Activity Stream

Please reach out to the representatives and let them know we are beginning our Blockchain Pilot: endeavoring to pay patients for their data! All...

I reached out to Representative Eric Swalwell of California: Rep Swalwell! Very sorry to hear your daughter Cricket was in the hospital for...

I rinse the "connector" on the Nebulizer Connection Cord with hot water when it becomes sticky.

I'm scared of the things I have heard about Clomid. However, every medication has it's up and it's downs right? Hopefully my CF doctor can point me...

I'm so sorry to hear that! I know it's terrifying to lose so much so quickly. Some ideas... I assume you already had/have had IV antibiotics and...

Yes it is, it's one of the ones listed on the website that you gave me when I input my information.

Meggy, Is it at an accredited CF Center? That should be easy enough to check by going to the Cycsic Fibrosis Foundation website or to the link...

Yeah I made an appointment for Monday with the doctor that my regular doctor suggested.

I'll beat Printer and tell you to find a Cystic Fibrosis Foundation accredited CF Care Center! Follow the link below and enter your location. There...

My name is Meggy I am a female I am 29 years of age I am married to a Airforce Airman We live in Northern California I love hanging out with...

In today's world everybody seems to have tattoos. When I was young, getting something as noticeable as a tattoo, nose rings, gauges and such labeled...

UT Southwestern Dallas Tx. Great place for having Lung Transplant!

My daughter had her first port placed when she was a pre-teen. Her surgeon at our peds hospital placed it on her side. It is so nice since she can...

I went to nursing school, but after I got licensed I didn't want to expose myself to all the germs. So I got my MBA and weaseled my way into...

some hospitals and interventional radiologists outright refuse to do arm or leg ports. there are none in kansas city that will honor such a request....

Hi Matthew! Sorry to hear you are having a hard time. I helped to create a YouTube channel for this exact reason! We are a collaborative YouTube...

Hi I am from MOROCCO. My little baby is class I/class II mutations and she is PS till now. She is 9 months. Diagnosed at her birth thanks to...

https://www.foundcare.com/Patients/everyday-specials.html I now have to use Accredo for Cayston, but used to get it filled through Foundation Care...

Hi Matthew. Sorry to hear you're feeling alone. CF can be such an isolating disease. There's a CF discord where you'll be able to connect with others...

The bleeding happens because of increased heart rate, air doesn't make a difference. I have never been able to work out outside in Ohio's cold winter...

Having my first port I was asked where I wanted it. Since I have a fear of being stabbed in the chest, I opted for the arm. They do them in arms,...

port has advantages yes. but what they dont explain to you is the pains after. just basic nerve pain constantly. youll need to request a .5inch...