Activity Stream - CysticFibrosis.com

Sort By	Time	Show
Recent Recent Popular Popular	Anytime Anytime Last 24 Hours Last 24 Hours Last 7 Days Last 7 Days Last 30 Days Last 30 Days	All All Photos Photos Forum Forums

Older Activity
Today, 12:13 AM

Gammaw replied to a thread Class trip in Families

We all constantly try to balance safety with fun - whether you have CF or not. Some things are just outside our risk tolerance - CF or not. It’s...

see more

3 replies | 94 view(s)
Yesterday, 08:10 AM

Ratatosk replied to a thread Class trip in Families

I don't have CF, but I've been to a couple different caves before DS wcf was born --- Colossal Cave in Arizona was a dry cave. I remember thinking...

see more

3 replies | 94 view(s)
Yesterday, 02:32 AM

ymikhale replied to a thread Class trip in Families

HI, I always avoid this kind of stuff, even though my DD is disapointed, she eventually gets over it. There are plenty of other fun things to do and...

see more

3 replies | 94 view(s)
10-15-2018, 04:52 PM

Rebjane replied to a thread Painting and CF ( artistic CF input):) in Adults

Thank you all for your wonderful input! I think as long as there is good air circulation(outside) it's worth a try. She is so creative and I want...

see more

5 replies | 576 view(s)
10-15-2018, 03:29 PM

threebabies started a thread Class trip in Families

Hi my twin boys (both cfers) are supposed to be going on a class trip to Howe Cavern in Upstate New York. The caves are about 100 feet underground. I...

see more

3 replies | 94 view(s)
10-15-2018, 12:51 PM

hammerpocket replied to a thread Painting and CF ( artistic CF input):) in Adults

I went to art school "many moons ago" as well (and have CF). I'm surprised your sister would suggest that acrylic paint might be harmful. Of course,...

see more

5 replies | 576 view(s)
10-15-2018, 11:35 AM

imported_MaggieB replied to a thread Painting and CF ( artistic CF input):) in Adults

Hi! I’m 44 w/CF, and acrylics have never bothered me! Oils smell strong, but acrylics are their CF-friendly counterparts! Let there be art!! :)

see more

5 replies | 576 view(s)
10-15-2018, 08:07 AM

Ratatosk replied to a thread Painting and CF ( artistic CF input):) in Adults

I think, too that certain paints -- oils and oils used to clean brushes would be more of an irritant. Acrylics usually don't have much of an odor. ...

see more

5 replies | 576 view(s)
10-15-2018, 05:26 AM

ratin97 replied to a thread What does yoga do for you? in Exercise & Fitness

that was helpful, and i will use it in my site.

see more

22 replies | 5326 view(s)
10-14-2018, 08:11 PM

kenna2 replied to a thread Painting and CF ( artistic CF input):) in Adults

I don't paint, however I think you should get her the paints. If it's therapeutic to her then I think it's worth it. With CF there are some things...

see more

5 replies | 576 view(s)
10-14-2018, 06:52 AM

Rebjane replied to a thread Daughter needing diagnosis in Newly Diagnosed

https://www.cff.org/What-is-CF/Diagnosed-With-Cystic-Fibrosis/ Found this on the CF website lots of good info.

see more

4 replies | 498 view(s)
10-14-2018, 06:48 AM

Rebjane replied to a thread Daughter needing diagnosis in Newly Diagnosed

Hope it's not CF but definately needs to be addressed and ruled in or out. When is her appointment with the CF doctor? A sweat test is a test they...

see more

4 replies | 498 view(s)
10-14-2018, 06:36 AM

Rebjane started a thread Painting and CF ( artistic CF input):) in Adults

Wondering about recommendations for paints that will not irritate CF lung? My daughter has a strong artistic streak(very therapeutic and relaxing...

see more

5 replies | 576 view(s)
10-11-2018, 07:14 PM

Nickel replied to a thread Daughter needing diagnosis in Newly Diagnosed

I agree. I just spoke with her Dr. and shes sending the referral to a CF specialist in Lexington KY.

see more

4 replies | 498 view(s)
10-11-2018, 12:19 PM

Michaelp397 replied to a thread Dry Cough/Symdeko in Adults

I tried 7% and it was way to strong all I did was cough the entire time so now they have me on 3% it's much more tolerable. Good luck!

see more

6 replies | 1692 view(s)
10-11-2018, 09:03 AM

Ratatosk replied to a thread Dry Cough/Symdeko in Adults

Whoops, yes, sorry about that. Generic 7% hypertonic saline. :)

see more

6 replies | 1692 view(s)
10-11-2018, 08:42 AM

Michaelp397 replied to a thread Dry Cough/Symdeko in Adults

When you say Hypersal do you mean Hypertonic Saline?

see more

6 replies | 1692 view(s)
10-10-2018, 02:15 PM

Ratatosk replied to a thread Dry Cough/Symdeko in Adults

He had a clinic appointment last week and his pfts were fine and he isn't culturing anything other than normal flora. I did mention the cough, they...

see more

6 replies | 1692 view(s)