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  • Praetorian's Avatar
    Today, 01:47 PM
    Praetorian replied to a thread Weight Gain in Nutrition
    Alex, I don't know your daily habits or energy levels, but what has worked for me so far is to focus on proteins and use fat as a secondary energy...
    86 replies | 20000 view(s)
  • rtorres25's Avatar
    Yesterday, 10:14 PM
    rtorres25 replied to a thread Symdeko Headache in Adults
    Your headache sounds like the one I had when my O2 levels dropped. Do you have a pulse oximeter to check it before you get out of bed? Mine were...
    2 replies | 572 view(s)
  • Printer's Avatar
    Yesterday, 03:51 PM
    Ken: I'm so very glad that you are doing well. Bill
    2 replies | 222 view(s)
  • Imogene's Avatar
    Yesterday, 08:01 AM
    https://pharmaphorum.com/news/patients-call-for-end-to-two-year-row-over-cf-drug-funding/?utm_source=pharmaphorum+Daily+Newsletter+%28updated+at+17082...
    0 replies | 166 view(s)
  • Imogene's Avatar
    06-18-2018, 04:42 PM
    Survey #3https://www.surveymonkey.com/r/NR9PRDY has 100 participants! 25.00 gift cards to participant 125 and 150! Participant 100 is from...
    33 replies | 16687 view(s)
  • Palmer's Avatar
    06-18-2018, 08:35 AM
    Palmer replied to a thread American Healthcare Act in Adults
    it's all very sad
    39 replies | 8349 view(s)
  • kenna2's Avatar
    06-15-2018, 05:39 PM
    kenna2 replied to a thread Symdeko Headache in Adults
    I had headaches when I first started Symdeko as well. They went away after about 3 weeks for me. Still on Symdeko and doing well. Hopefully this is...
    2 replies | 572 view(s)
  • ethan508's Avatar
    06-15-2018, 12:16 PM
    ethan508 started a thread Symdeko Headache in Adults
    I am switching from Orkambi to Symdeko because the Orkambi had consistently increased the tight feeling in my breathing despite me picking up...
    2 replies | 572 view(s)
  • ethan508's Avatar
    06-15-2018, 12:02 PM
    ethan508 replied to a thread Question about order in Adults
    Thanks for posting that study Stephan, very interesting.
    11 replies | 1685 view(s)
  • LittleLab4CF's Avatar
    06-15-2018, 02:04 AM
    LittleLab4CF replied to a thread Question about order in Adults
    I'm not going to be able to answer your question about Xopenex. I did a "Search" of Xopenex and there are in excess of 500 references in over 500...
    11 replies | 1685 view(s)
  • Starfall99's Avatar
    06-14-2018, 11:38 AM
    Starfall99 replied to a thread Question about order in Adults
    Was just logging in to post this exact question, so thanks outofthisworld! I've been doing Pulmozyme after airway clearance, because my previous CF...
    11 replies | 1685 view(s)
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