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crystalina0814
10-23-2009, 11:07 PM
I seriously just need to vent to other who I know will understand how I feel.

How it that the common everyday american- millions of them- can get a prescription for painkillers for everything from a backache to a simple toothache. But me, who has legitimate pain...serious pain at times, is always prescriped the same useless crap- Ibprofin?? Currently I am getting over the flu, and now add in Pleurisy. My chest hurts so bad I can hardly walk and my joints are KILLING me. Everytime I get sick, my CF related arthiritis acts up. NO fail, everytime. Every single joint in my body kills me. Ibprofin does not even touch the amount of pain I am in. When I bring this up to my doctor, she says that a lot of people with Chronic illness become addicted to painkillers- so they do not like to prescribe them. If I ask, the answer is usually no. They were even hesitant giving me a three day supply after my port surgery.

I am so frusterated.

My sister who has a self induced sexually transmitted disease has an unlimited supply written out to her name for the rest of her life for flare-ups(herpes), but me, who suffers daily with pains that the common, non-cfer, person could not begin to handle, can't even get a few day supply.

What do I do? What do your doctors do?

crystalina0814
10-23-2009, 11:07 PM
I seriously just need to vent to other who I know will understand how I feel.

How it that the common everyday american- millions of them- can get a prescription for painkillers for everything from a backache to a simple toothache. But me, who has legitimate pain...serious pain at times, is always prescriped the same useless crap- Ibprofin?? Currently I am getting over the flu, and now add in Pleurisy. My chest hurts so bad I can hardly walk and my joints are KILLING me. Everytime I get sick, my CF related arthiritis acts up. NO fail, everytime. Every single joint in my body kills me. Ibprofin does not even touch the amount of pain I am in. When I bring this up to my doctor, she says that a lot of people with Chronic illness become addicted to painkillers- so they do not like to prescribe them. If I ask, the answer is usually no. They were even hesitant giving me a three day supply after my port surgery.

I am so frusterated.

My sister who has a self induced sexually transmitted disease has an unlimited supply written out to her name for the rest of her life for flare-ups(herpes), but me, who suffers daily with pains that the common, non-cfer, person could not begin to handle, can't even get a few day supply.

What do I do? What do your doctors do?

crystalina0814
10-23-2009, 11:07 PM
I seriously just need to vent to other who I know will understand how I feel.

How it that the common everyday american- millions of them- can get a prescription for painkillers for everything from a backache to a simple toothache. But me, who has legitimate pain...serious pain at times, is always prescriped the same useless crap- Ibprofin?? Currently I am getting over the flu, and now add in Pleurisy. My chest hurts so bad I can hardly walk and my joints are KILLING me. Everytime I get sick, my CF related arthiritis acts up. NO fail, everytime. Every single joint in my body kills me. Ibprofin does not even touch the amount of pain I am in. When I bring this up to my doctor, she says that a lot of people with Chronic illness become addicted to painkillers- so they do not like to prescribe them. If I ask, the answer is usually no. They were even hesitant giving me a three day supply after my port surgery.

I am so frusterated.

My sister who has a self induced sexually transmitted disease has an unlimited supply written out to her name for the rest of her life for flare-ups(herpes), but me, who suffers daily with pains that the common, non-cfer, person could not begin to handle, can't even get a few day supply.

What do I do? What do your doctors do?

crystalina0814
10-23-2009, 11:07 PM
I seriously just need to vent to other who I know will understand how I feel.

How it that the common everyday american- millions of them- can get a prescription for painkillers for everything from a backache to a simple toothache. But me, who has legitimate pain...serious pain at times, is always prescriped the same useless crap- Ibprofin?? Currently I am getting over the flu, and now add in Pleurisy. My chest hurts so bad I can hardly walk and my joints are KILLING me. Everytime I get sick, my CF related arthiritis acts up. NO fail, everytime. Every single joint in my body kills me. Ibprofin does not even touch the amount of pain I am in. When I bring this up to my doctor, she says that a lot of people with Chronic illness become addicted to painkillers- so they do not like to prescribe them. If I ask, the answer is usually no. They were even hesitant giving me a three day supply after my port surgery.

I am so frusterated.

My sister who has a self induced sexually transmitted disease has an unlimited supply written out to her name for the rest of her life for flare-ups(herpes), but me, who suffers daily with pains that the common, non-cfer, person could not begin to handle, can't even get a few day supply.

What do I do? What do your doctors do?

crystalina0814
10-23-2009, 11:07 PM
I seriously just need to vent to other who I know will understand how I feel.
<br />
<br />How it that the common everyday american- millions of them- can get a prescription for painkillers for everything from a backache to a simple toothache. But me, who has legitimate pain...serious pain at times, is always prescriped the same useless crap- Ibprofin?? Currently I am getting over the flu, and now add in Pleurisy. My chest hurts so bad I can hardly walk and my joints are KILLING me. Everytime I get sick, my CF related arthiritis acts up. NO fail, everytime. Every single joint in my body kills me. Ibprofin does not even touch the amount of pain I am in. When I bring this up to my doctor, she says that a lot of people with Chronic illness become addicted to painkillers- so they do not like to prescribe them. If I ask, the answer is usually no. They were even hesitant giving me a three day supply after my port surgery.
<br />
<br />I am so frusterated.
<br />
<br />My sister who has a self induced sexually transmitted disease has an unlimited supply written out to her name for the rest of her life for flare-ups(herpes), but me, who suffers daily with pains that the common, non-cfer, person could not begin to handle, can't even get a few day supply.
<br />
<br />What do I do? What do your doctors do?

JazzysMom
10-23-2009, 11:19 PM
I am sooo sorry to hear you have to suffer like this. Although I can understand their concern as a whole....unless you have given them reason to question you specifically then they are IMHO being medically negligent.

I never had an issue with my doctors & getting pain meds. For years I didnt take them & even when I finally gave in & needed them....I tried not to over use them.

They actually got upset with me because they felt if I was in pain that it would causes issues in other areas.

Is there another doctor (non CF) that you could go to to get help with the joint pain?

JazzysMom
10-23-2009, 11:19 PM
I am sooo sorry to hear you have to suffer like this. Although I can understand their concern as a whole....unless you have given them reason to question you specifically then they are IMHO being medically negligent.

I never had an issue with my doctors & getting pain meds. For years I didnt take them & even when I finally gave in & needed them....I tried not to over use them.

They actually got upset with me because they felt if I was in pain that it would causes issues in other areas.

Is there another doctor (non CF) that you could go to to get help with the joint pain?

JazzysMom
10-23-2009, 11:19 PM
I am sooo sorry to hear you have to suffer like this. Although I can understand their concern as a whole....unless you have given them reason to question you specifically then they are IMHO being medically negligent.

I never had an issue with my doctors & getting pain meds. For years I didnt take them & even when I finally gave in & needed them....I tried not to over use them.

They actually got upset with me because they felt if I was in pain that it would causes issues in other areas.

Is there another doctor (non CF) that you could go to to get help with the joint pain?

JazzysMom
10-23-2009, 11:19 PM
I am sooo sorry to hear you have to suffer like this. Although I can understand their concern as a whole....unless you have given them reason to question you specifically then they are IMHO being medically negligent.

I never had an issue with my doctors & getting pain meds. For years I didnt take them & even when I finally gave in & needed them....I tried not to over use them.

They actually got upset with me because they felt if I was in pain that it would causes issues in other areas.

Is there another doctor (non CF) that you could go to to get help with the joint pain?

JazzysMom
10-23-2009, 11:19 PM
I am sooo sorry to hear you have to suffer like this. Although I can understand their concern as a whole....unless you have given them reason to question you specifically then they are IMHO being medically negligent.
<br />
<br />I never had an issue with my doctors & getting pain meds. For years I didnt take them & even when I finally gave in & needed them....I tried not to over use them.
<br />
<br />They actually got upset with me because they felt if I was in pain that it would causes issues in other areas.
<br />
<br />Is there another doctor (non CF) that you could go to to get help with the joint pain?

tesorotiffa
10-23-2009, 11:28 PM
My doc has always been more than happy to give me whatever meds I needed for joint pain or muscle pain. When I'm in the hospital and have had surgery, I rarely even ask for anything because I like to try and let my body tolerate it. Her new partner however will only give me motrin, which obviously doesn't help! I don't know why some people are so stingy with meds especially since like you said there are plenty of people who get pain pills for no legitimate reason!

Nobody was ever able to actually diagnose me with arthritis, but everytime I was on antibiotics I would have days where I couldn't even move. My doc doesn't like to prescribe me Prednisone, but when I have enough pain that I call her, she will give me a taper. I found that with the joint pain, Prednisone was the only thing that would help it.

I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!

I hope you are able to get some relief!

tesorotiffa
10-23-2009, 11:28 PM
My doc has always been more than happy to give me whatever meds I needed for joint pain or muscle pain. When I'm in the hospital and have had surgery, I rarely even ask for anything because I like to try and let my body tolerate it. Her new partner however will only give me motrin, which obviously doesn't help! I don't know why some people are so stingy with meds especially since like you said there are plenty of people who get pain pills for no legitimate reason!

Nobody was ever able to actually diagnose me with arthritis, but everytime I was on antibiotics I would have days where I couldn't even move. My doc doesn't like to prescribe me Prednisone, but when I have enough pain that I call her, she will give me a taper. I found that with the joint pain, Prednisone was the only thing that would help it.

I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!

I hope you are able to get some relief!

tesorotiffa
10-23-2009, 11:28 PM
My doc has always been more than happy to give me whatever meds I needed for joint pain or muscle pain. When I'm in the hospital and have had surgery, I rarely even ask for anything because I like to try and let my body tolerate it. Her new partner however will only give me motrin, which obviously doesn't help! I don't know why some people are so stingy with meds especially since like you said there are plenty of people who get pain pills for no legitimate reason!

Nobody was ever able to actually diagnose me with arthritis, but everytime I was on antibiotics I would have days where I couldn't even move. My doc doesn't like to prescribe me Prednisone, but when I have enough pain that I call her, she will give me a taper. I found that with the joint pain, Prednisone was the only thing that would help it.

I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!

I hope you are able to get some relief!

tesorotiffa
10-23-2009, 11:28 PM
My doc has always been more than happy to give me whatever meds I needed for joint pain or muscle pain. When I'm in the hospital and have had surgery, I rarely even ask for anything because I like to try and let my body tolerate it. Her new partner however will only give me motrin, which obviously doesn't help! I don't know why some people are so stingy with meds especially since like you said there are plenty of people who get pain pills for no legitimate reason!

Nobody was ever able to actually diagnose me with arthritis, but everytime I was on antibiotics I would have days where I couldn't even move. My doc doesn't like to prescribe me Prednisone, but when I have enough pain that I call her, she will give me a taper. I found that with the joint pain, Prednisone was the only thing that would help it.

I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!

I hope you are able to get some relief!

tesorotiffa
10-23-2009, 11:28 PM
My doc has always been more than happy to give me whatever meds I needed for joint pain or muscle pain. When I'm in the hospital and have had surgery, I rarely even ask for anything because I like to try and let my body tolerate it. Her new partner however will only give me motrin, which obviously doesn't help! I don't know why some people are so stingy with meds especially since like you said there are plenty of people who get pain pills for no legitimate reason!
<br />
<br />Nobody was ever able to actually diagnose me with arthritis, but everytime I was on antibiotics I would have days where I couldn't even move. My doc doesn't like to prescribe me Prednisone, but when I have enough pain that I call her, she will give me a taper. I found that with the joint pain, Prednisone was the only thing that would help it.
<br />
<br />I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!
<br />
<br />I hope you are able to get some relief!

crystalina0814
10-24-2009, 01:35 AM
I understand what you mean with the try and tolerate it. I do that all the time! I think the pain is just getting at me today though...relief would be nice every now and then!

crystalina0814
10-24-2009, 01:35 AM
I understand what you mean with the try and tolerate it. I do that all the time! I think the pain is just getting at me today though...relief would be nice every now and then!

crystalina0814
10-24-2009, 01:35 AM
I understand what you mean with the try and tolerate it. I do that all the time! I think the pain is just getting at me today though...relief would be nice every now and then!

crystalina0814
10-24-2009, 01:35 AM
I understand what you mean with the try and tolerate it. I do that all the time! I think the pain is just getting at me today though...relief would be nice every now and then!

crystalina0814
10-24-2009, 01:35 AM
I understand what you mean with the try and tolerate it. I do that all the time! I think the pain is just getting at me today though...relief would be nice every now and then!

tesorotiffa
10-24-2009, 01:59 AM
Sometimes I think they just don't understand that we go through enough and tolerate enough .. and if giving us pain meds makes the experience a little better, then just do it! No point in putting someone through more pain and suffering than what is absolutely necessary!!!

tesorotiffa
10-24-2009, 01:59 AM
Sometimes I think they just don't understand that we go through enough and tolerate enough .. and if giving us pain meds makes the experience a little better, then just do it! No point in putting someone through more pain and suffering than what is absolutely necessary!!!

tesorotiffa
10-24-2009, 01:59 AM
Sometimes I think they just don't understand that we go through enough and tolerate enough .. and if giving us pain meds makes the experience a little better, then just do it! No point in putting someone through more pain and suffering than what is absolutely necessary!!!

tesorotiffa
10-24-2009, 01:59 AM
Sometimes I think they just don't understand that we go through enough and tolerate enough .. and if giving us pain meds makes the experience a little better, then just do it! No point in putting someone through more pain and suffering than what is absolutely necessary!!!

tesorotiffa
10-24-2009, 01:59 AM
Sometimes I think they just don't understand that we go through enough and tolerate enough .. and if giving us pain meds makes the experience a little better, then just do it! No point in putting someone through more pain and suffering than what is absolutely necessary!!!

kkilroy13
10-25-2009, 11:44 AM
Hello! i've had the same problem with my CF doctors not wanting to give me anything for the pain- even my "regular" doctor has problems and says people get addicted and blah blah blah. yes people do get addicted, people get addicted to EVERYTHING. We created these medications to help with pain so why arent we allowed to use them?
i had a pnemothorax last october after having problems all summer and my FEV1 going down to a horrible 40-50 percent. they had to do surgery and remove 1/3 of my upper lobes because they were so damaged. since then i've had this horrible speratic pain in the insizion site and my lung that had the surgery. i ended up having to join a methadone clinic because no one would give me anything for the pain. Let me just tell you that was the worst thing i could have done because now my CF doctors look at me like an addict! and i had no idea how methadone causes such bad withdrawel if you dont take it everyday. So now im in the process of trying to taper off it and then go from there.
But anyway i feel your pain! Literally.

kkilroy13
10-25-2009, 11:44 AM
Hello! i've had the same problem with my CF doctors not wanting to give me anything for the pain- even my "regular" doctor has problems and says people get addicted and blah blah blah. yes people do get addicted, people get addicted to EVERYTHING. We created these medications to help with pain so why arent we allowed to use them?
i had a pnemothorax last october after having problems all summer and my FEV1 going down to a horrible 40-50 percent. they had to do surgery and remove 1/3 of my upper lobes because they were so damaged. since then i've had this horrible speratic pain in the insizion site and my lung that had the surgery. i ended up having to join a methadone clinic because no one would give me anything for the pain. Let me just tell you that was the worst thing i could have done because now my CF doctors look at me like an addict! and i had no idea how methadone causes such bad withdrawel if you dont take it everyday. So now im in the process of trying to taper off it and then go from there.
But anyway i feel your pain! Literally.

kkilroy13
10-25-2009, 11:44 AM
Hello! i've had the same problem with my CF doctors not wanting to give me anything for the pain- even my "regular" doctor has problems and says people get addicted and blah blah blah. yes people do get addicted, people get addicted to EVERYTHING. We created these medications to help with pain so why arent we allowed to use them?
i had a pnemothorax last october after having problems all summer and my FEV1 going down to a horrible 40-50 percent. they had to do surgery and remove 1/3 of my upper lobes because they were so damaged. since then i've had this horrible speratic pain in the insizion site and my lung that had the surgery. i ended up having to join a methadone clinic because no one would give me anything for the pain. Let me just tell you that was the worst thing i could have done because now my CF doctors look at me like an addict! and i had no idea how methadone causes such bad withdrawel if you dont take it everyday. So now im in the process of trying to taper off it and then go from there.
But anyway i feel your pain! Literally.

kkilroy13
10-25-2009, 11:44 AM
Hello! i've had the same problem with my CF doctors not wanting to give me anything for the pain- even my "regular" doctor has problems and says people get addicted and blah blah blah. yes people do get addicted, people get addicted to EVERYTHING. We created these medications to help with pain so why arent we allowed to use them?
i had a pnemothorax last october after having problems all summer and my FEV1 going down to a horrible 40-50 percent. they had to do surgery and remove 1/3 of my upper lobes because they were so damaged. since then i've had this horrible speratic pain in the insizion site and my lung that had the surgery. i ended up having to join a methadone clinic because no one would give me anything for the pain. Let me just tell you that was the worst thing i could have done because now my CF doctors look at me like an addict! and i had no idea how methadone causes such bad withdrawel if you dont take it everyday. So now im in the process of trying to taper off it and then go from there.
But anyway i feel your pain! Literally.

kkilroy13
10-25-2009, 11:44 AM
Hello! i've had the same problem with my CF doctors not wanting to give me anything for the pain- even my "regular" doctor has problems and says people get addicted and blah blah blah. yes people do get addicted, people get addicted to EVERYTHING. We created these medications to help with pain so why arent we allowed to use them?
<br />i had a pnemothorax last october after having problems all summer and my FEV1 going down to a horrible 40-50 percent. they had to do surgery and remove 1/3 of my upper lobes because they were so damaged. since then i've had this horrible speratic pain in the insizion site and my lung that had the surgery. i ended up having to join a methadone clinic because no one would give me anything for the pain. Let me just tell you that was the worst thing i could have done because now my CF doctors look at me like an addict! and i had no idea how methadone causes such bad withdrawel if you dont take it everyday. So now im in the process of trying to taper off it and then go from there.
<br />But anyway i feel your pain! Literally.

saveferris2009
10-25-2009, 12:26 PM
Have you ever gone to a pain specialist or reached out to another doctor?

I wouldn't tolerate non-treatment like that.

Be aggressive!

saveferris2009
10-25-2009, 12:26 PM
Have you ever gone to a pain specialist or reached out to another doctor?

I wouldn't tolerate non-treatment like that.

Be aggressive!

saveferris2009
10-25-2009, 12:26 PM
Have you ever gone to a pain specialist or reached out to another doctor?

I wouldn't tolerate non-treatment like that.

Be aggressive!

saveferris2009
10-25-2009, 12:26 PM
Have you ever gone to a pain specialist or reached out to another doctor?

I wouldn't tolerate non-treatment like that.

Be aggressive!

saveferris2009
10-25-2009, 12:26 PM
Have you ever gone to a pain specialist or reached out to another doctor?
<br />
<br />I wouldn't tolerate non-treatment like that.
<br />
<br />Be aggressive!

krisgabes
10-25-2009, 03:48 PM
I know what you mean, I hate it when doctors look at you like you're trying to scam them into giving you pain meds or suggest ibuprofen or motrin. I just had 4 lines put in within a 2 week period because the lines got infected and the other ones caused a large blood clot in my right arm. I was in so much pain and they were hesistant to give me anything. Finally they understood and prescribed it for me. The surgeon who just put my port in also gave my parents a hard time when they asked for a script of percocet for pain. He wound up giving it to us but my mom said he was clearly not happy about it.

Hello! As if we don't deal with enough crap everyday!! Docs need to buck up and write out the scripts already <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry you have to go through all this.

krisgabes
10-25-2009, 03:48 PM
I know what you mean, I hate it when doctors look at you like you're trying to scam them into giving you pain meds or suggest ibuprofen or motrin. I just had 4 lines put in within a 2 week period because the lines got infected and the other ones caused a large blood clot in my right arm. I was in so much pain and they were hesistant to give me anything. Finally they understood and prescribed it for me. The surgeon who just put my port in also gave my parents a hard time when they asked for a script of percocet for pain. He wound up giving it to us but my mom said he was clearly not happy about it.

Hello! As if we don't deal with enough crap everyday!! Docs need to buck up and write out the scripts already <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry you have to go through all this.

krisgabes
10-25-2009, 03:48 PM
I know what you mean, I hate it when doctors look at you like you're trying to scam them into giving you pain meds or suggest ibuprofen or motrin. I just had 4 lines put in within a 2 week period because the lines got infected and the other ones caused a large blood clot in my right arm. I was in so much pain and they were hesistant to give me anything. Finally they understood and prescribed it for me. The surgeon who just put my port in also gave my parents a hard time when they asked for a script of percocet for pain. He wound up giving it to us but my mom said he was clearly not happy about it.

Hello! As if we don't deal with enough crap everyday!! Docs need to buck up and write out the scripts already <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry you have to go through all this.

krisgabes
10-25-2009, 03:48 PM
I know what you mean, I hate it when doctors look at you like you're trying to scam them into giving you pain meds or suggest ibuprofen or motrin. I just had 4 lines put in within a 2 week period because the lines got infected and the other ones caused a large blood clot in my right arm. I was in so much pain and they were hesistant to give me anything. Finally they understood and prescribed it for me. The surgeon who just put my port in also gave my parents a hard time when they asked for a script of percocet for pain. He wound up giving it to us but my mom said he was clearly not happy about it.

Hello! As if we don't deal with enough crap everyday!! Docs need to buck up and write out the scripts already <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry you have to go through all this.

krisgabes
10-25-2009, 03:48 PM
I know what you mean, I hate it when doctors look at you like you're trying to scam them into giving you pain meds or suggest ibuprofen or motrin. I just had 4 lines put in within a 2 week period because the lines got infected and the other ones caused a large blood clot in my right arm. I was in so much pain and they were hesistant to give me anything. Finally they understood and prescribed it for me. The surgeon who just put my port in also gave my parents a hard time when they asked for a script of percocet for pain. He wound up giving it to us but my mom said he was clearly not happy about it.
<br />
<br />Hello! As if we don't deal with enough crap everyday!! Docs need to buck up and write out the scripts already <img src="i/expressions/face-icon-small-sad.gif" border="0"> I'm so sorry you have to go through all this.

Havoc
10-25-2009, 06:47 PM
Part of the problem is the government, and believe it or not there are people out there who are lobbying for more government control. I got into a huge debate over on another site (weather site, strangely) with a woman who was lobbying for tougher government control and monitoring of schedule drugs.

Long story short, her son was out with friends, who had Rx narcs on them. They were stopped by the police for something routine and panicked. So all the guys in the car swallowed the pills. The cops let them go and they went to grab a hot dog before going home. Well that night the narcs kicked in with some of their usual side effects of nausea, but the kid had taken enough to suppress his gag reflex and chocked to death on hios vomit. Sad story and I would be angry as a parent that I lost my kid over some stupid circumstance. But this woman is hell bent on nobody getting narcs who aren't supposed to have them.

The problem is that people will still abuse narcotics no matter what is done, and the people who suffer, as we have seen here, are people who legitimately need pain control. Every state is different in their Prescription Monitoring Program, and you can research yours online. The fear docs have is that they will get flagged for writing too many scripts for controlled substances. The PMP programs are designed to monitor people who are "doctor shopping" ie. those who go to 2 or 2 docs and get multiple scripts of the same thing. They are also looking for those docs who supply seekers with their narcs. And I think there lies the problem, some docs just don't believe in aggressive pain management, but I think some are just afraid to get flagged. A friend of mine, who is a dentist, let his DEA number drop (apparently they have to renew it after a number of years). I think he did so because he didn't prescribe enough narcotics to justify going through the process. I will ask him though about the process and whether or not he ever felt that he was being watched by "big brother."

Unfortunately, the flaw with this problem is that if you present to the emergency department they have to treat you based on your chief complaint. Seekers know this, and frequently abuse the emergency system. So, they are still getting their fix, and they are bogging down the system with necessary stuff making those with legit problems wait in the process.

In my mind these programs do not solve any problems, rather they create more. Frankly, I'd rather see them put my tax dollars into programs to help people break addiction to narcotics than simply identify them and prevent them from getting prescriptions. Those who are marked as seekers and are unable to get multiple prescriptions filled will likely just switch to heroin anyway.

I am sorry that you're having trouble getting the relief you need, hopefully I've at least explained a little about why. A pain clinic might be the way to go, but you need a doc to write you a script for those as well.

Havoc
10-25-2009, 06:47 PM
Part of the problem is the government, and believe it or not there are people out there who are lobbying for more government control. I got into a huge debate over on another site (weather site, strangely) with a woman who was lobbying for tougher government control and monitoring of schedule drugs.

Long story short, her son was out with friends, who had Rx narcs on them. They were stopped by the police for something routine and panicked. So all the guys in the car swallowed the pills. The cops let them go and they went to grab a hot dog before going home. Well that night the narcs kicked in with some of their usual side effects of nausea, but the kid had taken enough to suppress his gag reflex and chocked to death on hios vomit. Sad story and I would be angry as a parent that I lost my kid over some stupid circumstance. But this woman is hell bent on nobody getting narcs who aren't supposed to have them.

The problem is that people will still abuse narcotics no matter what is done, and the people who suffer, as we have seen here, are people who legitimately need pain control. Every state is different in their Prescription Monitoring Program, and you can research yours online. The fear docs have is that they will get flagged for writing too many scripts for controlled substances. The PMP programs are designed to monitor people who are "doctor shopping" ie. those who go to 2 or 2 docs and get multiple scripts of the same thing. They are also looking for those docs who supply seekers with their narcs. And I think there lies the problem, some docs just don't believe in aggressive pain management, but I think some are just afraid to get flagged. A friend of mine, who is a dentist, let his DEA number drop (apparently they have to renew it after a number of years). I think he did so because he didn't prescribe enough narcotics to justify going through the process. I will ask him though about the process and whether or not he ever felt that he was being watched by "big brother."

Unfortunately, the flaw with this problem is that if you present to the emergency department they have to treat you based on your chief complaint. Seekers know this, and frequently abuse the emergency system. So, they are still getting their fix, and they are bogging down the system with necessary stuff making those with legit problems wait in the process.

In my mind these programs do not solve any problems, rather they create more. Frankly, I'd rather see them put my tax dollars into programs to help people break addiction to narcotics than simply identify them and prevent them from getting prescriptions. Those who are marked as seekers and are unable to get multiple prescriptions filled will likely just switch to heroin anyway.

I am sorry that you're having trouble getting the relief you need, hopefully I've at least explained a little about why. A pain clinic might be the way to go, but you need a doc to write you a script for those as well.

Havoc
10-25-2009, 06:47 PM
Part of the problem is the government, and believe it or not there are people out there who are lobbying for more government control. I got into a huge debate over on another site (weather site, strangely) with a woman who was lobbying for tougher government control and monitoring of schedule drugs.

Long story short, her son was out with friends, who had Rx narcs on them. They were stopped by the police for something routine and panicked. So all the guys in the car swallowed the pills. The cops let them go and they went to grab a hot dog before going home. Well that night the narcs kicked in with some of their usual side effects of nausea, but the kid had taken enough to suppress his gag reflex and chocked to death on hios vomit. Sad story and I would be angry as a parent that I lost my kid over some stupid circumstance. But this woman is hell bent on nobody getting narcs who aren't supposed to have them.

The problem is that people will still abuse narcotics no matter what is done, and the people who suffer, as we have seen here, are people who legitimately need pain control. Every state is different in their Prescription Monitoring Program, and you can research yours online. The fear docs have is that they will get flagged for writing too many scripts for controlled substances. The PMP programs are designed to monitor people who are "doctor shopping" ie. those who go to 2 or 2 docs and get multiple scripts of the same thing. They are also looking for those docs who supply seekers with their narcs. And I think there lies the problem, some docs just don't believe in aggressive pain management, but I think some are just afraid to get flagged. A friend of mine, who is a dentist, let his DEA number drop (apparently they have to renew it after a number of years). I think he did so because he didn't prescribe enough narcotics to justify going through the process. I will ask him though about the process and whether or not he ever felt that he was being watched by "big brother."

Unfortunately, the flaw with this problem is that if you present to the emergency department they have to treat you based on your chief complaint. Seekers know this, and frequently abuse the emergency system. So, they are still getting their fix, and they are bogging down the system with necessary stuff making those with legit problems wait in the process.

In my mind these programs do not solve any problems, rather they create more. Frankly, I'd rather see them put my tax dollars into programs to help people break addiction to narcotics than simply identify them and prevent them from getting prescriptions. Those who are marked as seekers and are unable to get multiple prescriptions filled will likely just switch to heroin anyway.

I am sorry that you're having trouble getting the relief you need, hopefully I've at least explained a little about why. A pain clinic might be the way to go, but you need a doc to write you a script for those as well.

Havoc
10-25-2009, 06:47 PM
Part of the problem is the government, and believe it or not there are people out there who are lobbying for more government control. I got into a huge debate over on another site (weather site, strangely) with a woman who was lobbying for tougher government control and monitoring of schedule drugs.

Long story short, her son was out with friends, who had Rx narcs on them. They were stopped by the police for something routine and panicked. So all the guys in the car swallowed the pills. The cops let them go and they went to grab a hot dog before going home. Well that night the narcs kicked in with some of their usual side effects of nausea, but the kid had taken enough to suppress his gag reflex and chocked to death on hios vomit. Sad story and I would be angry as a parent that I lost my kid over some stupid circumstance. But this woman is hell bent on nobody getting narcs who aren't supposed to have them.

The problem is that people will still abuse narcotics no matter what is done, and the people who suffer, as we have seen here, are people who legitimately need pain control. Every state is different in their Prescription Monitoring Program, and you can research yours online. The fear docs have is that they will get flagged for writing too many scripts for controlled substances. The PMP programs are designed to monitor people who are "doctor shopping" ie. those who go to 2 or 2 docs and get multiple scripts of the same thing. They are also looking for those docs who supply seekers with their narcs. And I think there lies the problem, some docs just don't believe in aggressive pain management, but I think some are just afraid to get flagged. A friend of mine, who is a dentist, let his DEA number drop (apparently they have to renew it after a number of years). I think he did so because he didn't prescribe enough narcotics to justify going through the process. I will ask him though about the process and whether or not he ever felt that he was being watched by "big brother."

Unfortunately, the flaw with this problem is that if you present to the emergency department they have to treat you based on your chief complaint. Seekers know this, and frequently abuse the emergency system. So, they are still getting their fix, and they are bogging down the system with necessary stuff making those with legit problems wait in the process.

In my mind these programs do not solve any problems, rather they create more. Frankly, I'd rather see them put my tax dollars into programs to help people break addiction to narcotics than simply identify them and prevent them from getting prescriptions. Those who are marked as seekers and are unable to get multiple prescriptions filled will likely just switch to heroin anyway.

I am sorry that you're having trouble getting the relief you need, hopefully I've at least explained a little about why. A pain clinic might be the way to go, but you need a doc to write you a script for those as well.

Havoc
10-25-2009, 06:47 PM
Part of the problem is the government, and believe it or not there are people out there who are lobbying for more government control. I got into a huge debate over on another site (weather site, strangely) with a woman who was lobbying for tougher government control and monitoring of schedule drugs.
<br />
<br />Long story short, her son was out with friends, who had Rx narcs on them. They were stopped by the police for something routine and panicked. So all the guys in the car swallowed the pills. The cops let them go and they went to grab a hot dog before going home. Well that night the narcs kicked in with some of their usual side effects of nausea, but the kid had taken enough to suppress his gag reflex and chocked to death on hios vomit. Sad story and I would be angry as a parent that I lost my kid over some stupid circumstance. But this woman is hell bent on nobody getting narcs who aren't supposed to have them.
<br />
<br />The problem is that people will still abuse narcotics no matter what is done, and the people who suffer, as we have seen here, are people who legitimately need pain control. Every state is different in their Prescription Monitoring Program, and you can research yours online. The fear docs have is that they will get flagged for writing too many scripts for controlled substances. The PMP programs are designed to monitor people who are "doctor shopping" ie. those who go to 2 or 2 docs and get multiple scripts of the same thing. They are also looking for those docs who supply seekers with their narcs. And I think there lies the problem, some docs just don't believe in aggressive pain management, but I think some are just afraid to get flagged. A friend of mine, who is a dentist, let his DEA number drop (apparently they have to renew it after a number of years). I think he did so because he didn't prescribe enough narcotics to justify going through the process. I will ask him though about the process and whether or not he ever felt that he was being watched by "big brother."
<br />
<br />Unfortunately, the flaw with this problem is that if you present to the emergency department they have to treat you based on your chief complaint. Seekers know this, and frequently abuse the emergency system. So, they are still getting their fix, and they are bogging down the system with necessary stuff making those with legit problems wait in the process.
<br />
<br />In my mind these programs do not solve any problems, rather they create more. Frankly, I'd rather see them put my tax dollars into programs to help people break addiction to narcotics than simply identify them and prevent them from getting prescriptions. Those who are marked as seekers and are unable to get multiple prescriptions filled will likely just switch to heroin anyway.
<br />
<br />I am sorry that you're having trouble getting the relief you need, hopefully I've at least explained a little about why. A pain clinic might be the way to go, but you need a doc to write you a script for those as well.

kmaried
10-25-2009, 09:44 PM
Hey,

I really understand, too. I have arthritis that flares up at times. Anyway, both my CF team and rheumatologist are good with prescribing me percocet. I try to take it as little as possible (plus, to me, it's like admitting defeat to my body when I take it)... but if I didn't have that I'd have to take a lot more sick days from work. I just wouldn't be able to get myself up, dressed, and walk in from the parking lot... much less function once I got there. I've even tried to take a half or quarter to take as little as possible while helping me.

I was worried about addiction at first... I have had NO DESIRE to take them unless I'm in pain. Actually, they make me a little nauseous - but that is a small price to pay for taking the pain away and letting me function. There's no way I'd want to get nauseous for the heck of it, lol. It really stinks that some people abuse it, and you have to suffer.

I hope you get someone to acknowledge and treat the pain you are in.

Kris

kmaried
10-25-2009, 09:44 PM
Hey,

I really understand, too. I have arthritis that flares up at times. Anyway, both my CF team and rheumatologist are good with prescribing me percocet. I try to take it as little as possible (plus, to me, it's like admitting defeat to my body when I take it)... but if I didn't have that I'd have to take a lot more sick days from work. I just wouldn't be able to get myself up, dressed, and walk in from the parking lot... much less function once I got there. I've even tried to take a half or quarter to take as little as possible while helping me.

I was worried about addiction at first... I have had NO DESIRE to take them unless I'm in pain. Actually, they make me a little nauseous - but that is a small price to pay for taking the pain away and letting me function. There's no way I'd want to get nauseous for the heck of it, lol. It really stinks that some people abuse it, and you have to suffer.

I hope you get someone to acknowledge and treat the pain you are in.

Kris

kmaried
10-25-2009, 09:44 PM
Hey,

I really understand, too. I have arthritis that flares up at times. Anyway, both my CF team and rheumatologist are good with prescribing me percocet. I try to take it as little as possible (plus, to me, it's like admitting defeat to my body when I take it)... but if I didn't have that I'd have to take a lot more sick days from work. I just wouldn't be able to get myself up, dressed, and walk in from the parking lot... much less function once I got there. I've even tried to take a half or quarter to take as little as possible while helping me.

I was worried about addiction at first... I have had NO DESIRE to take them unless I'm in pain. Actually, they make me a little nauseous - but that is a small price to pay for taking the pain away and letting me function. There's no way I'd want to get nauseous for the heck of it, lol. It really stinks that some people abuse it, and you have to suffer.

I hope you get someone to acknowledge and treat the pain you are in.

Kris

kmaried
10-25-2009, 09:44 PM
Hey,

I really understand, too. I have arthritis that flares up at times. Anyway, both my CF team and rheumatologist are good with prescribing me percocet. I try to take it as little as possible (plus, to me, it's like admitting defeat to my body when I take it)... but if I didn't have that I'd have to take a lot more sick days from work. I just wouldn't be able to get myself up, dressed, and walk in from the parking lot... much less function once I got there. I've even tried to take a half or quarter to take as little as possible while helping me.

I was worried about addiction at first... I have had NO DESIRE to take them unless I'm in pain. Actually, they make me a little nauseous - but that is a small price to pay for taking the pain away and letting me function. There's no way I'd want to get nauseous for the heck of it, lol. It really stinks that some people abuse it, and you have to suffer.

I hope you get someone to acknowledge and treat the pain you are in.

Kris

kmaried
10-25-2009, 09:44 PM
Hey,
<br />
<br />I really understand, too. I have arthritis that flares up at times. Anyway, both my CF team and rheumatologist are good with prescribing me percocet. I try to take it as little as possible (plus, to me, it's like admitting defeat to my body when I take it)... but if I didn't have that I'd have to take a lot more sick days from work. I just wouldn't be able to get myself up, dressed, and walk in from the parking lot... much less function once I got there. I've even tried to take a half or quarter to take as little as possible while helping me.
<br />
<br />I was worried about addiction at first... I have had NO DESIRE to take them unless I'm in pain. Actually, they make me a little nauseous - but that is a small price to pay for taking the pain away and letting me function. There's no way I'd want to get nauseous for the heck of it, lol. It really stinks that some people abuse it, and you have to suffer.
<br />
<br />I hope you get someone to acknowledge and treat the pain you are in.
<br />
<br />Kris

crystalina0814
10-26-2009, 03:06 AM
I have to give an update!

I ended up in SO much pain that I was physically vommiting. I had the adult CF physician on duty this past weekend paged. I explained the situation and after practically begging ( so I am sure I appear to be an abuser, but at that point I did not care) I was finally prescribed Vicodin on top of Prednisone. Surprisingly, the doc prescribed a bottle of 60! Wow. Did not expect that. My last prescription was a whole 5, haha. Long story short, After two doses of Vicodin, and a dose of Prednisone, my pain was gone. I no longer needed the pain killers.

All that frusteration, two doses later, and I am done. Happy as can be, and has moved on. The bottle still sitting here, and I have no intent on taking them for no apparent reason, as most responsible CF patients.

Now my question is. Was it worth it. Seriously, that was ridiculous! I am so confused at how they can so willingly hand out Marinol at my clinic for appetite, but are weirded out at the request of a few doses of Vicodin. Haha, I will never get it!

Thank you for all the support and responses!

crystalina0814
10-26-2009, 03:06 AM
I have to give an update!

I ended up in SO much pain that I was physically vommiting. I had the adult CF physician on duty this past weekend paged. I explained the situation and after practically begging ( so I am sure I appear to be an abuser, but at that point I did not care) I was finally prescribed Vicodin on top of Prednisone. Surprisingly, the doc prescribed a bottle of 60! Wow. Did not expect that. My last prescription was a whole 5, haha. Long story short, After two doses of Vicodin, and a dose of Prednisone, my pain was gone. I no longer needed the pain killers.

All that frusteration, two doses later, and I am done. Happy as can be, and has moved on. The bottle still sitting here, and I have no intent on taking them for no apparent reason, as most responsible CF patients.

Now my question is. Was it worth it. Seriously, that was ridiculous! I am so confused at how they can so willingly hand out Marinol at my clinic for appetite, but are weirded out at the request of a few doses of Vicodin. Haha, I will never get it!

Thank you for all the support and responses!

crystalina0814
10-26-2009, 03:06 AM
I have to give an update!

I ended up in SO much pain that I was physically vommiting. I had the adult CF physician on duty this past weekend paged. I explained the situation and after practically begging ( so I am sure I appear to be an abuser, but at that point I did not care) I was finally prescribed Vicodin on top of Prednisone. Surprisingly, the doc prescribed a bottle of 60! Wow. Did not expect that. My last prescription was a whole 5, haha. Long story short, After two doses of Vicodin, and a dose of Prednisone, my pain was gone. I no longer needed the pain killers.

All that frusteration, two doses later, and I am done. Happy as can be, and has moved on. The bottle still sitting here, and I have no intent on taking them for no apparent reason, as most responsible CF patients.

Now my question is. Was it worth it. Seriously, that was ridiculous! I am so confused at how they can so willingly hand out Marinol at my clinic for appetite, but are weirded out at the request of a few doses of Vicodin. Haha, I will never get it!

Thank you for all the support and responses!

crystalina0814
10-26-2009, 03:06 AM
I have to give an update!

I ended up in SO much pain that I was physically vommiting. I had the adult CF physician on duty this past weekend paged. I explained the situation and after practically begging ( so I am sure I appear to be an abuser, but at that point I did not care) I was finally prescribed Vicodin on top of Prednisone. Surprisingly, the doc prescribed a bottle of 60! Wow. Did not expect that. My last prescription was a whole 5, haha. Long story short, After two doses of Vicodin, and a dose of Prednisone, my pain was gone. I no longer needed the pain killers.

All that frusteration, two doses later, and I am done. Happy as can be, and has moved on. The bottle still sitting here, and I have no intent on taking them for no apparent reason, as most responsible CF patients.

Now my question is. Was it worth it. Seriously, that was ridiculous! I am so confused at how they can so willingly hand out Marinol at my clinic for appetite, but are weirded out at the request of a few doses of Vicodin. Haha, I will never get it!

Thank you for all the support and responses!

crystalina0814
10-26-2009, 03:06 AM
I have to give an update!
<br />
<br />I ended up in SO much pain that I was physically vommiting. I had the adult CF physician on duty this past weekend paged. I explained the situation and after practically begging ( so I am sure I appear to be an abuser, but at that point I did not care) I was finally prescribed Vicodin on top of Prednisone. Surprisingly, the doc prescribed a bottle of 60! Wow. Did not expect that. My last prescription was a whole 5, haha. Long story short, After two doses of Vicodin, and a dose of Prednisone, my pain was gone. I no longer needed the pain killers.
<br />
<br />All that frusteration, two doses later, and I am done. Happy as can be, and has moved on. The bottle still sitting here, and I have no intent on taking them for no apparent reason, as most responsible CF patients.
<br />
<br />Now my question is. Was it worth it. Seriously, that was ridiculous! I am so confused at how they can so willingly hand out Marinol at my clinic for appetite, but are weirded out at the request of a few doses of Vicodin. Haha, I will never get it!
<br />
<br />Thank you for all the support and responses!

mustang347gt
11-16-2009, 07:16 PM
yea i'm in the same boat...it sux so much but there are some people with cf that..um overmedicate themselfs..there think well i'm not gonna live long to might as well be messed up.i see what they r talking bout also...but i take 5 mg marinol..and the only way i got it was i don't feel like eating and i feel the need to puke every single day...

mustang347gt
11-16-2009, 07:16 PM
yea i'm in the same boat...it sux so much but there are some people with cf that..um overmedicate themselfs..there think well i'm not gonna live long to might as well be messed up.i see what they r talking bout also...but i take 5 mg marinol..and the only way i got it was i don't feel like eating and i feel the need to puke every single day...

mustang347gt
11-16-2009, 07:16 PM
yea i'm in the same boat...it sux so much but there are some people with cf that..um overmedicate themselfs..there think well i'm not gonna live long to might as well be messed up.i see what they r talking bout also...but i take 5 mg marinol..and the only way i got it was i don't feel like eating and i feel the need to puke every single day...

mustang347gt
11-16-2009, 07:16 PM
yea i'm in the same boat...it sux so much but there are some people with cf that..um overmedicate themselfs..there think well i'm not gonna live long to might as well be messed up.i see what they r talking bout also...but i take 5 mg marinol..and the only way i got it was i don't feel like eating and i feel the need to puke every single day...

mustang347gt
11-16-2009, 07:16 PM
yea i'm in the same boat...it sux so much but there are some people with cf that..um overmedicate themselfs..there think well i'm not gonna live long to might as well be messed up.i see what they r talking bout also...but i take 5 mg marinol..and the only way i got it was i don't feel like eating and i feel the need to puke every single day...

sexxiej
11-16-2009, 07:49 PM
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD

sexxiej
11-16-2009, 07:49 PM
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD

sexxiej
11-16-2009, 07:49 PM
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD

sexxiej
11-16-2009, 07:49 PM
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD

sexxiej
11-16-2009, 07:49 PM
talk to your doctors and tell them that the ibprofen isnt taking affect that your still havin the pain, i understand where they are coming from on getting addicted to pain killers, but they dont understand the pain we have to deal with or you have to deal with...just keep informing him that your still havin the pain... 22 CF/CFRD

bagged2drag
11-17-2009, 05:30 AM
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.

I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(

I hope things turn out for you okay, I wish you luck.

bagged2drag
11-17-2009, 05:30 AM
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.

I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(

I hope things turn out for you okay, I wish you luck.

bagged2drag
11-17-2009, 05:30 AM
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.

I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(

I hope things turn out for you okay, I wish you luck.

bagged2drag
11-17-2009, 05:30 AM
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.

I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(

I hope things turn out for you okay, I wish you luck.

bagged2drag
11-17-2009, 05:30 AM
I know exactly what you are talking about as well. I too, have constant joint pain; sometimes it is difficult to walk, and I swell up pretty bad/joints turn all red. I also have a tremendous amount of stomach pain. It is extremely painful to eat much of the time, and hurts without eating as well. I also have 2 confirmed, but I think a 3rd hernia as well. If there is one thing I hate most about cf, it is the almost constant pain I am in, at least these past few years. I get lung discomfort occasionally, but that is nothing compared to the rest. Occasionally, my stomach gets soooooo bad that I will literally become drenched with sweat fighting the pain. My doc, who is a great doc by the way, doesn't want me to have the pain meds because of all my stomach problems. I really want something for the really bad days, but I haven't gotten anything. I understand her concern, and she definitely has tried many other types of pain meds (such as rx strength aleve and various in the ibuprofen family) , but they don't do anything for the pain.
<br />
<br />I guess I haven't pushed super hard, but these past few months are really starting to push my limits. I have been quite stressed out as well, but I don't portray that to anyone (except here-where nobody knows my face). About now, I wouldn't even mind something just to take the edge off-get my mind off things. I really don't like reality too much anymore. <img src="i/expressions/face-icon-small-blush.gif" border="0">(
<br />
<br />I hope things turn out for you okay, I wish you luck.

CFkitty
11-17-2009, 01:17 PM
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.

If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.

If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!

CFkitty
11-17-2009, 01:17 PM
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.

If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.

If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!

CFkitty
11-17-2009, 01:17 PM
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.

If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.

If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!

CFkitty
11-17-2009, 01:17 PM
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.

If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.

If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!

CFkitty
11-17-2009, 01:17 PM
Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.
<br />
<br />If you have an arthritis-type condition, if you are seeing a specialist for that (just like you should see an Endocrinologist for CFRD, or a GI specialist for hiatal hernia, for example), that is who you should be talking to for treatment. Just because a problem is common in people with CF, doesn't mean that your CF should be the go-to person for treatment and management.
<br />
<br />If you have issues relating to CF outside of lung involvement, it's probably a good idea to at least "retain" a specialist in those particular areas, see them at least once for an evaluation. If you don't have specialist(s), ask for a referral. Good luck!

regina65
11-17-2009, 03:02 PM
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)

regina/44/w/cf/b cepacia complex/cenocepacia/mrsa

regina65
11-17-2009, 03:02 PM
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)

regina/44/w/cf/b cepacia complex/cenocepacia/mrsa

regina65
11-17-2009, 03:02 PM
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)

regina/44/w/cf/b cepacia complex/cenocepacia/mrsa

regina65
11-17-2009, 03:02 PM
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)

regina/44/w/cf/b cepacia complex/cenocepacia/mrsa

regina65
11-17-2009, 03:02 PM
My doctor was hesitant about darvocet and others b/c they contain a lot of tylenol, but that was right after my problem with the liver enzymes being too high with the meropenum. I take my husbands darvocet . I break them in half other wise they cause me a lot of anxiety. I try and take them just when i cant take the pain any more. I have noticed that they dry out my secretions in my lungs and nasal. I can have a runny nose and drip down the back of my throat and it stops also. That's just how it affects me though. I hope my pain doesn't get much more severe b/c I cant take hydrocodone or anything close to it. Makes me very sick for days (vomiting and dizzy)
<br />
<br /> regina/44/w/cf/b cepacia complex/cenocepacia/mrsa

Havoc
11-17-2009, 11:03 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.</end quote></div>

Yes,

You are right with this thought. I have been finding that my CF center, which used to take care of pretty much everything, are now deferring a lot of complaints to various specialists. I even had to go see an endocrinologist for my insulin resistance secondary to steroids. Very much a CF induced condition, and very easily manageable with insulin coverage, but they farmed it out to an endo nonetheless. It's the trend in medicine these days. You have your scope and that's it.

Havoc
11-17-2009, 11:03 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.</end quote></div>

Yes,

You are right with this thought. I have been finding that my CF center, which used to take care of pretty much everything, are now deferring a lot of complaints to various specialists. I even had to go see an endocrinologist for my insulin resistance secondary to steroids. Very much a CF induced condition, and very easily manageable with insulin coverage, but they farmed it out to an endo nonetheless. It's the trend in medicine these days. You have your scope and that's it.

Havoc
11-17-2009, 11:03 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.</end quote></div>

Yes,

You are right with this thought. I have been finding that my CF center, which used to take care of pretty much everything, are now deferring a lot of complaints to various specialists. I even had to go see an endocrinologist for my insulin resistance secondary to steroids. Very much a CF induced condition, and very easily manageable with insulin coverage, but they farmed it out to an endo nonetheless. It's the trend in medicine these days. You have your scope and that's it.

Havoc
11-17-2009, 11:03 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>

Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.</end quote>

Yes,

You are right with this thought. I have been finding that my CF center, which used to take care of pretty much everything, are now deferring a lot of complaints to various specialists. I even had to go see an endocrinologist for my insulin resistance secondary to steroids. Very much a CF induced condition, and very easily manageable with insulin coverage, but they farmed it out to an endo nonetheless. It's the trend in medicine these days. You have your scope and that's it.

Havoc
11-17-2009, 11:03 PM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CFkitty</b></i>
<br />
<br />Let me just put this thought out - CF doctors are usually pulmonologists. They may have experience and knowledge of pain management, but especially for ongoing issues, they are not the experts.</end quote>
<br />
<br />Yes,
<br />
<br />You are right with this thought. I have been finding that my CF center, which used to take care of pretty much everything, are now deferring a lot of complaints to various specialists. I even had to go see an endocrinologist for my insulin resistance secondary to steroids. Very much a CF induced condition, and very easily manageable with insulin coverage, but they farmed it out to an endo nonetheless. It's the trend in medicine these days. You have your scope and that's it.

jbrandonAW
11-17-2009, 11:38 PM
omg I feel the SAME way. I listen to my friend talk about how she got some percocets and all kinds of stuff for a hurting ovary, adn here I am doubled over in bed dieing and them saying "ooo well here is some tylenol". I finally got them to give me a loratab but 1 7.5 feels like I'm popping 1/2 a tylenol.
Its just frustrating.

jbrandonAW
11-17-2009, 11:38 PM
omg I feel the SAME way. I listen to my friend talk about how she got some percocets and all kinds of stuff for a hurting ovary, adn here I am doubled over in bed dieing and them saying "ooo well here is some tylenol". I finally got them to give me a loratab but 1 7.5 feels like I'm popping 1/2 a tylenol.
Its just frustrating.

jbrandonAW
11-17-2009, 11:38 PM
omg I feel the SAME way. I listen to my friend talk about how she got some percocets and all kinds of stuff for a hurting ovary, adn here I am doubled over in bed dieing and them saying "ooo well here is some tylenol". I finally got them to give me a loratab but 1 7.5 feels like I'm popping 1/2 a tylenol.
Its just frustrating.

jbrandonAW
11-17-2009, 11:38 PM
omg I feel the SAME way. I listen to my friend talk about how she got some percocets and all kinds of stuff for a hurting ovary, adn here I am doubled over in bed dieing and them saying "ooo well here is some tylenol". I finally got them to give me a loratab but 1 7.5 feels like I'm popping 1/2 a tylenol.
Its just frustrating.

jbrandonAW
11-17-2009, 11:38 PM
omg I feel the SAME way. I listen to my friend talk about how she got some percocets and all kinds of stuff for a hurting ovary, adn here I am doubled over in bed dieing and them saying "ooo well here is some tylenol". I finally got them to give me a loratab but 1 7.5 feels like I'm popping 1/2 a tylenol.
<br />Its just frustrating.

Havoc
11-18-2009, 12:36 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tesorotiffa</b></i>


I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!



I hope you are able to get some relief!</end quote></div>

I hadn't heard of this until now. So, I researched it and it is in fact true that people with CF tend to have an enhanced metabolism when it comes to the P450 cytochrome and some of it's subfamilies (particularly CYP1A2). you can read more about the study here: <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/full/77/3/239">http://adc.bmj.com/cgi/content/full/77/3/239</a>

Havoc
11-18-2009, 12:36 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tesorotiffa</b></i>


I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!



I hope you are able to get some relief!</end quote></div>

I hadn't heard of this until now. So, I researched it and it is in fact true that people with CF tend to have an enhanced metabolism when it comes to the P450 cytochrome and some of it's subfamilies (particularly CYP1A2). you can read more about the study here: <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/full/77/3/239">http://adc.bmj.com/cgi/content/full/77/3/239</a>

Havoc
11-18-2009, 12:36 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tesorotiffa</b></i>


I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!



I hope you are able to get some relief!</end quote></div>

I hadn't heard of this until now. So, I researched it and it is in fact true that people with CF tend to have an enhanced metabolism when it comes to the P450 cytochrome and some of it's subfamilies (particularly CYP1A2). you can read more about the study here: <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/full/77/3/239">http://adc.bmj.com/cgi/content/full/77/3/239</a>

Havoc
11-18-2009, 12:36 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tesorotiffa</b></i>


I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!



I hope you are able to get some relief!</end quote>

I hadn't heard of this until now. So, I researched it and it is in fact true that people with CF tend to have an enhanced metabolism when it comes to the P450 cytochrome and some of it's subfamilies (particularly CYP1A2). you can read more about the study here: <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/full/77/3/239">http://adc.bmj.com/cgi/content/full/77/3/239</a>

Havoc
11-18-2009, 12:36 AM
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>tesorotiffa</b></i>
<br />
<br />
<br />I will tell you though that with the pain meds, don't be surprised if they wear off quickly! I was always curious why no matter what the doc gave me, it would work for about an hour tops. She said that CF patients tend to metabolize pain meds really quickly. Ugh!
<br />
<br />
<br />
<br />I hope you are able to get some relief!</end quote>
<br />
<br />I hadn't heard of this until now. So, I researched it and it is in fact true that people with CF tend to have an enhanced metabolism when it comes to the P450 cytochrome and some of it's subfamilies (particularly CYP1A2). you can read more about the study here: <a target=_blank class=ftalternatingbarlinklarge href="http://adc.bmj.com/cgi/content/full/77/3/239">http://adc.bmj.com/cgi/content/full/77/3/239</a>

MiddleAgedLady
11-18-2009, 12:37 AM
Mobic helps me. It's a Rx-only, souped up Motrin. They gave it to me after foot surgery. I also have Lidoderm (Lidocaine) patches that you peel off and stick on whatever is hurting. I put them on my knees, sleep with one on my neck, have put them on my shoulders and even cut them up and put partials on my TMJ joints. I get both of these from the rheumatologist. It wouldn't have happened from the CF doc.

MiddleAgedLady
11-18-2009, 12:37 AM
Mobic helps me. It's a Rx-only, souped up Motrin. They gave it to me after foot surgery. I also have Lidoderm (Lidocaine) patches that you peel off and stick on whatever is hurting. I put them on my knees, sleep with one on my neck, have put them on my shoulders and even cut them up and put partials on my TMJ joints. I get both of these from the rheumatologist. It wouldn't have happened from the CF doc.

MiddleAgedLady
11-18-2009, 12:37 AM
Mobic helps me. It's a Rx-only, souped up Motrin. They gave it to me after foot surgery. I also have Lidoderm (Lidocaine) patches that you peel off and stick on whatever is hurting. I put them on my knees, sleep with one on my neck, have put them on my shoulders and even cut them up and put partials on my TMJ joints. I get both of these from the rheumatologist. It wouldn't have happened from the CF doc.

MiddleAgedLady
11-18-2009, 12:37 AM
Mobic helps me. It's a Rx-only, souped up Motrin. They gave it to me after foot surgery. I also have Lidoderm (Lidocaine) patches that you peel off and stick on whatever is hurting. I put them on my knees, sleep with one on my neck, have put them on my shoulders and even cut them up and put partials on my TMJ joints. I get both of these from the rheumatologist. It wouldn't have happened from the CF doc.

MiddleAgedLady
11-18-2009, 12:37 AM
Mobic helps me. It's a Rx-only, souped up Motrin. They gave it to me after foot surgery. I also have Lidoderm (Lidocaine) patches that you peel off and stick on whatever is hurting. I put them on my knees, sleep with one on my neck, have put them on my shoulders and even cut them up and put partials on my TMJ joints. I get both of these from the rheumatologist. It wouldn't have happened from the CF doc.