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View Full Version : Adults



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  1. Voting opened for DAFCF
  2. Clinics in SW Florida
  3. Diaphragmatic muscle tightness need advice from those who had lung colapse
  4. Is nobody seeing my posts?
  5. enzyme test
  6. Not sure if i have CF, have a question about my hands
  7. Ive posted positie threads about raising my fev and had no responses ?:(
  8. Cycle for Life!
  9. "Foreverland" CF Movie:.... a young man stricken with Cystic Fibrosis,
  10. Tobi to blame for lung colapse due to excesive drying out..now to try collistin
  11. going to New York at the end of October
  12. Thursday night Chat tonight !
  13. share your information about pancreatic enzymes
  14. Anyone Else Have Inconsistent Sidestreams?
  15. My experience inhaling ozone gas bubbled thru olive oil to eliminate lung infection
  16. 22 y/o coughing up blood, CF & CFRD & newly living away from home.
  17. Hey everyone need help
  18. port issues
  19. I really just need general advice on what to do with myself.
  20. Stubborn 2 1/2 year old .....refusing enzymes
  21. looking for some good NABULIZERS which one do u use?
  22. 34 y/o woman heading back to school....scholarship?
  23. Just got a port, don't really know what do do with it.
  24. tmi constpation
  25. How to save on medical supplies, port flush, huber needle, dressing change kit, etc..
  26. Whose on Colistin?..Need some info im not familiar with this medicene
  27. Anti-Depressants
  28. Thursday night Chat tonight !
  29. Hand-held "cup" for percussions for older kids?
  30. spirometry app in development
  31. Does anyone use Bethanecol? Need some advice..
  32. Career Path and CF?
  33. Those living in NY State Please help!!!
  34. lung function
  35. Just checking in
  36. Employment & college-how to support your Child
  37. SSRIs and Hemoptysis?
  38. A Trust- putting $ in the right place
  39. Does anyone have any experience in taking Zyvox while doing a tune up?
  40. Zoloft and Prednisone
  41. Finally Home At Last
  42. NewER App for Home Spirometry
  43. Hospital stay less frightening!
  44. emoticons by Mockinbird~
  45. Does anyone know what happened to Immortal Goddez?
  46. Feeling a new sense of freedom!
  47. Wednesday Night CHAT! 8PM
  48. Can I go to the lake after transplant?
  49. Something I hope may lift some people spirits...
  50. Thursday Night Chat tonight !
  51. Where did my signature go?
  52. Cigna insurance problems?
  53. just a little fun survery. You know you are sick or go to the hospital when........
  54. Comfort a concern mother?
  55. So this is only half a joke. Crocodiles and you.
  56. Simple question about Prednisone
  57. BCMH...anyone?
  58. WTF, Why are we all so different?
  59. Wednesday Night Chat! 8pm
  60. Mycobacteria avium/ cavity in lung
  61. Ssdi
  62. Thursday night chat! 8pm
  63. Compounding Pharmacies
  64. On ivs 10 times so far this year..what now...
  65. Vest looking for good home
  66. Zyvox Acne Rash Advice
  67. When does your port stop hurting?
  68. Work and CF
  69. Creon Composition
  70. Urgent Insurance decision
  71. Cool new perk at Walgreens stores.
  72. Anti PA vaccine. Any news?
  73. Just wrote a book about my struggle with CF. It's available now on Amazon.
  74. Are there risks with exposure to Class B Biosolids?
  75. Wellbutrin?
  76. At Home Tune Up Survival-- Mom with CF
  77. Sinuses and black hair lines and spots..need advice for drainage!!!
  78. Allergy attack when I drink wine--HELP!!!
  79. Coupon in our e blast
  80. CF: Establishing Healthy CF Care Habits
  81. Cleaning out the IV supply closet-
  82. Anyone from Norway? I'm not but could you do me a favor?
  83. choose a Venona catheters - help please
  84. iv side effect
  85. Stomach issues - Gastroparesis?
  86. Joint or Muscle aches/pains
  87. sore muscles from coughing.
  88. Canadians for Kalydeco- facebook group
  89. Part B Medicare Nebulized Drugs
  90. working with Cf
  91. sore muscle from coughing vs coughin a rib out of place
  92. Tips for keeping energy up during IV's?
  93. home spirometry?
  94. 24hr hand purifier? Anybody familiar with this Qore24 or Amosil-Q?
  95. Portable O2 Question
  96. So frustrated with goverment!
  97. facial swelling and bruising... allergies?
  98. The Peace Corps
  99. MAC drug side effects
  100. Lung Bleeds and Menstrual Cycles - Link???
  101. TOBI/TOBI Podhaler
  102. Life Insurance for Cystic Fibrosis
  103. cfer on Overhaulin
  104. Abpa
  105. Kalydeco
  106. What is STOOL FOR FECAL FAT test?
  107. CF Story in Minneapolis Star-Tribune Newspaper
  108. In the middle of the night... (for bleeders)
  109. PA : Nebbing antibios
  110. Husband with CF, declining health,lungs functioning at less than 20%,what can be done
  111. Life Insurance for Cystic Fibrosis
  112. Colistin info please..First time to try it
  113. Planning to move. looking for the best suitable location for the Wife with CF
  114. Xylosoxidan
  115. Sterilizing Nebs
  116. Marine sponges advance cystic fibrosis research
  117. caughing questions
  118. power outage suggestions
  119. Nocardia
  120. Pseudomonas Aeruginosa 2 ?
  121. When is a cold no longer contagious? (Girlfriend has CF)
  122. Check your FEV1 at home...EVERY DAY!
  123. Why lunchtime?
  124. Hurricane
  125. IV at home.... in middle of night
  126. RespirTech system and vest
  127. Recommendations for "Percussor"?
  128. My niece, 15, has CF and a fever which will not go down.
  129. Advice for buying eFlow replacement pieces
  130. Hurricane updated
  131. Being on O2 and seeing "stars"?
  132. Question about diabetes testing
  133. They are putting my girlfriend on the transplant list
  134. 0,9 % Sodium Chloride between TOBI trts ?
  135. Is there ANYTHING in development to cure PA once and for all ?
  136. PICC Cover Issues-- Very complex
  137. Help Insurance Question!
  138. I'm scared and need some reassuring.
  139. Oxygen supply for visiting British CF adult
  140. Therapies and Motivation
  141. Product suggestion for our store
  142. Overseas CF clinic
  143. Colobreath
  144. ever heard of a 41 year old obese person being diagnosed?
  145. stat locks
  146. Cayston
  147. Taking Pulmozyme? Yes or No.
  148. Anyone go to the CF clinic at Johns Hopkins?
  149. Siblings without CF
  150. Jerry Cahill to be Featured on CBS’s Courage in Sports
  151. Travel Advice Needed
  152. Fungal infection in lungs
  153. Your top 3 supplements - if you could only choose three, what would they be?
  154. AeroEclipse Reusable Breath Actuated (R BAN) neb
  155. Fall over tired, and have no energy. Kind of scaring me
  156. Tired
  157. PICC Dressing Changed... Now site hurts
  158. Insurance help Please
  159. Cayston
  160. Altera Nebulizer with White Film
  161. Flu shot with antibios ?
  162. Taking sudafed...is this bad? My CF symptoms basically go away
  163. Creon question
  164. meeting someone with cf
  165. FEF25-75 Pre & Post IBUPROFEN
  166. Frustration with friends and family
  167. Looking for fellow CFer with bowel cancer...
  168. Pulmozyme
  169. tired in afternoon. dont know if i am getting sick.
  170. question re hyper-sal under 6
  171. Anyone with 3849+10kbc->t who is taking Kalydeco?
  172. Is anyone with CF a police officer?
  173. EMBARRASSING POST but.....Reality for CF Stomach Issues :0)>
  174. Hemoptysis Right After Discharge
  175. Toys For CF
  176. CF and Heart Failure?
  177. Living with CF
  178. Medicare/SSDI
  179. Brad King
  180. coughing in public -take the quiz- he he he
  181. Sterilizing with baby bottle sterilizer
  182. Peak and Trough
  183. best pricing for Mobileaire?
  184. 50 PSI Compressor--Bunn or Mobilaire?
  185. Friends Don't Get It. Frustrating!
  186. Which Nebulizer/Compressor with Coly-Mycin ???
  187. Pneumothoraces and transplant
  188. What's the harm with IV benadryl?
  189. Do you use an Air Purifier?
  190. Feeling down about kids
  191. Student Author Researching CF treatment in under-funded locations
  192. Azithromycin with NTM
  193. New Facebook Group in Spanish // Nuevo grupo en Facebook en Español
  194. Esophageal motility issues and transplant
  195. Brown blood
  196. Itchy Scalp
  197. Military - Need Help With Compassionate reassignment
  198. Minocycline Allergic Reaction
  199. CF care from Native American Reservation clinics?
  200. Remedies to reduce inflammation and volume of mucus
  201. misplaced feelings???
  202. Bronchitol: 5% FEV1 improvement with one dose
  203. Cayston and Coughing?
  204. anyone make a bus list?
  205. Abnormal pap smear
  206. Not coughing enough blood for a bronchoscopy
  207. Vitamin D deficiency
  208. Breakfast Ideas--- to prevent mid morning low blood sugars
  209. My book I wrote is eligible for our 4-for-3 promotion on amazon.com
  210. My finger nails will not grow and break so easy
  211. IV therapy at home/PICC question
  212. Two cfers need your prayers
  213. gatorade ingredient in the news
  214. Do you have to blow your nose often?
  215. Body Ache
  216. DeltaF508 and R117H
  217. CF Roundtable LIKEAPALOOZA
  218. Anyone with CFRD who is pancreatic sufficient?
  219. postural hypotension anyone?? (big drop in bp from lying/sitting to standing)
  220. New in Town
  221. iv tape
  222. Zicam nasal gel recall
  223. At The End Of My Rope & Need Some Advice Please
  224. Need life advice - very personal
  225. PICC Sore Under Wing
  226. Amber Pharmacy
  227. Merry Christmas!
  228. Merry Christmas from Nebraska
  229. Brad King got his wings ..
  230. How many adult CFers work from home?
  231. Today is my Birthday ..
  232. Please help Dalton Dingus beat the Guinness Book of World Records!
  233. 2789+5G->A mutation
  234. Old folks: how did you do it?
  235. New user-need some advice on hypoglycemia
  236. Pulmozyme/Vest
  237. absolutely NEED help with treatment compliance
  238. My CF story featured in Ireland's CF magazine!
  239. How do I make my point??
  240. PICC Clot
  241. Pulmozyme and sore lungs\tightness
  242. colloidal Silver
  243. Women-- Where to do find jeans??
  244. For those with/parents of kids with short-bowel syndrome
  245. Himalayan Salt lamps
  246. Intermittent low grade fever
  247. Where do I stand..
  248. I'm back if anyone remebers me lol
  249. Source CF Softgels
  250. DIOS/partial blockage & admission