.</end quote></div>

Vlad, Pseudo can become resistent to Colimycine. Only, not that fast.
I have nebbed Colimycine for 16 years I think, till I had my transplant. In the last year before my transplant my sputum cultures came back sometimes telling us that my Pseudo's were I (saying that they were becoming resistent).

So they definitaly can become Resistent to Colimycine.

I never had TOBI. This is because you get resitent to TOBI fasther then you do to Colimycine. I was resistent to lots of antibiotics. Only Tobra and Colimycine were still available. We saved Tobra for my many IV's. We didn't want to risk me nebbing it and becoming resistent.

Marjolein
11-06-2009, 06:48 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>vladober</b></i>

Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.</end quote></div>

Vlad, Pseudo can become resistent to Colimycine. Only, not that fast.
I have nebbed Colimycine for 16 years I think, till I had my transplant. In the last year before my transplant my sputum cultures came back sometimes telling us that my Pseudo's were I (saying that they were becoming resistent).

So they definitaly can become Resistent to Colimycine.

I never had TOBI. This is because you get resitent to TOBI fasther then you do to Colimycine. I was resistent to lots of antibiotics. Only Tobra and Colimycine were still available. We saved Tobra for my many IV's. We didn't want to risk me nebbing it and becoming resistent.

Marjolein
11-06-2009, 06:48 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>vladober</b></i>

Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.</end quote>

Vlad, Pseudo can become resistent to Colimycine. Only, not that fast.
I have nebbed Colimycine for 16 years I think, till I had my transplant. In the last year before my transplant my sputum cultures came back sometimes telling us that my Pseudo's were I (saying that they were becoming resistent).

So they definitaly can become Resistent to Colimycine.

I never had TOBI. This is because you get resitent to TOBI fasther then you do to Colimycine. I was resistent to lots of antibiotics. Only Tobra and Colimycine were still available. We saved Tobra for my many IV's. We didn't want to risk me nebbing it and becoming resistent.

Marjolein
11-06-2009, 06:48 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>vladober</b></i>
<br />
<br />Never had problems with it, no bad reactions at all. The foam can't be helped, but it's not such a big deal. For the last 2 and 1/2 years I've been rezistant to Tobra so I only did Colistin , which apparently, does not become rezistant to Pseudomonas.</end quote>
<br />
<br />Vlad, Pseudo can become resistent to Colimycine. Only, not that fast.
<br />I have nebbed Colimycine for 16 years I think, till I had my transplant. In the last year before my transplant my sputum cultures came back sometimes telling us that my Pseudo's were I (saying that they were becoming resistent).
<br />
<br />So they definitaly can become Resistent to Colimycine.
<br />
<br />I never had TOBI. This is because you get resitent to TOBI fasther then you do to Colimycine. I was resistent to lots of antibiotics. Only Tobra and Colimycine were still available. We saved Tobra for my many IV's. We didn't want to risk me nebbing it and becoming resistent.

serendipity730
11-06-2009, 10:51 PM
Hi,

I have been on Colistin every other month for the last 5 mos. Before that, I had been on it occasionally. It works really well for me (one of the few things my PA is sensitive to). The mixing is a pain in the butt, tho, and it does taste terrible.

serendipity730
11-06-2009, 10:51 PM
Hi,

I have been on Colistin every other month for the last 5 mos. Before that, I had been on it occasionally. It works really well for me (one of the few things my PA is sensitive to). The mixing is a pain in the butt, tho, and it does taste terrible.

serendipity730
11-06-2009, 10:51 PM
Hi,

I have been on Colistin every other month for the last 5 mos. Before that, I had been on it occasionally. It works really well for me (one of the few things my PA is sensitive to). The mixing is a pain in the butt, tho, and it does taste terrible.

serendipity730
11-06-2009, 10:51 PM
Hi,

I have been on Colistin every other month for the last 5 mos. Before that, I had been on it occasionally. It works really well for me (one of the few things my PA is sensitive to). The mixing is a pain in the butt, tho, and it does taste terrible.

serendipity730
11-06-2009, 10:51 PM
Hi,
<br />
<br />I have been on Colistin every other month for the last 5 mos. Before that, I had been on it occasionally. It works really well for me (one of the few things my PA is sensitive to). The mixing is a pain in the butt, tho, and it does taste terrible.

Marjolein
11-07-2009, 01:22 PM
I never did Colimycine nebs every other month... Always, all the time, 2 times a day.

Marjolein
11-07-2009, 01:22 PM
I never did Colimycine nebs every other month... Always, all the time, 2 times a day.

Marjolein
11-07-2009, 01:22 PM
I never did Colimycine nebs every other month... Always, all the time, 2 times a day.

Marjolein
11-07-2009, 01:22 PM
I never did Colimycine nebs every other month... Always, all the time, 2 times a day.

Marjolein
11-07-2009, 01:22 PM
I never did Colimycine nebs every other month... Always, all the time, 2 times a day.

Nervous1
11-08-2009, 01:57 AM
Hi everybody,

I am also on colistin regularly. I agree that it causes SOB and tastes terrible. I have gotten used to the taste over time, and manage the SOB with inhalers as others have mentioned.

As for mixing it, I have an IV bag with saline solution hanging in my room (hidden behind a curtain) with Iv tubing connected to it. I open the tops of the vials and drip a few drops into each vial, and then close them and give them one very light shake. By the time I'm done nebbing the other stuff the colistin has dissolved. Sometimes it does fome up while nebbing, but I haven't found a way to prevent that.

In addition to being easier, the Iv bag and tubing is cheaper than the little vials of saline.

Sue

---------------

40+ Female with bronchiectasis & chronic sinusitis (no CF) who owes her quality of life to the people on this site!

Nervous1
11-08-2009, 01:57 AM
Hi everybody,

I am also on colistin regularly. I agree that it causes SOB and tastes terrible. I have gotten used to the taste over time, and manage the SOB with inhalers as others have mentioned.

As for mixing it, I have an IV bag with saline solution hanging in my room (hidden behind a curtain) with Iv tubing connected to it. I open the tops of the vials and drip a few drops into each vial, and then close them and give them one very light shake. By the time I'm done nebbing the other stuff the colistin has dissolved. Sometimes it does fome up while nebbing, but I haven't found a way to prevent that.

In addition to being easier, the Iv bag and tubing is cheaper than the little vials of saline.

Sue

---------------

40+ Female with bronchiectasis & chronic sinusitis (no CF) who owes her quality of life to the people on this site!

Nervous1
11-08-2009, 01:57 AM
Hi everybody,

I am also on colistin regularly. I agree that it causes SOB and tastes terrible. I have gotten used to the taste over time, and manage the SOB with inhalers as others have mentioned.

As for mixing it, I have an IV bag with saline solution hanging in my room (hidden behind a curtain) with Iv tubing connected to it. I open the tops of the vials and drip a few drops into each vial, and then close them and give them one very light shake. By the time I'm done nebbing the other stuff the colistin has dissolved. Sometimes it does fome up while nebbing, but I haven't found a way to prevent that.

In addition to being easier, the Iv bag and tubing is cheaper than the little vials of saline.

Sue

---------------

40+ Female with bronchiectasis & chronic sinusitis (no CF) who owes her quality of life to the people on this site!

Nervous1
11-08-2009, 01:57 AM
Hi everybody,

I am also on colistin regularly. I agree that it causes SOB and tastes terrible. I have gotten used to the taste over time, and manage the SOB with inhalers as others have mentioned.

As for mixing it, I have an IV bag with saline solution hanging in my room (hidden behind a curtain) with Iv tubing connected to it. I open the tops of the vials and drip a few drops into each vial, and then close them and give them one very light shake. By the time I'm done nebbing the other stuff the colistin has dissolved. Sometimes it does fome up while nebbing, but I haven't found a way to prevent that.

In addition to being easier, the Iv bag and tubing is cheaper than the little vials of saline.

Sue

---------------

40+ Female with bronchiectasis & chronic sinusitis (no CF) who owes her quality of life to the people on this site!

Nervous1
11-08-2009, 01:57 AM
Hi everybody,
<br />
<br />I am also on colistin regularly. I agree that it causes SOB and tastes terrible. I have gotten used to the taste over time, and manage the SOB with inhalers as others have mentioned.
<br />
<br />As for mixing it, I have an IV bag with saline solution hanging in my room (hidden behind a curtain) with Iv tubing connected to it. I open the tops of the vials and drip a few drops into each vial, and then close them and give them one very light shake. By the time I'm done nebbing the other stuff the colistin has dissolved. Sometimes it does fome up while nebbing, but I haven't found a way to prevent that.
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<br />In addition to being easier, the Iv bag and tubing is cheaper than the little vials of saline.
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<br />Sue
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<br />40+ Female with bronchiectasis & chronic sinusitis (no CF) who owes her quality of life to the people on this site!