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ladybug
04-22-2009, 03:48 AM
Urgh!

So I've been weightlifting heavier weights lately at the gym.. pushing myself a bit harder. I've also been keeping up with my jogging every other day.

I've noticed lately I've been a bit more sob than usual, but I attribute that to the dust and wind storms here in southern nevada desert and quite possibly to my increased stress level. I'm very very stressed lately cause we're schedule for a military move in about 2-3 months and yet have NO idea where or when this will be. I'm having anxiety about this nearly every hour of every day. Just thinking about it makes me tight in my chest.

Aside from that, two weeks ago, I coughed up bright red blood. Just blood. I've had the "old blood" streaked in my sputum before, but not nothing BUT blood. I coughed it up about 5-6 coughs (all pretty small amounts - maybe a teaspoon?) in the morning. I then proceeded to TRY not to freak out (my first bleed) and tried to suppress my cough, not do h.s. or pulmo, etc. for a day or so. Bleed stopped after those first several coughs and I was fine for the rest of the day.

Fast forward to a couple mornings ago: I was just sitting on the couch minding my own business and coughed up blood (bright red) again! Again, freaking out a bit since this was twice in two weeks. After coughing up small amounts of bright red mixed with sputum for about an hour or so, it went away on its own.

I've been feeling pretty good aside from my sob (again thinking asthma and inflammation). I'm exercising, eating, sleeping, and if anything coughing a lot <b>less</b> than usual.

I spoke with my nurse who said its "pretty common" but to watch it. I also mentioned to her I've been increasing my weights quite a bit at the gym and straining with "huff" breaths as the weights get heavier. I was curious if that could cause the bleeding and she said it was a possibility.

Just curious if anyone else thinks this could be the culprit? Also, could the severe stress have anything to do with bleeds?

And, finally (sorry this got so long), I'm feeling just a slight "tinge" of dull achy pain in my upper lobes today/tonight (2 days after my second bleed)... Not sure if this is just cause I had a bleed and so expecting to be in pain or maybe I'm just panicking... either way, it stinks. Anyone else feel a dull pain after a bleed? Two days later? What does it mean?

Thanks!!!

ladybug
04-22-2009, 03:48 AM
Urgh!

So I've been weightlifting heavier weights lately at the gym.. pushing myself a bit harder. I've also been keeping up with my jogging every other day.

I've noticed lately I've been a bit more sob than usual, but I attribute that to the dust and wind storms here in southern nevada desert and quite possibly to my increased stress level. I'm very very stressed lately cause we're schedule for a military move in about 2-3 months and yet have NO idea where or when this will be. I'm having anxiety about this nearly every hour of every day. Just thinking about it makes me tight in my chest.

Aside from that, two weeks ago, I coughed up bright red blood. Just blood. I've had the "old blood" streaked in my sputum before, but not nothing BUT blood. I coughed it up about 5-6 coughs (all pretty small amounts - maybe a teaspoon?) in the morning. I then proceeded to TRY not to freak out (my first bleed) and tried to suppress my cough, not do h.s. or pulmo, etc. for a day or so. Bleed stopped after those first several coughs and I was fine for the rest of the day.

Fast forward to a couple mornings ago: I was just sitting on the couch minding my own business and coughed up blood (bright red) again! Again, freaking out a bit since this was twice in two weeks. After coughing up small amounts of bright red mixed with sputum for about an hour or so, it went away on its own.

I've been feeling pretty good aside from my sob (again thinking asthma and inflammation). I'm exercising, eating, sleeping, and if anything coughing a lot <b>less</b> than usual.

I spoke with my nurse who said its "pretty common" but to watch it. I also mentioned to her I've been increasing my weights quite a bit at the gym and straining with "huff" breaths as the weights get heavier. I was curious if that could cause the bleeding and she said it was a possibility.

Just curious if anyone else thinks this could be the culprit? Also, could the severe stress have anything to do with bleeds?

And, finally (sorry this got so long), I'm feeling just a slight "tinge" of dull achy pain in my upper lobes today/tonight (2 days after my second bleed)... Not sure if this is just cause I had a bleed and so expecting to be in pain or maybe I'm just panicking... either way, it stinks. Anyone else feel a dull pain after a bleed? Two days later? What does it mean?

Thanks!!!

ladybug
04-22-2009, 03:48 AM
Urgh!

So I've been weightlifting heavier weights lately at the gym.. pushing myself a bit harder. I've also been keeping up with my jogging every other day.

I've noticed lately I've been a bit more sob than usual, but I attribute that to the dust and wind storms here in southern nevada desert and quite possibly to my increased stress level. I'm very very stressed lately cause we're schedule for a military move in about 2-3 months and yet have NO idea where or when this will be. I'm having anxiety about this nearly every hour of every day. Just thinking about it makes me tight in my chest.

Aside from that, two weeks ago, I coughed up bright red blood. Just blood. I've had the "old blood" streaked in my sputum before, but not nothing BUT blood. I coughed it up about 5-6 coughs (all pretty small amounts - maybe a teaspoon?) in the morning. I then proceeded to TRY not to freak out (my first bleed) and tried to suppress my cough, not do h.s. or pulmo, etc. for a day or so. Bleed stopped after those first several coughs and I was fine for the rest of the day.

Fast forward to a couple mornings ago: I was just sitting on the couch minding my own business and coughed up blood (bright red) again! Again, freaking out a bit since this was twice in two weeks. After coughing up small amounts of bright red mixed with sputum for about an hour or so, it went away on its own.

I've been feeling pretty good aside from my sob (again thinking asthma and inflammation). I'm exercising, eating, sleeping, and if anything coughing a lot <b>less</b> than usual.

I spoke with my nurse who said its "pretty common" but to watch it. I also mentioned to her I've been increasing my weights quite a bit at the gym and straining with "huff" breaths as the weights get heavier. I was curious if that could cause the bleeding and she said it was a possibility.

Just curious if anyone else thinks this could be the culprit? Also, could the severe stress have anything to do with bleeds?

And, finally (sorry this got so long), I'm feeling just a slight "tinge" of dull achy pain in my upper lobes today/tonight (2 days after my second bleed)... Not sure if this is just cause I had a bleed and so expecting to be in pain or maybe I'm just panicking... either way, it stinks. Anyone else feel a dull pain after a bleed? Two days later? What does it mean?

Thanks!!!

ladybug
04-22-2009, 03:48 AM
Urgh!

So I've been weightlifting heavier weights lately at the gym.. pushing myself a bit harder. I've also been keeping up with my jogging every other day.

I've noticed lately I've been a bit more sob than usual, but I attribute that to the dust and wind storms here in southern nevada desert and quite possibly to my increased stress level. I'm very very stressed lately cause we're schedule for a military move in about 2-3 months and yet have NO idea where or when this will be. I'm having anxiety about this nearly every hour of every day. Just thinking about it makes me tight in my chest.

Aside from that, two weeks ago, I coughed up bright red blood. Just blood. I've had the "old blood" streaked in my sputum before, but not nothing BUT blood. I coughed it up about 5-6 coughs (all pretty small amounts - maybe a teaspoon?) in the morning. I then proceeded to TRY not to freak out (my first bleed) and tried to suppress my cough, not do h.s. or pulmo, etc. for a day or so. Bleed stopped after those first several coughs and I was fine for the rest of the day.

Fast forward to a couple mornings ago: I was just sitting on the couch minding my own business and coughed up blood (bright red) again! Again, freaking out a bit since this was twice in two weeks. After coughing up small amounts of bright red mixed with sputum for about an hour or so, it went away on its own.

I've been feeling pretty good aside from my sob (again thinking asthma and inflammation). I'm exercising, eating, sleeping, and if anything coughing a lot <b>less</b> than usual.

I spoke with my nurse who said its "pretty common" but to watch it. I also mentioned to her I've been increasing my weights quite a bit at the gym and straining with "huff" breaths as the weights get heavier. I was curious if that could cause the bleeding and she said it was a possibility.

Just curious if anyone else thinks this could be the culprit? Also, could the severe stress have anything to do with bleeds?

And, finally (sorry this got so long), I'm feeling just a slight "tinge" of dull achy pain in my upper lobes today/tonight (2 days after my second bleed)... Not sure if this is just cause I had a bleed and so expecting to be in pain or maybe I'm just panicking... either way, it stinks. Anyone else feel a dull pain after a bleed? Two days later? What does it mean?

Thanks!!!

ladybug
04-22-2009, 03:48 AM
Urgh!
<br />
<br />So I've been weightlifting heavier weights lately at the gym.. pushing myself a bit harder. I've also been keeping up with my jogging every other day.
<br />
<br />I've noticed lately I've been a bit more sob than usual, but I attribute that to the dust and wind storms here in southern nevada desert and quite possibly to my increased stress level. I'm very very stressed lately cause we're schedule for a military move in about 2-3 months and yet have NO idea where or when this will be. I'm having anxiety about this nearly every hour of every day. Just thinking about it makes me tight in my chest.
<br />
<br />Aside from that, two weeks ago, I coughed up bright red blood. Just blood. I've had the "old blood" streaked in my sputum before, but not nothing BUT blood. I coughed it up about 5-6 coughs (all pretty small amounts - maybe a teaspoon?) in the morning. I then proceeded to TRY not to freak out (my first bleed) and tried to suppress my cough, not do h.s. or pulmo, etc. for a day or so. Bleed stopped after those first several coughs and I was fine for the rest of the day.
<br />
<br />Fast forward to a couple mornings ago: I was just sitting on the couch minding my own business and coughed up blood (bright red) again! Again, freaking out a bit since this was twice in two weeks. After coughing up small amounts of bright red mixed with sputum for about an hour or so, it went away on its own.
<br />
<br />I've been feeling pretty good aside from my sob (again thinking asthma and inflammation). I'm exercising, eating, sleeping, and if anything coughing a lot <b>less</b> than usual.
<br />
<br />I spoke with my nurse who said its "pretty common" but to watch it. I also mentioned to her I've been increasing my weights quite a bit at the gym and straining with "huff" breaths as the weights get heavier. I was curious if that could cause the bleeding and she said it was a possibility.
<br />
<br />Just curious if anyone else thinks this could be the culprit? Also, could the severe stress have anything to do with bleeds?
<br />
<br />And, finally (sorry this got so long), I'm feeling just a slight "tinge" of dull achy pain in my upper lobes today/tonight (2 days after my second bleed)... Not sure if this is just cause I had a bleed and so expecting to be in pain or maybe I'm just panicking... either way, it stinks. Anyone else feel a dull pain after a bleed? Two days later? What does it mean?
<br />
<br />Thanks!!!

ladybug
04-22-2009, 10:09 PM
OK... So no one has experience with this? Maybe I <b>am</b> an oddity. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
04-22-2009, 10:09 PM
OK... So no one has experience with this? Maybe I <b>am</b> an oddity. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
04-22-2009, 10:09 PM
OK... So no one has experience with this? Maybe I <b>am</b> an oddity. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
04-22-2009, 10:09 PM
OK... So no one has experience with this? Maybe I <b>am</b> an oddity. <img src="i/expressions/face-icon-small-smile.gif" border="0">

ladybug
04-22-2009, 10:09 PM
OK... So no one has experience with this? Maybe I <b>am</b> an oddity. <img src="i/expressions/face-icon-small-smile.gif" border="0">

Skye
04-23-2009, 12:35 AM
i don't think it is unusual at all to feel tight after a bleed....I kind of describe it like I am wearing a weighted vest. That is the feeling I get. People can experience bleeds from different things....lifting heavy stuff can be a culprit. I usually drink lots of fluids and lay off of some of the more harsh nebs and the vest for a bit. DON'T do that without permission though<img src="i/expressions/face-icon-small-smile.gif" border="0">

Skye
04-23-2009, 12:35 AM
i don't think it is unusual at all to feel tight after a bleed....I kind of describe it like I am wearing a weighted vest. That is the feeling I get. People can experience bleeds from different things....lifting heavy stuff can be a culprit. I usually drink lots of fluids and lay off of some of the more harsh nebs and the vest for a bit. DON'T do that without permission though<img src="i/expressions/face-icon-small-smile.gif" border="0">

Skye
04-23-2009, 12:35 AM
i don't think it is unusual at all to feel tight after a bleed....I kind of describe it like I am wearing a weighted vest. That is the feeling I get. People can experience bleeds from different things....lifting heavy stuff can be a culprit. I usually drink lots of fluids and lay off of some of the more harsh nebs and the vest for a bit. DON'T do that without permission though<img src="i/expressions/face-icon-small-smile.gif" border="0">

Skye
04-23-2009, 12:35 AM
i don't think it is unusual at all to feel tight after a bleed....I kind of describe it like I am wearing a weighted vest. That is the feeling I get. People can experience bleeds from different things....lifting heavy stuff can be a culprit. I usually drink lots of fluids and lay off of some of the more harsh nebs and the vest for a bit. DON'T do that without permission though<img src="i/expressions/face-icon-small-smile.gif" border="0">

Skye
04-23-2009, 12:35 AM
i don't think it is unusual at all to feel tight after a bleed....I kind of describe it like I am wearing a weighted vest. That is the feeling I get. People can experience bleeds from different things....lifting heavy stuff can be a culprit. I usually drink lots of fluids and lay off of some of the more harsh nebs and the vest for a bit. DON'T do that without permission though<img src="i/expressions/face-icon-small-smile.gif" border="0">

cfsucks
04-23-2009, 02:32 AM
i haven't experienced a bleed in awhile, until a couple weeks ago. bright red, right after finishing my nebs. i think it must've been because it the humidity was very low in my house. i don't know if it came from my lungs or throat, or something, but after i drink some milk, my sputum has less blood in it, so i'm not too sure?

anyways i lift weights about 3 times a week. haven't bled because of that as far as i know. what makes me bleed is normally tobramycin or harsh medicines on my lungs.

maybe if you bleed once, your more prone to bleeding again? not too sure.

but yes it's freaky as hell to cough up blood. it just seems so wrong lol.

cfsucks
04-23-2009, 02:32 AM
i haven't experienced a bleed in awhile, until a couple weeks ago. bright red, right after finishing my nebs. i think it must've been because it the humidity was very low in my house. i don't know if it came from my lungs or throat, or something, but after i drink some milk, my sputum has less blood in it, so i'm not too sure?

anyways i lift weights about 3 times a week. haven't bled because of that as far as i know. what makes me bleed is normally tobramycin or harsh medicines on my lungs.

maybe if you bleed once, your more prone to bleeding again? not too sure.

but yes it's freaky as hell to cough up blood. it just seems so wrong lol.

cfsucks
04-23-2009, 02:32 AM
i haven't experienced a bleed in awhile, until a couple weeks ago. bright red, right after finishing my nebs. i think it must've been because it the humidity was very low in my house. i don't know if it came from my lungs or throat, or something, but after i drink some milk, my sputum has less blood in it, so i'm not too sure?

anyways i lift weights about 3 times a week. haven't bled because of that as far as i know. what makes me bleed is normally tobramycin or harsh medicines on my lungs.

maybe if you bleed once, your more prone to bleeding again? not too sure.

but yes it's freaky as hell to cough up blood. it just seems so wrong lol.

cfsucks
04-23-2009, 02:32 AM
i haven't experienced a bleed in awhile, until a couple weeks ago. bright red, right after finishing my nebs. i think it must've been because it the humidity was very low in my house. i don't know if it came from my lungs or throat, or something, but after i drink some milk, my sputum has less blood in it, so i'm not too sure?

anyways i lift weights about 3 times a week. haven't bled because of that as far as i know. what makes me bleed is normally tobramycin or harsh medicines on my lungs.

maybe if you bleed once, your more prone to bleeding again? not too sure.

but yes it's freaky as hell to cough up blood. it just seems so wrong lol.

cfsucks
04-23-2009, 02:32 AM
i haven't experienced a bleed in awhile, until a couple weeks ago. bright red, right after finishing my nebs. i think it must've been because it the humidity was very low in my house. i don't know if it came from my lungs or throat, or something, but after i drink some milk, my sputum has less blood in it, so i'm not too sure?
<br />
<br />anyways i lift weights about 3 times a week. haven't bled because of that as far as i know. what makes me bleed is normally tobramycin or harsh medicines on my lungs.
<br />
<br />maybe if you bleed once, your more prone to bleeding again? not too sure.
<br />
<br />but yes it's freaky as hell to cough up blood. it just seems so wrong lol.

ladybug
04-23-2009, 07:09 PM
thanks for the info... i guess i feel a bit more normal now. i just find it so odd and am trying to find a cause for this new addition to my disease process. i always want a CAUSE! LOL....

ladybug
04-23-2009, 07:09 PM
thanks for the info... i guess i feel a bit more normal now. i just find it so odd and am trying to find a cause for this new addition to my disease process. i always want a CAUSE! LOL....

ladybug
04-23-2009, 07:09 PM
thanks for the info... i guess i feel a bit more normal now. i just find it so odd and am trying to find a cause for this new addition to my disease process. i always want a CAUSE! LOL....

ladybug
04-23-2009, 07:09 PM
thanks for the info... i guess i feel a bit more normal now. i just find it so odd and am trying to find a cause for this new addition to my disease process. i always want a CAUSE! LOL....

ladybug
04-23-2009, 07:09 PM
thanks for the info... i guess i feel a bit more normal now. i just find it so odd and am trying to find a cause for this new addition to my disease process. i always want a CAUSE! LOL....

RonnieSharpe
04-23-2009, 10:41 PM
Increased exercise can lead to coughing up blood because the exercise requires more oxygen which requires more blood moving throughout your body and then deeper breaths to expand the lungs which then stresses the blood source. At least that would be my guess.

If you see my blog from yesterday, the same thing happened to me while running on the treadmill. Bleeding isn't a huge problem unless it is in huge amounts or stops you from doing your treatments for days at a time.

Hope this helps.

Ronnie

RonnieSharpe
04-23-2009, 10:41 PM
Increased exercise can lead to coughing up blood because the exercise requires more oxygen which requires more blood moving throughout your body and then deeper breaths to expand the lungs which then stresses the blood source. At least that would be my guess.

If you see my blog from yesterday, the same thing happened to me while running on the treadmill. Bleeding isn't a huge problem unless it is in huge amounts or stops you from doing your treatments for days at a time.

Hope this helps.

Ronnie

RonnieSharpe
04-23-2009, 10:41 PM
Increased exercise can lead to coughing up blood because the exercise requires more oxygen which requires more blood moving throughout your body and then deeper breaths to expand the lungs which then stresses the blood source. At least that would be my guess.

If you see my blog from yesterday, the same thing happened to me while running on the treadmill. Bleeding isn't a huge problem unless it is in huge amounts or stops you from doing your treatments for days at a time.

Hope this helps.

Ronnie

RonnieSharpe
04-23-2009, 10:41 PM
Increased exercise can lead to coughing up blood because the exercise requires more oxygen which requires more blood moving throughout your body and then deeper breaths to expand the lungs which then stresses the blood source. At least that would be my guess.

If you see my blog from yesterday, the same thing happened to me while running on the treadmill. Bleeding isn't a huge problem unless it is in huge amounts or stops you from doing your treatments for days at a time.

Hope this helps.

Ronnie

RonnieSharpe
04-23-2009, 10:41 PM
Increased exercise can lead to coughing up blood because the exercise requires more oxygen which requires more blood moving throughout your body and then deeper breaths to expand the lungs which then stresses the blood source. At least that would be my guess.
<br />
<br />If you see my blog from yesterday, the same thing happened to me while running on the treadmill. Bleeding isn't a huge problem unless it is in huge amounts or stops you from doing your treatments for days at a time.
<br />
<br />Hope this helps.
<br />
<br />Ronnie

LeneSouthAfrica
04-24-2009, 05:23 AM
Sorry to hear about the bleed, it's quite distressing to experience this. Yes I have had a dull pressure-ache a few days following a bleed...and often this leads to a coughing fit producing a black 'pip' or two which I can only assume is a scab of sorts. Gross, I know, but after that the ache seems to go away. I often also have a low grade fever afterwards, even though I don't particularly feel sick. My dr explained to me why but I can't exactly remember now, I think it was a common reaction of the body after having blood in the lungs. Or it can be underlying infection. Or it can be, like a nosebleed, just due to a tender area and increased pressure so strenuous activity could probably trigger it. But the benefits of strenuous activity is also great so I would just rest a few days and then resume. If it continues, maybe do a course of antibiotics and then see.
General info: something I did not know is that in CF the arteries in our lungs increase in size (freeways instead of little roads) after the years' of infections, and it can be dangerous to have a bleed happen on one of the 'freeways'. That is why embolisation is sometimes done when you have frequent bleeds, as a precaution, to close off some of those giant arteries. Within a few weeks, to keep supplying the lung tissue with blood, the lungs then sprout new smaller roads which are safer, even if you bleed from them it's usually minor. (I had 1 embolisation even though my CF is moderate, and it has helped a lot)
All the best
Lene'

LeneSouthAfrica
04-24-2009, 05:23 AM
Sorry to hear about the bleed, it's quite distressing to experience this. Yes I have had a dull pressure-ache a few days following a bleed...and often this leads to a coughing fit producing a black 'pip' or two which I can only assume is a scab of sorts. Gross, I know, but after that the ache seems to go away. I often also have a low grade fever afterwards, even though I don't particularly feel sick. My dr explained to me why but I can't exactly remember now, I think it was a common reaction of the body after having blood in the lungs. Or it can be underlying infection. Or it can be, like a nosebleed, just due to a tender area and increased pressure so strenuous activity could probably trigger it. But the benefits of strenuous activity is also great so I would just rest a few days and then resume. If it continues, maybe do a course of antibiotics and then see.
General info: something I did not know is that in CF the arteries in our lungs increase in size (freeways instead of little roads) after the years' of infections, and it can be dangerous to have a bleed happen on one of the 'freeways'. That is why embolisation is sometimes done when you have frequent bleeds, as a precaution, to close off some of those giant arteries. Within a few weeks, to keep supplying the lung tissue with blood, the lungs then sprout new smaller roads which are safer, even if you bleed from them it's usually minor. (I had 1 embolisation even though my CF is moderate, and it has helped a lot)
All the best
Lene'

LeneSouthAfrica
04-24-2009, 05:23 AM
Sorry to hear about the bleed, it's quite distressing to experience this. Yes I have had a dull pressure-ache a few days following a bleed...and often this leads to a coughing fit producing a black 'pip' or two which I can only assume is a scab of sorts. Gross, I know, but after that the ache seems to go away. I often also have a low grade fever afterwards, even though I don't particularly feel sick. My dr explained to me why but I can't exactly remember now, I think it was a common reaction of the body after having blood in the lungs. Or it can be underlying infection. Or it can be, like a nosebleed, just due to a tender area and increased pressure so strenuous activity could probably trigger it. But the benefits of strenuous activity is also great so I would just rest a few days and then resume. If it continues, maybe do a course of antibiotics and then see.
General info: something I did not know is that in CF the arteries in our lungs increase in size (freeways instead of little roads) after the years' of infections, and it can be dangerous to have a bleed happen on one of the 'freeways'. That is why embolisation is sometimes done when you have frequent bleeds, as a precaution, to close off some of those giant arteries. Within a few weeks, to keep supplying the lung tissue with blood, the lungs then sprout new smaller roads which are safer, even if you bleed from them it's usually minor. (I had 1 embolisation even though my CF is moderate, and it has helped a lot)
All the best
Lene'

LeneSouthAfrica
04-24-2009, 05:23 AM
Sorry to hear about the bleed, it's quite distressing to experience this. Yes I have had a dull pressure-ache a few days following a bleed...and often this leads to a coughing fit producing a black 'pip' or two which I can only assume is a scab of sorts. Gross, I know, but after that the ache seems to go away. I often also have a low grade fever afterwards, even though I don't particularly feel sick. My dr explained to me why but I can't exactly remember now, I think it was a common reaction of the body after having blood in the lungs. Or it can be underlying infection. Or it can be, like a nosebleed, just due to a tender area and increased pressure so strenuous activity could probably trigger it. But the benefits of strenuous activity is also great so I would just rest a few days and then resume. If it continues, maybe do a course of antibiotics and then see.
General info: something I did not know is that in CF the arteries in our lungs increase in size (freeways instead of little roads) after the years' of infections, and it can be dangerous to have a bleed happen on one of the 'freeways'. That is why embolisation is sometimes done when you have frequent bleeds, as a precaution, to close off some of those giant arteries. Within a few weeks, to keep supplying the lung tissue with blood, the lungs then sprout new smaller roads which are safer, even if you bleed from them it's usually minor. (I had 1 embolisation even though my CF is moderate, and it has helped a lot)
All the best
Lene'

LeneSouthAfrica
04-24-2009, 05:23 AM
Sorry to hear about the bleed, it's quite distressing to experience this. Yes I have had a dull pressure-ache a few days following a bleed...and often this leads to a coughing fit producing a black 'pip' or two which I can only assume is a scab of sorts. Gross, I know, but after that the ache seems to go away. I often also have a low grade fever afterwards, even though I don't particularly feel sick. My dr explained to me why but I can't exactly remember now, I think it was a common reaction of the body after having blood in the lungs. Or it can be underlying infection. Or it can be, like a nosebleed, just due to a tender area and increased pressure so strenuous activity could probably trigger it. But the benefits of strenuous activity is also great so I would just rest a few days and then resume. If it continues, maybe do a course of antibiotics and then see.
<br />General info: something I did not know is that in CF the arteries in our lungs increase in size (freeways instead of little roads) after the years' of infections, and it can be dangerous to have a bleed happen on one of the 'freeways'. That is why embolisation is sometimes done when you have frequent bleeds, as a precaution, to close off some of those giant arteries. Within a few weeks, to keep supplying the lung tissue with blood, the lungs then sprout new smaller roads which are safer, even if you bleed from them it's usually minor. (I had 1 embolisation even though my CF is moderate, and it has helped a lot)
<br />All the best
<br />Lene'

kmaried
04-25-2009, 12:56 PM
Hey Sonia,

Here is my limited understanding of bleeds. Due to inflammation and infection in the lungs; there tend to be oversized capillaries close to the the lining of the lungs. For me, I always get bleeds when I lie flat on my back... I think the pressure change causes those already irritated veins to burst open. I've been told not to 'panic' because increased blood pressure will obviously make the blood come even fast (easier said than done, I realize). It seems to me like working out hard could increase your heart rate, blood pressure, and cause those already stressed veins to pop.

In my non-professional opinion, I wouldn't say to stop working out hard. The benefits to your lungs outweigh a bleed here or there. Different story of course if you begin having a LOT of blood.

Good luck!!!,
Kris

kmaried
04-25-2009, 12:56 PM
Hey Sonia,

Here is my limited understanding of bleeds. Due to inflammation and infection in the lungs; there tend to be oversized capillaries close to the the lining of the lungs. For me, I always get bleeds when I lie flat on my back... I think the pressure change causes those already irritated veins to burst open. I've been told not to 'panic' because increased blood pressure will obviously make the blood come even fast (easier said than done, I realize). It seems to me like working out hard could increase your heart rate, blood pressure, and cause those already stressed veins to pop.

In my non-professional opinion, I wouldn't say to stop working out hard. The benefits to your lungs outweigh a bleed here or there. Different story of course if you begin having a LOT of blood.

Good luck!!!,
Kris

kmaried
04-25-2009, 12:56 PM
Hey Sonia,

Here is my limited understanding of bleeds. Due to inflammation and infection in the lungs; there tend to be oversized capillaries close to the the lining of the lungs. For me, I always get bleeds when I lie flat on my back... I think the pressure change causes those already irritated veins to burst open. I've been told not to 'panic' because increased blood pressure will obviously make the blood come even fast (easier said than done, I realize). It seems to me like working out hard could increase your heart rate, blood pressure, and cause those already stressed veins to pop.

In my non-professional opinion, I wouldn't say to stop working out hard. The benefits to your lungs outweigh a bleed here or there. Different story of course if you begin having a LOT of blood.

Good luck!!!,
Kris

kmaried
04-25-2009, 12:56 PM
Hey Sonia,

Here is my limited understanding of bleeds. Due to inflammation and infection in the lungs; there tend to be oversized capillaries close to the the lining of the lungs. For me, I always get bleeds when I lie flat on my back... I think the pressure change causes those already irritated veins to burst open. I've been told not to 'panic' because increased blood pressure will obviously make the blood come even fast (easier said than done, I realize). It seems to me like working out hard could increase your heart rate, blood pressure, and cause those already stressed veins to pop.

In my non-professional opinion, I wouldn't say to stop working out hard. The benefits to your lungs outweigh a bleed here or there. Different story of course if you begin having a LOT of blood.

Good luck!!!,
Kris

kmaried
04-25-2009, 12:56 PM
Hey Sonia,
<br />
<br />Here is my limited understanding of bleeds. Due to inflammation and infection in the lungs; there tend to be oversized capillaries close to the the lining of the lungs. For me, I always get bleeds when I lie flat on my back... I think the pressure change causes those already irritated veins to burst open. I've been told not to 'panic' because increased blood pressure will obviously make the blood come even fast (easier said than done, I realize). It seems to me like working out hard could increase your heart rate, blood pressure, and cause those already stressed veins to pop.
<br />
<br />In my non-professional opinion, I wouldn't say to stop working out hard. The benefits to your lungs outweigh a bleed here or there. Different story of course if you begin having a LOT of blood.
<br />
<br />Good luck!!!,
<br />Kris

JazzysMom
04-25-2009, 01:11 PM
Just a thought (from experience) when you work out, do you focus on your breathing?

I tend to hold my breath (if I am not really focusing) which, of course, makes me short of breath, but I think tends to make me bleed more then when I focus & dont hold my breath when lifting (this goes just carrying groceries or anything heavy btw....not just working out)

JazzysMom
04-25-2009, 01:11 PM
Just a thought (from experience) when you work out, do you focus on your breathing?

I tend to hold my breath (if I am not really focusing) which, of course, makes me short of breath, but I think tends to make me bleed more then when I focus & dont hold my breath when lifting (this goes just carrying groceries or anything heavy btw....not just working out)

JazzysMom
04-25-2009, 01:11 PM
Just a thought (from experience) when you work out, do you focus on your breathing?

I tend to hold my breath (if I am not really focusing) which, of course, makes me short of breath, but I think tends to make me bleed more then when I focus & dont hold my breath when lifting (this goes just carrying groceries or anything heavy btw....not just working out)

JazzysMom
04-25-2009, 01:11 PM
Just a thought (from experience) when you work out, do you focus on your breathing?

I tend to hold my breath (if I am not really focusing) which, of course, makes me short of breath, but I think tends to make me bleed more then when I focus & dont hold my breath when lifting (this goes just carrying groceries or anything heavy btw....not just working out)

JazzysMom
04-25-2009, 01:11 PM
Just a thought (from experience) when you work out, do you focus on your breathing?
<br />
<br />I tend to hold my breath (if I am not really focusing) which, of course, makes me short of breath, but I think tends to make me bleed more then when I focus & dont hold my breath when lifting (this goes just carrying groceries or anything heavy btw....not just working out)

beleache
04-25-2009, 04:54 PM
Hey Sonia,

A bleed can be caused by so many things, including some of the things you have mentioned.. (it is so scary when it happens <img src="i/expressions/face-icon-small-shocked.gif" border="0"> )

One more important thing a bleed can be associated w/ is infection.. Have you discussed infection w/ your dr. ?

I hope you figure it out soon & feel better asap..

Keep us posted <img src="i/expressions/heart.gif" border="0"> joni

beleache
04-25-2009, 04:54 PM
Hey Sonia,

A bleed can be caused by so many things, including some of the things you have mentioned.. (it is so scary when it happens <img src="i/expressions/face-icon-small-shocked.gif" border="0"> )

One more important thing a bleed can be associated w/ is infection.. Have you discussed infection w/ your dr. ?

I hope you figure it out soon & feel better asap..

Keep us posted <img src="i/expressions/heart.gif" border="0"> joni

beleache
04-25-2009, 04:54 PM
Hey Sonia,

A bleed can be caused by so many things, including some of the things you have mentioned.. (it is so scary when it happens <img src="i/expressions/face-icon-small-shocked.gif" border="0"> )

One more important thing a bleed can be associated w/ is infection.. Have you discussed infection w/ your dr. ?

I hope you figure it out soon & feel better asap..

Keep us posted <img src="i/expressions/heart.gif" border="0"> joni

beleache
04-25-2009, 04:54 PM
Hey Sonia,

A bleed can be caused by so many things, including some of the things you have mentioned.. (it is so scary when it happens <img src="i/expressions/face-icon-small-shocked.gif" border="0"> )

One more important thing a bleed can be associated w/ is infection.. Have you discussed infection w/ your dr. ?

I hope you figure it out soon & feel better asap..

Keep us posted <img src="i/expressions/heart.gif" border="0"> joni

beleache
04-25-2009, 04:54 PM
Hey Sonia,
<br />
<br />A bleed can be caused by so many things, including some of the things you have mentioned.. (it is so scary when it happens <img src="i/expressions/face-icon-small-shocked.gif" border="0"> )
<br />
<br /> One more important thing a bleed can be associated w/ is infection.. Have you discussed infection w/ your dr. ?
<br />
<br /> I hope you figure it out soon & feel better asap..
<br />
<br />Keep us posted <img src="i/expressions/heart.gif" border="0"> joni