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  1. Has anyone tried Plexus for Blood Sugar control?
  2. Informal Survey
  3. Wisconsin CF'ers
  4. Nitrous Oxide
  5. Does anyone know what became of the drug Lynovex?
  6. new jersey cf care
  7. New Cystic Fibrosis Research takes aim at pseudomonas-aeruginosa
  8. Duke CF Center
  9. Common cold turning into more?
  10. Fighting for LungFunction
  11. Take our new survey to see what the community needs most
  12. Cayston dosages and ringing in ears
  13. Take our Survey and weigh in with what you need and want!
  14. Our Survey is a Wikipedia of needs and wants of the community!
  15. Medical tax deductions/spread sheets?
  16. Does a tune up mean iv?
  17. Tobi and Cankers
  18. MDR pseudomonas treatments?
  19. My sputum grew what?!?
  20. NYTimes cover story today, dying with teens
  21. Work
  22. 6-11 809/Kalydeco study
  23. Fda to have hearing on combo
  24. Huff Coughs
  25. Jeannie or someone set up petition for FDA comment?
  26. Blood sugar improvement!!
  27. Donate button! and other forum related stuffs
  28. Interesting article-Pharmacist committing insurance fraud
  29. Have I helped anyone on this forum?
  30. Calling our Dr. Poopologists
  31. From Jenny she wants you to know...
  32. Forum Update this Evening (late)
  33. Transplant or Not to Transplant?
  34. Email address for the fda committee
  35. Feeling tight?
  36. Those who have applied to disability
  37. Transplant documentary
  38. Port questions
  39. Weird SOB, weight on chest
  40. CF's Warped Perspective
  41. Lisa Greene's Husband Passed Away
  42. flying with CF medical equipment
  43. just wondering some feed back for this story i saw
  44. crazy sugars and a little frightened
  45. Recurring Fevers and shortness of breath
  46. Need Help!
  47. Open frontal sinus surgery
  48. Getting Port next week: words of wisdom
  49. Current kalydeco users
  50. Inpatient respiratory care
  51. FDA Comments due by April 27 for lumacaftor/ivacaftor combo
  52. International Travel
  53. Let's help protect Social Security disability by making sure SS is fully funded
  54. Tirosint (for thyroid)
  55. Seasonal Allergies Wreaking Havoc?
  56. What's with Miralax?
  57. Have you updated your profile lately?
  58. Yale Scientist use gene editing to correct mutation!
  59. Cf story just heard on radio
  60. I thought you were a smoker
  61. Great news for 6-11 for Kalydeco combo NKA "Orkambi"
  62. Question re insurance/VEST
  63. Living Today, Adding Tomorrows
  64. "Heartbroken"
  65. request for information on invasive aspergillosis in cf patients
  66. Reaction to Bactrum - Alternative suggestions?
  67. Traveling to Disney with CF, Vest, and Portable O2 concentrator?
  68. Code of Conduct
  69. Changing your user name?!?!?!
  70. Moving to Albuquerque, New Mexico
  71. If you're thinking of homeschooling and want to chat,
  72. Keeping healthy balance
  73. Story about young photographer Jan Pirnat
  74. Best portable o2 concentrator?
  75. Online Contact
  76. E rapid
  77. Lung Nodule In CF
  78. Please help
  79. A-Venters Assemble: Age of Ultra-jerks
  80. Pseudomonas- cipro + ?
  81. 2-hr OGTT worries
  82. PCOS in addition to CF
  83. FDA Advisory Committee on Combo in Process
  84. Just so tiredzzzzzzzzzzzz
  85. Cf fund raisers- do you go??
  86. CF Discovery from Feb, have you seen this?
  87. really sick guys in hospital
  88. Can people with CF get tattoos?
  89. Insight on son's cough
  90. Insurance and Working
  91. Diagnosed with CFRD yesterday.
  92. Kalydeco and birth control
  93. Doing meds
  94. Fainting/ Low Blood pressure
  95. Orkambi trial for 2-5 will be coming soon!
  96. CF Population predicted to increase
  97. IV antibiotics: Need advice
  98. thought for ddf508 with upcoming quarterly appt.
  99. A Matter of Awareness.
  100. Seven Dwarfs of CF. What one are you today!
  101. Anyone else have DILD from Ceftaz or bactrim
  102. Question about second hand smoke
  103. Keep the faith
  104. IVF: Male Factor Issue
  105. Should I do full genetic test?
  106. Adjustable bed
  107. Help with CFRD
  108. D508 and E92K. Is there any chance Orkambi will help?
  109. Jonny Simpson - An Young Man's Message of Survival
  110. Best Achievement
  111. Support CF fund drive by simply shopping online. What do you think?
  112. Pancritis problems and Celiac block? Just posted a long post under DNA and mutations
  113. Survey results Qualitative You Matter...
  114. Forteo
  115. Good battery powered Compressor
  116. Gb surgery
  117. Motivation in the Morning
  118. CF Foundation fund drive reaches 1000 hits per day!
  119. More drugs coming down the pipeline
  120. parent of a 1yr w/ cf
  121. homeopathic remedies?
  122. Leftover medications.
  123. CRMS diagnosis in child
  124. Scared-possibly have CF (input PLEASE)
  125. Inflammation
  126. How long til IV antibiotics take effect? /o2 dependency
  127. Some more great news in pipeline
  128. IVS changed every 24hrs??
  129. first time on IVs
  130. CF Poop Humor
  131. Orcambi mi uses from fda adcom
  132. More info on pipeline
  133. Could my new home be making me sick?
  134. Working with CF
  135. Anyone in the UK on Kalydeco?
  136. couple of funnies (poop-releated trigger warning) from last ER trip
  137. Teeth enamel
  138. Starting creon
  139. Improvements on kalydeco with advanced lung disease
  140. how do you chart the vest hours
  141. New Study for Ivacaftor/lumicaftor
  142. Help, a positive spectrum culture of a rare bateria
  143. Vest For Donation
  144. lingering side effects after completing IVs?
  145. Nac
  146. Positive sweat test, not a clear diagnoses? (looking for experiences)
  147. Husband with CF has no desire to have sex or be touched.
  148. Sore muscles and soft tissue
  149. Recycle your medicine bottles!
  150. Traveling to PR with CF
  151. GI lessons learned
  152. Pulmno in Chicago?
  153. Just Married! (Pictures included)
  154. Hopeful for FDA approval of Orkambi tomorrow
  155. Other possible mutations Orkami can help
  156. Orkambi is approved!
  157. Ongoing War: Iced Coffee vs. Enzymes
  158. "Live" updates from the conference if you can't call in.
  159. Post Your Orkambi Updates
  160. Problem with inhaled antibiotics
  161. Articles that helped patient with rare gating mutation get Kalydeco off-label
  162. Thumbs up clicks look like a thumb down after page refresh.
  163. Gastroparesis and Cystic Fibrosis - Looking for Answers
  164. Pharmacy and Orkambi
  165. study for VX-661 F508del+second CFTR Mutation not likely to respond to therapy
  166. VX-661-108 (residual function study)
  167. NEBULIZER tubing gets super hot -- bad?
  168. Respirtech jacket
  169. df508 Heterozygotes who might benefit from Orcambi
  170. How many calories with tube feeding?
  171. 7 month old positive for MRSA and PA
  172. Our brilliant doctor is leaving our cf clinic...how do I find a new one?
  173. mucus clearing in throat/trachea? Tips anyone?
  174. Robert Beall is retiring
  175. How do you avoid the pity party when you tell people you have CF?
  176. Saw this and had to share. People experience running like they have CF
  177. For those taking Orkambi....how has it impacted you?
  178. Immunosuppressant meds
  179. Foods that make you FART...lol
  180. transporting your nebs/meds
  181. when did your symptoms start to show?
  182. xray showing even more nodules in my lungs and mucus plug still there and more
  183. a note from Tim Wotton What is on your Bucket List?
  184. help building muscle post lung transplant
  185. Rumor mill churning re: Vertex drugs
  186. Bleeding - Rifampin???
  187. Mobilaire compressor switch broke?
  188. Mystery illness - seeking opinions
  189. Stenotrophomonas maltophilia
  190. Tube Feedings versus "Blenderized Diets"
  191. Dating another CF person
  192. New here. No diagnosis. Questions about testing.
  193. 661 study initiated for heterozygotes
  194. Vertex updates
  195. so frustrated...major drop in lung function so fast
  196. Weekly pill container
  197. Embarrassing questions about sex
  198. Canadian Health Care System
  199. For people taking Orkambi
  200. CF sweetness...and then scariness!
  201. Treatment for the mildly diseased
  202. ABPA and Xolair
  203. Calorie Needs for CFers
  204. Having trouble with CF services Grrrrrrrr
  205. other inhaled antibiotics?
  206. Weight
  207. Orkambi and M Abscessus
  208. 21 YO cf patient looking to move
  209. Medicaid criteria for Orkambi
  210. Respirtech jacket
  211. Anyone willing to do this?
  212. Anyone willing to do this?
  213. carrier with symptoms
  214. "Normal" for CF kids
  215. Error message hill rom vest
  216. Chest pain when breathing deep and coughing
  217. Orkambi Success
  218. CrossFit
  219. Good Probiotic?
  220. tri verus quad flu shot
  221. Orkambi Journey with 19 y/o Allan Diagnosed at 4 months
  222. Very sad/strange story here in San Antonio
  223. Styrofoam Rx boxes
  224. How to
  225. Overanalyzing Buggers
  226. Liquid, tablet or effervescent Zantac for kids?
  227. Orkambi and fat
  228. For California Residents - GHPP and Medicare Questions
  229. Anyone knows?
  230. Cystic Fibrosis Tag
  231. Secondary Insurance Reputations
  232. Good news
  233. Looking for more information.
  234. Highest FEV1 ever?
  235. How do you know when you need IV antibiotics?
  236. In Need o Help Right Away
  237. Traveling Abroad
  238. Stupid spirometer question
  239. strange question about chairs for vest users
  240. Looking for Stock photos for fundraising
  241. Transcript from FDA Advisory Committee Meeting for Orcambi
  242. Own your own health records?
  243. Help Please: 50 psi recommendations
  244. constant sinus drainage after lung transplant
  245. More exciting research to fix cftr
  246. scholarship info
  247. Where to find "generic" Kalydeco
  248. Pancreatic Issues and Orkambi
  249. Bronchial dialator question
  250. spacer brand