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  1. Life with Pan-Resistant Bacteria?
  2. How to determine cause(s) of hemoptysis
  3. Expanded Access it is law...for those in dire need of an investigational drug....
  4. Amikacin Recalled
  5. Recommendations for a better travel compressor
  6. NEW PAID RESEARCH OPPORTUNITY~ Caregivers children 10 and Under
  7. URGENT NEED FOR ACTION:Help to expedite FDA review of Tezacaftor/Ivacaftor(VX-661)
  8. Mass general adult clinic
  9. Sputum Sample Question
  10. We remember Frank Deford
  11. NEW Relizorb enzymes (for those with G-tubes)
  12. Salivary gland issues
  13. Scholarship Opportunity
  14. My son has this combination: 3849+10kbC and 712-G->T
  15. What you want new nurses to know!
  16. Dr. Patrick Sosnay
  17. how to get a new Altera handset
  18. Important: Contact your SENATORS EVERYDAY! Example enclosed!
  19. Any CF Male's out there on Kalydeco or Orkambi that have gone through IVF ?
  20. Exercise
  21. Relevant for the times of health care
  22. Senate Health Care Bill Fails to Adequately Protect People with CF CAll Senators NOW
  23. Letter to senators regarding annual/lifetime caps-request input
  24. Low grade fevers and swelling
  25. Now that summer is here
  26. Today I take you HERE! PanagoraPharma
  27. Which pump ?
  28. questions on travelling
  29. Vote For Me for Rare Diseases Art Contest!
  30. Post CF bills
  31. I need some information on Meditation
  32. After 1879 hours DS' Vest is Kaput
  33. Best & Unique Practices for CF Individuals
  34. Bronchitis For The First Time (Age 23) - Are these symptoms normal?
  35. Welcome Tamika CF Nurse!
  36. Exercise vs avoid public pools
  37. dry cough, tightness?
  38. taking Ivacaftor?
  39. Adult Sibling Not Wanting to be Tested
  40. Funny anecdote
  41. Osteoporosis
  42. Seems like some positive health care news
  43. Vertex Triple works for het-mins and improves ddf508 better!
  44. Pharma Survey: They want to HEAR FROM YOU!
  45. Proud moment (off topic)
  46. Women and Living with CF
  47. CF and birds
  48. FDA approves Kalydeco for 5 residual function mutations
  49. Is it possible to be mistakenly diagnosed with CF?
  50. Erapid nebulizer easycare instructions
  51. Best portable neb - Hypertonic Saline
  52. How do you keep from getting sick?
  53. Px Routine
  54. b-cepacia recall for liquids
  55. Two Years Ago
  56. eflow rapid Bottle Sterilizer advise
  57. Adrenal insufficiency
  58. Coughing up blood on Orkambi 3 months! Help
  59. Discontinuing Ursodiol (Actigall)
  60. Medicare- Is there ANY way to get HOME IVs covered?
  61. Moving to Colorado- Between Denver and the Springs possibly-Short term rentals?
  62. Vertex Announces Acceptance of Applications for review of Tezacaftor/Ivacaftor
  63. Transplant time
  64. A study to evaluate tezacaftor-ivacaftor(661) for those unable to tolerate Orkambi
  65. Rare mutation cell collection for those with 2 nonsense mutations
  66. Phase 1/2 study of Proteostasis PTI-801-01
  67. Phase 2 study of VX-659 combination drug
  68. Phase 1/2 study of VX-445 combination drug
  69. Hurricane Harvey's Cystic Fibrosis Victims Relief Fund- Boomer Esiason Foundation
  70. Help send supplies to children who are medically complex impacted by Hurricane Harvey
  71. A Conversation with Gunnar Esiason
  72. Newly Cultured NTM/MAC
  73. CF and Lyme Disease
  74. Another Attempt at Health care Bill does not protect CF Pateints
  75. Sauna and CF
  76. How to act around my Girlfriend with CF
  77. Insurance Rules Can be unhelpful for CF
  78. Sickness prevention while living with someone in a small area?
  79. Looking for CF doctor in Southwest Florida
  80. Got new lungs
  81. Nasal Potential Difference
  82. Should CF patients be paid for their data? Watch the Video/ Take the Survey
  83. Some Results from our Survey!
  84. Hearing Loss Awareness
  85. Where can i get sweat test?
  86. Medical mystery: Collection of weird symptoms
  87. Pulmozyme Survey: we still need adults
  88. Take the survey, here's why
  89. Fabric antibacterial mask recommendations
  90. Teens still needed for the Pulmozyme Study!
  91. My Lungs Are Made For Breathing (poem)
  92. $25/$40 Gift Certificates..Pulmozyme Survey still needs MORE participants all groups!
  93. Link for ACA Signup
  94. FEV1 Testing Concerns
  95. Pulmozyme survey needs 9 more!
  96. Thank you to all who took the Pulmozyme Survey!
  97. want to know any one from India....
  98. Survey for NON Pulmozyme Users Now: $40.00 Gift Card!
  99. Pulmozyme Survey Now Closed!
  100. Take our Survey for Data Discovery, Research, and Profit...moving to 500 participants
  101. When did you decide to stop going to work?
  102. Orkambi effectiveness in terms of corrected protein count?
  103. Survey#3 mHealth Attitudes is closed! THANK YOU
  104. Medicare in New Jersey?
  105. Kalydeco and unwanted weight gain???
  106. Nebulizer tubes popping off
  107. nearest cf facility to Santa Fe?
  108. NAC vitamins vs Mucinex?
  109. Any experience with Scedosporium proliferans?
  110. New SHORT Pulmozyme Study (5 minutes) Gift Card $15.00
  111. Blockchain...a blog
  112. Please be an Advocate for us!
  113. Donate Button! And Other Forum Related Stuffs
  114. Tobramycin Muscle convulsions, nerve damage, facial twitching
  115. Anybody a patient at USC CF Center in Los Angeles?
  116. Will Mucinex help a CF cold?
  117. My youngest cousin has cystic fibrosis? Should I be concerned?
  118. Blog: A young mom exploring Blockchain
  119. The Obligation to Change the Way Research is Done!
  120. Cure E US
  121. Portland, ME and Dartmouth, NH clinics?
  122. New to Kalydeco
  123. Tezacaftor/Ivacaftor
  124. Scared about the future?
  125. Seeking our friends in Ecuador
  126. Handy remedy for more-than-usual-irritating CF cough
  127. Ever time i do a port flush
  128. Am I 9 months old or 19 years old?
  129. Just had bad Edema in my legs and Tho my doctors were stumped, I traced it to CF
  130. Is there anyone else who has CF and had a parent that also had CF?
  131. Running out of IV med options
  132. Arkansas clinics?
  133. Anyone had to wean themselves off of Orkambi?
  134. Guardedly EXCITED??!
  135. 2 hour glucose tolerance test question
  136. Don't Do This, DON'T DO THIS, please.
  137. Vertex Initiates First Phase 3 Study of VX-659, Tezacaftor and Ivacaftor
  138. Los Angeles GI Doc
  139. Q+A Adult with CF
  140. Insurance Ideas for CF Patient
  141. What was your age when you had your double lung transplant?
  142. How Old Were You When You had Your Lung Transplant Done?
  143. Phase 3 study of VX-659 triple combination drug
  144. how do you know when need enzymes?
  145. From Fear to Fearless- Are you struggling with fear?
  146. Switch From Kalydeco to Symdeko
  147. Symdeko trials for 6-11
  148. So glad our CF doctor told us NO bath toys for DS when he was first diagnosed.
  149. Adult clinic in LA
  150. Sweat test before starting Symdeko?
  151. What could BlockChain do for Healthcare?
  152. mono
  153. Severe Muscle Aches and Pseudomonas
  154. Aerobika and nausea
  155. CF related diabetes
  156. Event for those with CF and their Family Members
  157. New Survey for our Care Givers from the UK! £70 for those who qualify
  158. Cipro and Tendinitis
  159. Need Clarification/confused on Newborn
  160. New Questionnaire for our APP development. . What do you think is Valuable?
  161. What do you say you do?
  162. Looking for doc in OK
  163. alternates to neb compressors at home?
  164. Question about order
  165. Mayo Clinic in Jacksonville, Florida
  166. Pneumonia :(
  167. Anti-IgE Test
  168. Symdeko Headache
  169. CF Drug Funding in the UK Patients March!
  170. Can't get sweat test without diagnosis first? What?
  171. Sputum test and question
  172. How long to normal
  173. Polymyxin b
  174. UK Urges Vertex to accept their "generous offer" for Orkambi funding
  175. How Blockchain is changing Business TED Talk!
  176. CF in the City
  177. Are you DISTRUSTFUL? Blockchain needs us...our Pilot is COMING SOON!
  178. Pleuredesis
  179. How BlockChain can help Patients
  180. Battling Anxiety and Depression
  181. CF and Osteoporosis
  182. "Sweat Test" Cystic Fibrosis Documentary Kickstarter!
  183. Transitioning from children's hospital Pittsburgh to falk clinic
  184. Symdeko and Insomnia
  185. Low Ferritin and Iron Levels- is this common with CF?
  186. Healthy diet vs CF needs
  187. Been AWOL but need some 50 PSI Compressor advise
  188. US regulators expand label for Vertex’s Kalydeco CF drug
  189. BI lands option cf gene therapy!
  190. Vertex Orkambi Ok’d In Australia
  191. Happy Birthday Amber
  192. Thoughts on living in Colorado (Denver/Boulder area) with air quality issues/altitude
  193. New device, looking for feedback
  194. Coughing Hot to Cold or Cold to Hot
  195. Pleuredesis side effects?
  196. Vest. UK
  197. Pari eFlow Aerosol Head Cleaner
  198. Dry Cough/Symdeko
  199. Nebulizers for Travel
  200. Technology coming soon: Rent your data!
  201. Monarch Vest Eligibility Question
  202. UK: Patients call for meeting with VERTEX!
  203. Carriers with symptoms or CF dx?
  204. Orkambi Help
  205. Animated Story: Growing up with CF and 2017 Transplant Part 1
  206. Painting and CF ( artistic CF input):)
  207. New Adult Diagnosis - Awaiting Sweat Test
  208. Anyone at the 2018 Conference?
  209. Phase 2 study for new enzymes to begin!
  210. Wellness Protocol
  211. Vertex approved in Europe!
  212. Medicare vs Medicare Advantage
  213. Can an adult have cystic fibrosis without knowing it already?
  214. Drop in Fev1
  215. Hello
  216. A Look Into the Future
  217. vertex drug price uk
  218. DIOS - any tips on how to get your bowels moving after a blockage?
  219. CF Clinic and Doctor in Gainesville, FL
  220. Elevated liver enzymes/Vertex meds
  221. Phase 3 results for VX-659 triple combo
  222. Sons of men with CF through ICSI
  223. Aridis Pharma: Convenient anti biotics dosing for CF patients!
  224. Deleting your on-line DNA is brutally difficult
  225. Possible CF for me and my son?
  226. symdeco
  227. Purdue University:New 2-in-1 powder aerosol to upgrade fight against deadly superbugs
  228. Eloxx Pharma and CF
  229. Precision Medical Easy Comp 50 psi Compressor Loud
  230. Pariboy Pump and Tobramycin issue
  231. Altitude Tent?
  232. Nebulizer Question...
  233. Anyone taking Avycaz?
  234. Disability threatened
  235. I have leftover Tobramicine in Fairfax VA
  236. ENT in Denver
  237. Traveling
  238. Tobi Prescription Roadblock, Please Help!
  239. Adults with CF what are your jobs?
  240. Port Questions for Worker Outers
  241. CF Roundtable Newsletter
  242. Blockchain It's Working Ashish Gadnis
  243. Capsule endoscopy
  244. UK: Campaigners urge NHS to ignore patents on VERTEX CF drug
  245. Pic line vs. Port from mstein
  246. Hypersal/Hypertonic Saline not covered by insurance
  247. Increasing Lung Function
  248. Cayston Equipment?
  249. Nasal administration of antibiotics. With most Cfers we have pseudomonas in our sinus
  250. Jeanne Barnett Interview in Pharmaphorum: The Blockchain Revolution!