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cf4life
10-24-2009, 12:46 AM
For those diagnosed with low bone densisty, do you take any medication for it? My doctor prescribed Fosamax, but I am a bit wary to start it because I do suffer from GERD and hiatal hernia. Anyone have any thoughts on this?

cf4life
10-24-2009, 12:46 AM
For those diagnosed with low bone densisty, do you take any medication for it? My doctor prescribed Fosamax, but I am a bit wary to start it because I do suffer from GERD and hiatal hernia. Anyone have any thoughts on this?

cf4life
10-24-2009, 12:46 AM
For those diagnosed with low bone densisty, do you take any medication for it? My doctor prescribed Fosamax, but I am a bit wary to start it because I do suffer from GERD and hiatal hernia. Anyone have any thoughts on this?

cf4life
10-24-2009, 12:46 AM
For those diagnosed with low bone densisty, do you take any medication for it? My doctor prescribed Fosamax, but I am a bit wary to start it because I do suffer from GERD and hiatal hernia. Anyone have any thoughts on this?

cf4life
10-24-2009, 12:46 AM
For those diagnosed with low bone densisty, do you take any medication for it? My doctor prescribed Fosamax, but I am a bit wary to start it because I do suffer from GERD and hiatal hernia. Anyone have any thoughts on this?

saveferris2009
10-24-2009, 03:42 AM
Ya slap your dr for being so insensitive to your GERD. Fosamax is not what you need.

You have two good options:


1. Boniva IV push. It's every 3 months which is way better than Fosamax once a month. It's a bit more pricey than Fosamax but it's only 4 times a year. Plus you can have your doc buy it and bill it to your insurance which will be WAY cheaper (and less prior auth hassle) than buying it at the pharmacy. Basically this method accesses your medical benefit as opposed to your pharmacy benefit.

If your doc sucks and refuses to buy and bill Boniva IV, getting it covered by your insurance through your pharmacy benefit (altough more expensive) shouldn't be too difficult because you have GERD. Simply have the doc do a PA for Boniva IV if it's not already covered though your pharmacy benefit and use the GERD scenario to get it covered.

The drawback here is that Boniva doesn't have as great of data as the rest of the bisphosphonates

2. Reclast is an IV drip but it's only once a year. It can cause flu like symptoms and other issues, but aggravating your GERD shouldn't be one of them since it's not PO. Fracture protection data with Reclast is the best of the bisphosphonates (better than Fosamax, Boniva or Actonel) which is rad. And it's billed through your medical benefit so it should be cheaper than fosamax as well

3. You can wait a few months until FDA approval and use a sub cu 2x a year injection of denosumab (Prolia). Same fracture data as Reclast, but it's not IV which is nice. It's injected just like insulin, but of course only 2x a year. And since it's not PO, you don't have to worry about GERD. Fosamax has a 10 year half life, which I think blows. Denosumab's is less than 1/2 a year.

Again, you should push your doc to buy and bill Prolia because it will be a hell of a lot cheaper than going to the pharmacy to get it. And the formulary issues will be almost 0 if you go through your medical benefit versus your pharmacy benefit.

Let me know if you have any questions.

saveferris2009
10-24-2009, 03:42 AM
Ya slap your dr for being so insensitive to your GERD. Fosamax is not what you need.

You have two good options:


1. Boniva IV push. It's every 3 months which is way better than Fosamax once a month. It's a bit more pricey than Fosamax but it's only 4 times a year. Plus you can have your doc buy it and bill it to your insurance which will be WAY cheaper (and less prior auth hassle) than buying it at the pharmacy. Basically this method accesses your medical benefit as opposed to your pharmacy benefit.

If your doc sucks and refuses to buy and bill Boniva IV, getting it covered by your insurance through your pharmacy benefit (altough more expensive) shouldn't be too difficult because you have GERD. Simply have the doc do a PA for Boniva IV if it's not already covered though your pharmacy benefit and use the GERD scenario to get it covered.

The drawback here is that Boniva doesn't have as great of data as the rest of the bisphosphonates

2. Reclast is an IV drip but it's only once a year. It can cause flu like symptoms and other issues, but aggravating your GERD shouldn't be one of them since it's not PO. Fracture protection data with Reclast is the best of the bisphosphonates (better than Fosamax, Boniva or Actonel) which is rad. And it's billed through your medical benefit so it should be cheaper than fosamax as well

3. You can wait a few months until FDA approval and use a sub cu 2x a year injection of denosumab (Prolia). Same fracture data as Reclast, but it's not IV which is nice. It's injected just like insulin, but of course only 2x a year. And since it's not PO, you don't have to worry about GERD. Fosamax has a 10 year half life, which I think blows. Denosumab's is less than 1/2 a year.

Again, you should push your doc to buy and bill Prolia because it will be a hell of a lot cheaper than going to the pharmacy to get it. And the formulary issues will be almost 0 if you go through your medical benefit versus your pharmacy benefit.

Let me know if you have any questions.

saveferris2009
10-24-2009, 03:42 AM
Ya slap your dr for being so insensitive to your GERD. Fosamax is not what you need.

You have two good options:


1. Boniva IV push. It's every 3 months which is way better than Fosamax once a month. It's a bit more pricey than Fosamax but it's only 4 times a year. Plus you can have your doc buy it and bill it to your insurance which will be WAY cheaper (and less prior auth hassle) than buying it at the pharmacy. Basically this method accesses your medical benefit as opposed to your pharmacy benefit.

If your doc sucks and refuses to buy and bill Boniva IV, getting it covered by your insurance through your pharmacy benefit (altough more expensive) shouldn't be too difficult because you have GERD. Simply have the doc do a PA for Boniva IV if it's not already covered though your pharmacy benefit and use the GERD scenario to get it covered.

The drawback here is that Boniva doesn't have as great of data as the rest of the bisphosphonates

2. Reclast is an IV drip but it's only once a year. It can cause flu like symptoms and other issues, but aggravating your GERD shouldn't be one of them since it's not PO. Fracture protection data with Reclast is the best of the bisphosphonates (better than Fosamax, Boniva or Actonel) which is rad. And it's billed through your medical benefit so it should be cheaper than fosamax as well

3. You can wait a few months until FDA approval and use a sub cu 2x a year injection of denosumab (Prolia). Same fracture data as Reclast, but it's not IV which is nice. It's injected just like insulin, but of course only 2x a year. And since it's not PO, you don't have to worry about GERD. Fosamax has a 10 year half life, which I think blows. Denosumab's is less than 1/2 a year.

Again, you should push your doc to buy and bill Prolia because it will be a hell of a lot cheaper than going to the pharmacy to get it. And the formulary issues will be almost 0 if you go through your medical benefit versus your pharmacy benefit.

Let me know if you have any questions.

saveferris2009
10-24-2009, 03:42 AM
Ya slap your dr for being so insensitive to your GERD. Fosamax is not what you need.

You have two good options:


1. Boniva IV push. It's every 3 months which is way better than Fosamax once a month. It's a bit more pricey than Fosamax but it's only 4 times a year. Plus you can have your doc buy it and bill it to your insurance which will be WAY cheaper (and less prior auth hassle) than buying it at the pharmacy. Basically this method accesses your medical benefit as opposed to your pharmacy benefit.

If your doc sucks and refuses to buy and bill Boniva IV, getting it covered by your insurance through your pharmacy benefit (altough more expensive) shouldn't be too difficult because you have GERD. Simply have the doc do a PA for Boniva IV if it's not already covered though your pharmacy benefit and use the GERD scenario to get it covered.

The drawback here is that Boniva doesn't have as great of data as the rest of the bisphosphonates

2. Reclast is an IV drip but it's only once a year. It can cause flu like symptoms and other issues, but aggravating your GERD shouldn't be one of them since it's not PO. Fracture protection data with Reclast is the best of the bisphosphonates (better than Fosamax, Boniva or Actonel) which is rad. And it's billed through your medical benefit so it should be cheaper than fosamax as well

3. You can wait a few months until FDA approval and use a sub cu 2x a year injection of denosumab (Prolia). Same fracture data as Reclast, but it's not IV which is nice. It's injected just like insulin, but of course only 2x a year. And since it's not PO, you don't have to worry about GERD. Fosamax has a 10 year half life, which I think blows. Denosumab's is less than 1/2 a year.

Again, you should push your doc to buy and bill Prolia because it will be a hell of a lot cheaper than going to the pharmacy to get it. And the formulary issues will be almost 0 if you go through your medical benefit versus your pharmacy benefit.

Let me know if you have any questions.

saveferris2009
10-24-2009, 03:42 AM
Ya slap your dr for being so insensitive to your GERD. Fosamax is not what you need.
<br />
<br />You have two good options:
<br />
<br />
<br />1. Boniva IV push. It's every 3 months which is way better than Fosamax once a month. It's a bit more pricey than Fosamax but it's only 4 times a year. Plus you can have your doc buy it and bill it to your insurance which will be WAY cheaper (and less prior auth hassle) than buying it at the pharmacy. Basically this method accesses your medical benefit as opposed to your pharmacy benefit.
<br />
<br />If your doc sucks and refuses to buy and bill Boniva IV, getting it covered by your insurance through your pharmacy benefit (altough more expensive) shouldn't be too difficult because you have GERD. Simply have the doc do a PA for Boniva IV if it's not already covered though your pharmacy benefit and use the GERD scenario to get it covered.
<br />
<br />The drawback here is that Boniva doesn't have as great of data as the rest of the bisphosphonates
<br />
<br />2. Reclast is an IV drip but it's only once a year. It can cause flu like symptoms and other issues, but aggravating your GERD shouldn't be one of them since it's not PO. Fracture protection data with Reclast is the best of the bisphosphonates (better than Fosamax, Boniva or Actonel) which is rad. And it's billed through your medical benefit so it should be cheaper than fosamax as well
<br />
<br />3. You can wait a few months until FDA approval and use a sub cu 2x a year injection of denosumab (Prolia). Same fracture data as Reclast, but it's not IV which is nice. It's injected just like insulin, but of course only 2x a year. And since it's not PO, you don't have to worry about GERD. Fosamax has a 10 year half life, which I think blows. Denosumab's is less than 1/2 a year.
<br />
<br />Again, you should push your doc to buy and bill Prolia because it will be a hell of a lot cheaper than going to the pharmacy to get it. And the formulary issues will be almost 0 if you go through your medical benefit versus your pharmacy benefit.
<br />
<br />Let me know if you have any questions.

Cerulean
11-12-2009, 05:37 PM
I was told that I was somewhat Ca deficient, which is really strange since I drink a lot and I mean A LOT of milk. Drs put me on a Ca supliment, Caltrate.

Cerulean
11-12-2009, 05:37 PM
I was told that I was somewhat Ca deficient, which is really strange since I drink a lot and I mean A LOT of milk. Drs put me on a Ca supliment, Caltrate.

Cerulean
11-12-2009, 05:37 PM
I was told that I was somewhat Ca deficient, which is really strange since I drink a lot and I mean A LOT of milk. Drs put me on a Ca supliment, Caltrate.

Cerulean
11-12-2009, 05:37 PM
I was told that I was somewhat Ca deficient, which is really strange since I drink a lot and I mean A LOT of milk. Drs put me on a Ca supliment, Caltrate.

Cerulean
11-12-2009, 05:37 PM
I was told that I was somewhat Ca deficient, which is really strange since I drink a lot and I mean A LOT of milk. Drs put me on a Ca supliment, Caltrate.

saveferris2009
11-12-2009, 06:34 PM
in order to absorb calcium, you have to have enough vitamin D.

Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.

saveferris2009
11-12-2009, 06:34 PM
in order to absorb calcium, you have to have enough vitamin D.

Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.

saveferris2009
11-12-2009, 06:34 PM
in order to absorb calcium, you have to have enough vitamin D.

Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.

saveferris2009
11-12-2009, 06:34 PM
in order to absorb calcium, you have to have enough vitamin D.

Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.

saveferris2009
11-12-2009, 06:34 PM
in order to absorb calcium, you have to have enough vitamin D.
<br />
<br />Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.

JennifersHope
11-12-2009, 11:02 PM
I am getting IV Boniva, I have horrible, borrible gerd so PO was not an option for me at all... I get my first dose this month.. I had to wait until my Vitamin D level came up before they could give it to me.

JennifersHope
11-12-2009, 11:02 PM
I am getting IV Boniva, I have horrible, borrible gerd so PO was not an option for me at all... I get my first dose this month.. I had to wait until my Vitamin D level came up before they could give it to me.

JennifersHope
11-12-2009, 11:02 PM
I am getting IV Boniva, I have horrible, borrible gerd so PO was not an option for me at all... I get my first dose this month.. I had to wait until my Vitamin D level came up before they could give it to me.

JennifersHope
11-12-2009, 11:02 PM
I am getting IV Boniva, I have horrible, borrible gerd so PO was not an option for me at all... I get my first dose this month.. I had to wait until my Vitamin D level came up before they could give it to me.

JennifersHope
11-12-2009, 11:02 PM
I am getting IV Boniva, I have horrible, borrible gerd so PO was not an option for me at all... I get my first dose this month.. I had to wait until my Vitamin D level came up before they could give it to me.

Cerulean
11-13-2009, 12:13 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

in order to absorb calcium, you have to have enough vitamin D.



Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.</end quote></div>

duh I don't know why I hadn't thought of that. I hadn't been taking Creon for the longest time, so that makes perfect sense.

Cerulean
11-13-2009, 12:13 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

in order to absorb calcium, you have to have enough vitamin D.



Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.</end quote></div>

duh I don't know why I hadn't thought of that. I hadn't been taking Creon for the longest time, so that makes perfect sense.

Cerulean
11-13-2009, 12:13 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

in order to absorb calcium, you have to have enough vitamin D.



Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.</end quote></div>

duh I don't know why I hadn't thought of that. I hadn't been taking Creon for the longest time, so that makes perfect sense.

Cerulean
11-13-2009, 12:13 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>

in order to absorb calcium, you have to have enough vitamin D.



Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.</end quote>

duh I don't know why I hadn't thought of that. I hadn't been taking Creon for the longest time, so that makes perfect sense.

Cerulean
11-13-2009, 12:13 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i>
<br />
<br />in order to absorb calcium, you have to have enough vitamin D.
<br />
<br />
<br />
<br />Vitamin D is fat soluable, so many CFer's are deficient in it. And therefore deficient in calcium.</end quote>
<br />
<br />duh I don't know why I hadn't thought of that. I hadn't been taking Creon for the longest time, so that makes perfect sense.

jfarel
11-13-2009, 01:14 AM
I do the yearly reclast, since I have Gerd also. I got the flu symptoms the first time (fever achiness). The second dose, about a year later, the side effects weren't nearly as bad.

One other option is an injectable called Forteo. It actually rebuilds lost bone.

jfarel
11-13-2009, 01:14 AM
I do the yearly reclast, since I have Gerd also. I got the flu symptoms the first time (fever achiness). The second dose, about a year later, the side effects weren't nearly as bad.

One other option is an injectable called Forteo. It actually rebuilds lost bone.

jfarel
11-13-2009, 01:14 AM
I do the yearly reclast, since I have Gerd also. I got the flu symptoms the first time (fever achiness). The second dose, about a year later, the side effects weren't nearly as bad.

One other option is an injectable called Forteo. It actually rebuilds lost bone.

jfarel
11-13-2009, 01:14 AM
I do the yearly reclast, since I have Gerd also. I got the flu symptoms the first time (fever achiness). The second dose, about a year later, the side effects weren't nearly as bad.

One other option is an injectable called Forteo. It actually rebuilds lost bone.

jfarel
11-13-2009, 01:14 AM
I do the yearly reclast, since I have Gerd also. I got the flu symptoms the first time (fever achiness). The second dose, about a year later, the side effects weren't nearly as bad.
<br />
<br />One other option is an injectable called Forteo. It actually rebuilds lost bone.

saveferris2009
11-13-2009, 01:25 AM
Forteo can only be used for 2 years (and it's a once daily injection for those two years) due to risk of bone cancer.

It's a great drug if you're severe, but should be used with caution.

saveferris2009
11-13-2009, 01:25 AM
Forteo can only be used for 2 years (and it's a once daily injection for those two years) due to risk of bone cancer.

It's a great drug if you're severe, but should be used with caution.

saveferris2009
11-13-2009, 01:25 AM
Forteo can only be used for 2 years (and it's a once daily injection for those two years) due to risk of bone cancer.

It's a great drug if you're severe, but should be used with caution.

saveferris2009
11-13-2009, 01:25 AM
Forteo can only be used for 2 years (and it's a once daily injection for those two years) due to risk of bone cancer.

It's a great drug if you're severe, but should be used with caution.

saveferris2009
11-13-2009, 01:25 AM
Forteo can only be used for 2 years (and it's a once daily injection for those two years) due to risk of bone cancer.
<br />
<br />It's a great drug if you're severe, but should be used with caution.

semperfiohana
11-13-2009, 11:25 AM
i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.

semperfiohana
11-13-2009, 11:25 AM
i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.

semperfiohana
11-13-2009, 11:25 AM
i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.

semperfiohana
11-13-2009, 11:25 AM
i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.

semperfiohana
11-13-2009, 11:25 AM
i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.

AnnieT
11-13-2009, 04:28 PM
My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.

AnnieT
11-13-2009, 04:28 PM
My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.

AnnieT
11-13-2009, 04:28 PM
My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.

AnnieT
11-13-2009, 04:28 PM
My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.

AnnieT
11-13-2009, 04:28 PM
My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.

saveferris2009
11-13-2009, 05:08 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.</end quote></div>

A few points:


1. This is why many CFer's use IV Boniva or Reclast. It's a pain to comply with the restrictions of PO Fosamax, Boniva or Actonel

2. You should be getting a DEXA scan once a year, per CFF guidelines.

saveferris2009
11-13-2009, 05:08 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.</end quote></div>

A few points:


1. This is why many CFer's use IV Boniva or Reclast. It's a pain to comply with the restrictions of PO Fosamax, Boniva or Actonel

2. You should be getting a DEXA scan once a year, per CFF guidelines.

saveferris2009
11-13-2009, 05:08 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.</end quote></div>

A few points:


1. This is why many CFer's use IV Boniva or Reclast. It's a pain to comply with the restrictions of PO Fosamax, Boniva or Actonel

2. You should be getting a DEXA scan once a year, per CFF guidelines.

saveferris2009
11-13-2009, 05:08 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>

i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.</end quote>

A few points:


1. This is why many CFer's use IV Boniva or Reclast. It's a pain to comply with the restrictions of PO Fosamax, Boniva or Actonel

2. You should be getting a DEXA scan once a year, per CFF guidelines.

saveferris2009
11-13-2009, 05:08 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>semperfiohana</b></i>
<br />
<br />i'm supposed to take fosamax, but can't seem to ever remember to take it. and the fact that you have to take it before you eat and then wait an amount of time and then make sure you eat and make sure you only sit or stand for 30 min after you take the pill, no laying down is just pushes my buttons the wrong way. here's a question what's safe for pregnant ladies to take? i do take calcium that has viatmin d in it. i have osteopina (i'm sure i spelled that wrong). that was at my last bone scan about 2 1/2 years ago.</end quote>
<br />
<br />A few points:
<br />
<br />
<br />1. This is why many CFer's use IV Boniva or Reclast. It's a pain to comply with the restrictions of PO Fosamax, Boniva or Actonel
<br />
<br />2. You should be getting a DEXA scan once a year, per CFF guidelines.

saveferris2009
11-13-2009, 05:09 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>

Many people with lung issues are on inhaled or systemic steroids, which can make us more prone to bone loss <img src="i/expressions/face-icon-small-smile.gif" border="0">

saveferris2009
11-13-2009, 05:09 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>

Many people with lung issues are on inhaled or systemic steroids, which can make us more prone to bone loss <img src="i/expressions/face-icon-small-smile.gif" border="0">

saveferris2009
11-13-2009, 05:09 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>

Many people with lung issues are on inhaled or systemic steroids, which can make us more prone to bone loss <img src="i/expressions/face-icon-small-smile.gif" border="0">

saveferris2009
11-13-2009, 05:09 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote>

Many people with lung issues are on inhaled or systemic steroids, which can make us more prone to bone loss <img src="i/expressions/face-icon-small-smile.gif" border="0">

saveferris2009
11-13-2009, 05:09 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>
<br />
<br />My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote>
<br />
<br />Many people with lung issues are on inhaled or systemic steroids, which can make us more prone to bone loss <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cerulean
11-13-2009, 05:49 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>

In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. BTW That is why you often see store bought milk with vit D added to it. It helps those regular people out there who lack vit D in their diets to absorb the calcium.

Cerulean
11-13-2009, 05:49 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>

In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. BTW That is why you often see store bought milk with vit D added to it. It helps those regular people out there who lack vit D in their diets to absorb the calcium.

Cerulean
11-13-2009, 05:49 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>

In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. BTW That is why you often see store bought milk with vit D added to it. It helps those regular people out there who lack vit D in their diets to absorb the calcium.

Cerulean
11-13-2009, 05:49 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>

My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote>

In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. BTW That is why you often see store bought milk with vit D added to it. It helps those regular people out there who lack vit D in their diets to absorb the calcium.

Cerulean
11-13-2009, 05:49 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>
<br />
<br />My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote>
<br />
<br />In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. BTW That is why you often see store bought milk with vit D added to it. It helps those regular people out there who lack vit D in their diets to absorb the calcium.

semperfiohana
11-13-2009, 06:59 PM
i've asked for a scan but my clinic has been dragging their feet. so at this point when i move in jan i will ask for one at the clinic that i move to.

semperfiohana
11-13-2009, 06:59 PM
i've asked for a scan but my clinic has been dragging their feet. so at this point when i move in jan i will ask for one at the clinic that i move to.

semperfiohana
11-13-2009, 06:59 PM
i've asked for a scan but my clinic has been dragging their feet. so at this point when i move in jan i will ask for one at the clinic that i move to.

semperfiohana
11-13-2009, 06:59 PM
i've asked for a scan but my clinic has been dragging their feet. so at this point when i move in jan i will ask for one at the clinic that i move to.

semperfiohana
11-13-2009, 06:59 PM
i've asked for a scan but my clinic has been dragging their feet. so at this point when i move in jan i will ask for one at the clinic that i move to.

saveferris2009
11-13-2009, 08:59 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>



My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>



In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. </end quote></div>


She doesn't have CF.... so the malabsorbtion issue doesn't apply to her (although I did mention all of what you said in my post 11/12/2009 03:34 PM <img src="i/expressions/face-icon-small-smile.gif" border="0"> )

saveferris2009
11-13-2009, 08:59 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>



My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>



In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. </end quote></div>


She doesn't have CF.... so the malabsorbtion issue doesn't apply to her (although I did mention all of what you said in my post 11/12/2009 03:34 PM <img src="i/expressions/face-icon-small-smile.gif" border="0"> )

saveferris2009
11-13-2009, 08:59 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>



My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote></div>



In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. </end quote></div>


She doesn't have CF.... so the malabsorbtion issue doesn't apply to her (although I did mention all of what you said in my post 11/12/2009 03:34 PM <img src="i/expressions/face-icon-small-smile.gif" border="0"> )

saveferris2009
11-13-2009, 08:59 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i>

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>



My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote>



In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. </end quote>


She doesn't have CF.... so the malabsorbtion issue doesn't apply to her (although I did mention all of what you said in my post 11/12/2009 03:34 PM <img src="i/expressions/face-icon-small-smile.gif" border="0"> )

saveferris2009
11-13-2009, 08:59 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cerulean</b></i>
<br />
<br /><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AnnieT</b></i>
<br />
<br />
<br />
<br />My brother also has my lung disorder but he just got dx with osteoporosis. Excuse me I do not mean to sound ignorant, or uneducated, but is osteoporosis something that those with CF or my lung disease more susceptible too? My brother is only 29 and I am 31 so am just curious. He just diagnosed with Osteoporosis a couple of months ago.</end quote>
<br />
<br />
<br />
<br />In addition to what Ferris said, CFers have malabsorbtion issues, we don't digest fat soluable vitamins like A,D,E or K very well, if at all. Vitamin D and Calcium go hand in hand. Vit D helps in the uptake and body's use of the calcium. Since we are vit D deficient, we are also calcium deficient, unless we have a way to counter that. We take enzymes to help in digestion of these fat soluable vitamins because most of our pancreases are etiher not functioning or reduced fuctioning. </end quote>
<br />
<br />
<br />She doesn't have CF.... so the malabsorbtion issue doesn't apply to her (although I did mention all of what you said in my post 11/12/2009 03:34 PM <img src="i/expressions/face-icon-small-smile.gif" border="0"> )

Cerulean
11-13-2009, 10:39 PM
Yes you did. Did you see that I gave you credit? <img src="i/expressions/face-icon-small-wink.gif" border="0"> But she was asking if there was a relationship between CFers and her. From what we have described she can extrapolate that there is indeed no relationship, as ours is do to malabsorbtion issues, unless its related to lung function. That I know nothing of.

Cerulean
11-13-2009, 10:39 PM
Yes you did. Did you see that I gave you credit? <img src="i/expressions/face-icon-small-wink.gif" border="0"> But she was asking if there was a relationship between CFers and her. From what we have described she can extrapolate that there is indeed no relationship, as ours is do to malabsorbtion issues, unless its related to lung function. That I know nothing of.

Cerulean
11-13-2009, 10:39 PM
Yes you did. Did you see that I gave you credit? <img src="i/expressions/face-icon-small-wink.gif" border="0"> But she was asking if there was a relationship between CFers and her. From what we have described she can extrapolate that there is indeed no relationship, as ours is do to malabsorbtion issues, unless its related to lung function. That I know nothing of.

Cerulean
11-13-2009, 10:39 PM
Yes you did. Did you see that I gave you credit? <img src="i/expressions/face-icon-small-wink.gif" border="0"> But she was asking if there was a relationship between CFers and her. From what we have described she can extrapolate that there is indeed no relationship, as ours is do to malabsorbtion issues, unless its related to lung function. That I know nothing of.

Cerulean
11-13-2009, 10:39 PM
Yes you did. Did you see that I gave you credit? <img src="i/expressions/face-icon-small-wink.gif" border="0"> But she was asking if there was a relationship between CFers and her. From what we have described she can extrapolate that there is indeed no relationship, as ours is do to malabsorbtion issues, unless its related to lung function. That I know nothing of.

AnnieT
11-15-2009, 02:13 PM
Sorry I didn't mean to hijack yalls thread, but thank you for your answers and for teaching me something <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnnieT
11-15-2009, 02:13 PM
Sorry I didn't mean to hijack yalls thread, but thank you for your answers and for teaching me something <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnnieT
11-15-2009, 02:13 PM
Sorry I didn't mean to hijack yalls thread, but thank you for your answers and for teaching me something <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnnieT
11-15-2009, 02:13 PM
Sorry I didn't mean to hijack yalls thread, but thank you for your answers and for teaching me something <img src="i/expressions/face-icon-small-smile.gif" border="0">

AnnieT
11-15-2009, 02:13 PM
Sorry I didn't mean to hijack yalls thread, but thank you for your answers and for teaching me something <img src="i/expressions/face-icon-small-smile.gif" border="0">