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RadChevy
08-03-2003, 10:02 PM
Hi, On several CF lists I belong to, there is much discussion of having depression, what is depression, how to deal with depression at this time. So I thought I would do a little survey. If you would like to participate, follow the directions below and I will get the results in the next few weeks gathered and posted..I want to do a "formal , informal" survey about depression and CF. I will tabulate the results and pass along the results. Depression is a big part of our society. They say that 70% of women, over 30 are on anti depressants. These are healthy women with no CF. They say that 82% of post lung transplant recipients are on anti depressants. The best part is that it is treatable. Talk therapy, psychologist, psychiatrist, medicine and some other visualization, relaxation etc. Here are the questions, you can return them to my email address or the CF Board here.: 1. When were you diagnosed with CF? 2. How often do you do Chest Physiotherapy? By Vest? By hand? 3. How often do you do oral antibiotics? 4. How often do you do IV therapy? Home? Hospital? 5. Are you pre or post lung transplant? 6. Do you consider yourself "depressed"? 7. Do you have trouble sleeping?Not hungry?No physical energy due to feeling down?Feel that life has no reason?Feel you are in a rut? 8. Has a doctor diagnosed you as "clinically depressed"? 9.Do you see a psychologist, psychiatrist, or talk therapist? 10. Are you on a anti depressant? 11. What is the name of the drug you are on? 12. How long have you been on it? 13. Do you see positive results? 14. Have you been on a anti depressant in the past?If so, why did you get off of it? 15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug? Any other comments: Thanks for participating. JoanneJoanne [email protected] lateral Lung Tx 9/12/97Univ of North Carolina Chapel Hill

RadChevy
08-03-2003, 10:02 PM
Hi, On several CF lists I belong to, there is much discussion of having depression, what is depression, how to deal with depression at this time. So I thought I would do a little survey. If you would like to participate, follow the directions below and I will get the results in the next few weeks gathered and posted..I want to do a "formal , informal" survey about depression and CF. I will tabulate the results and pass along the results. Depression is a big part of our society. They say that 70% of women, over 30 are on anti depressants. These are healthy women with no CF. They say that 82% of post lung transplant recipients are on anti depressants. The best part is that it is treatable. Talk therapy, psychologist, psychiatrist, medicine and some other visualization, relaxation etc. Here are the questions, you can return them to my email address or the CF Board here.: 1. When were you diagnosed with CF? 2. How often do you do Chest Physiotherapy? By Vest? By hand? 3. How often do you do oral antibiotics? 4. How often do you do IV therapy? Home? Hospital? 5. Are you pre or post lung transplant? 6. Do you consider yourself "depressed"? 7. Do you have trouble sleeping?Not hungry?No physical energy due to feeling down?Feel that life has no reason?Feel you are in a rut? 8. Has a doctor diagnosed you as "clinically depressed"? 9.Do you see a psychologist, psychiatrist, or talk therapist? 10. Are you on a anti depressant? 11. What is the name of the drug you are on? 12. How long have you been on it? 13. Do you see positive results? 14. Have you been on a anti depressant in the past?If so, why did you get off of it? 15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug? Any other comments: Thanks for participating. JoanneJoanne [email protected] lateral Lung Tx 9/12/97Univ of North Carolina Chapel Hill

Lois
08-05-2003, 11:39 AM
1. When were you diagnosed with CF? officially i was diagnosed at age of 1 yr. my mother, though, knew what i had when i was 1 month old, because my older brother died of it before i was born. 2. How often do you do Chest Physiotherapy? By Vest? By hand? i don't have a vest as i live in israel, where cf patients don't practice it. i do it by hand, several times a week. i'd say three times on the average. although i ought to be doing more... 3. How often do you do oral antibiotics? i am always on oral antibiotics. always. ever since i was 10 yrs old, so for the past 10 yrs [i'm 20] i have never been without oral antibiotics. 4. How often do you do IV therapy? Home? Hospital? i have IV on average 3 times per year, every time two or three weeks, and usually at home. 5. Are you pre or post lung transplant? pre-transplant. 6. Do you consider yourself "depressed"? not at present. i was depressed for almost six years [ages 14 1/2 to 20], cf was a part of it but not the main reason. i received medical treatment, went to therapy and at some point i hospitalized myself [being over 18 at the time]. i have bad days but overall, i am not depressed anymore. 7. Do you have trouble sleeping? noNot hungry? sometimes. but i am also sick with anorexia nervosa.No physical energy due to feeling down? noFeel that life has no reason? sometimes. Feel you are in a rut? no 8. Has a doctor diagnosed you as "clinically depressed"? yes, i was diagnosed with that when i was 19. 9.Do you see a psychologist, psychiatrist, or talk therapist? not anymore. i was seeing a psychologist, a psychoatrist and a social worker during time in hospital. 10. Are you on a anti depressant? not anymore. i've been "clean" for about three months now, and i'm doing good without. 11. What is the name of the drug you are on? i used to take prozac, then switched to cipramil. 12. How long have you been on it? prozac for six months, then cipramil for another nine months. 13. Do you see positive results? prozac worked for a little while, and only when i took the highest dose [60 mg], then i went back to being extremely depressed. cipramil, together with hospitalization and therapy, did a great job. 14. Have you been on a anti depressant in the past? yes, both of those are in the past now <img src="i/expressions/face-icon-small-smile.gif" border="0">If so, why did you get off of it? i quit prozac because it didn't work. i quit cipramil because i felt that at this point in life, i can do without, and i was right. 15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug? irreleveant question in my case <img src="i/expressions/face-icon-small-smile.gif" border="0"> Any other comments: ---

Lois
08-05-2003, 11:39 AM
1. When were you diagnosed with CF? officially i was diagnosed at age of 1 yr. my mother, though, knew what i had when i was 1 month old, because my older brother died of it before i was born. 2. How often do you do Chest Physiotherapy? By Vest? By hand? i don't have a vest as i live in israel, where cf patients don't practice it. i do it by hand, several times a week. i'd say three times on the average. although i ought to be doing more... 3. How often do you do oral antibiotics? i am always on oral antibiotics. always. ever since i was 10 yrs old, so for the past 10 yrs [i'm 20] i have never been without oral antibiotics. 4. How often do you do IV therapy? Home? Hospital? i have IV on average 3 times per year, every time two or three weeks, and usually at home. 5. Are you pre or post lung transplant? pre-transplant. 6. Do you consider yourself "depressed"? not at present. i was depressed for almost six years [ages 14 1/2 to 20], cf was a part of it but not the main reason. i received medical treatment, went to therapy and at some point i hospitalized myself [being over 18 at the time]. i have bad days but overall, i am not depressed anymore. 7. Do you have trouble sleeping? noNot hungry? sometimes. but i am also sick with anorexia nervosa.No physical energy due to feeling down? noFeel that life has no reason? sometimes. Feel you are in a rut? no 8. Has a doctor diagnosed you as "clinically depressed"? yes, i was diagnosed with that when i was 19. 9.Do you see a psychologist, psychiatrist, or talk therapist? not anymore. i was seeing a psychologist, a psychoatrist and a social worker during time in hospital. 10. Are you on a anti depressant? not anymore. i've been "clean" for about three months now, and i'm doing good without. 11. What is the name of the drug you are on? i used to take prozac, then switched to cipramil. 12. How long have you been on it? prozac for six months, then cipramil for another nine months. 13. Do you see positive results? prozac worked for a little while, and only when i took the highest dose [60 mg], then i went back to being extremely depressed. cipramil, together with hospitalization and therapy, did a great job. 14. Have you been on a anti depressant in the past? yes, both of those are in the past now <img src="i/expressions/face-icon-small-smile.gif" border="0">If so, why did you get off of it? i quit prozac because it didn't work. i quit cipramil because i felt that at this point in life, i can do without, and i was right. 15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug? irreleveant question in my case <img src="i/expressions/face-icon-small-smile.gif" border="0"> Any other comments: ---

serendipity730
08-05-2003, 11:34 PM
1. I was diagnosed at birth, because of muconeum illeus.2. I do CPT 2x a day, via Vest.3. I am on antibiotics almost continuously.4. I am on IV's 3-4 times a year, I start at the hospital and finish at home.5. Pre-transplant.6. From the ages of 11-18, I was depressed, at times much more so, but there were also other issues. CF was the main cause. Now, I am very happy!<img src="i/expressions/face-icon-small-happy.gif" border="0">7. I have trouble sleeping sometimes.8. I was diagnosed as clinically depressed 4 yrs ago.9. I see a pyschiatrist and therapist.10. I am on Paxil.12. I have been on it for 3 yrs.13. I have had god restults, though a lot of things have changed in my life, so it is hard to say. First, I tried prozac, remeron, and celexa first.14. NopeThis is a great survey! Depression is something so common with CF, but is so rarely discussed.

Joni
08-06-2003, 09:19 PM
1. When were you diagnosed with CF? When I was 11 years old; prior to that I was treated only for asthma.2. How often do you do Chest Physiotherapy? By Vest? By hand? I don't do much therapy at all I must confess; when I do, I use the vest.3. How often do you do oral antibiotics? Once or twice a year, mostly for sinus infections.4. How often do you do IV therapy? Home? Hospital? I've had 3 IV therapy sessions, all of which started in the hospital then continued from home.5. Are you pre or post lung transplant? Neither.6. Do you consider yourself "depressed"? Sometimes, but not currently.7. Do you have trouble sleeping? NEVER!Not hungry? NEVER! No physical energy due to feeling down? Sometimes, but not currently.Feel that life has no reason? Sometimes, but not currently.Feel you are in a rut? Sometimes, but not currently.8. Has a doctor diagnosed you as "clinically depressed"? No.9.Do you see a psychologist, psychiatrist, or talk therapist? I've seen a Clinical Psychologist twice.10. Are you on a anti depressant? Yes.11. What is the name of the drug you are on? Celexa, 20mg.12. How long have you been on it? About 4 years.13. Do you see positive results? YES!14. Have you been on a anti depressant in the past? No.If so, why did you get off of it?15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug?<img src="i/expressions/face-icon-small-smile.gif" border="0"> N/A

scarlett
08-08-2003, 02:34 PM
1. When were you diagnosed with CF?<b> In 1985, when I was around one and a half. </b>2. How often do you do Chest Physiotherapy? By Vest? By hand?<b> Never, except when I'm in the hospital. I should be doing it but I don't . . . </b>3. How often do you do oral antibiotics?<b> Maybe once or twice a year when I get an infection I'll do a course. </b>4. How often do you do IV therapy? Home? Hospital?<b> I've only had IV's once, in the hospital, last year. Next week will be my second cleanout, I will be going inpatient and doing them again. </b>5. Are you pre or post lung transplant?<b>Pre. Haven't been evalutated for one or anything. </b>6. Do you consider yourself "depressed"?<b>Yes.</b>7. Do you have trouble sleeping? <b>No, I sleep more than I'd like.</b>Not hungry? <b> Definitely not. Too hungry if anything </b>No physical energy due to feeling down? <b>Often.</b>Feel that life has no reason? <b> Sometimes. </b>Feel you are in a rut? <b> A lot of the time. </b>8. Has a doctor diagnosed you as "clinically depressed"?<b> Yes. <i> severely </i> clincally depressed . </b>9.Do you see a psychologist, psychiatrist, or talk therapist?<b>I see my therapist 2 times a week. I see a psychiatric sometimes. </b>10. Are you on a anti depressant?<b>Yes.</b>11. What is the name of the drug you are on?<b> Fluxosomething, aka Prozac. 80 milligrams a day. </b>12. How long have you been on it?<b> Almost 3 years. </b>13. Do you see positive results?<b>Not really. It's still a struggle. But it gives me really vivid, intense dreams. </b>14. Have you been on a anti depressant in the past?<b> Yes, I was on Zoloft once. </b>If so, why did you get off of it?<b> Because I felt guilty for taking it and felt like I should just suck up all my problems. </b>15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug?<b> I've considered going off it because I'm not sure it works. Plus, 4 extra pills a day is kind of annoying . . . </b><b><i>scarlett, almost 19, cf, cfrd</i></b>

anonymous
08-09-2003, 10:51 PM
Here are the questions, you can return them to my email address or the CF Board here.:1. When were you diagnosed with [email protected] birth. Older sis died from it2. How often do you do Chest Physiotherapy? By Vest? By hand? No longer; thanks to Tx3. How often do you do oral antibiotics? Before Tx every other month. Now1 Bactrum(500mg I think) 3 x week4. How often do you do IV therapy? Home? Hospital? In my youth about 3 times a and when I hit 20 every other month. 5. Are you pre or post lung transplant? Post Tx 6 months and 6 days6. Do you consider yourself "depressed"? At times .Esp. Lately I have loss 3 close friends since Dec 027. Do you have trouble sleeping? yes;all I get is 2hrs night even w/ AmbienNot hungry? Never hungryNo physical energy due to feeling down? @ timesFeel that life has no reason? @ timesFeel you are in a rut? Yes8. Has a doctor diagnosed you as "clinically depressed"?In the past 9.Do you see a psychologist, psychiatrist, or talk therapist? No10. Are you on a anti depressant? No11. What is the name of the drug you are on?12. How long have you been on it?13. Do you see positive results?14. Have you been on a anti depressant in the past? YesIf so, why did you get off of it? I have fears of addiction15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug? I easily find myself needing/wanting these. To cobat those effects I just let myself dry out and won’t touch the stuff again; mostlikelyAny other commentsByron/23/C.F.Post Tx 6 months and 6 days

anonymous
08-19-2003, 07:04 AM
1. When were you diagnosed with CF?About a month after I was born in '83.2. How often do you do Chest Physiotherapy? By Vest? By hand?Never ! Vest is to expensive, and I live on my own, so by hand is out of the question, unless you can perform it on yourself. I don't know.3. How often do you do oral antibiotics?About a 10 day treatment every month.4. How often do you do IV therapy? Home? Hospital?About 2 to 3 times a year. I go into the hospital for about 2 weeks at a time.5. Are you pre or post lung transplant?I quess you would say I am pre, but when the time comes I need a lung transplant, it ain't happening6. Do you consider yourself "depressed"?I feel like life isn't worth living sometimes, but i still laugh when something is funny, so i don't know. I'm not really clear on the definition of depression and the symptoms.7. Do you have trouble sleeping?Every night. I fall asleep fine, but wake up in the middle of the night and need to do my "machine", but when it comes time to wake up, I usually don't want to get out of bed Not hungry?YesNo physical energy due to feeling down?YesFeel that life has no reason?Lots of timesFeel you are in a rut?dunno8. Has a doctor diagnosed you as "clinically depressed"?nope9.Do you see a psychologist, psychiatrist, or talk therapist?nope10. Are you on a anti depressant?nope11. What is the name of the drug you are on?n/a12. How long have you been on it?n/a13. Do you see positive results?n/a14. Have you been on a anti depressant in the past?If so, why did you get off of it?n/a15. If you feel you are depressed, but not on medicine for it, why? Society? Don't think it will help? You don't want to take one more drug?In the past I had many surgerys, and was on T3's for the pain. after I while I started to get addicted to the coedine. The last thing I want is to become addicted to another drug.Any other comments:My "depression" mainly comes from my appearance. I don't care if this makes me sounds vain, but I am fine with the limit activities I can participate in, and the truck load of medications I have to take to stay alive, but to top of off I also have to live with a barrel chest. Thats the part that gets me to thinking why even bother. P.S. thanks for making this questionaire.. It gave me somewhere to vent as well as let me no that other people with C.F. are goin through the same ordeal I am.