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My Name is siavash Levy! I am 36 years old ( I see a lot of older ages on here. Wow. We came a long way in the CF community ) I was diagnosed with...

Were any of you able to start the Trikafta while dealing with a current lung infection, or did you have to clear up the lung infection first before...

The impact that CBD Cannabidiol has on the human cerebrum and body, for instance, can't be contrasted with some other characteristic or counterfeit...

Hi. I was the same as you. Spitting up a lot the first day, than it stopped. But I can breath better and less winded.

My experience with Trikafta has been awesome. Before I started Trikafta two weeks ago, my pfts were in the low 20s and I was on O2 5 liters, 24/7....

My son just started taking Trikafta this week, we are on day 3. So far haven't seen much of a change in his cough or purging yet but we are lucky in...

I’ve been on Trikafta for a week exactly. Orkambi and Symdeko did nothing for me (2 copies f508del ). I was at my wit’s end with the return of the...

Kenna2.... I had pretty much everything you can think of... body aches, fever, severe diarrhea, severe vomiting, terrible itching all over, a...

When ds started orkambi he had a stuffy nose, cold like symptoms and digestive issues. Very loose stools, liquid for several days. Being his main cf...

Not everyone's purge begins right away. When I took Symdeko and Orkambi, it was a couple of weeks before my purge period started.

"Hi, my son has these exact mutations and he did develop atypical cystic fibrosis. I would say, keep and I on him. My son has lung and sinus...

2.5 years after this study was started, they FINALLY opened it up to those with rare mutations other than nonsense mutations. ...

Thanks spoke with cf staff here and am eligible! Just need it to be approved here in Australia

With one copy of the DF508 you should be eligible. Here's a link to the med site for more information. https://www.trikafta.com/

Chaos...I'm so glad to hear that you're pfts are amazing and that you're willing to give Trikafta a shot. Can I ask what symptoms you were...

So CF has to start somewhere. I am the first and only one in my family who has it. My parents are the only carriers in their family (including...