- symptoms of cf in toddler........
- Newly diagnosed
- Expecting Parents of Child with CF
- Is it possible to have MILD CF?
- Who should I tell or not tell
- Understanding CF Lung Therapies
- hopeful
- Intro & questions????
- ASSISTANCE PROGRAMS -- PART 1 of 3
- ASSISTANCE PROGRAMS -- PART 2 of 3
- ASSISTANCE PROGRAMS -- PART 3 of 3
- New to CF
- New to CF
- dried blood in mucus
- Worried Mommy of 3 week old
- newly diagnosed
- Exhaled Pentane May Be an Effective Breath Test for Cystic Fibrosis: Presented at ERS
- what should i do?
- nasal polyp already? surgery in May
- 3 month old with cf
- Searchingforanswers
- baby night time tummy pains
- double doozy
- herbal meds
- anyone from Canada?
- Cf & gut troubles
- Tummy & Breathing meds...
- to vaccinate or not vaccinate
- Check out the CF Podcasts for great educational info...
- Is sweat testing
- E-visits for CF
- What kind of contact with a B.Cepacia person is allowed?
- help for a worried mum
- newly diagnosed at 5months old.
- What does this mean???
- help!
- I'm redoing this
- Diagnostic criteria for CF
- Question about "Borderline" result
- Newly Diagnosed
- Update
- R1158X Mutation
- New Resource for Breastfeeding Moms
- Where to start...?
- need answers and prayers
- Waiting for Answers-- VERY FRUSTRATED
- 10 months old... still no diagnosis
- genetic counseling experiences
- HELP!!!!!!!!!!!!!
- girl 14 needs answer!
- Toddler just Diagnosed
- Pulmozyme
- another sweat test
- if I'm......................
- False Negative Newborn Testing
- Pregnant
- Time of Diagnosis and outcomes
- Looking for answers
- now I'm being told...........
- Pregnant with questions
- Just joing....with lots & lots of ???'s
- Also pregnant with questions
- newly diagnosed 7month old son
- Question about CF
- Salt Water Studies
- 8 week old son possible CF
- Grandson just diagnosed at age 24
- Have Questions
- young mums 4 year old daughter diagnosed
- Infant daughters troublesome cough
- CF CHILDRENS BOOK - PROFIT TO CF KYLES FIRST CRUSH
- Waiting is very difficult...
- pulmo-aid compressor and neb for sale
- sweat test discrepancy
- Co Workers Children
- So much that I want to say...
- Waiting for Tests
- Getting the routine down
- New to the game
- So now what?
- Anyone dx d/t a positive newborn screen?
- Dont know where to go from here
- 3 Year old daughter with CF
- Climate Info
- Newbie.. need advise
- In need of guidance please!!!!!
- thought he had celiacs, found out he had CF
- Daycare and CF
- False Negative Sweat Tests
- Enzymes
- Progression of symptoms
- Looks like Larina too.
- bebo for cf-ers
- Daughter aged seven, diagnosed six months ago.
- Update on my granddaughter, Reese
- Daughter & Son-In-Law Carriers
- Worried if I would recognize symptoms
- Need to take enzymes with antibiotics?
- The Specialist Merry-Go-round
- Scared
- we found out
- Sweat Test Tomorrow
- Should you be taking Singulair?
- help
- Need some positive thoughts
- Help
- Lost.... ?
- Great Website!
- Sweat testing ??'s
- Sweat Test
- Genetic testing- how long does it generally take to get back
- Daughter newly diagnosed
- Looking for caretakers of children/teens with CF
- trying to learn more...
- mummified hands
- Sweating the SWEAT TEST
- SCARED
- nebulizer problems
- Share your Stories w/ me
- Feeling Neurotic
- sweat test tomorrow...concerned mom
- repeating the sweat test.
- Going for a sweat test
- Take a look
- GOING CRAZY!! NEED HELP!!
- Please respond ASAP!
- Possible CF
- Could it be CF?
- concerned mom got test results!
- SCARED to death not sure where to go from here
- Just found out
- Smile
- Can't Believe This!
- To: Parents of CF babies under 6 months of age
- Mutated form of CF
- Sweat Test Result
- CF VIDEO Podcast on exercise needs your votes!
- confused over testing
- newbie here, first post
- digestive only??
- messages for bengismum
- HELP
- new mom
- just found out
- Sweat test results
- New mom and I am scared
- I need some help
- Could it be something other than CF?
- New mom with CF baby
- I have been in shock
- Anyone had negative gene test?????
- 10 Days to go !!!
- just found out
- Newly Diagnosed as an Adult
- coughing sibling
- has this ever happened to anyone?
- Josh's Dad
- 18 month old possible CF, question?
- Mom of newly diagnosed baby venturing onto the site for the first time
- Catie does not have CF, but maybe Hirschsprungs?
- daughters diagnosed in 2005
- CF Children's Book - Kyle's First Crush- Profit to CF
- CF screened neg during pregnancy - still possible?
- First signs of CF?
- Going crazy
- CF World Launch
- S912L (other mutation unknown)
- Definitive CF Diagnosis
- HELP-What do you think?
- ASSISTANCE PROGRAMS
- How much public activity do you limit with your newborn with CF
- New Cf Site
- 5 month old in hospital
- 13 year old Boy-can some one help me?
- CF or something else???
- Advice for New Dad w/ 6 Wk. Old w/CF?
- Upcoming Sweat test
- Sweat test
- sweat test results
- Sweat test Results
- Help
- Listen to the Connelly Twins interview - both with CF - and how they take responsiblity for their health care!
- Worried mummy needing some opinions
- Scared
- Scared mom...
- Direct DNA fetal testing (PCR?)
- help
- Patiently Waiting..........
- still waiting
- New to this Blog
- Teenager with positive sweat test? What next?
- madison
- CF centers
- Any similar stories?
- My son 16 and 2nd positive Sweat Chloride
- 44/43 sweat test results.......lots of questions???????
- Please provide some information
- newborn diagnosed
- antibiotics in infants
- slow motor skills
- Is he or isn't he?
- Maybe CF?
- Anyone dx'd with type 1 diabetes and then CF?
- do colds turn into infections?
- Have you checked out the rest of CysticFibrosis.com
- Americans......Contact your Congress Rep
- Possible CF
- SMARTVEST - Airway Clearance System
- Possible CF
- Positive sweat test and now maybe not CF?
- some questions
- Not yet diagnosed/testing next week
- 68 sweat test result
- Adopting a child with CF
- question about testing
- View and Vote Please
- pregnant with 2nd child about testing during pregnancy
- Anybody in West Virginia???????
- Don't know what to do....
- New here
- Not sure what to do
- Just diagnosed
- Worried sick...
- Need advise
- Out of control....
- worried mother
- i am confused
- opinions wanted
- Definitive Diagnosis and ?'s
- help
- could this be CF???
- these sound different to other CF kids....
- need help dont know wat to do
- Do you think she has cf?
- Should I be Tested?
- Confusion about sweat test vs. Ambry panel
- Any Advice? 1 year old's chest plugged w/mucous EVERY morning
- Does this sound like possible CF?
- Optimism...
- waiting for genetic test results
- Please read my update -we had bronch/scope today
- UPDATE-bronch/scope yesterday -waiting results
- Bloodwork and CF
- Possible CF? What do you think?
- advice?
- 2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?
- result on 2nd sweat test-negative
- this just keeps dragging on....
- newborn screening
- The BIG FUN BOX - making fun contagious...