PDA

View Full Version : Newly Diagnosed



Pages : [1] 2 3 4 5

  1. symptoms of cf in toddler........
  2. Newly diagnosed
  3. Expecting Parents of Child with CF
  4. Is it possible to have MILD CF?
  5. Who should I tell or not tell
  6. Understanding CF Lung Therapies
  7. hopeful
  8. Intro & questions????
  9. ASSISTANCE PROGRAMS -- PART 1 of 3
  10. ASSISTANCE PROGRAMS -- PART 2 of 3
  11. ASSISTANCE PROGRAMS -- PART 3 of 3
  12. New to CF
  13. New to CF
  14. dried blood in mucus
  15. Worried Mommy of 3 week old
  16. newly diagnosed
  17. Exhaled Pentane May Be an Effective Breath Test for Cystic Fibrosis: Presented at ERS
  18. what should i do?
  19. nasal polyp already? surgery in May
  20. 3 month old with cf
  21. Searchingforanswers
  22. baby night time tummy pains
  23. double doozy
  24. herbal meds
  25. anyone from Canada?
  26. Cf & gut troubles
  27. Tummy & Breathing meds...
  28. to vaccinate or not vaccinate
  29. Check out the CF Podcasts for great educational info...
  30. Is sweat testing
  31. E-visits for CF
  32. What kind of contact with a B.Cepacia person is allowed?
  33. help for a worried mum
  34. newly diagnosed at 5months old.
  35. What does this mean???
  36. help!
  37. I'm redoing this
  38. Diagnostic criteria for CF
  39. Question about "Borderline" result
  40. Newly Diagnosed
  41. Update
  42. R1158X Mutation
  43. New Resource for Breastfeeding Moms
  44. Where to start...?
  45. need answers and prayers
  46. Waiting for Answers-- VERY FRUSTRATED
  47. 10 months old... still no diagnosis
  48. genetic counseling experiences
  49. HELP!!!!!!!!!!!!!
  50. girl 14 needs answer!
  51. Toddler just Diagnosed
  52. Pulmozyme
  53. another sweat test
  54. if I'm......................
  55. False Negative Newborn Testing
  56. Pregnant
  57. Time of Diagnosis and outcomes
  58. Looking for answers
  59. now I'm being told...........
  60. Pregnant with questions
  61. Just joing....with lots & lots of ???'s
  62. Also pregnant with questions
  63. newly diagnosed 7month old son
  64. Question about CF
  65. Salt Water Studies
  66. 8 week old son possible CF
  67. Grandson just diagnosed at age 24
  68. Have Questions
  69. young mums 4 year old daughter diagnosed
  70. Infant daughters troublesome cough
  71. CF CHILDRENS BOOK - PROFIT TO CF KYLES FIRST CRUSH
  72. Waiting is very difficult...
  73. pulmo-aid compressor and neb for sale
  74. sweat test discrepancy
  75. Co Workers Children
  76. So much that I want to say...
  77. Waiting for Tests
  78. Getting the routine down
  79. New to the game
  80. So now what?
  81. Anyone dx d/t a positive newborn screen?
  82. Dont know where to go from here
  83. 3 Year old daughter with CF
  84. Climate Info
  85. Newbie.. need advise
  86. In need of guidance please!!!!!
  87. thought he had celiacs, found out he had CF
  88. Daycare and CF
  89. False Negative Sweat Tests
  90. Enzymes
  91. Progression of symptoms
  92. Looks like Larina too.
  93. bebo for cf-ers
  94. Daughter aged seven, diagnosed six months ago.
  95. Update on my granddaughter, Reese
  96. Daughter & Son-In-Law Carriers
  97. Worried if I would recognize symptoms
  98. Need to take enzymes with antibiotics?
  99. The Specialist Merry-Go-round
  100. Scared
  101. we found out
  102. Sweat Test Tomorrow
  103. Should you be taking Singulair?
  104. help
  105. Need some positive thoughts
  106. Help
  107. Lost.... ?
  108. Great Website!
  109. Sweat testing ??'s
  110. Sweat Test
  111. Genetic testing- how long does it generally take to get back
  112. Daughter newly diagnosed
  113. Looking for caretakers of children/teens with CF
  114. trying to learn more...
  115. mummified hands
  116. Sweating the SWEAT TEST
  117. SCARED
  118. nebulizer problems
  119. Share your Stories w/ me
  120. Feeling Neurotic
  121. sweat test tomorrow...concerned mom
  122. repeating the sweat test.
  123. Going for a sweat test
  124. Take a look
  125. GOING CRAZY!! NEED HELP!!
  126. Please respond ASAP!
  127. Possible CF
  128. Could it be CF?
  129. concerned mom got test results!
  130. SCARED to death not sure where to go from here
  131. Just found out
  132. Smile
  133. Can't Believe This!
  134. To: Parents of CF babies under 6 months of age
  135. Mutated form of CF
  136. Sweat Test Result
  137. CF VIDEO Podcast on exercise needs your votes!
  138. confused over testing
  139. newbie here, first post
  140. digestive only??
  141. messages for bengismum
  142. HELP
  143. new mom
  144. just found out
  145. Sweat test results
  146. New mom and I am scared
  147. I need some help
  148. Could it be something other than CF?
  149. New mom with CF baby
  150. I have been in shock
  151. Anyone had negative gene test?????
  152. 10 Days to go !!!
  153. just found out
  154. Newly Diagnosed as an Adult
  155. coughing sibling
  156. has this ever happened to anyone?
  157. Josh's Dad
  158. 18 month old possible CF, question?
  159. Mom of newly diagnosed baby venturing onto the site for the first time
  160. Catie does not have CF, but maybe Hirschsprungs?
  161. daughters diagnosed in 2005
  162. CF Children's Book - Kyle's First Crush- Profit to CF
  163. CF screened neg during pregnancy - still possible?
  164. First signs of CF?
  165. Going crazy
  166. CF World Launch
  167. S912L (other mutation unknown)
  168. Definitive CF Diagnosis
  169. HELP-What do you think?
  170. ASSISTANCE PROGRAMS
  171. How much public activity do you limit with your newborn with CF
  172. New Cf Site
  173. 5 month old in hospital
  174. 13 year old Boy-can some one help me?
  175. CF or something else???
  176. Advice for New Dad w/ 6 Wk. Old w/CF?
  177. Upcoming Sweat test
  178. Sweat test
  179. sweat test results
  180. Sweat test Results
  181. Help
  182. Listen to the Connelly Twins interview - both with CF - and how they take responsiblity for their health care!
  183. Worried mummy needing some opinions
  184. Scared
  185. Scared mom...
  186. Direct DNA fetal testing (PCR?)
  187. help
  188. Patiently Waiting..........
  189. still waiting
  190. New to this Blog
  191. Teenager with positive sweat test? What next?
  192. madison
  193. CF centers
  194. Any similar stories?
  195. My son 16 and 2nd positive Sweat Chloride
  196. 44/43 sweat test results.......lots of questions???????
  197. Please provide some information
  198. newborn diagnosed
  199. antibiotics in infants
  200. slow motor skills
  201. Is he or isn't he?
  202. Maybe CF?
  203. Anyone dx'd with type 1 diabetes and then CF?
  204. do colds turn into infections?
  205. Have you checked out the rest of CysticFibrosis.com
  206. Americans......Contact your Congress Rep
  207. Possible CF
  208. SMARTVEST - Airway Clearance System
  209. Possible CF
  210. Positive sweat test and now maybe not CF?
  211. some questions
  212. Not yet diagnosed/testing next week
  213. 68 sweat test result
  214. Adopting a child with CF
  215. question about testing
  216. View and Vote Please
  217. pregnant with 2nd child about testing during pregnancy
  218. Anybody in West Virginia???????
  219. Don't know what to do....
  220. New here
  221. Not sure what to do
  222. Just diagnosed
  223. Worried sick...
  224. Need advise
  225. Out of control....
  226. worried mother
  227. i am confused
  228. opinions wanted
  229. Definitive Diagnosis and ?'s
  230. help
  231. could this be CF???
  232. these sound different to other CF kids....
  233. need help dont know wat to do
  234. Do you think she has cf?
  235. Should I be Tested?
  236. Confusion about sweat test vs. Ambry panel
  237. Any Advice? 1 year old's chest plugged w/mucous EVERY morning
  238. Does this sound like possible CF?
  239. Optimism...
  240. waiting for genetic test results
  241. Please read my update -we had bronch/scope today
  242. UPDATE-bronch/scope yesterday -waiting results
  243. Bloodwork and CF
  244. Possible CF? What do you think?
  245. advice?
  246. 2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?
  247. result on 2nd sweat test-negative
  248. this just keeps dragging on....
  249. newborn screening
  250. The BIG FUN BOX - making fun contagious...