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Shaylaandrews
03-26-2008, 07:35 PM
I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have not had anything unusual yet) and how this will effect my health.


Thanks,
Ann

Shaylaandrews
03-26-2008, 07:35 PM
I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have not had anything unusual yet) and how this will effect my health.


Thanks,
Ann

Shaylaandrews
03-26-2008, 07:35 PM
I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have not had anything unusual yet) and how this will effect my health.


Thanks,
Ann

Shaylaandrews
03-26-2008, 07:35 PM
I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have not had anything unusual yet) and how this will effect my health.


Thanks,
Ann

Shaylaandrews
03-26-2008, 07:35 PM
I am 28 years old with CF and recently diagnosed with MAI (Mycobacterium Avium-Intracellulare). Have any of you ever heard of this? Most of the information I have found on it deals with people that are HIV positive, which I am not. I am trying to find out symptoms (if there are any, I have not had anything unusual yet) and how this will effect my health.
<br />
<br />
<br />Thanks,
<br />Ann

Jane
03-26-2008, 08:19 PM
Ann, my kids had a mycobacterium but not the same one. The website and forum for Non-tubercular myco is very helpful. Here's the link:

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
">http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
</a>
There are others here who also have myco. I bet you'll hear from them too. Good luck.

Jane
03-26-2008, 08:19 PM
Ann, my kids had a mycobacterium but not the same one. The website and forum for Non-tubercular myco is very helpful. Here's the link:

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
">http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
</a>
There are others here who also have myco. I bet you'll hear from them too. Good luck.

Jane
03-26-2008, 08:19 PM
Ann, my kids had a mycobacterium but not the same one. The website and forum for Non-tubercular myco is very helpful. Here's the link:

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
">http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
</a>
There are others here who also have myco. I bet you'll hear from them too. Good luck.

Jane
03-26-2008, 08:19 PM
Ann, my kids had a mycobacterium but not the same one. The website and forum for Non-tubercular myco is very helpful. Here's the link:

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
">http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
</a>
There are others here who also have myco. I bet you'll hear from them too. Good luck.

Jane
03-26-2008, 08:19 PM
Ann, my kids had a mycobacterium but not the same one. The website and forum for Non-tubercular myco is very helpful. Here's the link:
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
">http://forums.ntminfo.com/ShowForum.aspx?ForumID=5
</a><br />
<br />There are others here who also have myco. I bet you'll hear from them too. Good luck.

lightNlife
03-26-2008, 10:50 PM
Here's an article I wrote that's a succinct description of MAC (MAI)

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/what-is-mycobaterium-avium-complex-mac.html">http://understandingcysticfibr...avium-complex-mac.html</a>

lightNlife
03-26-2008, 10:50 PM
Here's an article I wrote that's a succinct description of MAC (MAI)

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/what-is-mycobaterium-avium-complex-mac.html">http://understandingcysticfibr...avium-complex-mac.html</a>

lightNlife
03-26-2008, 10:50 PM
Here's an article I wrote that's a succinct description of MAC (MAI)

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/what-is-mycobaterium-avium-complex-mac.html">http://understandingcysticfibr...avium-complex-mac.html</a>

lightNlife
03-26-2008, 10:50 PM
Here's an article I wrote that's a succinct description of MAC (MAI)

<a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/what-is-mycobaterium-avium-complex-mac.html">http://understandingcysticfibr...avium-complex-mac.html</a>

lightNlife
03-26-2008, 10:50 PM
Here's an article I wrote that's a succinct description of MAC (MAI)
<br />
<br /><a target=_blank class=ftalternatingbarlinklarge href="http://understandingcysticfibrosis.blogspot.com/2007/07/what-is-mycobaterium-avium-complex-mac.html">http://understandingcysticfibr...avium-complex-mac.html</a>

CowTown
03-27-2008, 02:11 PM
Hi Ann, I have MAC, not the same mycobacterium that you have, but a relative. The reason you end up seeing so much written about the HIV patients is b/c (I believe) that population is larger then the CF population with MAC. They can easily get the myco b/c their immune systems are non existent which makes them susceptible to it as well as us.

It's great that you're not seeing any symptoms yet. I was first diagnosed with MAC about 10 years ago and only in the last 3 years has mine really started acting up. MAC is a slow growing bug which is why it took so long for me to see symptoms. I'm not sure about the MAI -since there are several different types of mycobacteriums. I'm only up on the m. avium complex one.

LightNlife's article is a good one and you might find more info on your MAI type from there and from Jane's forum link.

CowTown
03-27-2008, 02:11 PM
Hi Ann, I have MAC, not the same mycobacterium that you have, but a relative. The reason you end up seeing so much written about the HIV patients is b/c (I believe) that population is larger then the CF population with MAC. They can easily get the myco b/c their immune systems are non existent which makes them susceptible to it as well as us.

It's great that you're not seeing any symptoms yet. I was first diagnosed with MAC about 10 years ago and only in the last 3 years has mine really started acting up. MAC is a slow growing bug which is why it took so long for me to see symptoms. I'm not sure about the MAI -since there are several different types of mycobacteriums. I'm only up on the m. avium complex one.

LightNlife's article is a good one and you might find more info on your MAI type from there and from Jane's forum link.

CowTown
03-27-2008, 02:11 PM
Hi Ann, I have MAC, not the same mycobacterium that you have, but a relative. The reason you end up seeing so much written about the HIV patients is b/c (I believe) that population is larger then the CF population with MAC. They can easily get the myco b/c their immune systems are non existent which makes them susceptible to it as well as us.

It's great that you're not seeing any symptoms yet. I was first diagnosed with MAC about 10 years ago and only in the last 3 years has mine really started acting up. MAC is a slow growing bug which is why it took so long for me to see symptoms. I'm not sure about the MAI -since there are several different types of mycobacteriums. I'm only up on the m. avium complex one.

LightNlife's article is a good one and you might find more info on your MAI type from there and from Jane's forum link.

CowTown
03-27-2008, 02:11 PM
Hi Ann, I have MAC, not the same mycobacterium that you have, but a relative. The reason you end up seeing so much written about the HIV patients is b/c (I believe) that population is larger then the CF population with MAC. They can easily get the myco b/c their immune systems are non existent which makes them susceptible to it as well as us.

It's great that you're not seeing any symptoms yet. I was first diagnosed with MAC about 10 years ago and only in the last 3 years has mine really started acting up. MAC is a slow growing bug which is why it took so long for me to see symptoms. I'm not sure about the MAI -since there are several different types of mycobacteriums. I'm only up on the m. avium complex one.

LightNlife's article is a good one and you might find more info on your MAI type from there and from Jane's forum link.

CowTown
03-27-2008, 02:11 PM
Hi Ann, I have MAC, not the same mycobacterium that you have, but a relative. The reason you end up seeing so much written about the HIV patients is b/c (I believe) that population is larger then the CF population with MAC. They can easily get the myco b/c their immune systems are non existent which makes them susceptible to it as well as us.
<br />
<br />It's great that you're not seeing any symptoms yet. I was first diagnosed with MAC about 10 years ago and only in the last 3 years has mine really started acting up. MAC is a slow growing bug which is why it took so long for me to see symptoms. I'm not sure about the MAI -since there are several different types of mycobacteriums. I'm only up on the m. avium complex one.
<br />
<br />LightNlife's article is a good one and you might find more info on your MAI type from there and from Jane's forum link.