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  1. unidentified bacteria
  2. R117h kalydeco FDA committee meeting
  3. What baby bottle sterilizer do you use or nebs?
  4. aching joints (feet, hands, hips), fatigue, and headaches???
  5. Thoughts/Advice on the "Drill Out" (Draf 3) sinus surgery?
  6. financial help from government or national Health
  7. Should I get test for CF?
  8. Any blogs covering NACFC (CF conference)?
  9. Should I ask for further testing?
  10. Self-Compassion
  11. Baby bottle steam sterilizers for nebulizers...here's some efficacy data
  12. Sam's Club Diaper Wipes recall for b-cepacia possibility
  13. Some updates from the nacfc
  14. Seriously Check your meds
  15. Making yourself available for international research?
  16. Anyone allergic to Levaquin still able to take Cipro?
  17. Mycobacterium meds reassurance needed..
  18. Didnt culture MRSA this time why do my lungs feel worse
  19. physiotherapy COST ?
  20. Need someone who did full-genetic sequencing in 2005 or earlier
  21. Excess IV supplies!
  22. How to explain CF to your coworkers...or do you?
  23. rash from Enzymes?
  24. Shortness of breath...
  25. SSDI does anyone know Julie Raysbrook? from the dafcf?
  26. Heat Rash? (variant, mild CF)
  27. Passing out while coughing
  28. Job/career for 25y/o male CF'er with 30% fev1
  29. 800mg tobramycin reasonable? Urgent!
  30. Has anyone had his happen
  31. Coughing up small, hard, brown balls
  32. Have you ever checked yourself in "voluntarily" for a tune up?
  33. sinusitis?
  34. Vinegar in sinus saline rinses ?!
  35. Dishwasher broken
  36. Still waiting on genetic results
  37. Ok, I have Cystic fibrosis
  38. aerosolized amikacin
  39. My mutations
  40. How do you explain a tune up to your manager?
  41. Breathe Easy for a little girl named Faith
  42. Link between TB and diabetes in news
  43. When do your CF doctors glove up?
  44. Medicare Part A & B & D and Texas questions....
  45. Ideas for new cf product development?
  46. inhaler vs. neb albuterol with HTS
  47. blood
  48. vertex submitted its application today for double f508del to the FDA and EU
  49. Antihistamine for GI issues?
  50. When do you need Oxygen?
  51. Treatment B. Cepacia
  52. Have an idea for a new CF product?
  53. Why do I love Gatorade so much?
  54. Work / Life / Health Balance - HOW DO I?
  55. Help on PFTs. ABG and Chest X-rays, CTS and VP scans.
  56. methyltrexate
  57. stomach aches
  58. I have Cali GHPP and am now offered insurance thru job, do I have to take it?
  59. How careful are you?
  60. Ingrown hair problem
  61. Dx last wk at 32; any information on disease progression?
  62. Any advise for a mom with newborn with CF and perforated bowel emergency surgery?
  63. Guidance for new CF mom at Riley's Children?
  64. How to frame question to figure out how lungs are feeling?
  65. Help with Prescription for Kalydeco off-label
  66. CFF 3.3 billion dollars
  67. Low Cholesterol and CF?
  68. I'm 35!
  69. Clinic appointment
  70. My heart races when I just walk. I've had a transplant
  71. NPR interview with CFF
  72. Application for driver's license question.....
  73. Hi Everyone. Genitic Testing and the Mutations.
  74. Cysteamine and CF
  75. Possible recurring collapsed lung?
  76. VSL #3 probiotic
  77. CF. Marriage, and Finances... How do you make it?
  78. Nebulized Colistin.
  79. Welcome to our new website!
  80. UK CF Patient survey
  81. Port Site Question
  82. Can someone please clerify before my appointment Regarding Genitic Testing.
  83. Share your tips to improve day-to-day life!
  84. Sleep treatment
  85. My right side won't stop twitching & feeling bubbly
  86. Hi I wanted to share a great site I have found on the history of CF. Quite informativ
  87. how common is it to get kidney stones when you have CF.?
  88. increased sats after hemoptysis!
  89. Polyp???
  90. France / Germany CF Patient Survey
  91. Kalydeco update
  92. Relationship Problems
  93. Question regarding SSI/SSDI
  94. Canadian adults with CF living longer
  95. People take CF lightly
  96. Rest in Peace, Barbara
  97. CF and stomach problems.
  98. How did you get newborn screen results?
  99. What do you CF Centers say re exercise?
  100. How'd you get prenatal diagnosis?
  101. Exercise drink for someone with CFRD???
  102. Doing the vest while inverted!?!
  103. Suggestions for books/resources for newly diagnoseed?
  104. Paid Surveys for Cf Patients?
  105. Logistics for sweat test & first newborn CF appointment
  106. should I go into hospital
  107. coughing up streaks of blood and milk white mucus
  108. Need help/Advice Please
  109. Seasons Blessings
  110. Need to learn more about End Stage CF (Supporting a Friend)
  111. NoExcuses?
  112. FDA approves SNDA for kalydeco
  113. LMK or Jaxbee?
  114. What things did CF Center tell you to do/not do re avoiding infections
  115. Dartmouth clinic
  116. Happy New Year!
  117. Moving to MOBILE, ALABAMA
  118. JUST BREATHE book now up for Pre-sale
  119. International Conference on Pediatric Chronic Diseases, Disability &Human Development
  120. Need Advice. Any older adults with good lung functions and mutisystem organ problems?
  121. What helpful products for newborns or babies would you recommend?
  122. clearing techniques
  123. New discovery -- new bedspread! GREAT for my CF and allergies
  124. Where are all the people with CF on this forum when you need support?!
  125. Negative sweat test?
  126. G-Tube Advantage “Let food be your medicine and Medicine be your food” Hippocrates
  127. G-Tube Advantage II
  128. The Other Half of the Battle
  129. Wondering about CF care in Denver & TX program
  130. New type of antbiotic
  131. Anyone out there that goes to the CF clinic in Phoenix?
  132. In need of vest:Any one interested in selling or donating their vest??
  133. How often?
  134. Tricks of the trade!
  135. Cyproheptadine question
  136. Republicans trying to cut SS disability benefits
  137. What do you Centers do for transition of care?
  138. Is a decline inevitable?
  139. Anyone use ceftazidime
  140. Ideas and Solutions - The Other Half of the Battle
  141. Should Cystic Fibrosis be declared a disability?
  142. The " cure " Selenium
  143. Trio verses erapid are they interchangeable
  144. Trio verses erapid are they interchangeable
  145. "cfrd"
  146. Hickman and showering and m.abscess
  147. Coughing fit causes a tightening sensation in arm artery
  148. Swelling around port
  149. BETA TESTING for CF App
  150. CF Center Boise
  151. Cool
  152. How's the healthcare and coverage in Colorado?
  153. mortality stats for CF genotypes?
  154. Pain in lung
  155. Flu vaccine poor match for this seasons virus - make sure you have tamiflu on standby
  156. Drainage from nose
  157. What exactly is lung scarring?
  158. Does the 'Elevation Mask Training' Work to increase lung function?
  159. Ellipticals vs running ... Question about swimming
  160. Exercising with my elevation mask
  161. Does breathing with your nose vs mouth strengthen lungs?
  162. I want disability benefits from my employer... NOW!
  163. AffloVest : any experience or thoughts
  164. Looking for others that Had a High Sweat And DID not get a CF Diagnoise?
  165. Who do you see when you can't get to clinic?
  166. COSTS KILLS...slowly. Why it should be easier to qualify for SSDI.
  167. 600 mg Ib profin for rib pain not enough
  168. Hernia??
  169. Existential Crisis
  170. Can someone explain to me health insurance costs for CF employees for employers?
  171. What ELSE could an elevated sweat test indicate?
  172. Hoseless CPT vest
  173. Any smart storage solutions?
  174. CF Services no longer carrying Cayston
  175. Life Insurance
  176. Optimists
  177. App Update out for Cystic Fibrosis App!!!
  178. Staying Insured
  179. Taking Back My Home
  180. Parents of CF'ers, any cf-related symptoms?
  181. CF Clinic + Holistic medicine, does it exist? America or Europe?
  182. Hemoptysis questions
  183. Ultresa Backorder
  184. Will my insurance try to drop me if I try to get Kalydeco?
  185. I smoked cigs and marijuana, how will this effect my lungs?
  186. Can cleaning products make you cough up blood?
  187. carriers
  188. Tobi Podhaler Denied
  189. Donations for CF - Who to contact? Need help.
  190. disinfecting neb cups & bipap mask/tubing.
  191. Support expansion of SS - not cuts
  192. CF Roundtable - a free resource with legal, medical and disability info
  193. SSI approval
  194. Just an update
  195. The 2013 CFF Patient Registry Reports Just Published
  196. First PICC line ever -- panicking
  197. Ideas and Suggestions for Partnering on a CF App
  198. Minocycline Side Effects?
  199. clinical trials and social security disability
  200. not doin well and doctors dont know y
  201. Females only
  202. SOLID Diarrhea
  203. Ceftriaxone allergic reaction
  204. Arkansas medicaid case settled
  205. Looking for input from the partners of someone with CF
  206. anxious about not feeling good despite good numbers?
  207. why do I cough up blood every other month
  208. Great New Look!
  209. patient room furniture is it symbolic?
  210. taxes!
  211. Interesting New Antibiotic Research
  212. Need quick advice from adults with cf
  213. Daytona, and new book, Adults with CF Updates!!!
  214. Bill might soon allow students to self-administer enzymes in school!
  215. SSA SSDI requirments annoucement update and Disability
  216. What does colonization mean for preteen?
  217. Sorry for the down time this weekend!
  218. Vest conpressor issues
  219. How much of your depression/anxiety is caused by CF?
  220. new clinic-I do not like-anyone else go to UW Seattle?
  221. sinus problems - did anything help?
  222. Does anyone know what I can do about my severe barrel chest?
  223. Do CFers write their Bucket Lists?
  224. CFRD BS control
  225. MAC/Aspergillus
  226. Scholarships
  227. CF Awareness shirts/tank NOW Available
  228. First Tune Up
  229. Insulin Pump Users
  230. O2 at night???
  231. Anyone use Spiro PD?
  232. NAC Brands - any recommendations
  233. Antibiotics Delaying Menstrual Cycle
  234. Stomach problems/infertility in a carrier? Mild case?
  235. Marriage
  236. Jury Duty and CF
  237. Port thoughts?
  238. Mild Cyanosis of Fingernails
  239. looking toward the future
  240. Aquagenetic wrinkling that doesn't go away?
  241. Can insurance companies impose a limit on the amount spent for prescription drugs?
  242. State of GA
  243. Hoping this isn't my new normal...
  244. Anyone else have gastroperesis and CF?
  245. Do you culture MAC and swim?
  246. Mrsa?
  247. Rehabilitation?
  248. Cystic Fibrosis and Florida? Live in Florida? Please Reply!
  249. 23andme ?
  250. IV antibiotics and Migraines