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  • kenna2's Avatar
    Today, 12:12 PM
    So CF has to start somewhere. I am the first and only one in my family who has it. My parents are the only carriers in their family (including...
    1 replies | 101 view(s)
  • GregorySpove's Avatar
    Today, 11:44 AM
    Каждый человек в процессе своей трудовой деятельности нуждается в отдыхе. Также...
    0 replies | 4 view(s)
  • Sorara22's Avatar
    Yesterday, 02:32 PM
    Hello all, This is a new forum to me. I am looking for answers. My son was born in April, he had high bilirubin for the first 5 weeks of his life,...
    1 replies | 101 view(s)
  • ChaosEst1979's Avatar
    Yesterday, 01:36 PM
    Thank you all for your questions and responses. I took the first two modulators briefly and had horrific side effects to both causing me to stop...
    11 replies | 2866 view(s)
  • kenna2's Avatar
    Yesterday, 10:10 AM
    Before starting Orkambi I was at 46% and before Symdeko I was at 58%. I am now at 65% and still waiting for insurance to approval. I completely...
    11 replies | 2866 view(s)
  • Jeana Lynn's Avatar
    Yesterday, 02:10 AM
    kenna2 with all the different junk you were coughing up, what was your starting fev1? In a way, I am a little terrified of all the coughing from the...
    11 replies | 2866 view(s)
  • kenna2's Avatar
    11-18-2019, 09:22 PM
    For me it took me a couple of days for me to start feeling the changes, but it took me a couple months to look back and realize "wow I feel better"....
    11 replies | 2866 view(s)
  • Hail2Pitt's Avatar
    11-18-2019, 03:47 PM
    Thanks for your reply! It's helpful to hear what you and others experienced with the junk you were bringing up. This is actually my first modulator,...
    11 replies | 2866 view(s)
  • kenna2's Avatar
    11-17-2019, 10:52 AM
    kenna2 replied to a thread Creon causing reflux? in Adults
    I've never had an issue with enzymes and reflux, however, acid reflux can become a much bigger issue when it comes to lung health. If gets out of...
    1 replies | 252 view(s)
  • MotherofCFBoy11yrs's Avatar
    11-17-2019, 07:00 AM
    My son, now 18, has had reflux for the last year or so. Before this he never had this problem. It occurred to me that the reflux started around...
    1 replies | 252 view(s)
  • kenna2's Avatar
    11-14-2019, 04:52 PM
    So the amount you are getting up is probably from both the infection and from the Trikafta. I've been seeing lately that people who are taking it are...
    11 replies | 2866 view(s)
  • Jeana Lynn's Avatar
    11-14-2019, 04:29 PM
    Jeana Lynn started a thread Speed Bump in Adults
    So you know the saying, "I live life in the fast lane, but my wife is a speed bump?" That is my husband and I. Today my husband said that he still...
    0 replies | 91 view(s)
  • Hail2Pitt's Avatar
    11-14-2019, 03:55 PM
    Hi kenna2 - I wanted to ask you some follow-up questions about your experience on Orkambi and Symdeko. I got my Trikafta, and started taking it a...
    11 replies | 2866 view(s)
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